D J Kaufman

Summary

Affiliation: Johns Hopkins University
Country: USA

Publications

  1. ncbi Preferences for opt-in and opt-out enrollment and consent models in biobank research: a national survey of Veterans Administration patients
    David Kaufman
    Genetics and Public Policy Center, Berman Institute of Bioethics, Johns Hopkins University, Washington, DC, USA
    Genet Med 14:787-94. 2012
  2. ncbi Risky business: risk perception and the use of medical services among customers of DTC personal genetic testing
    David J Kaufman
    Genetics and Public Policy Center, Berman Institute of Bioethics, Johns Hopkins University, Washington, DC, USA
    J Genet Couns 21:413-22. 2012
  3. ncbi Public opinion about the importance of privacy in biobank research
    David J Kaufman
    Genetics and Public Policy Center, Johns Hopkins University, Washington, DC 20036, USA
    Am J Hum Genet 85:643-54. 2009
  4. ncbi Ethical implications of including children in a large biobank for genetic-epidemiologic research: a qualitative study of public opinion
    David Kaufman
    Genetics and Public Policy Center, Johns Hopkins University, Washington DC, USA
    Am J Med Genet C Semin Med Genet 148:31-9. 2008
  5. ncbi Carrier screening for cystic fibrosis in US genetic testing laboratories: a survey of laboratory directors
    D J Kaufman
    Genetics and Public Policy Center, Berman Institute of Bioethics, Johns Hopkins University, Washington, DC, USA
    Clin Genet 74:367-73. 2008
  6. ncbi Subjects matter: a survey of public opinions about a large genetic cohort study
    David Kaufman
    Genetics and Public Policy Center, Johns Hopkins University, Washington, DC 20036, USA
    Genet Med 10:831-9. 2008
  7. ncbi Veterans' attitudes regarding a database for genomic research
    David Kaufman
    Genetics and Public Policy Center, Johns Hopkins University, Washington, DC, USA
    Genet Med 11:329-37. 2009
  8. ncbi Public perspectives on informed consent for biobanking
    Juli Murphy
    Genetics and Public Policy Center, Johns Hopkins University, 1717 Massachusetts Ave, NW, Suite 530, Washington, DC 20036, USA
    Am J Public Health 99:2128-34. 2009
  9. ncbi Public expectations for return of results from large-cohort genetic research
    Juli Murphy
    Genetics and Public Policy Center, Berman Institute of Bioethics, Johns Hopkins University, Washington, DC 20036, USA
    Am J Bioeth 8:36-43. 2008
  10. ncbi Genetic testing of embryos: practices and perspectives of US in vitro fertilization clinics
    Susannah Baruch
    Genetics and Public Policy Center, Berman Institute of Bioethics of Johns Hopkins University, Washington, DC 20036, USA
    Fertil Steril 89:1053-8. 2008

Research Grants

  1. Human Geneticists' Practices Preferences and Beliefs about Biobanks and Large C
    David J Kaufman; Fiscal Year: 2010

Collaborators

  • Juli Murphy
  • G Geller
  • Kathy L Hudson
  • Susannah Baruch
  • Sven O E Ebbesson
  • Chris Petucci
  • Anthony G Comuzzie
  • Lars O E Ebbesson
  • Jean W Maccluer
  • Richard R Fabsitz
  • Charlotte R Wenger
  • Terry Romenesko
  • Elizabeth D Nobmann
  • Richard B Devereux
  • Mary J Roman
  • Bennett Dyke
  • Barbara V Howard
  • Sandra Laston
  • Brian Musselman
  • Belew Mekonnen
  • Jason Diffendal
  • Gene Terefenko

Detail Information

Publications12

  1. ncbi Preferences for opt-in and opt-out enrollment and consent models in biobank research: a national survey of Veterans Administration patients
    David Kaufman
    Genetics and Public Policy Center, Berman Institute of Bioethics, Johns Hopkins University, Washington, DC, USA
    Genet Med 14:787-94. 2012
    ..Before the launch of the Million Veteran Program, a survey of Department of Veterans Affairs patients was conducted to measure preferences for opt-in and opt-out models of enrollment and consent...
  2. ncbi Risky business: risk perception and the use of medical services among customers of DTC personal genetic testing
    David J Kaufman
    Genetics and Public Policy Center, Berman Institute of Bioethics, Johns Hopkins University, Washington, DC, USA
    J Genet Couns 21:413-22. 2012
    ..Subjective interpretations of genetic risk data and personal context appear to be related to health behaviors among DTC customers. Sharing DTC test results with healthcare professionals may add perceived utility to the tests...
  3. ncbi Public opinion about the importance of privacy in biobank research
    David J Kaufman
    Genetics and Public Policy Center, Johns Hopkins University, Washington, DC 20036, USA
    Am J Hum Genet 85:643-54. 2009
    ..Assuring research participants that their privacy will be protected to the best of researchers' abilities may increase participants' acceptance of consent for broad research uses of biobank data by a wide range of researchers...
  4. ncbi Ethical implications of including children in a large biobank for genetic-epidemiologic research: a qualitative study of public opinion
    David Kaufman
    Genetics and Public Policy Center, Johns Hopkins University, Washington DC, USA
    Am J Med Genet C Semin Med Genet 148:31-9. 2008
    ..To successfully include children, proposed cohort study would need to address children's changing capabilities and rights as they grow and reach the age of consent...
  5. ncbi Carrier screening for cystic fibrosis in US genetic testing laboratories: a survey of laboratory directors
    D J Kaufman
    Genetics and Public Policy Center, Berman Institute of Bioethics, Johns Hopkins University, Washington, DC, USA
    Clin Genet 74:367-73. 2008
    ..Further studies are needed to determine whether the adoption of CF screening guidelines has significant clinical or economic effects on population-based CF screening programs...
  6. ncbi Subjects matter: a survey of public opinions about a large genetic cohort study
    David Kaufman
    Genetics and Public Policy Center, Johns Hopkins University, Washington, DC 20036, USA
    Genet Med 10:831-9. 2008
    ..To this end, 4659 Americans were surveyed about support for and willingness to participate in a proposed large cohort study...
  7. ncbi Veterans' attitudes regarding a database for genomic research
    David Kaufman
    Genetics and Public Policy Center, Johns Hopkins University, Washington, DC, USA
    Genet Med 11:329-37. 2009
    ....
  8. ncbi Public perspectives on informed consent for biobanking
    Juli Murphy
    Genetics and Public Policy Center, Johns Hopkins University, 1717 Massachusetts Ave, NW, Suite 530, Washington, DC 20036, USA
    Am J Public Health 99:2128-34. 2009
    ..Our research demonstrates that when considering participating in a genomic biobank, individuals want ongoing choices and control over access to their samples and information...
  9. ncbi Public expectations for return of results from large-cohort genetic research
    Juli Murphy
    Genetics and Public Policy Center, Berman Institute of Bioethics, Johns Hopkins University, Washington, DC 20036, USA
    Am J Bioeth 8:36-43. 2008
    ..Recognizing the wide range of possible research results from a large cohort study, they repeatedly and spontaneously suggested that cohort study participants be given ongoing choices as to which results they received...
  10. ncbi Genetic testing of embryos: practices and perspectives of US in vitro fertilization clinics
    Susannah Baruch
    Genetics and Public Policy Center, Berman Institute of Bioethics of Johns Hopkins University, Washington, DC 20036, USA
    Fertil Steril 89:1053-8. 2008
    ..To better understand the current practices of IVF clinics regarding preimplantation genetic diagnosis (PGD) and explore the attitudes and opinions of clinic directors toward PGD...
  11. ncbi Consumption of omega-3 fatty acids is not associated with a reduction in carotid atherosclerosis: the Genetics of Coronary Artery Disease in Alaska Natives study
    Sven O E Ebbesson
    Norton Sound Health Corporation, Nome, AK 99762, United States
    Atherosclerosis 199:346-53. 2008
    ..This study was designed to evaluate the relation between omega-3 fatty acid (FA) consumption and atherosclerosis...
  12. ncbi Direct analysis in real time for reaction monitoring in drug discovery
    Chris Petucci
    Discovery Analytical Chemistry, Wyeth Research, Collegeville, Pennsylvania 19426, USA
    Anal Chem 79:5064-70. 2007
    ..In summary, DART is a new tool that complements electrospray ionization for the rapid ionization and subsequent mass spectral analysis of compounds in drug discovery...

Research Grants1

  1. Human Geneticists' Practices Preferences and Beliefs about Biobanks and Large C
    David J Kaufman; Fiscal Year: 2010
    ..This systematic study of genetic researchers'views and practices with respect to biobank research will inform polices that maximize the public health benefits of genomic research. ..