K Kuhlthau

Summary

Affiliation: Massachusetts General Hospital
Country: USA

Publications

  1. ncbi request reprint Financial burden for families of children with special health care needs
    Karen Kuhlthau
    Center for Child and Adolescent Health Policy, Massachusetts General Hospital, Boston, MA, USA
    Matern Child Health J 9:207-18. 2005
  2. pmc Prospective study of health-related quality of life for children with brain tumors treated with proton radiotherapy
    Karen A Kuhlthau
    Massachusetts General Hospital, Boston, MA 02114, USA
    J Clin Oncol 30:2079-86. 2012
  3. doi request reprint Measures of availability of health care services for children
    Karen A Kuhlthau
    Center for Child and Adolescent Health Policy, Massachusetts General Hospital, 50 Staniford St, Ste 901, Boston, Massachusetts 02114, USA
    Acad Pediatr 11:S42-8. 2011
  4. doi request reprint Evidence for family-centered care for children with special health care needs: a systematic review
    Karen A Kuhlthau
    Child and Adolescent Health Policy, MassGeneral Hospital for Children, Boston, Mass, USA
    Acad Pediatr 11:136-43. 2011
  5. doi request reprint Increases in behavioral health screening in pediatric care for Massachusetts Medicaid patients
    Karen Kuhlthau
    Center for Child and Adolescent Health Policy, Massachusetts General Hospital, Boston, MA 02114, USA
    Arch Pediatr Adolesc Med 165:660-4. 2011
  6. doi request reprint Health-Related Quality of Life in children with autism spectrum disorders: results from the autism treatment network
    Karen Kuhlthau
    Center for Child and Adolescent Health Policy, Massachusetts General Hospital, Boston, MA, USA
    J Autism Dev Disord 40:721-9. 2010
  7. doi request reprint The well-being of parental caregivers of children with activity limitations
    Karen Kuhlthau
    Center for Child and Adolescent Health Policy, Massachusetts General Hospital, Boston, MA 02114, USA
    Matern Child Health J 14:155-63. 2010
  8. ncbi request reprint Correlates of therapy use and expenditures in children in the United States
    Karen Kuhlthau
    Center for Child and Adolescent Health Policy, Mass General Hospital for Children, Massachusetts Genaral Hospital, Boston, MA 02114, USA
    Dev Neurorehabil 11:115-23. 2008
  9. ncbi request reprint Pharmacy-and diagnosis-based risk adjustment for children with Medicaid
    Karen Kuhlthau
    Center for Child and Adolescent Health Policy, MassGeneral Hospital for Children, Department of Pediatrics, Harvard Medical School, Boston, MA 02114, USA
    Med Care 43:1155-9. 2005
  10. ncbi request reprint Comparing a diagnosis list with a survey method to identify children with chronic conditions in an urban health center
    Karen A Kuhlthau
    Center for Child and Adolescent Health Policy, MassGeneral Hospital for Children, 50 Staniford St, Suite 901, Boston, MA 02114, USA
    Ambul Pediatr 2:58-62. 2002

Research Grants

Detail Information

Publications26

  1. ncbi request reprint Financial burden for families of children with special health care needs
    Karen Kuhlthau
    Center for Child and Adolescent Health Policy, Massachusetts General Hospital, Boston, MA, USA
    Matern Child Health J 9:207-18. 2005
    ..We describe family finance-related burden experienced by families with children with special health care needs (CSHCN). The paper further seeks to describe correlates of family financial burden...
  2. pmc Prospective study of health-related quality of life for children with brain tumors treated with proton radiotherapy
    Karen A Kuhlthau
    Massachusetts General Hospital, Boston, MA 02114, USA
    J Clin Oncol 30:2079-86. 2012
    ..We describe the health-related quality of life (HRQoL) of a cohort of children with brain tumors treated with proton radiotherapy...
  3. doi request reprint Measures of availability of health care services for children
    Karen A Kuhlthau
    Center for Child and Adolescent Health Policy, Massachusetts General Hospital, 50 Staniford St, Ste 901, Boston, Massachusetts 02114, USA
    Acad Pediatr 11:S42-8. 2011
    ..The objective of this work was to review and evaluate measures of availability of child health services for potential inclusion in the initial core set of health care quality measures as mandated by CHIPRA...
  4. doi request reprint Evidence for family-centered care for children with special health care needs: a systematic review
    Karen A Kuhlthau
    Child and Adolescent Health Policy, MassGeneral Hospital for Children, Boston, Mass, USA
    Acad Pediatr 11:136-43. 2011
    ..In this study, we conducted a systematic review of evidence for FCC focusing specifically on family-provider partnership as the activity that constitutes FCC...
  5. doi request reprint Increases in behavioral health screening in pediatric care for Massachusetts Medicaid patients
    Karen Kuhlthau
    Center for Child and Adolescent Health Policy, Massachusetts General Hospital, Boston, MA 02114, USA
    Arch Pediatr Adolesc Med 165:660-4. 2011
    ..To explore rates of screening and identification and treatment for behavioral problems using billing data from Massachusetts Medicaid immediately following the start of the state's new court-ordered screening and intervention program...
  6. doi request reprint Health-Related Quality of Life in children with autism spectrum disorders: results from the autism treatment network
    Karen Kuhlthau
    Center for Child and Adolescent Health Policy, Massachusetts General Hospital, Boston, MA, USA
    J Autism Dev Disord 40:721-9. 2010
    ..Associations among HRQoL and behavioral characteristics suggest that treatments aimed at improvements in these behaviors may improve HRQoL...
  7. doi request reprint The well-being of parental caregivers of children with activity limitations
    Karen Kuhlthau
    Center for Child and Adolescent Health Policy, Massachusetts General Hospital, Boston, MA 02114, USA
    Matern Child Health J 14:155-63. 2010
    ..Across a variety of domains, parental caregivers of children with activity limitations are at a disadvantage compared to other parents suggesting that public and private parental supports might be helpful...
  8. ncbi request reprint Correlates of therapy use and expenditures in children in the United States
    Karen Kuhlthau
    Center for Child and Adolescent Health Policy, Mass General Hospital for Children, Massachusetts Genaral Hospital, Boston, MA 02114, USA
    Dev Neurorehabil 11:115-23. 2008
    ..This paper describes correlates of use and expenditures for therapies (physical, occupational, speech or home health services) among children in the US...
  9. ncbi request reprint Pharmacy-and diagnosis-based risk adjustment for children with Medicaid
    Karen Kuhlthau
    Center for Child and Adolescent Health Policy, MassGeneral Hospital for Children, Department of Pediatrics, Harvard Medical School, Boston, MA 02114, USA
    Med Care 43:1155-9. 2005
    ..Risk adjustment is useful for adjusting health care payments based on patients' health status...
  10. ncbi request reprint Comparing a diagnosis list with a survey method to identify children with chronic conditions in an urban health center
    Karen A Kuhlthau
    Center for Child and Adolescent Health Policy, MassGeneral Hospital for Children, 50 Staniford St, Suite 901, Boston, MA 02114, USA
    Ambul Pediatr 2:58-62. 2002
    ..To compare a diagnosis list to the Questionnaire for Identifying Children with Chronic Conditions (QuICCC) to assess their relative usefulness as measures for identifying children with chronic conditions...
  11. ncbi request reprint Correlates of use of specialty care
    Karen Kuhlthau
    Center for Child and Adolescent Health Policy, MassGeneral Hospital for Children, Department of Pediatrics, Harvard Medical School, Boston, Massachusetts 02114, USA
    Pediatrics 113:e249-55. 2004
    ..This study examines patterns of specialist use among children and adolescents by presence of a chronic condition or disability, insurance, and sociodemographic characteristics...
  12. ncbi request reprint Child health status and parental employment
    K A Kuhlthau
    Center for Child and Adolescent Health Policy, MassGeneral Hospital for Children, 50 Staniford St, Suite 901, Boston, MA 02114, USA
    Arch Pediatr Adolesc Med 155:1346-50. 2001
    ..To understand the relationship between several measures of child health status and the employment of parents...
  13. ncbi request reprint Who cares for medicaid-enrolled children with chronic conditions?
    K Kuhlthau
    Center for Child and Adolescent Health Policy, MassGeneral Hospital for Children, Boston, MA 02114, USA
    Pediatrics 108:906-12. 2001
    ..To estimate generalist, pediatric subspecialist, and any subspecialist use by Medicaid-enrolled children with chronic conditions and to determine the correlates of use...
  14. ncbi request reprint Risk adjustment for pediatric quality indicators
    Karen Kuhlthau
    Center for Child and Adolescent Health Policy, MassGeneral Hospital for Children, Department of Pediatrics, Harvard Medical School, Boston, Massachusetts 02114, USA
    Pediatrics 113:210-6. 2004
    ..We conclude with an overall assessment of the status of risk adjustment for pediatric quality measures and recommendations for additional research and application...
  15. doi request reprint Does connection to primary care matter for children with attention-deficit/hyperactivity disorder?
    Sara L Toomey
    Harvard wide Pediatric Health Services Research Fellowship, Boston, Massachusetts, USA
    Pediatrics 122:368-74. 2008
    ....
  16. ncbi request reprint Monitoring health care for children with chronic conditions in a managed care environment
    J M Perrin
    Pediatric Service, Massachusetts General Hospital, Boston 02114, USA
    Matern Child Health J 1:15-23. 1997
    ..This article examines the special issues facing children with chronic conditions and develops strategies for monitoring their care in managed care settings...
  17. ncbi request reprint State policy environment and delayed or forgone care among children with special health care needs
    Sangeeth K Gnanasekaran
    Center for Child and Adolescent Health Policy, Massachusetts General Hospital, and Department of Pediatrics, Harvard Medical School, 50 Staniford Street, Suite 901, Boston, MA 02214, USA
    Matern Child Health J 12:739-46. 2008
    ..To evaluate if children with special health care needs (CSHCN) residing in states with more generous public insurance programs were less likely to report delayed or forgone care...
  18. ncbi request reprint Are minority children the last to benefit from a new technology? Technology diffusion and inhaled corticosteriods for asthma
    Timothy G Ferris
    Institute for Health Policy, Massachusetts General Hospital, Partners HealthCare System, and Harvard Medical School, Boston, Massachusetts 02114, USA
    Med Care 44:81-6. 2006
    ..Racial and ethnic disparities in health and health care have been well documented, but few studies have addressed how disparities may change over time...
  19. doi request reprint Associations of providers' language and cultural skills with Latino parents' perceptions of well-child care
    Alexy D Arauz Boudreau
    MGH Center for Child and Adolescent Health Policy, and Department of Pediatrics, Massachusetts General Hospital, Boston, Massachusetts 02114, USA
    Acad Pediatr 10:172-8. 2010
    ..To assess the associations of parent-primary care provider language concordance and providers' self-rated cultural competency items with Latino parent report of well-child care quality...
  20. pmc Measuring quality of life in pediatric patients with inflammatory bowel disease: psychometric and clinical characteristics
    James M Perrin
    Department of Pediatrics, MassGeneral Hospital for Children, Boston, USA
    J Pediatr Gastroenterol Nutr 46:164-71. 2008
    ..To extend development of a pediatric inflammatory bowel disease (IBD) health-related quality of life (HRQoL) measure by determining its factor structure and associations of factors with generic HRQoL measures and clinical variables...
  21. ncbi request reprint Evaluating medicaid managed care programs for children
    W O Cooper
    Department of Pediatrics, Vanderbilt University School of Medicine, Nashville, TN, USA
    Ambul Pediatr 1:112-6. 2001
    ....
  22. pmc Growth hormone deficiency is associated with decreased quality of life in patients with prior acromegaly
    Tamara Wexler
    Neuroendocrine Unit, Massachusetts General Hospital and Harvard Medical School, Boston, Massachusetts 02114, USA
    J Clin Endocrinol Metab 94:2471-7. 2009
    ..However, it is unknown whether patients with GHD after treatment for acromegaly have a poorer quality of life than those with normal GH levels after cure of acromegaly...
  23. ncbi request reprint The who, what, and why of risk adjustment: a technology on the cusp of adoption
    David Blumenthal
    Harvard Medical School, USA
    J Health Polit Policy Law 30:453-73. 2005
    ..For the future of RA in particular, its history suggests the need for health service researchers to consider barriers to use adoption and new analytic technologies as they develop them...
  24. pmc Breastfeeding advice given to African American and white women by physicians and WIC counselors
    Anne C Beal
    Commonwealth Fund, New York, NY 10021, USA
    Public Health Rep 118:368-76. 2003
    ....
  25. doi request reprint A review of the evidence for the medical home for children with special health care needs
    Charles J Homer
    National Initiative for Children s Healthcare Quality, Cambridge, Massachusetts, USA
    Pediatrics 122:e922-37. 2008
    ..The receipt of health care in a medical home is increasingly touted as a fundamental basis for improved care for persons with chronic conditions, yet the evidence for this claim has not been systematically assessed...
  26. ncbi request reprint Children's use of motor vehicle restraints: maternal psychological distress, maternal motor vehicle restraint practices, and sociodemographics
    Whitney P Witt
    Feinberg School of Medicine, Northwestern University, Chicago, IL 60611 2611, USA
    Ambul Pediatr 6:145-51. 2006
    ..To determine the relative contribution of maternal psychological distress, maternal restraint use, and sociodemographic characteristics to the likelihood that a child would not be restrained in a motor vehicle...

Research Grants1

  1. Children with Chronic Health Conditions: Family Impact
    KAREN KUHLTAHU; Fiscal Year: 2002
    ....