Affiliation: Johns Hopkins University
- Beyond "compliance": the role of institutional culture in promoting research integrityGail Geller
Departments of Medicine and Pediatrics, Johns Hopkins University School of Medicine, Baltimore, MD, USA
Acad Med 85:1296-302. 2010..To contribute data to conceptual explorations of the role of institutional culture in promoting research ethics and integrity...
- Houseofficers' reactions to media coverage about the sequencing of the human genomeGail Geller
Genetics and Public Policy Studies, School of Medicine, Johns Hopkins University, Baltimore, MD 21205, USA
Soc Sci Med 56:2211-20. 2003..However, this will require that physicians develop an appreciation of the newsmaking process, and how subtle interactions between politics, the media and science influence the "framing" of media coverage...
- Toward an optimal healing environment in pediatric rehabilitationGail Geller
Phoebe Berman Bioethics Institute, Johns Hopkins University, Baltimore, MD 21205, USA
J Altern Complement Med 10:S179-92. 2004..The paper concludes with a discussion of research priorities and the challenges imposed by different research strategies...
- Complementary medicine and genetic medicine: polar disciplines or dynamic partners?Gail Geller
Phoebe R Berman Bioethics Institute, The Johns Hopkins University, Baltimore, MD, USA
J Altern Complement Med 11:343-7. 2005....
- What do clinicians derive from partnering with their patients? A reliable and valid measure of "personal meaning in patient care"Gail Geller
Berman Institute of Bioethics, Johns Hopkins University, Baltimore, MD 21205, USA
Patient Educ Couns 72:293-300. 2008..Burnout is high among clinicians and may relate to loss of "meaning" in patient care. We sought to develop and validate a measure of "personal meaning" that practitioners derive from patient care...
- The role and impact of personal faith and religion among genetic service providersGail Geller
Johns Hopkins University, 624 N Broadway, Baltimore, MD 21205, USA
Am J Med Genet C Semin Med Genet 151:31-40. 2009..Efforts should be made to prevent or reduce the secrecy surrounding personal faith and religion among genetics professionals...
- Genetics professionals' experiences with grief and loss: implications for support and trainingG Geller
Berman Institute of Bioethics, Johns Hopkins University, Baltimore, MD 21205, USA
Clin Genet 77:421-9. 2010..Greater attention should be paid to training clinicians in how to deal with grief and loss, and supporting them through such difficult experiences in an effort to reduce their distress...
- Informed consent for enrolling minors in genetic susceptibility research: a qualitative study of at-risk children's and parents' views about children's role in decision-makingGail Geller
Department of Pediatrics, School of Medicine, Johns Hopkins University, Baltimore, Maryland, USA
J Adolesc Health 32:260-71. 2003....
- Participation in breast cancer susceptibility testing protocols: influence of recruitment source, altruism, and family involvement on women's decisionsG Geller
Department of Pediatrics, School of Medicine, Johns Hopkins University, Baltimore, Maryland 21205, USA
Cancer Epidemiol Biomarkers Prev 8:377-83. 1999....
- Prenatal genetic testing: content of discussions between obstetric providers and pregnant womenB A Bernhardt
Department of Pediatrics, Johns Hopkins School of Medicine, Baltimore, Maryland, USA
Obstet Gynecol 91:648-55. 1998..To document the content and accuracy of discussions about prenatal genetic testing between obstetric providers and pregnant women...
- Decision-making about breast cancer susceptibility testing: how similar are the attitudes of physicians, nurse practitioners, and at-risk women?G Geller
Department of Pediatrics, School of Medicine, Johns Hopkins University, Baltimore, MD 21205, USA
J Clin Oncol 16:2868-76. 1998..To determine what consumers and providers would want to discuss about breast cancer susceptibility testing (BCST) and their preferred role in testing decisions...
- Evaluation of nurses and genetic counselors as providers of education about breast cancer susceptibility testingB A Bernhardt
Johns Hopkins School of Medicine in Baltimore, MD, USA
Oncol Nurs Forum 27:33-9. 2000..To compare outcomes of pretest education about breast cancer susceptibility testing provided by nurses and genetic counselors...
- Effects of obstetrician gender on communication and patient satisfactionD L Roter
Department of Health Policy and Management, Johns Hopkins School of Public Health, Baltimore, Maryland 21209, USA
Obstet Gynecol 93:635-41. 1999..To describe patient-obstetrician communication during the first prenatal visit and its relationship to physician gender and patient satisfaction...
- Parents' and children's attitudes toward the enrollment of minors in genetic susceptibility research: implications for informed consentBarbara A Bernhardt
Department of Pediatrics, Johns Hopkins School of Medicine, New York, USA
Am J Med Genet A 116:315-23. 2003..This study was aimed at assessing parents' and children's reactions to such research, and their perceptions of risks and benefits of participating...
- What does 'respect' mean? Exploring the moral obligation of health professionals to respect patientsMary Catherine Beach
Berman Institute of Bioethics, Johns Hopkins University, Baltimore, MD 21287, USA
J Gen Intern Med 22:692-5. 2007..Finally, the respect that we promote has both a cognitive dimension (believing that patients have value) and a behavioral dimension (acting in accordance with this belief)...
- A "holistic" model of the healing relationship: what would that require of physicians?Gail Geller
Johns Hopkins University School of Medicine, USA
Am J Bioeth 6:82-5. 2006
- The moral nature of patient-centeredness: is it "just the right thing to do"?Patrick S Duggan
Phoebe R Berman Bioethics Institute, Johns Hopkins University, Baltimore, MD, USA
Patient Educ Couns 62:271-6. 2006..We sought to describe the moral commitments that underlie patient-centered care...
- The quality of media reports on discoveries related to human genetic diseasesNeil A Holtzman
Genetics and Public Policy Studies, Institute of Genetic Medicine, The Johns Hopkins Medical Institutions, Baltimore, MD 21209, USA
Community Genet 8:133-44. 2005..To examine (1) the quality of media reports (newspapers, television and public radio) of genetic discoveries with medical relevance and (2) factors related to the completeness and balance of the stories...
- How do obstetric providers discuss referrals for prenatal genetic counseling?Barbara A Bernhardt
Department of Health Policy and Management, Johns Hopkins Medical Institutions, Baltimore, Maryland, USA
J Genet Couns 14:109-17. 2005..In addition, obstetric providers' inadequate descriptions of prenatal genetic counseling may result in women being poorly prepared for genetic counseling sessions...
- Children in research: new perspectives and practices for informed consentMarion E Broome
School of Nursing, University of Alabama at Birmingham, USA
IRB . 2003
- Ethical issues in conducting behavioral genetics research: the case of smoking prevention trials among adolescentsBenjamin S Wilfond
Bioethics Research Section, Medical Genetics Branch, National Human Genome Research Institute, USA
J Health Care Law Policy 6:73-88. 2002
- Scientists' and science writers' experiences reporting genetic discoveries: toward an ethic of trust in science journalismGail Geller
Phoebe Berman Bioethics Institute, Johns Hopkins University, Baltimore, Maryland 21205, USA
Genet Med 7:198-205. 2005..To describe the relationship between scientists and science writers and their experiences with media reporting of genetic discoveries...
- Physicians' propensity to offer genetic testing for Alzheimer's disease: results from a surveyGary A Chase
Department of Biostatistics and Research Epidemiology, Henry Ford Health Sciences Center, Johns Hopkins University School of Mediicne, Baltimore, MD, USA
Genet Med 4:297-303. 2002..Examine physician knowledge, preferences, and use of genetic tests for Alzheimer's disease (AD)...
- Mapping the human genome: an assessment of media coverage and public reactionEllen S Tambor
Department of Health Policy and Management, School of Hygiene and Public Health, Johns Hopkins University, Baltimore, MD 21205, USA
Genet Med 4:31-6. 2002..To assess public reactions to the June 26, 2000, announcement that scientists had nearly finished mapping the human genome...
- Adolescent and parent perceptions on youth participation in risk behavior researchRyan H Pasternak
Department of Pediatrics, Louisiana State University School of Medicine, 1542 Tulane Avenue, Campus Box T8 1, New Orleans, LA 70112, USA
Arch Pediatr Adolesc Med 160:1159-66. 2006..To assess and compare parent and adolescent views on the importance of risk behavior research and the need for parental consent and to identify predictors of views...
- "My son is still walking": stages of receptivity to discussions of advance care planning among parents of sons with Duchenne muscular dystrophyLori Hamby Erby
Department of Health, Behavior and Society, Bloomberg School of Public Health, Johns Hopkins University, Baltimore, MD, USA
Semin Pediatr Neurol 13:132-40. 2006..These data suggest a model for future research in which windows of opportunity for discussion may exist as sons are approaching significant transitional milestones and parents are able to see the world through a lens of "presence."..
- The media and public reaction to genetic researchGail Geller
Johns Hopkins University, Baltimore, MD, USA
JAMA 287:773. 2002
- Ethical and practical issues associated with aggregating databasesDavid R Karp
Department of Internal Medicine, University of Texas Southwestern Medical Center at Dallas, Dallas, Texas, USA
PLoS Med 5:e190. 2008
- Conducting empirical research on informed consent: challenges and questionsGreg A Sachs
Department of Medicine, University of Chicago, USA
IRB . 2003
- Ethical implications of including children in a large biobank for genetic-epidemiologic research: a qualitative study of public opinionDavid Kaufman
Genetics and Public Policy Center, Johns Hopkins University, Washington DC, USA
Am J Med Genet C Semin Med Genet 148:31-9. 2008..To successfully include children, proposed cohort study would need to address children's changing capabilities and rights as they grow and reach the age of consent...