Patrick L Taylor
Affiliation: Harvard University
- The gap between law and ethics in human embryonic stem cell research: overcoming the effect of U.S. federal policy on research advances and public benefitPatrick L Taylor
Children s Hospital Boston, 300 Longwood Avenue, Boston, MA 02115, USA
Sci Eng Ethics 11:589-616. 2005..Research institutions must themselves implement steps, described in the article, to integrate addressing ethical review with the many legal compliance issues U.S. federal and state laws create...
- Responsibility rewarded: ethics, engagement, and scientific autonomy in the labyrinth of the minotaurPatrick L Taylor
Petrie Flom Center for Health Law Policy, Biotechnology, and Bioethics, Harvard Law School, Cambridge, MA 02138, USA
Neuron 70:577-81. 2011..Tracing that story demonstrates the value of such engagement, and forecasts a successful method for meeting future challenges...
- State payer mandates to cover care in US oncology trials: do science and ethics matter?Patrick L Taylor
Children s Hospital Boston, Harvard Medical School, 300 Longwood Ave, Hun 106 3, Boston, MA 02115, USA
J Natl Cancer Inst 102:376-90. 2010..In the United States, Medicare-eligible participants' costs for routine care and complications from cancer clinical trials are covered by Medicare, but other people depend on state insurance mandates to assure coverage...
- Retroactive ethics in rapidly developing scientific fieldsPatrick L Taylor
Children s Hospital Boston, Office of General Counsel, 300 Longwood Avenue, Boston, MA 02115, USA
Cell Stem Cell 4:479-82. 2009..Proposed NIH funding rules are retroactive. Legal history and ethical analysis show why there should be a strong presumption that such new rules should be only prospective, in any area of scientific research...
- Scientific self-regulation-so good, how can it fail? Commentary on "The problems with forbidding science"Patrick L Taylor
Harvard Medical School, Children s Hospital Boston, Boston, MA 02115, USA
Sci Eng Ethics 15:395-406. 2009..The mechanisms of self-regulation must be sufficiently broad in their oversight, and interconnected with other institutional forces and actors, that they do not create fragmented solutions...
- Research sharing, ethics and public benefitPatrick L Taylor
Children's Hospital Boston, Massachusetts 02115, USA
Nat Biotechnol 25:398-401. 2007
- The beliefs, motivations, and expectations of parents who have enrolled their children in a genetic biorepositoryErin D Harris
Department of Medicine, Division of Genetics and Program in Genomics, Children s Hospital Boston, Boston, Massachusetts, USA
Genet Med 14:330-7. 2012..The aim of this study was to understand the views of the parents who enrolled their children in a genomic repository in which IRRs will be returned...
- Whose personal control? Creating private, personally controlled health records for pediatric and adolescent patientsFabienne C Bourgeois
Division of General Pediatrics, Children s Hospital Boston, Boston, MA 02115, USA
J Am Med Inform Assoc 15:737-43. 2008..Informed by our own operational involvement in the implementation of the Indivo PCHR, we provide a framework for understanding and addressing the challenges posed by child, adolescent, and family access to PCHRs...
- Overseeing innovative therapy without mistaking it for research: a function-based model based on old truths, new capacities, and lessons from stem cellsPatrick L Taylor
Children s Hospital Boston, USA
J Law Med Ethics 38:286-302. 2010....
- Disclosing pathogenic genetic variants to research participants: quantifying an emerging ethical responsibilityChristopher A Cassa
Children s Hospital Informatics Program, Children s Hospital Boston, Boston, Massachusetts 02115, USA
Genome Res 22:421-8. 2012..Additionally, if the growth rate from the previous 4 yr continues, we estimate that the total number of disease-associated variants will grow 37% over the next 4 yr...
- Multidimensional results reporting to participants in genomic studies: getting it rightIsaac S Kohane
Children s Hospital Informatics Program, Children s Hospital, Boston, MA 02115, USA
Sci Transl Med 2:37cm19. 2010..Here we illustrate this structure and its principles...
- Patients beware: commercialized stem cell treatments on the webPatrick L Taylor
Children s Hospital Boston, Boston, MA 02115, USA
Cell Stem Cell 7:43-9. 2010..A report by the International Society for Stem Cell Research (ISSCR)'s Task Force on Unproven Stem Cell Treatments outlines development of resources for patients, their families, and physicians seeking information on stem cell treatments...
- Medicine. Reestablishing the researcher-patient compactIsaac S Kohane
Center for Biomedical Informatics, Harvard Medical School, Boston, MA 02115, USA
Science 316:836-7. 2007
- Science aside: the trajectory of embryonic stem cell research in the USAThorsten M Schlaeger
Drug Discov Today 12:269-71. 2007