JULIE ANN PANEPINTO

Summary

Affiliation: Medical College of Wisconsin
Country: USA

Publications

  1. doi request reprint PedsQL™ sickle cell disease module: feasibility, reliability, and validity
    Julie A Panepinto
    Department of Pediatrics, Children s Hospital of Wisconsin of the Children s Research Institute Medical College of Wisconsin, Hematology Oncology Bone Marrow Transplantation, Milwaukee, Wisconsin 53226, USA
    Pediatr Blood Cancer 60:1338-44. 2013
  2. doi request reprint Health-related quality of life in patients with hemoglobinopathies
    Julie A Panepinto
    Department of Pediatrics, Section of Hematology Oncology Bone Marrow Transplantation, Children s Hospital of Wisconsin Medical College of Wisconsin, Milwaukee, WI 53226, USA
    Hematology Am Soc Hematol Educ Program 2012:284-9. 2012
  3. pmc Concentration of hospital care for acute sickle cell disease-related visits
    J A Panepinto
    Emergency Medicine, Medical College of Wisconsin, Milwaukee, WI, USA
    Pediatr Blood Cancer 59:685-9. 2012
  4. doi request reprint Health-related quality of life in sickle cell disease: past, present, and future
    Julie A Panepinto
    Department of Pediatrics, Children s Hospital of Wisconsin of the Children s Research Institute Medical College of Wisconsin, Hematology Oncology Bone Marrow Transplantation, Milwaukee, Wisconsin, USA
    Pediatr Blood Cancer 59:377-85. 2012
  5. pmc Development of the PedsQL™ Sickle Cell Disease Module items: qualitative methods
    Julie A Panepinto
    Department of Pediatrics, Children s Hospital of Wisconsin of the Children s Research Institute Medical College of Wisconsin, Hematology Oncology Bone Marrow Transplantation, 8701 Watertown Plank Road, Milwaukee, WI 53226, USA
    Qual Life Res 21:341-57. 2012
  6. pmc The performance of the PedsQL generic core scales in children with sickle cell disease
    Julie A Panepinto
    Department of Pediatrics, Hematology Oncology Bone Marrow Transplantation, Children s Hospital of Wisconsin of the Children s Research Institute, Milwaukee, WI 53226, USA
    J Pediatr Hematol Oncol 30:666-73. 2008
  7. pmc Impact of family income and sickle cell disease on the health-related quality of life of children
    Julie A Panepinto
    Department of Pediatrics, The Children s Research Institute, Children s Hospital of Wisconsin Medical College of Wisconsin, Milwaukee, WI, USA
    Qual Life Res 18:5-13. 2009
  8. pmc A psychometric evaluation of the PedsQL Family Impact Module in parents of children with sickle cell disease
    Julie A Panepinto
    Department of Pediatrics, The Children s Research Institute of the Children s Hospital of Wisconsin Medical College of Wisconsin, Milwaukee, WI, USA
    Health Qual Life Outcomes 7:32. 2009
  9. doi request reprint The effect of parental mental health on proxy reports of health-related quality of life in children with sickle cell disease
    Julie A Panepinto
    Department of Pediatrics, Children s Research Institute of the Children s Hospital of Wisconsin Medical College of Wisconsin, Milwaukee, Wisconsin, USA
    Pediatr Blood Cancer 55:714-21. 2010
  10. doi request reprint Health-related quality of life in sickle cell disease
    Julie A Panepinto
    Department of Pediatric Hematology Oncology Bone Marrow Transplant, Medical College of Wisconsin, Children s Research Institute of the Children s Hospital of Wisconsin, Milwaukee, Wisconsin, USA
    Pediatr Blood Cancer 51:5-9. 2008

Research Grants

  1. Quality of Life Children With Sickle Cell Disease
    Julie Panepinto; Fiscal Year: 2007

Detail Information

Publications26

  1. doi request reprint PedsQL™ sickle cell disease module: feasibility, reliability, and validity
    Julie A Panepinto
    Department of Pediatrics, Children s Hospital of Wisconsin of the Children s Research Institute Medical College of Wisconsin, Hematology Oncology Bone Marrow Transplantation, Milwaukee, Wisconsin 53226, USA
    Pediatr Blood Cancer 60:1338-44. 2013
    ..The objective of the study was to report on the initial measurement properties of the new PedsQL™ SCD Module for pediatric patient self-report ages 5-18 years and parent proxy-report for ages 2-18 years...
  2. doi request reprint Health-related quality of life in patients with hemoglobinopathies
    Julie A Panepinto
    Department of Pediatrics, Section of Hematology Oncology Bone Marrow Transplantation, Children s Hospital of Wisconsin Medical College of Wisconsin, Milwaukee, WI 53226, USA
    Hematology Am Soc Hematol Educ Program 2012:284-9. 2012
    ....
  3. pmc Concentration of hospital care for acute sickle cell disease-related visits
    J A Panepinto
    Emergency Medicine, Medical College of Wisconsin, Milwaukee, WI, USA
    Pediatr Blood Cancer 59:685-9. 2012
    ....
  4. doi request reprint Health-related quality of life in sickle cell disease: past, present, and future
    Julie A Panepinto
    Department of Pediatrics, Children s Hospital of Wisconsin of the Children s Research Institute Medical College of Wisconsin, Hematology Oncology Bone Marrow Transplantation, Milwaukee, Wisconsin, USA
    Pediatr Blood Cancer 59:377-85. 2012
    ..The focus of this critical review was to examine past and current research in HRQL in SCD where a validated instrument was used. In addition, future directions for HRQL in SCD are explored...
  5. pmc Development of the PedsQL™ Sickle Cell Disease Module items: qualitative methods
    Julie A Panepinto
    Department of Pediatrics, Children s Hospital of Wisconsin of the Children s Research Institute Medical College of Wisconsin, Hematology Oncology Bone Marrow Transplantation, 8701 Watertown Plank Road, Milwaukee, WI 53226, USA
    Qual Life Res 21:341-57. 2012
    ..The objective of this qualitative study was to develop the items and support the content validity of the PedsQL™ Sickle Cell Disease Module for pediatric patients with sickle cell disease (SCD)...
  6. pmc The performance of the PedsQL generic core scales in children with sickle cell disease
    Julie A Panepinto
    Department of Pediatrics, Hematology Oncology Bone Marrow Transplantation, Children s Hospital of Wisconsin of the Children s Research Institute, Milwaukee, WI 53226, USA
    J Pediatr Hematol Oncol 30:666-73. 2008
    ..The questionnaire performed well in children with sickle cell disease and is a feasible, reliable, and valid tool to measure HRQL in children with sickle cell disease...
  7. pmc Impact of family income and sickle cell disease on the health-related quality of life of children
    Julie A Panepinto
    Department of Pediatrics, The Children s Research Institute, Children s Hospital of Wisconsin Medical College of Wisconsin, Milwaukee, WI, USA
    Qual Life Res 18:5-13. 2009
    ..The objective of this study was to determine the impact of family income and sickle cell disease on the health-related quality of life (HRQL) of children...
  8. pmc A psychometric evaluation of the PedsQL Family Impact Module in parents of children with sickle cell disease
    Julie A Panepinto
    Department of Pediatrics, The Children s Research Institute of the Children s Hospital of Wisconsin Medical College of Wisconsin, Milwaukee, WI, USA
    Health Qual Life Outcomes 7:32. 2009
    ..In addition, we sought to determine the correlation between parent's well being and their proxy report of their child's health-related quality of life (HRQL)...
  9. doi request reprint The effect of parental mental health on proxy reports of health-related quality of life in children with sickle cell disease
    Julie A Panepinto
    Department of Pediatrics, Children s Research Institute of the Children s Hospital of Wisconsin Medical College of Wisconsin, Milwaukee, Wisconsin, USA
    Pediatr Blood Cancer 55:714-21. 2010
    ..We hypothesized that the mental health of the parent, parental HRQL and child characteristics would affect agreement...
  10. doi request reprint Health-related quality of life in sickle cell disease
    Julie A Panepinto
    Department of Pediatric Hematology Oncology Bone Marrow Transplant, Medical College of Wisconsin, Children s Research Institute of the Children s Hospital of Wisconsin, Milwaukee, Wisconsin, USA
    Pediatr Blood Cancer 51:5-9. 2008
    ..This review will examine prior work in HRQL in sickle cell disease and the rationale for utilizing HRQL as an outcome to measure impact of treatment. In addition, issues to consider when reporting HRQL will be presented...
  11. ncbi request reprint Validity of the child health questionnaire for use in children with sickle cell disease
    Julie A Panepinto
    Pediatric Hematology Oncology Bone Marrow Transplant, Medical College of Wisconsin and Children s Research Institute of the Children s Hospital of Wisconsin, Milwaukee, Wisconsin 53226, USA
    J Pediatr Hematol Oncol 26:574-8. 2004
    ..The objective of this study was to determine the validity of the Child Health Questionnaire (CHQ) as a measure of HRQL in sickle cell disease (SCD) by examining the relationship between HRQL and disease severity...
  12. ncbi request reprint Matched-related donor transplantation for sickle cell disease: report from the Center for International Blood and Transplant Research
    Julie A Panepinto
    Department of Hematology Oncology Bone Marrow Transplant, Medical College of Wisconsin, 8701 Watertown Plank Road, Milwaukee, WI 53226, USA
    Br J Haematol 137:479-85. 2007
    ....
  13. ncbi request reprint Variation in hospitalizations and hospital length of stay in children with vaso-occlusive crises in sickle cell disease
    Julie A Panepinto
    Department of Pediatrics, Section of Pediatric Hematology, Medical College of Wisconsin, Milwaukee, WI 53226, USA
    Pediatr Blood Cancer 44:182-6. 2005
    ....
  14. ncbi request reprint Health-related quality of life in children with sickle cell disease: child and parent perception
    Julie A Panepinto
    Pediatric Hematology Oncology Bone Marrow Transplant, Medical College of Wisconsin, Milwaukee, WI, USA
    Br J Haematol 130:437-44. 2005
    ..Both the parent and child perspectives are needed to fully understand the impact of sickle cell disease on the HRQL of the child and effect of this disease on the family...
  15. pmc The effect of CYP2D6 polymorphisms on the response to pain treatment for pediatric sickle cell pain crisis
    David C Brousseau
    Department of Pediatrics, Section of Emergency Medicine, Medical College of Wisconsin, Milwaukee, WI, USA
    J Pediatr 150:623-6. 2007
    ..To test the hypothesis that children taking hydroxyurea who fail codeine therapy have an increase in reduced-functioning cytochrome P450 2D6 (CYP2D6) alleles...
  16. ncbi request reprint The effect of magnesium on length of stay for pediatric sickle cell pain crisis
    David C Brousseau
    Department of Pediatrics, Medical College of Wisconsin, Milwaukee, WI, USA
    Acad Emerg Med 11:968-72. 2004
    ..To determine the effect of intravenous (IV) magnesium sulfate on the length of stay (LOS) for children admitted with sickle cell pain crisis...
  17. pmc The impact of a multidisciplinary pain management model on sickle cell disease pain hospitalizations
    Amanda M Brandow
    Section of Pediatric Hematology Oncology, Milwaukee, Wisconsin, USA
    Pediatr Blood Cancer 56:789-93. 2011
    ..Given that little is known about children with SCD and chronic pain, we (1) described characteristics of these children and (2) evaluated the impact of a multidisciplinary pain management model on health care utilization...
  18. ncbi request reprint Perioperative management of sickle cell disease children undergoing adenotonsillectomy
    Rebecca L Duke
    Department of Otolaryngology and Communication Sciences, Medical College of Wisconsin, 9200 West Wisconsin Avenue, Milwaukee, WI 53226, USA
    Otolaryngol Head Neck Surg 134:370-3. 2006
    ..To determine if outpatient tailored perioperative management has the same complication rate as that previously published for sickle cell disease (SCD) children who undergo adenotonsillectomy...
  19. doi request reprint Acute care utilization and rehospitalizations for sickle cell disease
    David C Brousseau
    Department of Pediatrics, Section of Emergency Medicine, Medical College of Wisconsin, Milwaukee, WI 53226, USA
    JAMA 303:1288-94. 2010
    ..Published rates of health care utilization and rehospitalization by people with sickle cell disease have had limited generalizability and are not population based...
  20. pmc Vaso-occlusive painful events in sickle cell disease: impact on child well-being
    Amanda M Brandow
    Department of Pediatric Hematology Oncology, Medical College of Wisconsin, The Children s Research Institute of the Children s Hospital of Wisconsin, Milwaukee, WI 53226, USA
    Pediatr Blood Cancer 54:92-7. 2010
    ..0 Acute Version Generic Core Scales is responsive to change in the evolution of a painful event...
  21. doi request reprint Dissatisfaction with hospital care for children with sickle cell disease not due only to race and chronic disease
    David C Brousseau
    Department of Pediatrics, Children s Research Institute, Medical College of Wisconsin, Milwaukee, Wisconsin 53226, USA
    Pediatr Blood Cancer 53:174-8. 2009
    ..A previous study reported increased dissatisfaction with hospital care for children with sickle cell disease (SCD); however, its small size excluded determining whether race and chronic disease explained the difference...
  22. pmc Postdischarge pain, functional limitations and impact on caregivers of children with sickle cell disease treated for painful events
    Amanda M Brandow
    Pediatric Hematology Oncology, Medical College of Wisconsin Children s Research Institute of The Children s Hospital of Wisconsin, Milwaukee, WI 53226, USA
    Br J Haematol 144:782-8. 2009
    ..79; 95% CI = 1.026, 3.096). In conclusion, acute vaso-occlusive painful events impact the lives of children with SCD and their caregivers, even after discharge to home...
  23. ncbi request reprint The effect of acute pain crisis on exhaled nitric oxide levels in children with sickle cell disease
    Sachin S Pawar
    Medical College of Wisconsin, Milwaukee, Wisconsin, USA
    Pediatr Blood Cancer 50:111-3. 2008
    ..There was no difference in FE(NO) levels between children at baseline (15.12 +/- 9.32 ppb) and those during an acute VOC (15.68 +/- 7.26 ppb; P = 0.794). FE(NO) is not a useful marker of acute VOC in children with sickle cell disease...
  24. ncbi request reprint Parental perception of quality of hospital care for children with sickle cell disease
    Jared Kam
    Medical College of Wisconsin, Milwaukee, WI 53226, USA
    WMJ 107:131-5. 2008
    ..Children with sickle cell disease account for 75,000 hospital days annually in the United States, yet little is known about how parents perceive the quality of hospital care these children receive...
  25. ncbi request reprint Attitudes regarding fertility preservation in female adolescent cancer patients
    Karen C Burns
    Pediatric Hematology Oncology Bone Marrow Transplant, Medical College of Wisconsin and the Children s Research Institute of the Children s Hospital of Wisconsin, Milwaukee, WI, USA
    J Pediatr Hematol Oncol 28:350-4. 2006
    ..In summary, parents and female adolescents are interested in options to help preserve fertility during cancer treatments, but they are not willing to postpone treatment for this purpose...
  26. ncbi request reprint Pathophysiology of stroke in sickle cell disease
    Cheryl A Hillery
    Department of Pediatrics, Medical College of Wisconsin, Milwaukee, Wisconsin 53201 2178, USA
    Microcirculation 11:195-208. 2004
    ..Increased red cell adhesion, oxidative injury of the vessel wall, inflammation, abnormal vasomotor tone regulation, and increased activity of the coagulation system all may contribute to cerebral vasopathology in SCD...

Research Grants2

  1. Quality of Life Children With Sickle Cell Disease
    Julie Panepinto; Fiscal Year: 2007
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