Patrick L Taylor

Summary

Affiliation: Harvard University
Country: USA

Publications

  1. ncbi request reprint The gap between law and ethics in human embryonic stem cell research: overcoming the effect of U.S. federal policy on research advances and public benefit
    Patrick L Taylor
    Children s Hospital Boston, 300 Longwood Avenue, Boston, MA 02115, USA
    Sci Eng Ethics 11:589-616. 2005
  2. doi request reprint Responsibility rewarded: ethics, engagement, and scientific autonomy in the labyrinth of the minotaur
    Patrick L Taylor
    Petrie Flom Center for Health Law Policy, Biotechnology, and Bioethics, Harvard Law School, Cambridge, MA 02138, USA
    Neuron 70:577-81. 2011
  3. doi request reprint State payer mandates to cover care in US oncology trials: do science and ethics matter?
    Patrick L Taylor
    Children s Hospital Boston, Harvard Medical School, 300 Longwood Ave, Hun 106 3, Boston, MA 02115, USA
    J Natl Cancer Inst 102:376-90. 2010
  4. doi request reprint Retroactive ethics in rapidly developing scientific fields
    Patrick L Taylor
    Children s Hospital Boston, Office of General Counsel, 300 Longwood Avenue, Boston, MA 02115, USA
    Cell Stem Cell 4:479-82. 2009
  5. doi request reprint Scientific self-regulation-so good, how can it fail? Commentary on "The problems with forbidding science"
    Patrick L Taylor
    Harvard Medical School, Children s Hospital Boston, Boston, MA 02115, USA
    Sci Eng Ethics 15:395-406. 2009
  6. ncbi request reprint Research sharing, ethics and public benefit
    Patrick L Taylor
    Children s Hospital Boston, Massachusetts 02115, USA
    Nat Biotechnol 25:398-401. 2007
  7. ncbi request reprint Innovation incentives or corrupt conflicts of interest? Moving beyond Jekyll and Hyde in regulating biomedical academic-industry relationships
    Patrick L Taylor
    Harvard Medical School, USA
    Yale J Health Policy Law Ethics 13:135-97. 2013
  8. pmc The beliefs, motivations, and expectations of parents who have enrolled their children in a genetic biorepository
    Erin D Harris
    Department of Medicine, Division of Genetics and Program in Genomics, Children s Hospital Boston, Boston, Massachusetts, USA
    Genet Med 14:330-7. 2012
  9. pmc Whose personal control? Creating private, personally controlled health records for pediatric and adolescent patients
    Fabienne C Bourgeois
    Division of General Pediatrics, Children s Hospital Boston, Boston, MA 02115, USA
    J Am Med Inform Assoc 15:737-43. 2008
  10. doi request reprint Overseeing innovative therapy without mistaking it for research: a function-based model based on old truths, new capacities, and lessons from stem cells
    Patrick L Taylor
    Children s Hospital Boston, USA
    J Law Med Ethics 38:286-302. 2010

Collaborators

Detail Information

Publications15

  1. ncbi request reprint The gap between law and ethics in human embryonic stem cell research: overcoming the effect of U.S. federal policy on research advances and public benefit
    Patrick L Taylor
    Children s Hospital Boston, 300 Longwood Avenue, Boston, MA 02115, USA
    Sci Eng Ethics 11:589-616. 2005
    ..Research institutions must themselves implement steps, described in the article, to integrate addressing ethical review with the many legal compliance issues U.S. federal and state laws create...
  2. doi request reprint Responsibility rewarded: ethics, engagement, and scientific autonomy in the labyrinth of the minotaur
    Patrick L Taylor
    Petrie Flom Center for Health Law Policy, Biotechnology, and Bioethics, Harvard Law School, Cambridge, MA 02138, USA
    Neuron 70:577-81. 2011
    ..Tracing that story demonstrates the value of such engagement, and forecasts a successful method for meeting future challenges...
  3. doi request reprint State payer mandates to cover care in US oncology trials: do science and ethics matter?
    Patrick L Taylor
    Children s Hospital Boston, Harvard Medical School, 300 Longwood Ave, Hun 106 3, Boston, MA 02115, USA
    J Natl Cancer Inst 102:376-90. 2010
    ..In the United States, Medicare-eligible participants' costs for routine care and complications from cancer clinical trials are covered by Medicare, but other people depend on state insurance mandates to assure coverage...
  4. doi request reprint Retroactive ethics in rapidly developing scientific fields
    Patrick L Taylor
    Children s Hospital Boston, Office of General Counsel, 300 Longwood Avenue, Boston, MA 02115, USA
    Cell Stem Cell 4:479-82. 2009
    ..Proposed NIH funding rules are retroactive. Legal history and ethical analysis show why there should be a strong presumption that such new rules should be only prospective, in any area of scientific research...
  5. doi request reprint Scientific self-regulation-so good, how can it fail? Commentary on "The problems with forbidding science"
    Patrick L Taylor
    Harvard Medical School, Children s Hospital Boston, Boston, MA 02115, USA
    Sci Eng Ethics 15:395-406. 2009
    ..The mechanisms of self-regulation must be sufficiently broad in their oversight, and interconnected with other institutional forces and actors, that they do not create fragmented solutions...
  6. ncbi request reprint Research sharing, ethics and public benefit
    Patrick L Taylor
    Children s Hospital Boston, Massachusetts 02115, USA
    Nat Biotechnol 25:398-401. 2007
  7. ncbi request reprint Innovation incentives or corrupt conflicts of interest? Moving beyond Jekyll and Hyde in regulating biomedical academic-industry relationships
    Patrick L Taylor
    Harvard Medical School, USA
    Yale J Health Policy Law Ethics 13:135-97. 2013
    ....
  8. pmc The beliefs, motivations, and expectations of parents who have enrolled their children in a genetic biorepository
    Erin D Harris
    Department of Medicine, Division of Genetics and Program in Genomics, Children s Hospital Boston, Boston, Massachusetts, USA
    Genet Med 14:330-7. 2012
    ..The aim of this study was to understand the views of the parents who enrolled their children in a genomic repository in which IRRs will be returned...
  9. pmc Whose personal control? Creating private, personally controlled health records for pediatric and adolescent patients
    Fabienne C Bourgeois
    Division of General Pediatrics, Children s Hospital Boston, Boston, MA 02115, USA
    J Am Med Inform Assoc 15:737-43. 2008
    ..Informed by our own operational involvement in the implementation of the Indivo PCHR, we provide a framework for understanding and addressing the challenges posed by child, adolescent, and family access to PCHRs...
  10. doi request reprint Overseeing innovative therapy without mistaking it for research: a function-based model based on old truths, new capacities, and lessons from stem cells
    Patrick L Taylor
    Children s Hospital Boston, USA
    J Law Med Ethics 38:286-302. 2010
    ....
  11. pmc Disclosing pathogenic genetic variants to research participants: quantifying an emerging ethical responsibility
    Christopher A Cassa
    Children s Hospital Informatics Program, Children s Hospital Boston, Boston, Massachusetts 02115, USA
    Genome Res 22:421-8. 2012
    ..Additionally, if the growth rate from the previous 4 yr continues, we estimate that the total number of disease-associated variants will grow 37% over the next 4 yr...
  12. doi request reprint Multidimensional results reporting to participants in genomic studies: getting it right
    Isaac S Kohane
    Children s Hospital Informatics Program, Children s Hospital, Boston, MA 02115, USA
    Sci Transl Med 2:37cm19. 2010
    ..Here we illustrate this structure and its principles...
  13. doi request reprint Patients beware: commercialized stem cell treatments on the web
    Patrick L Taylor
    Children s Hospital Boston, Boston, MA 02115, USA
    Cell Stem Cell 7:43-9. 2010
    ..A report by the International Society for Stem Cell Research (ISSCR)'s Task Force on Unproven Stem Cell Treatments outlines development of resources for patients, their families, and physicians seeking information on stem cell treatments...
  14. ncbi request reprint Medicine. Reestablishing the researcher-patient compact
    Isaac S Kohane
    Center for Biomedical Informatics, Harvard Medical School, Boston, MA 02115, USA
    Science 316:836-7. 2007
  15. ncbi request reprint Science aside: the trajectory of embryonic stem cell research in the USA
    Thorsten M Schlaeger
    Drug Discov Today 12:269-71. 2007