Mary Jo Kupst

Summary

Affiliation: Medical College of Wisconsin
Country: USA

Publications

  1. ncbi Measuring fatigue for children with cancer: development and validation of the pediatric Functional Assessment of Chronic Illness Therapy-Fatigue (pedsFACIT-F)
    Jin Shei Lai
    Center on Outcomes, Research and Education CORE, Evanston Northwestern Healthcare, Evanston, IL 60201, USA
    J Pediatr Hematol Oncol 29:471-9. 2007
  2. ncbi Clinical trials in pediatric cancer: parental perspectives on informed consent
    Mary Jo Kupst
    Department of Pediatrics, Medical College of Wisconsin and Midwest Children s Cancer Center, Milwaukee, Wisconsin 53226, USA
    J Pediatr Hematol Oncol 25:787-90. 2003
  3. ncbi A multimethod assessment of psychosocial functioning and late effects in survivors of childhood cancer and hematopoietic cell transplant
    Kristin Bingen
    Medical College of Wisconsin, Marquette University, Department Counseling Psychology, Milwaukee, WI, USA
    J Pediatr Hematol Oncol 34:22-8. 2012
  4. ncbi Evaluation of a survivorship educational program for adolescent and young adult survivors of childhood cancer
    Kristin Bingen
    Department of Pediatrics, Hematology Oncology BMT, Medical College of Wisconsin, 8701 Watertown Plank Road, Milwaukee, WI 53226, USA
    J Cancer Educ 25:530-7. 2010
  5. ncbi Development of the Palliative Care Parental Self-Efficacy Measure
    Kristin Bingen
    Pediatric Hematology Oncology Blood and Marrow Transplant, Medical College of Wisconsin, Milwaukee, Wisconsin 53226, USA
    J Palliat Med 14:1009-16. 2011
  6. ncbi Late effects in adult survivors of childhood cancer: considerations for the general practitioner
    Debra Schmidt
    Pediatric Heme OncIBMT, Medical College of Wisconsin, Milwaukee, USA
    WMJ 109:98-107. 2010
  7. ncbi Psychosocial functioning in pediatric cancer
    Andrea Farkas Patenaude
    Dana Farber Cancer Institute, Children s Hospital, and Harvard Medical School, Boston, and Medical College of Wisconsin, Milwaukee, USA
    J Pediatr Psychol 30:9-27. 2005
  8. ncbi Single parents of children with chronic illness: an understudied phenomenon
    Ronald T Brown
    Temple University, College of Health 3307 North Broad Street, 300 Jones Hall, Philadelphia, PA 19140, USA
    J Pediatr Psychol 33:408-21. 2008
  9. ncbi Commentary: the psychological impact of pediatric cancer hardiness, the exception or the rule?
    Robert B Noll
    Children s Hospital of Pittsburgh, Child Development Unit, Pittsburgh, PA 15213 2583, USA
    J Pediatr Psychol 32:1089-98. 2007
  10. ncbi Using Q-methodology to understand perceived fatigue reported by adolescents with cancer
    Jin Shei Lai
    Center on Outcomes, Research and Education, Evanston Northwestern Healthcare, Evanston, Illinois 60201, USA
    Psychooncology 16:437-47. 2007

Collaborators

Detail Information

Publications13

  1. ncbi Measuring fatigue for children with cancer: development and validation of the pediatric Functional Assessment of Chronic Illness Therapy-Fatigue (pedsFACIT-F)
    Jin Shei Lai
    Center on Outcomes, Research and Education CORE, Evanston Northwestern Healthcare, Evanston, IL 60201, USA
    J Pediatr Hematol Oncol 29:471-9. 2007
    ..The pedsFACIT-F was significantly correlated to the PedsQL Multidimensional Fatigue Scale. In conclusion, the pedsFACIT-F demonstrates satisfactory reliability and validity and can be a useful tool in clinical trials and other research...
  2. ncbi Clinical trials in pediatric cancer: parental perspectives on informed consent
    Mary Jo Kupst
    Department of Pediatrics, Medical College of Wisconsin and Midwest Children s Cancer Center, Milwaukee, Wisconsin 53226, USA
    J Pediatr Hematol Oncol 25:787-90. 2003
    ....
  3. ncbi A multimethod assessment of psychosocial functioning and late effects in survivors of childhood cancer and hematopoietic cell transplant
    Kristin Bingen
    Medical College of Wisconsin, Marquette University, Department Counseling Psychology, Milwaukee, WI, USA
    J Pediatr Hematol Oncol 34:22-8. 2012
    ..Further research should use survivorship-specific measures to better identify survivors at risk and determine the impact of late effects on their quality of life...
  4. ncbi Evaluation of a survivorship educational program for adolescent and young adult survivors of childhood cancer
    Kristin Bingen
    Department of Pediatrics, Hematology Oncology BMT, Medical College of Wisconsin, 8701 Watertown Plank Road, Milwaukee, WI 53226, USA
    J Cancer Educ 25:530-7. 2010
    ..This program was effective in increasing self-reported survivorship education for AYA survivors of childhood cancer, families, and health care providers...
  5. ncbi Development of the Palliative Care Parental Self-Efficacy Measure
    Kristin Bingen
    Pediatric Hematology Oncology Blood and Marrow Transplant, Medical College of Wisconsin, Milwaukee, Wisconsin 53226, USA
    J Palliat Med 14:1009-16. 2011
    ..Pilot testing of the PCPEM will be conducted to determine preliminary psychometric properties...
  6. ncbi Late effects in adult survivors of childhood cancer: considerations for the general practitioner
    Debra Schmidt
    Pediatric Heme OncIBMT, Medical College of Wisconsin, Milwaukee, USA
    WMJ 109:98-107. 2010
    ..Recommendations and resources are provided for identifying and managing late effects...
  7. ncbi Psychosocial functioning in pediatric cancer
    Andrea Farkas Patenaude
    Dana Farber Cancer Institute, Children s Hospital, and Harvard Medical School, Boston, and Medical College of Wisconsin, Milwaukee, USA
    J Pediatr Psychol 30:9-27. 2005
    ..To describe the emergence of pediatric psycho-oncology and to summarize research on psychosocial aspects of childhood cancer and survivorship...
  8. ncbi Single parents of children with chronic illness: an understudied phenomenon
    Ronald T Brown
    Temple University, College of Health 3307 North Broad Street, 300 Jones Hall, Philadelphia, PA 19140, USA
    J Pediatr Psychol 33:408-21. 2008
    ..To examine the chronic illness literature and evaluate the impact on single parenting and children and adolescents with chronic illness...
  9. ncbi Commentary: the psychological impact of pediatric cancer hardiness, the exception or the rule?
    Robert B Noll
    Children s Hospital of Pittsburgh, Child Development Unit, Pittsburgh, PA 15213 2583, USA
    J Pediatr Psychol 32:1089-98. 2007
  10. ncbi Using Q-methodology to understand perceived fatigue reported by adolescents with cancer
    Jin Shei Lai
    Center on Outcomes, Research and Education, Evanston Northwestern Healthcare, Evanston, Illinois 60201, USA
    Psychooncology 16:437-47. 2007
    ..Appropriate referral for patients with the latter two descriptors of fatigue was recommended...
  11. ncbi Introduction to the special issue: surviving pediatric cancer: research gains and goals
    Andrea Farkas Patenaude
    J Pediatr Psychol 30:5-8. 2005
  12. ncbi Consensus statements: interventions to enhance resilience and quality of life in adolescents with cancer
    Audrey E Nelson
    University of Nebraska School of Nursing, Omaha 68106, USA
    J Pediatr Oncol Nurs 21:305-7. 2004
  13. ncbi National action plan for childhood cancer: report of the national summit meetings on childhood cancer
    Robert Arceci
    Johns Hopkins Oncology Center, Johns Hopkins University, Baltimore, MD, USA
    CA Cancer J Clin 52:377-9. 2002