Research Topics
| Sofia F GarciaSummaryAffiliation: Northwestern University Country: USA Publications
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Detail Information
Publications
Priority symptoms in advanced breast cancer: development and initial validation of the National Comprehensive Cancer Network-Functional Assessment of Cancer Therapy-Breast Cancer Symptom Index (NFBSI-16)Sofia F Garcia
Department of Medical Social Sciences, Feinberg School of Medicine, Northwestern University, Chicago, IL 60611, USA
Value Health 15:183-90. 2012....
Addressing low literacy and health literacy in clinical oncology practiceSofia F Garcia
Department of Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, Illinois 60611, USA
J Support Oncol 8:64-9. 2010..The paper also includes a list of additional resources that can be used to develop and implement health literacy initiatives in cancer care clinics...
Have a little faith: measuring the impact of illness on positive and negative aspects of faithJohn M Salsman
Department of Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, IL, USA
Psychooncology 21:1357-61. 2012..Faith items were included within the concept of meaning and spirituality...
Literacy-fair measurement of health-related quality of life will facilitate comparative effectiveness research in Spanish-speaking cancer outpatientsElizabeth A Hahn
Department of Medical Social Sciences, Feinberg School of Medicine, Northwestern University, Chicago, IL 60611, USA
Med Care 48:S75-82. 2010..Appropriately translated and user-friendly HRQL measures are essential to ensure inclusion of low-literate and non-English-speaking patients in comparative effectiveness research...
The impact of literacy on health-related quality of life measurement and outcomes in cancer outpatientsElizabeth A Hahn
Center on Outcomes, Research and Education CORE, Evanston Northwestern Healthcare, 1001 University Place, Suite 100, Evanston, IL 60201, USA
Qual Life Res 16:495-507. 2007..Research is needed to develop measurement techniques for low literacy populations and to evaluate potential literacy-related measurement bias...
The psychosocial impact of cancer: evidence in support of independent general positive and negative componentsJin Shei Lai
Department of Medical Social Sciences, Feinberg School of Medicine at Northwestern University, 710 North Lake Shore Drive, 729, Chicago, IL 60611, USA
Qual Life Res 21:195-207. 2012..Research is now needed to evaluate the relationship between negative and positive impacts. This paper reports the development and validation of a measurement model capturing positive and negative psychosocial illness impacts...
Patient attitudes and preferences regarding literacy screening in ambulatory cancer care clinicsElizabeth A Hahn
Department of Medical Social Sciences, Feinberg School of Medicine, Northwestern University, Chicago
Patient Relat Outcome Meas 1:19-27. 2010..To evaluate patient attitudes towards literacy screening, agreement between literacy tests, and associations between literacy, informed consent comprehension, and health-related quality of life (HRQL)...
Measuring social health in the patient-reported outcomes measurement information system (PROMIS): item bank development and testingElizabeth A Hahn
Department of Medical Social Sciences, Feinberg School of Medicine, Northwestern University, 710 N Lake Shore Dr, Room 725, Chicago, IL 60611, USA
Qual Life Res 19:1035-44. 2010..To develop a social health measurement framework, to test items in diverse populations and to develop item response theory (IRT) item banks...
Standardizing patient-reported outcomes assessment in cancer clinical trials: a patient-reported outcomes measurement information system initiativeSofia F Garcia
Center on Outcomes, Research and Education, Evanston Northwestern Healthcare, Institute for Healthcare Studies, and Department of Pediatrics, Feinberg School of Medicine, Northwestern University, Chicago, IL 60201, USA
J Clin Oncol 25:5106-12. 2007..We also present our work in the fatigue domain, including a short-form measure, as a sample of PROMIS methodology and work to date. Plans for future validation and application of PROMIS measures are discussed...
