Research Topics
| Jin Shei LaiSummaryAffiliation: Northwestern University Country: USA Publications
Research Grants
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Detail Information
Publications
An item bank was created to improve the measurement of cancer-related fatigueJin Shei Lai
Evanston Northwestern Healthcare, 1001 University Place, 100, Evanston, IL 60201, USA
J Clin Epidemiol 58:190-7. 2005..A working item bank is essential for development of a CAT platform. The present report describes the building of an operational item bank for use in clinical settings with the ultimate goal of improving CRF identification and treatment...
Development of six PROMIS pediatrics proxy-report item banksDebra E Irwin
Department of Epidemiology, University of North Carolina at Chapel Hill, NC 27599, USA
Health Qual Life Outcomes 10:22. 2012....
Quality-of-life measures in children with neurological conditions: pediatric Neuro-QOLJin Shei Lai
Department of Medical Social Sciences, Feinberg School of Medicine at Northwestern University, Chicago, IL 60611, USA
Neurorehabil Neural Repair 26:36-47. 2012..A comprehensive, reliable, and valid measurement system is needed to monitor changes in children with neurological conditions who experience lifelong functional limitations...- The psychosocial impact of cancer: evidence in support of independent general positive and negative componentsJin Shei Lai
Department of Medical Social Sciences, Feinberg School of Medicine at Northwestern University, 710 North Lake Shore Drive, 729, Chicago, IL 60611, USA
Qual Life Res 21:195-207. 2012..Research is now needed to evaluate the relationship between negative and positive impacts. This paper reports the development and validation of a measurement model capturing positive and negative psychosocial illness impacts... - Item banking to improve, shorten and computerize self-reported fatigue: an illustration of steps to create a core item bank from the FACIT-Fatigue ScaleJin Shei Lai
Center on Outcomes, Research and Education, Evanston Northwestern Healthcare, Evanston, Illinois 60201, USA
Qual Life Res 12:485-501. 2003..The resulting item bank can serve as a core to which will be added a psychometrically sound and operational item bank covering the entire fatigue continuum... - Anorexia/cachexia-related quality of life for children with cancerJin Shei Lai
Center on Outcomes, Research and Education CORE, Evanston Northwestern Healthcare, Evanston, Illinois 60201, USA
Cancer 104:1531-9. 2005..The purpose of the current article was to test the psychometric properties of a newly developed pediatric Functional Assessment of Anorexia and Cachexia Therapy (peds-FAACT) for children with cancer... - Classical test theory and item response theory/Rasch model to assess differences between patient-reported fatigue using 7-day and 4-week recall periodsJin Shei Lai
Center on Outcomes, Research and Education, Evanston Northwestern Healthcare, Evanston, IL 60201, USA
J Clin Epidemiol 62:991-7. 2009..This study compared self-reported fatigue between 7-day and 4-week time frames and explored factors that affect patients' responses... - Measuring fatigue for children with cancer: development and validation of the pediatric Functional Assessment of Chronic Illness Therapy-Fatigue (pedsFACIT-F)Jin Shei Lai
Center on Outcomes, Research and Education CORE, Evanston Northwestern Healthcare, Evanston, IL 60201, USA
J Pediatr Hematol Oncol 29:471-9. 2007..The pedsFACIT-F was significantly correlated to the PedsQL Multidimensional Fatigue Scale. In conclusion, the pedsFACIT-F demonstrates satisfactory reliability and validity and can be a useful tool in clinical trials and other research... - Factor analysis techniques for assessing sufficient unidimensionality of cancer related fatigueJin Shei Lai
Center on Outcomes, Research and Education, Evanston Northwestern Healthcare and Northwestern University, 1001 University Place, Suite 100, 60201 Evanston, IL, USA corrected
Qual Life Res 15:1179-90. 2006..We evaluated this question using factor analysis techniques including the theory-driven bi-factor model... - Developing a health-related quality of life instrument for childhood brain tumor survivorsJin Shei Lai
Center on Outcomes, Research and Education, Evanston Northwestern Healthcare, 1001 University Place, Suite 100, Evanston, IL 60201, USA
Childs Nerv Syst 23:47-57. 2007..This paper documents the development of the Pediatric Functional Assessment of Cancer Therapy-Childhood Brain Tumor Survivor (PedsFACT-BrS) for use with survivors for at least 1 year posttreatment... - Parent-perceived child cognitive function: results from a sample drawn from the US general populationJin Shei Lai
Department of Medical Social Sciences, Feinberg School of Medicine, Northwestern University, 710 N Lake Shore Drive, Chicago, IL 60611, USA
Childs Nerv Syst 27:285-93. 2011..This paper reports the development and evaluation of a perceived cognitive function (pedsPCF) item bank reported by parents of the pediatric US general population... - Using Q-methodology to understand perceived fatigue reported by adolescents with cancerJin Shei Lai
Center on Outcomes, Research and Education, Evanston Northwestern Healthcare, Evanston, Illinois 60201, USA
Psychooncology 16:437-47. 2007..Appropriate referral for patients with the latter two descriptors of fatigue was recommended... - Validation of the functional assessment of chronic illness therapy-fatigue scale in patients with moderately to severely active systemic lupus erythematosus, participating in a clinical trialJin Shei Lai
Department of Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, IL 60611, USA
J Rheumatol 38:672-9. 2011..Fatigue is a common symptom of systemic lupus erythematosus (SLE). Our objective was to validate the 13-item Functional Assessment of Chronic Illness Therapy (FACIT)-Fatigue scale in patients with SLE... - Evaluating the dimensionality of perceived cognitive functionJin Shei Lai
Department of Medical Social Sciences, Feinberg School of Medicine, Northwestern University, Rubloff Bldg, 9th Floor, 750N Lake Shore Dr, Chicago, IL 60611, USA
J Pain Symptom Manage 37:982-95. 2009..Scoring of PCF based on these two factors should lead to improved assessment of PCF for people with cancer... - Development of a parent-report cognitive function item bank using item response theory and exploration of its clinical utility in computerized adaptive testingJin Shei Lai
Medical Social Sciences, Feinberg School of Medicine, Northwestern University, Chicago, IL 60611, USA
J Pediatr Psychol 36:766-79. 2011..The purpose of this study is to report the reliability, validity, and clinical utility of a parent-report perceived cognitive function (pedsPCF) item bank... - How item banks and their application can influence measurement practice in rehabilitation medicine: a PROMIS fatigue item bank exampleJin Shei Lai
Department of Medical Social Sciences, Feinberg School of Medicine, Northwestern University, Chicago, IL 60611, USA
Arch Phys Med Rehabil 92:S20-7. 2011.... - Neuro-QOL: quality of life item banks for adults with neurological disorders: item development and calibrations based upon clinical and general population testingRichard C Gershon
Northwestern University, Chicago, IL, USA
Qual Life Res 21:475-86. 2012..We now report the psychometric results for the adult tools... - Fatigue in cancer patients compared with fatigue in the general United States populationDavid Cella
Center on Outcomes Research and Education CORE, Evanston Northwestern Healthcare and Northwestern University, Illinois 60201, USA
Cancer 94:528-38. 2002..Because the etiology of fatigue is multifactorial, it also has been difficult to appreciate fully the relative contribution of anemia to cancer-related fatigue... - Issues in the development of an item bankRita K Bode
Rehabilitation Institute of Chicago, Institute of Health Services Research and Policy Studies, Northwestern University, Chicago, IL 60611, USA
Arch Phys Med Rehabil 84:S52-60. 2003..To describe and illustrate 2 issues involved in the development of an item bank that can be used to improve measurement across settings and over time... - Development of the Childhood Atopic Dermatitis Impact Scale: initial validation of a quality-of-life measure for young children with atopic dermatitis and their familiesSarah L Chamlin
Division of Pediatric Dermatology, Children s Memorial Hospital, Chicago, Illinois, USA
J Invest Dermatol 125:1106-11. 2005..Seventeen items were eliminated, yielding a 45-item refined version of CADIS (score 0-180) with evidence of content and construct validity and suggested use in clinical research... - Literacy-fair measurement of health-related quality of life will facilitate comparative effectiveness research in Spanish-speaking cancer outpatientsElizabeth A Hahn
Department of Medical Social Sciences, Feinberg School of Medicine, Northwestern University, Chicago, IL 60611, USA
Med Care 48:S75-82. 2010..Appropriately translated and user-friendly HRQL measures are essential to ensure inclusion of low-literate and non-English-speaking patients in comparative effectiveness research... - The Patient-Reported Outcomes Measurement Information System (PROMIS) developed and tested its first wave of adult self-reported health outcome item banks: 2005-2008David Cella
Medical Social Sciences, Northwestern University, 710 North Lakeshore Drive, Chicago, IL 60611, USA
J Clin Epidemiol 63:1179-94. 2010..We report results from the first large-scale testing of PROMIS items... - Developing an initial physical function item bank from existing sourcesRita K Bode
Center for Rehabilitation Outcomes Research, Rehabilitation Institute of Chicago, 345 East Superior Street, Chicago, IL 60611, USA
J Appl Meas 4:124-36. 2003..A series of calibrations were conducted in which a small proportion of new items were added to the common core and misfitting items were identified and deleted until an initial item bank has been developed... - Expansion of a physical function item bank and development of an abbreviated form for clinical researchRita K Bode
Center for Rehabilitation Outcomes Research, Rehabilitation Institute of Chicago Northwestern University, IL 60611, USA
J Appl Meas 7:1-15. 2006..Future research on this bank will include the development of a CAT version, the PF-CAT... - The impact of literacy on health-related quality of life measurement and outcomes in cancer outpatientsElizabeth A Hahn
Center on Outcomes, Research and Education CORE, Evanston Northwestern Healthcare, 1001 University Place, Suite 100, Evanston, IL 60201, USA
Qual Life Res 16:495-507. 2007..Research is needed to develop measurement techniques for low literacy populations and to evaluate potential literacy-related measurement bias... - The neurology quality-of-life measurement initiativeDavid Cella
Department of Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, IL 60611, USA
Arch Phys Med Rehabil 92:S28-36. 2011.... - Age-associated differences in fatigue among patients with cancerZeeshan Butt
Department of Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, Illinois 60611, USA
J Pain Symptom Manage 40:217-23. 2010..There has been some suggestion that the fatigue experienced by older cancer patients is more severe than that of younger cohorts; however, there is little empirical evidence to support this claim... - The future of outcomes measurement: item banking, tailored short-forms, and computerized adaptive assessmentDavid Cella
Psychiatry and Behavioral Sciences, Institute for Healthcare Studies, Feinberg School of Medicine, Northwestern University, Evanston, IL 60201, USA
Qual Life Res 16:133-41. 2007..Some barriers to success include limitations in the methods themselves, controversies and disagreements across approaches, and end-user reluctance to move away from the familiar... - Measuring participation enfranchisementAllen W Heinemann
Department of Physical Medicine and Rehabilitation, Feinberg School of Medicine, Northwestern University, Chicago, IL, USA
Arch Phys Med Rehabil 92:564-71. 2011..To reflect the perspectives of rehabilitation stakeholders in a measure of participation enfranchisement that can be used by people with and without disabilities... - Item banks and their potential applications to health status assessment in diverse populationsElizabeth A Hahn
Department of Preventive Medicine, Feinberg School of Medicine, Northwestern University and Center on Outcomes, Research and Education CORE, Evanston Northwestern Healthcare, Evanston, Illinois 60201, USA
Med Care 44:S189-97. 2006.... - Estimation of patient preference-based utility weights from the functional assessment of cancer therapy - generalDeborah Dobrez
Health Policy and Administration, School of Public Health, University of Illinois at Chicago, Chicago, IL 60612, USA
Value Health 10:266-72. 2007.... - Standardizing patient-reported outcomes assessment in cancer clinical trials: a patient-reported outcomes measurement information system initiativeSofia F Garcia
Center on Outcomes, Research and Education, Evanston Northwestern Healthcare, Institute for Healthcare Studies, and Department of Pediatrics, Feinberg School of Medicine, Northwestern University, Chicago, IL 60201, USA
J Clin Oncol 25:5106-12. 2007..We also present our work in the fatigue domain, including a short-form measure, as a sample of PROMIS methodology and work to date. Plans for future validation and application of PROMIS measures are discussed... - Data pooling and analysis to build a preliminary item bank: an example using bowel function in prostate cancerDavid T Eton
Northwestern University School of Medicine, Evanston, IL 60201, USA
Eval Health Prof 28:142-59. 2005..A fifth item assessing hemorrhoids was poorly correlated with other items. Our analyses supported four related components of BF: diarrhea, rectal urgency, pain, and bother/distress... - Measuring health-related quality of life in leukemia: the Functional Assessment of Cancer Therapy--Leukemia (FACT-Leu) questionnaireDavid Cella
Department of Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, IL 60611, USA
Value Health 15:1051-8. 2012..Develop and validate a health-related quality-of-life (measure for patients with acute and chronic leukemia... - Childhood Atopic Dermatitis Impact Scale: reliability, discriminative and concurrent validity, and responsivenessSarah L Chamlin
Division of Pediatric Dermatology, Children s Memorial Hospital, Chicago, IL 60614, and Center on Outcomes Research and Education, Evanston Northwestern Healthcare and Northwestern Feinberg School of Medicine, USA
Arch Dermatol 143:768-72. 2007..To evaluate the test-retest reliability, discriminative and concurrent validity, and responsiveness of the Childhood Atopic Dermatitis Impact Scale (CADIS), a quality-of-life scale with 5 domains... - Building a measure of fatigue: the functional assessment of Chronic Illness Therapy Fatigue ScaleEleanor Smith
University of Chicago Pritzker School of Medicine, Chicago, IL
PM R 2:359-63. 2010..As much as with any other discipline, physical medicine and rehabilitation stands to gain from the collective knowledge and creative horizons in the assessment and treatment of fatigue... - Measuring the concerns of cancer patients with low platelet counts: the Functional Assessment of Cancer Therapy--thrombocytopenia (FACT-Th) questionnaireDavid Cella
Center on Outcomes, Research and Education, Evanston Northwestern Healthcare, Feinberg School of Medicine, Northwestern University, 1001 University Place, Suite 100, Evanston, IL 60201, USA
Support Care Cancer 14:1220-31. 2006..We report on the development and validation of questions specifically targeted to patients with thrombocytopenia that can be added to the more general concerns in the Functional Assessment of Cancer Therapy-General... - Self-reported fatigue: one dimension or more? Lessons from the Functional Assessment of Chronic Illness Therapy--Fatigue (FACIT-F) questionnaireDavid Cella
Northwestern University Feinberg School of Medicine, Chicago, IL, USA
Support Care Cancer 19:1441-50. 2011..Fatigue as an outcome or trial endpoint can be expressed as a single number, and the experience of the symptom is more likely to be endorsed at mild levels of fatigue, presumably before the symptom exerts an adverse impact upon function... - Methods and progress in assessing the quality of life effects of supportive care with erythropoietin therapySusan Yount
Center on Outcomes, Research and Education, Evanston Northwestern Healthcare and Northwestern University, Evanston, Illinois 60201, USA
Curr Opin Hematol 9:234-40. 2002.... - Combining anchor and distribution-based methods to derive minimal clinically important differences on the Functional Assessment of Cancer Therapy (FACT) anemia and fatigue scalesDavid Cella
Evanston Northwestern Healthcare and Northwestern University, IL, USA
J Pain Symptom Manage 24:547-61. 2002..They can also be used in conjunction with more traditional clinical markers to assist investigators in determining treatment efficacy... - Measurement of fatigue in cancer, stroke, and HIV using the Functional Assessment of Chronic Illness Therapy - Fatigue (FACIT-F) scaleZeeshan Butt
Department of Medical Social Sciences, Northwestern University Feinberg School of Medicine, United States
J Psychosom Res 74:64-8. 2013.... - Have a little faith: measuring the impact of illness on positive and negative aspects of faithJohn M Salsman
Department of Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, IL, USA
Psychooncology 21:1357-61. 2012..Faith items were included within the concept of meaning and spirituality... - Advances in quality of life measurements in oncology patientsDavid Cella
Center on Outcomes Research and Education, Northwestern University, Evanston Northwestern Healthcare, Evanston, IL 60201, USA
Semin Oncol 29:60-8. 2002..While the instruments currently available provide reliable and valid measurement, further improvements in precision and application are anticipated... - Procedures for the analysis of differential item functioning (DIF) for small sample sizesJin-Shei Lai
Feinberg School of Medicine, Northwestern University, USA
Eval Health Prof 28:283-94. 2005..There is little consensus in the research community regarding selection of one best method, and most methods require large sample sizes. This article describes some approaches to examine DIF with small samples (e.g., less than 200)... - An item response theory-based pain item bank can enhance measurement precisionJin-Shei Lai
Center on Outcomes Research and Education, Evanston Northwestern Healthcare and Northwestern University, Evanston, Illinois 60201, USA
J Pain Symptom Manage 30:278-88. 2005..We conclude that this bank demonstrates good psychometric properties, is sensitive to pain reported by patients, and can be used as the foundation for a CAT pain-testing platform for use in clinical practice... - Conducting routine fatigue assessments for use in clinical oncology practice: patient and provider perspectivesKimberly M Davis
Department of Oncology, Lombardi Comprehensive Cancer Center, Georgetown University Medical Center, Washington, DC 20007, USA
Support Care Cancer 16:379-86. 2008..The present study measured patient and provider perceptions of the feasibility and acceptability of conducting computerized fatigue assessments during routine follow-up outpatient clinic visits... - Rapid detection of differential item functioning in assessments of health-related quality of life: The Functional Assessment of Cancer TherapyPaul K Crane
Department of Medicine, University of Washington, Seattle, USA
Qual Life Res 16:101-14. 2007..We sought to demonstrate a rapid hybrid approach to DIF detection by determining the presence and scale-level impact of DIF related to eight covariates in four domains measured by the Functional Assessment of Cancer Therapy (FACT)... - Psychometric evaluation and calibration of health-related quality of life item banks: plans for the Patient-Reported Outcomes Measurement Information System (PROMIS)Bryce B Reeve
National Cancer Institute, NIH, Bethesda, Maryland 20892, USA
Med Care 45:S22-31. 2007..The construction and evaluation of item banks to measure unidimensional constructs of health-related quality of life (HRQOL) is a fundamental objective of the Patient-Reported Outcomes Measurement Information System (PROMIS) project... - An examination of the measurement properties of the pediatric volitional questionnaireSusan Andersen
Department of Occupational Therapy, College of Applied Sciences, University of Illinois at Chicago, 60612-7250, USA
Phys Occup Ther Pediatr 25:39-57. 2005..The study also found that the 4-point rating scale operated as a 3-point scale in this study and that raters differentiated in their severity/ leniency. These latter findings indicate the need to further clarify the rating scale... - Assessing arm and hand function after stroke: a validity test of the hierarchical scoring system used in the motor assessment scale for strokeJoyce S Sabari
State University of New York, Downstate Medical Center, Brooklyn, NY 11203, USA
Arch Phys Med Rehabil 86:1609-15. 2005..To evaluate the validity of the scoring hierarchy for the 3 upper-limb items on the Motor Assessment Scale (MAS)...
Research Grants
- A Fatigue Item Bank for Children with CancerJin Shei Lai; Fiscal Year: 2005..abstract_text> ..
- Perceived Cognitive function Item Bank for Children Who Undergo Cancer TreatmentJin Shei Lai; Fiscal Year: 2007....
- Perceived Cognitive function Item Bank for Children Who Undergo Cancer TreatmentJin Shei Lai; Fiscal Year: 2009....