Barbara B Biesecker

Summary

Affiliation: National Institutes of Health
Country: USA

Publications

  1. pmc The impact of genetic testing for Crohn's disease, risk magnitude and graphical format on motivation to stop smoking: an experimental analogue study
    A J Wright
    Health Psychology, Department of Psychology, King s College London, London, UK
    Clin Genet 73:306-14. 2008
  2. pmc Development and validation of the Psychological Adaptation Scale (PAS): use in six studies of adaptation to a health condition or risk
    Barbara B Biesecker
    Social and Behavioral Research Branch, National Human Genome Research Institute, Bethesda, USA Health, Behavior and Society, Johns Hopkins Bloomberg, School of Public Health, Baltimore, USA Electronic address
    Patient Educ Couns 93:248-54. 2013
  3. pmc Enhancing informed choice to undergo health screening: a systematic review
    Barbara Bowles Biesecker
    Social and Behavioral Research Branch, National Human Genome Research Institute NIH, Bethesda, MD, USA
    Am J Health Behav 37:351-9. 2013
  4. pmc Genomic sequencing for psychiatric disorders: promise and challenge
    Barbara Bowles Biesecker
    Social and Behavioral Research Branch, National Human Genome Research Institute, Bethesda, MD 20892, USA
    Int J Neuropsychopharmacol 16:1667-72. 2013
  5. pmc Adaptation to living with a genetic condition or risk: a mini-review
    B B Biesecker
    Social and Behavioral Research Branch, National Human Genome Research Institute, National Institutes of Health, Bethesda, MD 20892 2073, USA
    Clin Genet 74:401-7. 2008
  6. pmc Exploration of transitional life events in individuals with Friedreich ataxia: implications for genetic counseling
    V Brook White
    Clinical Genetics, Carolinas Medical Center, Charlotte, NC 28232 2861, USA
    Behav Brain Funct 6:65. 2010
  7. pmc Intentions to receive individual results from whole-genome sequencing among participants in the ClinSeq study
    Flavia M Facio
    Social and Behavioral Research Branch, National Human Genome Research Institute, National Institutes of Health, Bethesda, MD, USA
    Eur J Hum Genet 21:261-5. 2013
  8. ncbi request reprint Preferences for results delivery from exome sequencing/genome sequencing
    Martha F Wright
    Genetic Disease and Research Branch, National Human Genome Research Institute, National Institutes of Health, Bethesda, Maryland, USA
    Genet Med 16:442-7. 2014
  9. ncbi request reprint Teaching genomic counseling: preparing the genetic counseling workforce for the genomic era
    Gillian W Hooker
    Social and Behavioral Research Branch, Genetic Counseling Training Program, The Johns Hopkins School of Public Health, National Human Genome Research Institute, National Institutes of Health, Bethesda, MD, USA
    J Genet Couns 23:445-51. 2014
  10. ncbi request reprint Genetic literacy and patient perceptions of IBD testing utility and disease control: a randomized vignette study of genetic testing
    Gillian W Hooker
    Social and Behavioral Research Branch, National Human Genome Research Institute, National Institutes of Health, Bethesda, MD Department of Health, Behavior and Society and the Center for Genomic Literacy and Communication, The Johns Hopkins Bloomberg School of Public Health, Baltimore, MD and Harvey M and Lyn P Meyerhoff Inflammatory Bowel Disease Center, Department of Medicine, Johns Hopkins University School of Medicine, Baltimore, MD
    Inflamm Bowel Dis 20:901-8. 2014

Collaborators

Detail Information

Publications14

  1. pmc The impact of genetic testing for Crohn's disease, risk magnitude and graphical format on motivation to stop smoking: an experimental analogue study
    A J Wright
    Health Psychology, Department of Psychology, King s College London, London, UK
    Clin Genet 73:306-14. 2008
    ..Using genetic tests to estimate risks of common complex conditions may not motivate behaviour change beyond the impact of the numerical risk estimates derived from such tests...
  2. pmc Development and validation of the Psychological Adaptation Scale (PAS): use in six studies of adaptation to a health condition or risk
    Barbara B Biesecker
    Social and Behavioral Research Branch, National Human Genome Research Institute, Bethesda, USA Health, Behavior and Society, Johns Hopkins Bloomberg, School of Public Health, Baltimore, USA Electronic address
    Patient Educ Couns 93:248-54. 2013
    ..We introduce The Psychological Adaptation Scale (PAS) for assessing adaptation to a chronic condition or risk and present validity data from six studies of genetic conditions...
  3. pmc Enhancing informed choice to undergo health screening: a systematic review
    Barbara Bowles Biesecker
    Social and Behavioral Research Branch, National Human Genome Research Institute NIH, Bethesda, MD, USA
    Am J Health Behav 37:351-9. 2013
    ..To assess the effectiveness of health screening interventions aimed at enhancing informed choice...
  4. pmc Genomic sequencing for psychiatric disorders: promise and challenge
    Barbara Bowles Biesecker
    Social and Behavioral Research Branch, National Human Genome Research Institute, Bethesda, MD 20892, USA
    Int J Neuropsychopharmacol 16:1667-72. 2013
    ..Research into participant/patient perceptions, preferences and outcomes will identify areas of caution and prepare psychiatrists for eventual integration into clinical care. ..
  5. pmc Adaptation to living with a genetic condition or risk: a mini-review
    B B Biesecker
    Social and Behavioral Research Branch, National Human Genome Research Institute, National Institutes of Health, Bethesda, MD 20892 2073, USA
    Clin Genet 74:401-7. 2008
    ..Further research should result in evidence-based interventions to facilitate client adaptation that can be used effectively by genetic providers within the confines of their clinical work...
  6. pmc Exploration of transitional life events in individuals with Friedreich ataxia: implications for genetic counseling
    V Brook White
    Clinical Genetics, Carolinas Medical Center, Charlotte, NC 28232 2861, USA
    Behav Brain Funct 6:65. 2010
    ..This study captures transitional life events brought about or altered by Friedreich ataxia, a progressive chronic illness leading to disability, and the impact of these events on an affected individual's life course...
  7. pmc Intentions to receive individual results from whole-genome sequencing among participants in the ClinSeq study
    Flavia M Facio
    Social and Behavioral Research Branch, National Human Genome Research Institute, National Institutes of Health, Bethesda, MD, USA
    Eur J Hum Genet 21:261-5. 2013
    ..It behooves investigators to facilitate participants' desire to learn a range of information from genomic sequencing while promoting realistic expectations for its clinical and personal utility...
  8. ncbi request reprint Preferences for results delivery from exome sequencing/genome sequencing
    Martha F Wright
    Genetic Disease and Research Branch, National Human Genome Research Institute, National Institutes of Health, Bethesda, Maryland, USA
    Genet Med 16:442-7. 2014
    ..Conclusion:There was relative enthusiasm about the value of learning sequencing information, yet it was tempered by concern about negative feeling responses and aversion to learning about incurable conditions.Genet Med 16 6, 442-447. ..
  9. ncbi request reprint Teaching genomic counseling: preparing the genetic counseling workforce for the genomic era
    Gillian W Hooker
    Social and Behavioral Research Branch, Genetic Counseling Training Program, The Johns Hopkins School of Public Health, National Human Genome Research Institute, National Institutes of Health, Bethesda, MD, USA
    J Genet Couns 23:445-51. 2014
    ..In this commentary, we explore reasons why genomic sequencing warrants particular consideration and put forward strategies for training program curricula and continuing education programs to meet this need. ..
  10. ncbi request reprint Genetic literacy and patient perceptions of IBD testing utility and disease control: a randomized vignette study of genetic testing
    Gillian W Hooker
    Social and Behavioral Research Branch, National Human Genome Research Institute, National Institutes of Health, Bethesda, MD Department of Health, Behavior and Society and the Center for Genomic Literacy and Communication, The Johns Hopkins Bloomberg School of Public Health, Baltimore, MD and Harvey M and Lyn P Meyerhoff Inflammatory Bowel Disease Center, Department of Medicine, Johns Hopkins University School of Medicine, Baltimore, MD
    Inflamm Bowel Dis 20:901-8. 2014
    ....
  11. pmc Motivators for participation in a whole-genome sequencing study: implications for translational genomics research
    Flavia M Facio
    National Human Genome Research Institute, National Institutes of Health, 10 Center Drive, Bethesda, MD 20892, USA
    Eur J Hum Genet 19:1213-7. 2011
    ....
  12. pmc Expectations and experiences of investigators and parents involved in a clinical trial for Duchenne/Becker muscular dystrophy
    Holly L Peay
    aSocial and Behavioral Research Branch, National Human Genome Research Institute, Bethesda, MD, USA
    Clin Trials 11:77-85. 2014
    ..Clinical investigators are also susceptible to harboring high expectations. Little is known about parental motivations and expectations for clinical trials for rare pediatric disorders...
  13. pmc Quality of life in rare genetic conditions: a systematic review of the literature
    Julie S Cohen
    Kennedy Krieger Institute, Baltimore, MD 21205, USA
    Am J Med Genet A 152:1136-56. 2010
    ..The field of research on QoL in rare genetic conditions will be advanced by uniting around a clear conceptualization of QoL and using more rigorous methodology with comprehensive measures of global QoL...
  14. pmc Examination of standardized patient performance: accuracy and consistency of six standardized patients over time
    Lori A H Erby
    The Johns Hopkins Bloomberg School of Public Health, Health, Behavior and Society, Baltimore, MD 21205, USA
    Patient Educ Couns 85:194-200. 2011
    ..To explore the accuracy and consistency of standardized patient (SP) performance in the context of routine genetic counseling, focusing on elements beyond scripted case items including general communication style and affective demeanor...