Barbara A Bernhardt
Affiliation: Johns Hopkins University
- Parents' and children's attitudes toward the enrollment of minors in genetic susceptibility research: implications for informed consentBarbara A Bernhardt
Department of Pediatrics, Johns Hopkins School of Medicine, New York, USA
Am J Med Genet A 116:315-23. 2003..This study was aimed at assessing parents' and children's reactions to such research, and their perceptions of risks and benefits of participating...
- Informed consent for enrolling minors in genetic susceptibility research: a qualitative study of at-risk children's and parents' views about children's role in decision-makingGail Geller
Department of Pediatrics, School of Medicine, Johns Hopkins University, Baltimore, Maryland, USA
J Adolesc Health 32:260-71. 2003....
- Mapping the human genome: an assessment of media coverage and public reactionEllen S Tambor
Department of Health Policy and Management, School of Hygiene and Public Health, Johns Hopkins University, Baltimore, MD 21205, USA
Genet Med 4:31-6. 2002..CONCLUSIONS: These findings highlight the need for continued public discourse, including through the media, to address concerns regarding the Human Genome Project...
- Utilization of BRCA1/2 genetic testing in the clinical setting: report from a single institutionSoo Chin Lee
Department of Oncology, Johns Hopkins Medical Institution, Baltimore, MD 21205, USA
Cancer 94:1876-85. 2002..Clinical testing for BRCA1/2 has been available since 1996. Interest in testing in the research and hypothetical situations has been consistently high, but there have been limited reports on its clinical utilization...
- Does knowledge about the genetics of breast cancer differ between nongeneticist physicians who do or do not discuss or order BRCA testing?Teresa Doksum
Abt Associates Inc, Cambridge, Massachusetts 02138, USA
Genet Med 5:99-105. 2003..To assess nongeneticist physicians' knowledge and experience with BRCA1/2 testing...
- Perceptions of genetic discrimination among at-risk relatives of colorectal cancer patientsKira A Apse
Division of Neurogenetics, Beth Israel Deaconess Medical Center, Boston, Massachusetts, USA
Genet Med 6:510-6. 2004..To explore the concerns of at-risk relatives of colorectal cancer patients about genetic discrimination and their awareness of current legislative protections...
- Active recruitment increased enrollment in a hereditary cancer registryTara M Friebel
Mid-Atlantic Cancer Genetics Network, Department of Pathology, Johns Hopkins University School of Medicine, Park SB202, 600 N. Wolfe St, Baltimore, MD 21287, USA
J Clin Epidemiol 57:1172-6. 2004..6% to 67.4%). CONCLUSION: Allocating research staff specifically for recruitment and personal contact with potential participants is effective in achieving increased enrollment into a national hereditary cancer research registry...
- What do clinicians derive from partnering with their patients? A reliable and valid measure of "personal meaning in patient care"Gail Geller
Berman Institute of Bioethics, Johns Hopkins University, Baltimore, MD 21205, USA
Patient Educ Couns 72:293-300. 2008..Burnout is high among clinicians and may relate to loss of "meaning" in patient care. We sought to develop and validate a measure of "personal meaning" that practitioners derive from patient care...