Mary Jo Kupst
Affiliation: Medical College of Wisconsin
- Measuring fatigue for children with cancer: development and validation of the pediatric Functional Assessment of Chronic Illness Therapy-Fatigue (pedsFACIT-F)Jin Shei Lai
Center on Outcomes, Research and Education CORE, Evanston Northwestern Healthcare, Evanston, IL 60201, USA
J Pediatr Hematol Oncol 29:471-9. 2007..The pedsFACIT-F was significantly correlated to the PedsQL Multidimensional Fatigue Scale. In conclusion, the pedsFACIT-F demonstrates satisfactory reliability and validity and can be a useful tool in clinical trials and other research...
- Clinical trials in pediatric cancer: parental perspectives on informed consentMary Jo Kupst
Department of Pediatrics, Medical College of Wisconsin and Midwest Children s Cancer Center, Milwaukee, Wisconsin 53226, USA
J Pediatr Hematol Oncol 25:787-90. 2003....
- A multimethod assessment of psychosocial functioning and late effects in survivors of childhood cancer and hematopoietic cell transplantKristin Bingen
Medical College of Wisconsin, Marquette University, Department Counseling Psychology, Milwaukee, WI, USA
J Pediatr Hematol Oncol 34:22-8. 2012..Further research should use survivorship-specific measures to better identify survivors at risk and determine the impact of late effects on their quality of life...
- Evaluation of a survivorship educational program for adolescent and young adult survivors of childhood cancerKristin Bingen
Department of Pediatrics, Hematology Oncology BMT, Medical College of Wisconsin, 8701 Watertown Plank Road, Milwaukee, WI 53226, USA
J Cancer Educ 25:530-7. 2010..This program was effective in increasing self-reported survivorship education for AYA survivors of childhood cancer, families, and health care providers...
- Development of the Palliative Care Parental Self-Efficacy MeasureKristin Bingen
Pediatric Hematology Oncology Blood and Marrow Transplant, Medical College of Wisconsin, Milwaukee, Wisconsin 53226, USA
J Palliat Med 14:1009-16. 2011..Pilot testing of the PCPEM will be conducted to determine preliminary psychometric properties...
- Late effects in adult survivors of childhood cancer: considerations for the general practitionerDebra Schmidt
Pediatric Heme OncIBMT, Medical College of Wisconsin, Milwaukee, USA
WMJ 109:98-107. 2010..Recommendations and resources are provided for identifying and managing late effects...
- Psychosocial functioning in pediatric cancerAndrea Farkas Patenaude
Dana Farber Cancer Institute, Children s Hospital, and Harvard Medical School, Boston, and Medical College of Wisconsin, Milwaukee, USA
J Pediatr Psychol 30:9-27. 2005..To describe the emergence of pediatric psycho-oncology and to summarize research on psychosocial aspects of childhood cancer and survivorship...
- Single parents of children with chronic illness: an understudied phenomenonRonald T Brown
Temple University, College of Health 3307 North Broad Street, 300 Jones Hall, Philadelphia, PA 19140, USA
J Pediatr Psychol 33:408-21. 2008..To examine the chronic illness literature and evaluate the impact on single parenting and children and adolescents with chronic illness...
- Commentary: the psychological impact of pediatric cancer hardiness, the exception or the rule?Robert B Noll
Children s Hospital of Pittsburgh, Child Development Unit, Pittsburgh, PA 15213 2583, USA
J Pediatr Psychol 32:1089-98. 2007
- Using Q-methodology to understand perceived fatigue reported by adolescents with cancerJin Shei Lai
Center on Outcomes, Research and Education, Evanston Northwestern Healthcare, Evanston, Illinois 60201, USA
Psychooncology 16:437-47. 2007..Appropriate referral for patients with the latter two descriptors of fatigue was recommended...
- Introduction to the special issue: surviving pediatric cancer: research gains and goalsAndrea Farkas Patenaude
J Pediatr Psychol 30:5-8. 2005
- Consensus statements: interventions to enhance resilience and quality of life in adolescents with cancerAudrey E Nelson
University of Nebraska School of Nursing, Omaha 68106, USA
J Pediatr Oncol Nurs 21:305-7. 2004
- National action plan for childhood cancer: report of the national summit meetings on childhood cancerRobert Arceci
Johns Hopkins Oncology Center, Johns Hopkins University, Baltimore, MD, USA
CA Cancer J Clin 52:377-9. 2002