Barbara A Bernhardt

Summary

Affiliation: Johns Hopkins University
Country: USA

Publications

  1. ncbi Parents' and children's attitudes toward the enrollment of minors in genetic susceptibility research: implications for informed consent
    Barbara A Bernhardt
    Department of Pediatrics, Johns Hopkins School of Medicine, New York, USA
    Am J Med Genet A 116:315-23. 2003
  2. ncbi Informed consent for enrolling minors in genetic susceptibility research: a qualitative study of at-risk children's and parents' views about children's role in decision-making
    Gail Geller
    Department of Pediatrics, School of Medicine, Johns Hopkins University, Baltimore, Maryland, USA
    J Adolesc Health 32:260-71. 2003
  3. ncbi Mapping the human genome: an assessment of media coverage and public reaction
    Ellen S Tambor
    Department of Health Policy and Management, School of Hygiene and Public Health, Johns Hopkins University, Baltimore, MD 21205, USA
    Genet Med 4:31-6. 2002
  4. ncbi Utilization of BRCA1/2 genetic testing in the clinical setting: report from a single institution
    Soo Chin Lee
    Department of Oncology, Johns Hopkins Medical Institution, Baltimore, MD 21205, USA
    Cancer 94:1876-85. 2002
  5. ncbi Does knowledge about the genetics of breast cancer differ between nongeneticist physicians who do or do not discuss or order BRCA testing?
    Teresa Doksum
    Abt Associates Inc, Cambridge, Massachusetts 02138, USA
    Genet Med 5:99-105. 2003
  6. ncbi Perceptions of genetic discrimination among at-risk relatives of colorectal cancer patients
    Kira A Apse
    Division of Neurogenetics, Beth Israel Deaconess Medical Center, Boston, Massachusetts, USA
    Genet Med 6:510-6. 2004
  7. ncbi Active recruitment increased enrollment in a hereditary cancer registry
    Tara M Friebel
    Mid-Atlantic Cancer Genetics Network, Department of Pathology, Johns Hopkins University School of Medicine, Park SB202, 600 N. Wolfe St, Baltimore, MD 21287, USA
    J Clin Epidemiol 57:1172-6. 2004
  8. ncbi What do clinicians derive from partnering with their patients? A reliable and valid measure of "personal meaning in patient care"
    Gail Geller
    Berman Institute of Bioethics, Johns Hopkins University, Baltimore, MD 21205, USA
    Patient Educ Couns 72:293-300. 2008

Collaborators

  • Gail Geller
  • Neil A Holtzman
  • Tara M Friebel
  • Kira A Apse
  • Kathy J Helzlsouer
  • Teresa Doksum
  • Ellen S Tambor
  • Soo Chin Lee
  • Barbara P Fuller
  • Francis M Giardiello
  • Shing M Lee
  • Barbara B Biesecker
  • Constance A Griffin
  • Ruth Anne Beutler
  • Soo-Chin Lee
  • Joann Rodgers

Detail Information

Publications8

  1. ncbi Parents' and children's attitudes toward the enrollment of minors in genetic susceptibility research: implications for informed consent
    Barbara A Bernhardt
    Department of Pediatrics, Johns Hopkins School of Medicine, New York, USA
    Am J Med Genet A 116:315-23. 2003
    ..This study was aimed at assessing parents' and children's reactions to such research, and their perceptions of risks and benefits of participating...
  2. ncbi Informed consent for enrolling minors in genetic susceptibility research: a qualitative study of at-risk children's and parents' views about children's role in decision-making
    Gail Geller
    Department of Pediatrics, School of Medicine, Johns Hopkins University, Baltimore, Maryland, USA
    J Adolesc Health 32:260-71. 2003
    ....
  3. ncbi Mapping the human genome: an assessment of media coverage and public reaction
    Ellen S Tambor
    Department of Health Policy and Management, School of Hygiene and Public Health, Johns Hopkins University, Baltimore, MD 21205, USA
    Genet Med 4:31-6. 2002
    ..CONCLUSIONS: These findings highlight the need for continued public discourse, including through the media, to address concerns regarding the Human Genome Project...
  4. ncbi Utilization of BRCA1/2 genetic testing in the clinical setting: report from a single institution
    Soo Chin Lee
    Department of Oncology, Johns Hopkins Medical Institution, Baltimore, MD 21205, USA
    Cancer 94:1876-85. 2002
    ..Clinical testing for BRCA1/2 has been available since 1996. Interest in testing in the research and hypothetical situations has been consistently high, but there have been limited reports on its clinical utilization...
  5. ncbi Does knowledge about the genetics of breast cancer differ between nongeneticist physicians who do or do not discuss or order BRCA testing?
    Teresa Doksum
    Abt Associates Inc, Cambridge, Massachusetts 02138, USA
    Genet Med 5:99-105. 2003
    ..To assess nongeneticist physicians' knowledge and experience with BRCA1/2 testing...
  6. ncbi Perceptions of genetic discrimination among at-risk relatives of colorectal cancer patients
    Kira A Apse
    Division of Neurogenetics, Beth Israel Deaconess Medical Center, Boston, Massachusetts, USA
    Genet Med 6:510-6. 2004
    ..To explore the concerns of at-risk relatives of colorectal cancer patients about genetic discrimination and their awareness of current legislative protections...
  7. ncbi Active recruitment increased enrollment in a hereditary cancer registry
    Tara M Friebel
    Mid-Atlantic Cancer Genetics Network, Department of Pathology, Johns Hopkins University School of Medicine, Park SB202, 600 N. Wolfe St, Baltimore, MD 21287, USA
    J Clin Epidemiol 57:1172-6. 2004
    ..6% to 67.4%). CONCLUSION: Allocating research staff specifically for recruitment and personal contact with potential participants is effective in achieving increased enrollment into a national hereditary cancer research registry...
  8. ncbi What do clinicians derive from partnering with their patients? A reliable and valid measure of "personal meaning in patient care"
    Gail Geller
    Berman Institute of Bioethics, Johns Hopkins University, Baltimore, MD 21205, USA
    Patient Educ Couns 72:293-300. 2008
    ..Burnout is high among clinicians and may relate to loss of "meaning" in patient care. We sought to develop and validate a measure of "personal meaning" that practitioners derive from patient care...