Sara Chandros Hull
Affiliation: National Institutes of Health
- Patients' attitudes about the use of placebo treatments: telephone surveySara Chandros Hull
Office of the Clinical Director, National Human Genome Research Institute, National Institutes of Health, Bethesda, MD, USA
BMJ 347:f3757. 2013..To examine the attitudes of US patients about the use of placebo treatments in medical care...
- Patients' views on identifiability of samples and informed consent for genetic researchSara Chandros Hull
National Human Genome Research Institute, National Institutes of Health, Bethesda, MD 20892 1156, USA
Am J Bioeth 8:62-70. 2008..Data from this study should cause policy-makers to question whether this distinction is useful in relation to research with previously collected clinically derived samples...
- Pediatric biobanks: approaching informed consent for continuing research after children grow upAaron J Goldenberg
Department of Bioethics, Case Western Reserve University, Cleveland, OH, USA
J Pediatr 155:578-83. 2009..The objective of this study was to examine adults' attitudes about continued research with their pediatric samples/data, particularly when they could not be located to provide consent...
- The limits of disclosure: what research subjects want to know about investigator financial interestsChristine Grady
Section on Human Subjects Research, Department ofClinical Bioethics, Clinical Center, NIH, USA
J Law Med Ethics 34:592-9, 481. 2006..Although disclosure of investigator financial interest information to research participants is often recommended, its usefulness is limited, especially when participation is desired because of illness...
- Disclosure of incidental findings from next-generation sequencing in pediatric genomic researchRuqayyah Abdul-Karim
Department of Bioethics, Clinical Center, National Human Genome Research Institute, National Institutes of Health, Bethesda, MD 20892 1156, USA
Pediatrics 131:564-71. 2013..We hope this will be a useful source of guidance for investigators, institutional review boards, and bioethicists that anticipates the complicated ethical issues raised by advances in genomic technology...
- Ambivalence toward undergoing invasive prenatal testing: an exploration of its originsJulie Chevalier Sapp
Genetic Diseases Research Branch, National Human Genome Research Institute, 10 Center Drive, Bethesda, MD 20892, USA
Prenat Diagn 30:77-82. 2010..This study explores ambivalence toward undergoing amniocentesis among pregnant women with overall positive attitudes. Its novelty lies in the characterization of the type and origins of the ambivalence...
- Specimen collection for induced pluripotent stem cell research: harmonizing the approach to informed consentJustin Lowenthal
Department of Bioethics, Clinical Center
Stem Cells Transl Med 1:409-21. 2012..Our approach balances the goals of iPSC and regenerative medicine researchers with the interests of individual research participants...
- Genetic research involving human biological materials: a need to tailor current consent formsSara Chandros Hull
Social and Behavioral Research Branch, National Human Genome Research Institute, NIH, Bethesda, MD, USA
IRB 26:1-7. 2004
- Carrier screening panels for Ashkenazi Jews: is more better?Jennifer R Leib
Neurogenetics Branch, National Institute of Neurological Diseases and Stroke, National Institutes of Health, Bethesda, Maryland 20892 1156, USA
Genet Med 7:185-90. 2005....