Yaffa R Rubinstein

Summary

Affiliation: National Institutes of Health
Country: USA

Publications

  1. pmc Creating a global rare disease patient registry linked to a rare diseases biorepository database: Rare Disease-HUB (RD-HUB)
    Yaffa R Rubinstein
    Office of Rare Diseases Research National Institutes of Health, Bethesda, MD 20892, United States
    Contemp Clin Trials 31:394-404. 2010

Collaborators

Detail Information

Publications1

  1. pmc Creating a global rare disease patient registry linked to a rare diseases biorepository database: Rare Disease-HUB (RD-HUB)
    Yaffa R Rubinstein
    Office of Rare Diseases Research National Institutes of Health, Bethesda, MD 20892, United States
    Contemp Clin Trials 31:394-404. 2010
    ..Hurdles associated with biospecimen collection and how to overcome them were detailed. The development of the recommendations was, in itself, an indication of the commitment of the rare disease community as never before...