Research Topics
Species | Donald BaileySummaryAffiliation: RTI International Country: USA Publications
Research Grants
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Detail Information
Publications
Design and evaluation of a decision aid for inviting parents to participate in a fragile X newborn screening pilot studyDonald B Bailey
RTI International, Research Triangle Park, 3040 Cornwallis Road, NC 27709, USA
J Genet Couns 22:108-17. 2013..The IDM provides a model for consent in research disclosing complicated genetic information of uncertain value...
Caregiver opinions about fragile X population screeningDonald B Bailey
Social, Statistical, and Environmental Sciences Group, RTI International, Research Triangle Park, North Carolina, USA
Genet Med 14:115-21. 2012..We sought to determine caregiver perceptions about population screening for fragile X and to examine factors potentially associated with support for screening...- Medication utilization for targeted symptoms in children and adults with fragile X syndrome: US surveyDonald B Bailey
RTI International, Research Triangle Park, 3040 Cornwallis Road, Research Triangle Park, NC 27709, USA
J Dev Behav Pediatr 33:62-9. 2012..To identify the most common neurological and behavioral symptoms treated by medications in individuals with fragile X syndrome (FXS), factors associated with treatment variability, and difficulty in swallowing a pill... 
Modeling the impact of formal and informal supports for young children with disabilities and their familiesDonald B Bailey
RTI International, 3040 Cornwallis Rd, Research Triangle Park, NC 27709 2194, USA
Pediatrics 120:e992-1001. 2007..The purpose of this work was to examine factors related to perceived impact of early intervention on children with disabilities and their families...- Family adaptation to intellectual and developmental disabilitiesDonald B Bailey
RTI International, 3040 Cornwallis Rd, Research Triangle Park, NC 27709, USA
Ment Retard Dev Disabil Res Rev 13:291-2. 2007 - Maternal depression and developmental disability: research critiqueDonald B Bailey
RTI International, Research Triangle Park, NC 27709 2194, USA
Ment Retard Dev Disabil Res Rev 13:321-9. 2007..Research is also needed to study treatments to reduce the occurrence of both depressive symptoms and clinical depression... - Child and genetic variables associated with maternal adaptation to fragile X syndrome: a multidimensional analysisDonald B Bailey
RTI International, Research Triangle Park, North Carolina 27709 2194, USA
Am J Med Genet A 146:720-9. 2008..Future research needs to identify family, child, and support factors associated with maternal vulnerability and how adaptation changes over time in response to these factors... - Ethical, legal, and social concerns about expanded newborn screening: fragile X syndrome as a prototype for emerging issuesDonald B Bailey
RTI International, 3040 Cornwallis Rd, Research Triangle Park, NC 27709 2194, USA
Pediatrics 121:e693-704. 2008.... - Supporting family adaptation to presymptomatic and "untreatable" conditions in an era of expanded newborn screeningDonald B Bailey
RTI International, Research Triangle Park, NC 27709 2194, USA
J Pediatr Psychol 34:648-61. 2009..With an expansion of screening, strategies will be needed to support family adaptation to unexpected and possibly uncertain genetic information provided shortly after birth... - Co-occurring conditions associated with FMR1 gene variations: findings from a national parent surveyDonald B Bailey
RTI International, Research Triangle Park, North Carolina 27709 2194, USA
Am J Med Genet A 146:2060-9. 2008.... - No change in the age of diagnosis for fragile x syndrome: findings from a national parent surveyDonald B Bailey
RTI International, Research Triangle Park, NC 27709 2194, USA
Pediatrics 124:527-33. 2009..To determine recent trends in the diagnosis of children with fragile X syndrome (FXS) and identify factors associated with the timing of diagnosis... - Functional skills of individuals with fragile x syndrome: a lifespan cross-sectional analysisDonald B Bailey
RTI International, Research Triangle Park, North Carolina, USA
Am J Intellect Dev Disabil 114:289-303. 2009.... - Using a parent survey to advance knowledge about the nature and consequences of fragile X syndromeDonald B Bailey
RTI International, Research Triangle Park, NC, USA
Am J Intellect Dev Disabil 115:447-60. 2010.... - Changing perspectives on the benefits of newborn screeningDonald B Bailey
RTI International, Research Triangle Park, North Carolina 27709 2194, USA
Ment Retard Dev Disabil Res Rev 12:270-9. 2006..We conclude by suggesting several key research studies needed to further inform public policy... - ADHD symptoms in children with FXSKelly Sullivan
The University of North Carolina, Chapel Hill, North Carolina, USA
Am J Med Genet A 140:2275-88. 2006..Teachers were more likely than parents to rate boys as meeting DSM-IV criteria for ADHD when boys had lower levels of FMRP... - Obesity, food selectivity, and physical activity in individuals with fragile X syndromeMelissa Raspa
RTI International, Research Triangle Park, NC, USA
Am J Intellect Dev Disabil 115:482-95. 2010..Continued monitoring of the health status of individuals with fragile X syndrome is recommended... - Regulation and mindful resident care in nursing homesCATHLEEN S COLON-EMERIC
Duke University Medical Center and the Durham VA GRECC, Durham, NC, USA
Qual Health Res 20:1283-94. 2010..When managers emphasized the punitive aspects of regulation we observed a decrease in mindful practices in all facilities... - A place for genetic uncertainty: parents valuing an unknown in the meaning of diseaseIan Whitmarsh
University of North Carolina, Chapel Hill, NC, USA
Soc Sci Med 65:1082-93. 2007..These multiple and often conflicting evaluations of the diagnostic label reveal the rich ways families make meaning of the authority attributed to genetic diagnosis... - Pediatricians' knowledge of and attitudes toward fragile X syndrome screeningAlex R Kemper
Department of Pediatrics, Duke University Medical Center, Program on Pediatric Health Services Research, Durham, NC, USA
Acad Pediatr 9:114-7. 2009..Fragile X syndrome (FXS) screening exemplifies the challenges of screening for rare genetic conditions, including the potential to detect carriers and the lack of evidence regarding the benefit of early intervention... - Mood and anxiety disorders in females with the FMR1 premutationJane E Roberts
FPG Child Development Institute, The University of North Carolina at Chapel Hill, North Carolina, USA
Am J Med Genet B Neuropsychiatr Genet 150:130-9. 2009.... - Screening for Fragile X Syndrome: parent attitudes and perspectivesDebra Skinner
FPG Child Development Institute, University of North Carolina at Chapel Hill, 27599-8180, USA
Genet Med 5:378-84. 2003..CONCLUSION: Parents' support for FXS screening is at odds with current screening criteria, but as new genetic knowledge and technologies reconfigure these criteria, it will be important to take parents' perspectives into account... - Discovering fragile X syndrome: family experiences and perceptionsDonald B Bailey
Frank Porter Graham Child Development Institute, University of North Carolina at Chapel Hill, 27599, USA
Pediatrics 111:407-16. 2003.... - Adaptive behavior in children with fragile X syndromeDeborah D Hatton
Frank Porter Graham Child Development Institute University of North Carolina at Chapel Hill, 27599, USA
Am J Ment Retard 108:373-90. 2003..Comparison to Brief IQs indicate that children with fragile X syndrome display nonverbal IQs superior to their adaptive behavior when they are below age 10 but that these skills seem to converge as they get older... - Newborn screening for fragile X syndromeDonald B Bailey
Frank Porter Graham Child Development Institute, CB 8180, University of North Carolina at Chapel Hill, Chapel Hill, North Carolina 27599, USA
Ment Retard Dev Disabil Res Rev 10:3-10. 2004..Fragile X syndrome is offered as a prototype for many of the issues that will face society as more genetic disorders are discovered and new technologies for screening are developed... - Perceived quality of life in mothers of children with fragile X syndromeAnne C Wheeler
FPG Child Development Institute, University of North Carolina, Chapel Hill, NC 27599 8180, USA
Am J Ment Retard 113:159-77. 2008..The most common positive factor was being a mother. However, they also indicated that parenting a child with fragile X presented challenges and stressors, primarily when the social environment was not supportive... - Problem behavior in boys with fragile X syndromeDeborah D Hatton
Frank Porter Graham Child Development Center, University of North Carolina at Chapel Hill, Chapel Hill, North Carolina 27599 8180, USA
Am J Med Genet 108:105-16. 2002..Children taking medication differed from boys who were not taking medication on social problems, but not on attention and thought problems. Low adaptability and more autistic characteristics predicted thought problems... - Autistic behavior in children with fragile X syndrome: prevalence, stability, and the impact of FMRPDeborah D Hatton
FPG Child Development Institute, The University of North Carolina at Chapel Hill, Chapel Hill, North Carolina 27599, USA
Am J Med Genet A 140:1804-13. 2006..9% of boys) scored at or above the cutoff for autism. CARS scores increased slowly, yet significantly, over time, and low levels of FMRP were associated with higher mean levels of autistic behavior as measured by the CARS... - Thirty-six-month outcomes for families of children who have disabilities and participated in early interventionDonald B Bailey
Frank Porter Graham Child Development Institute, University of North Carolina, Chapel Hill, North Carolina 27599, USA
Pediatrics 116:1346-52. 2005..The purpose of this study was to assess family outcomes at the end of early intervention (near the child's third birthday)... - Newborn screening for developmental disabilities: reframing presumptive benefitDonald B Bailey
University of North Carolina at Chapel Hill, Chapel Hill, NC 27599 8180, USA
Am J Public Health 95:1889-93. 2005..Newborn screening provides other societal benefits that, in the absence of data showing harm and with appropriate attention to ethical and legal issues, warrant consideration of an expansion of targets for newborn screening... - Academic skills of boys with fragile X syndrome: profiles and predictorsJane E Roberts
Frank Porter Graham Child Development Institute, University of North Carolina at Chapel Hill, USA
Am J Ment Retard 110:107-20. 2005..Nonverbal IQ and FMR protein expression were not associated with the level or rate of change; however, autistic behavior and maternal education were related to academic achievement scores... - First experiences with early intervention: a national perspectiveDonald B Bailey
Frank Porter Graham Child Development Institute, University of North Carolina at Chapel Hill, Chapel Hill, North Carolina 27599, USA
Pediatrics 113:887-96. 2004.... - Developmental screening and detection of developmental delays in infants and toddlers with fragile X syndromePenny L Mirrett
FPG Child Development Institute, University of North Carolina at Chapel Hill, 27599 8180, USA
J Dev Behav Pediatr 25:21-7. 2004..These results indicate that developmental delays could be detected in most children with fragile X syndrome through routine developmental screening by the age of 9 to 12 months... - Video analysis of sensory-motor features in infants with fragile X syndrome at 9-12 months of ageGrace T Baranek
Division of Occupational Science, Department of Allied Health Sciences, University of North Carolina at Chapel Hill, NC 27599 7120, USA
J Autism Dev Disord 35:645-56. 2005..e., age walking) than later, more broad, developmental outcomes, or FMRP. Implications for early identification and differential diagnosis are discussed... - Mapping nonverbal IQ in young boys with fragile X syndromeMartie Skinner
Social Development Research Group, University of Washington, Seattle, Washington 98115, USA
Am J Med Genet A 132:25-32. 2005..These findings suggest that declines in IQ are the result of steady, but suboptimal intellectual growth, rather than a true deterioration in overall intellectual functioning... - Sustained attention and response inhibition in boys with fragile X syndrome: measures of continuous performanceKelly Sullivan
The University of North Carolina at Chapel Hill, Chapel Hill, North Carolina 27599 8040, USA
Am J Med Genet B Neuropsychiatr Genet 144:517-32. 2007..For both boys with FXS and their MA matches, performance was better on the visual CPT than on the auditory CPT though this effect may be attributable to a number of factors other than the modality... - Self-injurious behavior in young boys with fragile X syndromeFrank J Symons
Department of Educational Psychology, College of Education and Human Development, University of Minnesota, Minneapolis, Minnesota 55455, USA
Am J Med Genet A 118:115-21. 2003..Results are discussed in terms of future research designed to further elucidate the behavioral phenotype of fragile X syndrome... - Developmental trajectories and correlates of sensory processing in young boys with fragile X syndromeGrace T Baranek
Division of Occupational Science, Department of Allied Health Sciences, University of North Carolina at Chapel Hill, Chapel Hill, NC 27599, USA
Phys Occup Ther Pediatr 28:79-98. 2008..No longitudinal study on sensory processing in children with fragile X syndrome (FXS) exists. This study examined developmental trajectories and correlates of sensory processing from infancy through preschool years in 13 boys with FXS...
Research Grants
- Attention, Memory, and Executive Function in Fragile XDonald Bailey; Fiscal Year: 2006..abstract_text> ..