Nancy Kass

Summary

Affiliation: Johns Hopkins Bloomberg School of Public Health
Country: USA

Publications

  1. pmc Post-consent assessment of dental subjects' understanding of informed consent in oral health research in Nigeria
    Olaniyi O Taiwo
    Intercountry Centre for Oral Health ICOH for Africa, Jos Plateau State, Nigeria
    BMC Med Ethics 10:11. 2009
  2. pmc A comparison of online versus on-site training in health research methodology: a randomized study
    Rakesh Aggarwal
    Sanjay Gandhi Postgraduate Institute of Medical Sciences, Lucknow 226014, India
    BMC Med Educ 11:37. 2011
  3. ncbi request reprint Effect of race on insurance coverage and health service use for HIV-infected gay men
    N Kass
    Department of Health Policy and Management, Johns Hopkins School of Public Health and Bioethics Institute, Johns Hopkins University, Baltimore, Maryland 21205, USA
    J Acquir Immune Defic Syndr Hum Retrovirol 20:85-92. 1999
  4. pmc An ethics framework for public health and avian influenza pandemic preparedness
    Nancy E Kass
    Department of Health Policy and Management, Johns Hopkins School of Public Health and the Johns Hopkins University Bioethics Institute, Baltimore, Maryland 21205, USA
    Yale J Biol Med 78:239-54. 2005
  5. ncbi request reprint Access to health insurance: experiences and attitudes of those with genetic versus non-genetic medical conditions
    Nancy E Kass
    Johns Hopkins Berman Institute of Bioethics, Department of Health Policy and Management, Bloomberg School of Public Health, Johns Hopkins University, Baltimore, MD 21205 1996, USA
    Am J Med Genet A 143:707-17. 2007
  6. ncbi request reprint Balancing justice and autonomy in clinical research with healthy volunteers
    N E Kass
    Department of Health Policy and Management, Johns Hopkins Bloomberg School of Public Health, Berman Institute of Bioethics, Baltimore, Maryland, USA
    Clin Pharmacol Ther 82:219-27. 2007
  7. ncbi request reprint Controversy and quality improvement: lingering questions about ethics, oversight, and patient safety research
    Nancy Kass
    Berman Institute of Biothics, Department of Health Policy and Management, Bloomberg School of Public Health, The Johns Hopkins University, Baltimore, USA
    Jt Comm J Qual Patient Saf 34:349-53. 2008
  8. doi request reprint Ethics and severe pandemic influenza: maintaining essential functions through a fair and considered response
    Nancy E Kass
    Johns Hopkins Berman Institute of Bioethics, Bloomberg School of Public Healtth, Department of Health Policy and Management, Johns Hopkins University, Baltimore, MD 21205, USA
    Biosecur Bioterror 6:227-36. 2008
  9. ncbi request reprint Medical privacy and the disclosure of personal medical information: the beliefs and experiences of those with genetic and other clinical conditions
    Nancy E Kass
    Department of Health Policy and Management, Bloomberg School of Public Health, Johns Hopkins University, Baltimore, Maryland, USA
    Am J Med Genet A 128:261-70. 2004
  10. pmc Length and complexity of US and international HIV consent forms from federal HIV network trials
    Nancy E Kass
    Johns Hopkins Berman Institute of Bioethics, Baltimore, MD 21205, USA
    J Gen Intern Med 26:1324-8. 2011

Research Grants

Collaborators

Detail Information

Publications39

  1. pmc Post-consent assessment of dental subjects' understanding of informed consent in oral health research in Nigeria
    Olaniyi O Taiwo
    Intercountry Centre for Oral Health ICOH for Africa, Jos Plateau State, Nigeria
    BMC Med Ethics 10:11. 2009
    ..This study assessed the post consent understanding of Nigerian study participants of the oral health research they were invited to join...
  2. pmc A comparison of online versus on-site training in health research methodology: a randomized study
    Rakesh Aggarwal
    Sanjay Gandhi Postgraduate Institute of Medical Sciences, Lucknow 226014, India
    BMC Med Educ 11:37. 2011
    ..Our objective was to determine whether on-line courses in Biostatistics and Research Ethics could achieve similar improvements in knowledge, as traditional on-site, classroom-based courses...
  3. ncbi request reprint Effect of race on insurance coverage and health service use for HIV-infected gay men
    N Kass
    Department of Health Policy and Management, Johns Hopkins School of Public Health and Bioethics Institute, Johns Hopkins University, Baltimore, Maryland 21205, USA
    J Acquir Immune Defic Syndr Hum Retrovirol 20:85-92. 1999
    ..To determine whether race is associated with health insurance coverage and health service use among gay and bisexual men in the Baltimore center of the Multicenter AIDS Cohort Study...
  4. pmc An ethics framework for public health and avian influenza pandemic preparedness
    Nancy E Kass
    Department of Health Policy and Management, Johns Hopkins School of Public Health and the Johns Hopkins University Bioethics Institute, Baltimore, Maryland 21205, USA
    Yale J Biol Med 78:239-54. 2005
  5. ncbi request reprint Access to health insurance: experiences and attitudes of those with genetic versus non-genetic medical conditions
    Nancy E Kass
    Johns Hopkins Berman Institute of Bioethics, Department of Health Policy and Management, Bloomberg School of Public Health, Johns Hopkins University, Baltimore, MD 21205 1996, USA
    Am J Med Genet A 143:707-17. 2007
    ....
  6. ncbi request reprint Balancing justice and autonomy in clinical research with healthy volunteers
    N E Kass
    Department of Health Policy and Management, Johns Hopkins Bloomberg School of Public Health, Berman Institute of Bioethics, Baltimore, Maryland, USA
    Clin Pharmacol Ther 82:219-27. 2007
    ..Other studies enrolling healthy volunteers often are simply looking for the most scientifically sound population for the study of normal human physiology...
  7. ncbi request reprint Controversy and quality improvement: lingering questions about ethics, oversight, and patient safety research
    Nancy Kass
    Berman Institute of Biothics, Department of Health Policy and Management, Bloomberg School of Public Health, The Johns Hopkins University, Baltimore, USA
    Jt Comm J Qual Patient Saf 34:349-53. 2008
    ..Six ethical and regulatory issues are relevant to the Michigan ICU safety program and checklist and to evidence-based patient safety initiatives in general...
  8. doi request reprint Ethics and severe pandemic influenza: maintaining essential functions through a fair and considered response
    Nancy E Kass
    Johns Hopkins Berman Institute of Bioethics, Bloomberg School of Public Healtth, Department of Health Policy and Management, Johns Hopkins University, Baltimore, MD 21205, USA
    Biosecur Bioterror 6:227-36. 2008
    ..An ethical response also will engage the public, will coordinate interdependent sectors as a core preparedness priority, and will address how plans affect and can be understood by the least well off...
  9. ncbi request reprint Medical privacy and the disclosure of personal medical information: the beliefs and experiences of those with genetic and other clinical conditions
    Nancy E Kass
    Department of Health Policy and Management, Bloomberg School of Public Health, Johns Hopkins University, Baltimore, Maryland, USA
    Am J Med Genet A 128:261-70. 2004
    ....
  10. pmc Length and complexity of US and international HIV consent forms from federal HIV network trials
    Nancy E Kass
    Johns Hopkins Berman Institute of Bioethics, Baltimore, MD 21205, USA
    J Gen Intern Med 26:1324-8. 2011
    ..Informed consent is required in most clinical research with humans. While federal regulations state consent information should be understandable to participants, concerns have been raised that consent forms are overly long and complex...
  11. pmc An ethics framework for public health
    N E Kass
    Department of Health Policy and Management, Johns Hopkins School of Public Health, and the Johns Hopkins University Bioethics Institute, Baltimore, MD, USA
    Am J Public Health 91:1776-82. 2001
    ....
  12. pmc The structure and function of research ethics committees in Africa: a case study
    Nancy E Kass
    Phoebe R Berman Professor of Bioethics and Public Health, Berman Institute of Bioethics, Johns Hopkins School of Public Health, Baltimore, Maryland, United States of America
    PLoS Med 4:e3. 2007
  13. ncbi request reprint Excluding particular information from consent forms
    Neal Dickert
    Department of Health Policy and Management, Phoebe R Berman Bioethics Institute, John Hopkins University Bloomberg School of Public Health, Hampton House 348, 624 N Broadway, Baltimore, MD 21205, USA
    Account Res 12:33-45. 2005
    ..Further, we argue that the regulations ought to be amended to reflect this obligation...
  14. ncbi request reprint Disclosure, confidentiality, and families: experiences and attitudes of those with genetic versus nongenetic medical conditions
    Laura Plantinga
    Welch Center for Prevention, Epidemiology and Clinical Research, Johns Hopkins Medical Institutions, Baltimore, Maryland, USA
    Am J Med Genet C Semin Med Genet 119:51-9. 2003
    ..The views and experiences reported here generally did not differ by whether participants had genetic versus nongenetic conditions, suggesting that the extensive policy focus on genetic information may be unwarranted...
  15. ncbi request reprint Ethical oversight of research in developing countries
    Nancy Kass
    Johns Hopkins Bioethics Institute, Bloomberg School of Public Health, Baltimore, Maryland, USA
    IRB 25:1-10. 2003
  16. pmc When a serious adverse event in research occurs, how do other volunteers react?
    Caitlin E Kennedy
    Johns Hopkins University, Bloomberg School of Public Health, Department of International Health, Baltimore, MD 21205, USA
    J Empir Res Hum Res Ethics 6:47-56. 2011
    ..Downward social comparison theory, optimistic bias, and feelings of responsibility and control may help explain these narratives. Findings underscore the importance of communication and understanding of research risks and protections...
  17. ncbi request reprint Ethical conduct of radiology research with human participants
    Ingrid Burger
    The Johns Hopkins Bloomberg School of Public Health, Department of Health Policy and Management, The Phoebe R Berman Bioethics Institute, The Johns Hopkins University, Baltimore, MD 21205, USA
    J Am Coll Radiol 3:932-9. 2006
    ..We offer suggestions for anticipating and resolving such issues...
  18. pmc Faculty perspectives on community-based research: "I see this still as a journey"
    Caitlin Kennedy
    Johns Hopkins University, Baltimore, MD 21205, USA
    J Empir Res Hum Res Ethics 4:3-16. 2009
    ..Policy changes at funding and academic institutions and an emphasis on the similarities between CBPR and ethical principles could improve support for CBPR approaches...
  19. ncbi request reprint Disclosure of personal medical information: differences among parents and affected adults for genetic and nongenetic conditions
    Summer Johnson
    Johns Hopkins Bloomberg School of Public Health, Department of Health Policy and Management, Baltimore, Maryland 21205, USA
    Genet Test 9:269-80. 2005
    ..Further study is necessary to examine the implications of these differences in attitudes and experiences concerning insurance, employment, and social interactions among persons with these conditions...
  20. pmc Our two cents: research ethics consultation at Johns Hopkins Bloomberg School of Public Health
    Holly A Taylor
    Johns Hopkins University, Baltimore, MD 21205, USA
    Am J Bioeth 8:33-5; discussion W4-6. 2008
  21. ncbi request reprint The ethical review of health care quality improvement initiatives: findings from the field
    Holly A Taylor
    Department of Health Policy and Management, Johns Hopkins Bloomberg School of Public Health, and Berman Institute of Bioethics at the Johns Hopkins University, USA
    Issue Brief (Commonw Fund) 95:1-12. 2010
    ....
  22. doi request reprint Ethics and informed consent for comparative effectiveness research with prospective electronic clinical data
    Ruth Faden
    Johns Hopkins Berman Institute of Bioethics, Baltimore, MD 21205, USA
    Med Care 51:S53-7. 2013
    ..Although many retrospective studies have relied on ECD, new study designs propose using ECD for prospective CER. These designs have great potential but they also raise important ethics questions...
  23. ncbi request reprint Health information, the HIPAA privacy rule, and health care: what do physicians think?
    Julia Slutsman
    National Cancer Institute in Bethesda, Maryland, USA
    Health Aff (Millwood) 24:832-42. 2005
    ..The policy implications of the findings are discussed...
  24. doi request reprint Public health and clinical impact of increasing emergency department-based HIV testing: perspectives from the 2007 conference of the National Emergency Department HIV Testing Consortium
    Aleksandar Kecojevic
    Department of Emergency Medicine, The Johns Hopkins University School of Medicine, Baltimore, MD 21209, USA
    Ann Emerg Med 58:S151-9.e1. 2011
    ..We codify those domains of public health and clinical care most affected by implementing HIV testing in EDs, as determined by expert opinion...
  25. ncbi request reprint A case study of research ethics capacity development in Africa
    Adnan A Hyder
    Department of International Health and Berman Institute of Bioethics, Johns Hopkins Bloomberg School of Public Health, Baltimore, Maryland 21205, USA
    Acad Med 82:675-83. 2007
    ..How this translates to changes in research ethics in Africa remains to be seen...
  26. pmc Evaluating institutional capacity for research ethics in Africa: a case study from Botswana
    Adnan A Hyder
    Johns Hopkins Bloomberg School of Public Health, 615 North Wolfe Street, Suite E 8132, Baltimore, MD 21205, USA
    BMC Med Ethics 14:31. 2013
    ..The objective of this paper is to present an approach to institutional capacity assessment in research ethics and application of this approach in the form of a case study from an institution in Africa...
  27. ncbi request reprint Genetic screening and disability insurance: what can we learn from the health insurance experience?
    Nancy Kass
    Department of Health and Policy Management, Johns Hopkins Bloomberg School of Public Health, USA
    J Law Med Ethics 35:66-73. 2007
    ..How health insurance companies use genetic information, and how public policy has limited that use, can be illustrative for genetics and disability insurance policy...
  28. ncbi request reprint Public health ethics: from foundations and frameworks to justice and global public health
    Nancy E Kass
    Johns Hopkins School of Public Health, John Hopkins University Berman Bioethics Institute, Baltimore, MD, USA
    J Law Med Ethics 32:232-42, 190. 2004
    ..Bioethics in the future not only will take on more issues of public ethics, but will apply it extensive scholarship in distributive justice to questions of global public health...
  29. ncbi request reprint A study to evaluate the effect of investigator attendance on the efficiency of IRB review
    Holly A Taylor
    Department of Health Policy and Management, Bloomberg School of Public Health and Berman Institute of Bioethics, Johns Hopkins University, Baltimore, MD, USA
    IRB 30:1-5. 2008
  30. pmc Motivations, understanding, and voluntariness in international randomized trials
    Nancy E Kass
    Department of Health Policy and Management, Johns Hopkins University Bloomberg School of Public Health, Baltimore, MD, USA
    IRB 27:1-8. 2005
  31. ncbi request reprint Informed consent for dementia research: the study enrollment encounter
    Betty S Black
    Department of Psychiatry and Behavioral Sciences, Johns Hopkins School of Medicine, Johns Hopkins University, Baltimore, MD, USA
    IRB 29:7-14. 2007
  32. ncbi request reprint On the importance of research ethics and mentoring
    Ruth R Faden
    Johns Hopkins University, USA
    Am J Bioeth 2:50-1. 2002
  33. ncbi request reprint Attending to local justice: lessons from pediatric HIV
    Holly A Taylor
    Department of Health Policy and Management, Bloomberg School of Public Health, Johns Hopkins University, Baltimore, Maryland, USA
    IRB 24:9-17. 2002
  34. pmc Screening in the dark: ethical considerations of providing screening tests to individuals when evidence is insufficient to support screening populations
    Ingrid M Burger
    Johns Hopkins Bloomberg School of Public Health, USA
    Am J Bioeth 9:3-14. 2009
    ..Finally, we discuss specific cases to explore how evidence, patient risk factors and preferences, and physician judgment ought to balance when making individual patient screening decisions...
  35. ncbi request reprint Views of US researchers about informed consent in international collaborative research
    Liza Dawson
    Kevric Corporation, Office of Biotechnology Activities, National Institutes of Health, Bethesda, Maryland, USA
    Soc Sci Med 61:1211-22. 2005
    ....
  36. ncbi request reprint Assessment of the ethical review process in Sudan
    Dya Eldin M Elsayed
    Department of Community Medicine, Faculty of Medicine, Alzaiem Alazhari University, Republic of the Sudan
    Dev World Bioeth 7:143-8. 2007
    ..Nearly half of respondents (46.3%) knew about the existence of research ethics committees in Sudan. Researchers reported a variety of experiences with the ethical review process; most of them were unable to define 'ethics committee'...
  37. ncbi request reprint The use of medical records in research: what do patients want?
    Nancy E Kass
    Department of Neurology, Cleveland Clinic Foundation, USA
    J Law Med Ethics 31:429-33. 2003
  38. ncbi request reprint Public health ethics: mapping the terrain
    James F Childress
    University of Virginia, USA
    J Law Med Ethics 30:170-8. 2002
  39. pmc The use of CT for screening: a national survey of radiologists' activities and attitudes
    Ingrid M Burger
    Department of Health Policy and Management, Johns Hopkins Bloomberg School of Public Health, Baltimore, MD, USA
    Radiology 248:160-8. 2008
    ..To investigate the activities, motivations, and attitudes of radiologists regarding specific computed tomographic (CT) screening examinations by using a survey...

Research Grants2

  1. Ethical Challenges in Lead Poisoning Prevention Research
    Nancy Kass; Fiscal Year: 2005
    ..The investigators hypothesize that our approach can produce models for education of diverse communities and EH scientists. ..