Research Topics
| J K AustinSummaryAffiliation: Indiana University Country: USA Publications
Research Grants
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Detail Information
Publications
Testimonies submitted for the Institute of Medicine report: epilepsy across the spectrum: promoting health and understandingJoan K Austin
School of Nursing, Indiana University, USA
Epilepsy Behav 25:634-61. 2012....
Behavior problems in children at time of first recognized seizure and changes over the following 3 yearsJ K Austin
Department of Environments for Health, Indiana University School of Nursing, Indianapolis, IN, USA
Epilepsy Behav 21:373-81. 2011....
Measuring stigma in children with epilepsy and their parents: instrument development and testingJoan K Austin
Indiana University School of Nursing, Indianapolis, IN 46202 5107, USA
Epilepsy Behav 5:472-82. 2004..The goal of this work is to describe psychometric properties of two scales measuring perceived stigma in children with epilepsy and their parents...
Ethical issues related to the increased emphasis on children participating in researchJoan K Austin
Indiana University School of Nursing, 1111 Middle Drive, Indianapolis, IN 46202, USA
Chronic Illn 2:181-2. 2006
Behavioral and psychiatric comorbidities in pediatric epilepsy: toward an integrative modelJoan K Austin
Indiana University School of Nursing, Indianapolis, Indiana 46202 5107, USA
Epilepsia 48:1639-51. 2007..After the literature on each category is reviewed, an integrated heuristic model that includes key illness-related and psychosocial variables is presented...
Development of the parent response to child illness (PRCI) scaleJoan K Austin
Indiana University School of Nursing, Indianapolis, IN 46202 5107, USA
Epilepsy Behav 13:662-9. 2008..The scale has potential for use in research and in the clinical setting. In addition, the scale has potential to be used with other conditions...
Recurrent seizures and behavior problems in children with first recognized seizures: a prospective studyJoan K Austin
Environments for Health, School of Nursing, Indiana University, Indianapolis, 46202 5107, USA
Epilepsia 43:1564-73. 2002..Children with epilepsy have high rates of behavior problems. The purpose was to describe prospectively the association of seizures and behavior problems in children with new-onset seizures...
Progressive behavioral changes in children with epilepsyJoan K Austin
Indiana University School of Nursing, 1111 Middle Drive, NU492, Indianapolis, IN 46202 5107, USA
Prog Brain Res 135:419-27. 2002..Transient cognitive impairment (TCI) from interictal epileptiform discharges is proposed as an alternative explanation for behavior problems...
Behavioral issues involving children and adolescents with epilepsy and the impact of their families: recent research dataJoan K Austin
Indiana University School of Nursing, Indianapolis, IN 46202, USA
Epilepsy Behav 5:S33-41. 2004..We also explored which baseline and changes in family factors were associated with changes in child behavioral problems over the 24-month period...
Childhood epilepsy and asthma: changes in behavior problems related to gender and change in condition severityJ K Austin
Indiana University School of Nursing, Indianapolis, Indiana 46202 5107, USA
Epilepsia 41:615-23. 2000..All children were between ages 8 and 13 years and had been diagnosed with their respective conditions for >/=1 year at entry into the study...
Behavior problems in children before first recognized seizuresJ K Austin
Schools of Nursing, Indiana University, Indianapolis, Indiana
Pediatrics 107:115-22. 2001....
Self-esteem and symptoms of depression in children with seizures: relationships with neuropsychological functioning and family variables over timeJoan K Austin
Department of Environments for Health, Indiana University School of Nursing, Indianapolis, Indiana 46202 5107, USA
Epilepsia 51:2074-83. 2010....
Neuropsychological status at seizure onset in children: risk factors for early cognitive deficitsP S Fastenau
Department of Psychology, Indiana University, Purdue University, Indianapolis, USA
Neurology 73:526-34. 2009..This large, prospective, community-based study characterized neuropsychological functioning and academic achievement at the time of the first recognized seizure and identified risk factors for cognitive deficits...
Academic problems in children with seizures: relationships with neuropsychological functioning and family variables during the 3 years after onsetDavid W Dunn
Department of Psychiatry, Indiana University School of Medicine, Indianapolis, IN, USA
Epilepsy Behav 19:455-61. 2010....
Behavior and mental health problems in children with epilepsy and low IQJanice M Buelow
Indiana University School of Nursing, Indianapolis 46202-5107, USA
Dev Med Child Neurol 45:683-92. 2003..Findings suggest that children with both epilepsy and low IQ should be carefully assessed for mental health problems in the clinical setting...
Stroke caregiver outcomes from the Telephone Assessment and Skill-Building Kit (TASK)Tamilyn Bakas
Indiana University School of Nursing, Indianapolis, Indiana, USA
Top Stroke Rehabil 16:105-21. 2009..The Telephone Assessment and Skill-Building Kit (TASK) is an 8-week program that addresses caregiver needs. This study explored the efficacy of the TASK program in improving stroke caregiver outcomes...
Stressors, coping and depression in haemodialysis patientsJ L Welch
Department of Adult Health, Indiana University School of Nursing, Indianapolis, USA
J Adv Nurs 33:200-7. 2001..Depression is common in persons receiving outpatient haemodialysis, but little work has been done to explore the variables associated with depression...
Behavioral and mental health problems in low-income children with special health care needsJanie Canty-Mitchell
School of Nursing, Indiana University, Indianapolis, IN, USA
Arch Psychiatr Nurs 18:79-87. 2004..CSHCN should be assessed and referred appropriately for behavioral and mental health problems during routine health care visits...
Model testing: examining parent satisfactionJanis E Gerkensmeyer
School of Nursing, Indiana University, Indianapolis, IN, USA
Arch Psychiatr Nurs 20:65-75. 2006..The strongest predictor of parent satisfaction was met expectations; however, inclusion of the desire concepts was essential in obtaining a strong, acceptable model fit...
Neuropsychological correlates of electroencephalograms in children with epilepsyJennifer I Koop
Department of Psychology, Purdue School of Science, Indiana University Purdue University Indianapolis IUPUI, Indianapolis, IN, USA
Epilepsy Res 64:49-62. 2005..This study examined the degree to which neurophysiological activity on routine clinical EEG is associated with neuropsychological deficiencies in children with epilepsy...
Needs, concerns, strategies, and advice of stroke caregivers the first 6 months after dischargeTamilyn Bakas
Indiana University School of Nursing, 1111 Middle Drive, NU 417, Indianapolis, IN 46202-5106, USA
J Neurosci Nurs 34:242-51. 2002..Upon further testing, the needs and concerns checklist, as well as the list of strategies and advice, may help to identify relevant areas for caregiver intervention...
Quality of life in black hemodialysis patientsJ L Welch
Adult Renal Services, Indiana University Medical Center, Indianapolis, USA
Adv Ren Replace Ther 6:351-7. 1999..In addition, findings suggest that nursing support may be the most needed during the early stages of dialysis...
Teachers' ratings of the academic performance of children with epilepsyJennifer M Katzenstein
Department of Psychology, Purdue School of Science, Indiana University Purdue University Indianapolis, Indianapolis, IN, USA
Epilepsy Behav 10:426-31. 2007..These results support the hypothesis that some teachers might underestimate the academic abilities of children with epilepsy...
Content validity and satisfaction with a stroke caregiver intervention programTamilyn Bakas
Indiana University School of Nursing, Indianapolis, IN 46202, USA
J Nurs Scholarsh 41:368-75. 2009..The purpose of this article is to describe content validity and satisfaction relative to the Telephone Assessment and Skill-Building Kit (TASK), an 8-week follow-up program based on individualized assessment of stroke caregiver needs...
Continuing psychosocial care needs in children with new-onset epilepsy and their parentsCheryl P Shore
University of Indianapolis, Indianapolis, IN, USA
J Neurosci Nurs 41:244-50. 2009..Nurses should assess both children and parents for these needs at every encounter with the healthcare system to address their needs...
Identifying risk factors for maternal depression in families of adolescents with epilepsyCheryl P Shore
Indiana University, School of Nursing, Indianapolis, USA
J Spec Pediatr Nurs 7:71-80. 2002..To investigate factors associated with depressive symptoms in mothers of children with chronic seizure disorders...
The Seizures and Epilepsy Education (SEE) program for families of children with epilepsy: a preliminary studyCheryl P Shore
Indiana University School of Nursing, NU312 D, 1111 Middle Drive, Indianapolis, IN 46202, USA
Epilepsy Behav 12:157-64. 2008..Results suggest that attending the SEE program may be beneficial to families having a child with epilepsy; however, further study is needed with a more robust research design...
A prospective study of teachers' ratings of behavior problems in children with new-onset seizuresDavid W Dunn
Departments of Psychiatry and Neurology, School of Medicine, Indiana University, Indianapolis, IN 46202 5128, USA
Epilepsy Behav 4:26-35. 2003..Children with asthma were similar to children not experiencing recurrent seizures. The association between seizures and behavioral problems was supported using behavioral ratings from teachers...
Academic underachievement among children with epilepsy: proportion exceeding psychometric criteria for learning disability and associated risk factorsPhilip S Fastenau
Indiana University Purdue University Indianapolis, Indianapolis, Indiana 46202 3275, USA
J Learn Disabil 41:195-207. 2008..A diagnosis of epilepsy (even with controlled seizures and less severe seizure types) should provide sufficient cause to screen school-age children for LD and comorbid ADHD...
ADHD and epilepsy in childhoodDavid W Dunn
Indiana University School of Medicine, Riley Hospital 3701, 702 Barnhill Drive, Indianapolis, IN 46202, USA
Dev Med Child Neurol 45:50-4. 2003..Children with epilepsy are at risk for symptoms of ADHD. They differ from other samples of children with ADHD by the higher proportion of children with ADHD predominantly inattentive type and by an equal male: female ratio...
Prevalence of psychopathology in childhood epilepsy: categorical and dimensional measuresDavid W Dunn
Department of Psychiatry, Indiana University School of Medicine, Indianapolis, IN, USA
Dev Med Child Neurol 51:364-72. 2009..The conclusion was that children with epilepsy have high rates of behavioral difficulties on both dimensional and categorical measures. Concurrent validity for the CSI/ASI was supported...
Academic performance in children with new-onset seizures and asthma: a prospective studyAngela M McNelis
Indiana University School of Nursing, Indianapolis, IN, USA
Epilepsy Behav 10:311-8. 2007..There was a trend for younger children to decline more than older children...
Teacher assessment of behaviour in children with new-onset seizuresDavid W Dunn
Indiana University School of Medicine, Indianapolis, 46202, USA
Seizure 11:169-75. 2002....
Psychosocial care needs of children with recent-onset asthmaAngela M McNelis
School of Nursing, University of Indiana, Indianapolis, IN, USA
J Spec Pediatr Nurs 12:3-12. 2007..To examine psychosocial care needs of children with recent-onset asthma...
Neuropsychological predictors of academic underachievement in pediatric epilepsy: moderating roles of demographic, seizure, and psychosocial variablesPhilip S Fastenau
Department of Psychology, Purdue School of Science, Indiana University Purdue University Indianapolis, Indianapolis, Indiana, USA
Epilepsia 45:1261-72. 2004....
Development and testing of a scale measuring parent satisfaction with staff interactionsJanis E Gerkensmeyer
Indiana University School of Nursing, 1111 Middle Dr, Room 403 G, Indianapolis, IN 46202, USA
J Behav Health Serv Res 32:61-73. 2005..Convergent validity was supported, with the PSS having Pearson correlations of .86 (P < .001) with the Client Satisfaction Questionnaire-8 and .76 (P < .001) with parents' ratings of satisfaction with specific services received...
Maternal adaptation to a child's epilepsyCheryl P Shore
Indiana University School of Nursing, Indianapolis, IN 46202 5107, USA
Epilepsy Behav 5:557-68. 2004....
Factors associated with academic achievement in children with recent-onset seizuresAngela M McNelis
Indiana University School of Nursing, 1111 Middle Drive, NU 492, Indianapolis, IN 46202, USA
Seizure 14:331-9. 2005..Health professionals and educators need to collaborate on assessment and interventions to help maximize child academic success...
Differential diagnosis and treatment of psychiatric disorders in children and adolescents with epilepsyDavid W Dunn
Indiana University School of Medicine, Indianapolis, IN 46202, USA
Epilepsy Behav 5:S10-7. 2004..It also considers the assessment of these behavioral disorders and their treatment with psychotherapy, education, and a variety of psychopharmacological agents...
Stressors of parents of children with epilepsy and intellectual disabilityJanice M Buelow
Indiana School of Nursing, Indianapolis, USA
J Neurosci Nurs 38:147-54, 176. 2006..The identification of stressors provided a foundation for an assessment checklist and suggested avenues for future intervention...
Time and difficulty of tasks provided by family caregivers of stroke survivorsTamilyn Bakas
Indiana University School of Nursing, Indianapolis, USA
J Neurosci Nurs 36:95-106. 2004....
Development of syndrome severity scores for pediatric epilepsyDavid W Dunn
Departments of Psychiatry and Neurology, Indiana University School of Medicine, Indianapolis, Indiana, USA
Epilepsia 45:661-6. 2004....
Camp experiences and attitudes toward epilepsy: a pilot studyK J Sawin
School of Nursing, MCV Campus, Virginia Commonwealth University, Box 980567, Richmond, VA 23298-0567, USA
J Neurosci Nurs 33:57-64. 2001..Nurses are encouraged to assist families whose child is challenged by more frequent seizures to consider a camp experience...
Living Well II: a review of progress since 2003Joan K Austin
Distinguished Professor, Indiana University School of Nursing, Indianapolis, Indiana, USA
Epilepsy Behav 9:386-93. 2006....
Magnetic resonance imaging findings in children with a first recognized seizureAndrew J Kalnin
Department of Radiology, Indiana University School of Medicine, Indianapolis, Indiana
Pediatr Neurol 39:404-14. 2008..Practice parameters may need revision, to expand the definition of significant abnormalities and support wider use of magnetic resonance imaging in children with newly diagnosed seizures...
Stigma in the lives of adolescents with epilepsy: a review of the literatureJessica S MacLeod
Indiana University School of Nursing, 1111 Middle Drive, NU 492, Indianapolis, IN 46202, USA
Epilepsy Behav 4:112-7. 2003..Recommendations for future research are discussed...
Social stigma for adults and children with epilepsyAnn Jacoby
Division of Public Health, University of Liverpool, Liverpool, United Kingdom
Epilepsia 48:6-9. 2007..The relationship between stigma and impaired quality of life is well documented. Tackling the problem of stigma effectively requires that all three of different levels at which it operates are systematically addressed...
Does attitude toward epilepsy mediate the relationship between perceived stigma and mental health outcomes in children with epilepsy?Janet A Funderburk
Department of Recreation and Leisure Studies, East Carolina University, Belk Annex 1, Greenville, NC 27858 4353, USA
Epilepsy Behav 11:71-6. 2007..The purpose of this study was to examine the extent to which children's attitude toward epilepsy mediates the relationship between perceived stigma and the mental health outcomes of self-concept, behavioral problems, and social competence...
The association of MRI findings and neuropsychological functioning after the first recognized seizureAnna W Byars
Division of Neurology, Department of Pediatrics, Cincinnati Children s Hospital Medical Center, University of Cincinnati College of Medicine, Cincinnati, Ohio, USA
Epilepsia 48:1067-74. 2007..To explore relationships between MRI abnormalities of the brain and neuropsychological functioning in children who were evaluated following their first recognized seizure...
Temperament, family environment, and behavior problems in children with new-onset seizuresKatherine T Baum
Department of Neurology, Cincinnati Children s Hospital Medical Center, Cincinnati, OH 45229, USA
Epilepsy Behav 10:319-27. 2007..Children with a difficult early temperament who live in a family environment with low family mastery are at the greatest risk for behavior problems...
Developing a measure to assess attitudes toward epilepsy in the US populationColleen A Diiorio
Department of Behavioral Sciences and Health Education, Rollins School of Public Health, Emory University, Atlanta, GA, USA
Epilepsy Behav 5:965-75. 2004..The results of these analyses provided evidence for reliability and construct validity of the instrument. Additional tests of the reliability, validity, and factor structure of the scales are necessary to refine the instrument...
Psychiatric disorders in children and adolescents who have epilepsyJana E Jones
Department of Neurology, University of Wisconsin School of Medicine and Public Health, Madison, USA
Pediatr Rev 29:e9-14. 2008
Magnetic resonance imaging (MRI) and electroencephalographic (EEG) findings in a cohort of normal children with newly diagnosed seizuresJason S Doescher
Minnesota Epilepsy Group, St. Paul, MN, USA
J Child Neurol 21:491-5. 2006..Despite our relatively small sample, however, our findings indicate that a normal EEG does not reliably predict a normal MRI in children with first seizures...
Research Grants
- EPILEPSY OUTCOMES IN YOUTH--NEUROLOGICAL/FAMILY FACTORSJoan Austin; Fiscal Year: 2002..In addition, we will elaborate the above model by identifying how by exploring whether selected variables serve as mediating (e.g. child responses) or moderating (e.g., intelligence) variables in the model. ..
- CHILDHOOD EPILEPSY-- FACTORS AFFECTING ADAPTATIONJoan Austin; Fiscal Year: 2006..Findings will greatly increase understanding of the natural history of adaptation problems in childhood epilepsy that is needed for effective interventions. ..
