Research Topics
| Jennifer W MackSummaryAffiliation: Harvard University Country: USA Publications
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Detail Information
Publications
Associations between end-of-life discussion characteristics and care received near death: a prospective cohort studyJennifer W Mack
Dana Farber Cancer Institute, Boston, MA 02215, USA
J Clin Oncol 30:4387-95. 2012..We sought to evaluate the extent to which EOL discussion characteristics, such as timing, involved providers, and location, are associated with the aggressiveness of care received near death...
Parents' roles in decision making for children with cancer in the first year of cancer treatmentJennifer W Mack
Center for Outcomes and Policy Research, Dana Farber Cancer Institute, 44 Binney St, Boston, MA 02115, USA
J Clin Oncol 29:2085-90. 2011..To evaluate the extent to which parents of children with cancer are involved in decision making in the ways they prefer during the first year of treatment...
Racial disparities in the outcomes of communication on medical care received near deathJennifer W Mack
Department of Pediatric Oncology and Center for Outcomes and Policy Research, Dana Farber Cancer Institute, Boston, Massachusetts 02115, USA
Arch Intern Med 170:1533-40. 2010..This study aimed to evaluate whether differences in patient-physician communication contribute to disparities in EOL care between black patients and white patients...
End-of-life discussions, goal attainment, and distress at the end of life: predictors and outcomes of receipt of care consistent with preferencesJennifer W Mack
Dana Farber Cancer Institute, Department of Pediatric Oncology, 44 Binney St 454, Boston, MA 02115, USA
J Clin Oncol 28:1203-8. 2010..Physicians have an ethical obligation to honor patients' values for care, including at the end of life (EOL). We sought to evaluate factors that help patients to receive care consistent with their preferences...
Peace of mind and sense of purpose as core existential issues among parents of children with cancerJennifer W Mack
Department of Medicine, Children s Hospital, Boston, Massachusetts, USA
Arch Pediatr Adolesc Med 163:519-24. 2009..To evaluate issues experienced by parents of children with cancer and factors related to parents' ability to find peace of mind...
Measuring therapeutic alliance between oncologists and patients with advanced cancer: the Human Connection ScaleJennifer W Mack
Department of Pediatric Oncology, Dana Farber Cancer Institute, Boston, MA, USA
Cancer 115:3302-11. 2009..In this study, the authors sought to develop and validate a measure of therapeutic alliance between patients with advanced cancer and their physicians and to evaluate the effects of therapeutic alliance on EOL experiences and care...
Parents' views of cancer-directed therapy for children with no realistic chance for cureJennifer W Mack
Center for Outcomes and Policy Research and Department of Pediatric Oncology, Dana Farber Cancer Institute, 44 Binney St, Boston, MA 02115, USA
J Clin Oncol 26:4759-64. 2008..We assessed parents' experiences with treatment for their children with cancer and no realistic chance of cure...
Peace, Equanimity, and Acceptance in the Cancer Experience (PEACE): validation of a scale to assess acceptance and struggle with terminal illnessJennifer W Mack
Department of Pediatric Oncology, Dana Farber Cancer Institute, Boston, Massachusetts, USA
Cancer 112:2509-17. 2008..The role of emotional acceptance of a terminal illness in end-of-life (EOL) care is not known. The authors developed a measure of peaceful acceptance at the EOL, and evaluated the role of peaceful acceptance in EOL decision-making and care...
Hope and prognostic disclosureJennifer W Mack
Center for Outcomes and Policy Research, Dana Farber Cancer Institute, 44 Binney St, Boston, MA 02115, USA
J Clin Oncol 25:5636-42. 2007..Physicians sometimes selectively convey prognostic information to support patients' hopes. However, the relationship between prognostic disclosure and hope is not known...
Quality of health care for children: role of health and chronic illness in inpatient care experiencesJennifer W Mack
Dana Farber Cancer Institute, Boston, MA 02115, USA
Arch Pediatr Adolesc Med 161:828-34. 2007..To assess how parent reports about the inpatient care of their children vary according to the health status of children with and without chronic conditions...
Understanding of prognosis among parents of children with cancer: parental optimism and the parent-physician interactionJennifer W Mack
Department of Pediatric Oncology, and the Center for Outcomes and Policy Research, Dana Farber Cancer Institute, Boston, MA 02115, USA
J Clin Oncol 25:1357-62. 2007..We assessed understanding of likelihood of cure and functional outcome among parents of children with cancer and sought to identify factors that place parents at risk for overly optimistic beliefs about prognosis...
Communication about prognosis between parents and physicians of children with cancer: parent preferences and the impact of prognostic informationJennifer W Mack
Departments of Pediatric Oncology, Center for Outcomes and Policy Research, Dana Farber Cancer Institute, Boston, MA 02115, USA
J Clin Oncol 24:5265-70. 2006..We aimed to determine parent preferences for prognostic information about their children with cancer and the results of receiving such information...
Associations between end-of-life discussions, patient mental health, medical care near death, and caregiver bereavement adjustmentAlexi A Wright
Department of Medical Oncology and Center for Psycho Oncology and Palliative Care Research, Dana Farber Cancer Institute, 550 Shields Warren, 44 Binney St, Boston, MA 02115, USA
JAMA 300:1665-73. 2008..Talking about death can be difficult. Without evidence that end-of-life discussions improve patient outcomes, physicians must balance their desire to honor patient autonomy against a concern of inflicting psychological harm...
Parent and physician perspectives on quality of care at the end of life in children with cancerJennifer W Mack
Department of Pediatric Oncology, Center for Outcomes and Policy Research, Dana-Farber Cancer Institute, Boston, MA 02115, USA
J Clin Oncol 23:9155-61. 2005..In contrast, physicians' care ratings depend on biomedical rather than relational aspects of care...
End-of-life care discussions among patients with advanced cancer: a cohort studyJennifer W Mack
Dana Farber Cancer Institute, Children s Hospital, Harvard Medical School, Boston, Massachusetts, USA
Ann Intern Med 156:204-10. 2012..National guidelines recommend that physicians discuss end-of-life (EOL) care planning with patients with cancer whose life expectancy is less than 1 year...
Patients' expectations about effects of chemotherapy for advanced cancerJane C Weeks
Department of Medical Oncology, Dana Farber Cancer Institute, Boston, MA 02215, USA
N Engl J Med 367:1616-25. 2012..Chemotherapy for metastatic lung or colorectal cancer can prolong life by weeks or months and may provide palliation, but it is not curative...
Influence of patients' preferences and treatment site on cancer patients' end-of-life careAlexi A Wright
Department of Medical Oncology, Dana Farber Cancer Institute, Boston, Massachusetts 02115, USA
Cancer 116:4656-63. 2010..The authors examined whether patients' desire for life-extending therapy was associated with their EOL care...
Early integration of pediatric palliative care: for some children, palliative care starts at diagnosisJennifer W Mack
Departments of Pediatric Oncology and the Center for Outcomes and Policy Research, Dana-Farber Cancer Institute and the Department of Medicine, Children's Hospital, Boston, Massachusetts 02115, USA
Curr Opin Pediatr 18:10-4. 2006..SUMMARY: Early integration of palliative care can allow children and families to make decisions about care that fit with their values, and should become a standard of care for all children with life-threatening illnesses...
The Day One TalkJennifer W Mack
Pediatric Oncology, Dana-Farber Cancer Institute and Children's Hospital, 44 Binney Street, Boston, MA, USA
J Clin Oncol 22:563-6. 2004
Can end of life care for the pediatric patient suffering with escalating and intractable symptoms be improved?Kathleen E Houlahan
Hematology Oncology Stem Cell Transplant Program, Children s Hospital Boston, 300 Longwood Avenue, Boston, MA 02115, USA
J Pediatr Oncol Nurs 23:45-51. 2006..The EOL Rapid Response Model of Care outlines a process of care and provides recommendations and templated physician orders for rapid titration of opioids...
Research participation experiences of parents of children with cancer who were asked about their child's prognosisMaura E Olcese
Department of Pediatric Oncology, Dana Farber Cancer Institute, Boston, Massachusetts, USA
J Palliat Med 15:269-73. 2012..Without clear data about the risks and benefits of participating in such studies, however, review board members must use personal judgment to assess emotional harm...
Mucoepidermoid carcinoma of the parotid gland in children: A 10-year experienceReza Rahbar
Department of Otolaryngology, Children s Hospital, Harvard Medical School, Boston, MA 02115, USA
Arch Otolaryngol Head Neck Surg 132:375-80. 2006..To determine the presentation, pathologic features, treatment outcome, and prognosis of mucoepidermoid carcinoma of the parotid gland in children...
Common gastrointestinal symptoms in pediatric palliative care: nausea, vomiting, constipation, anorexia, cachexiaGina Santucci
Pediatric Advanced Care Team, The Children s Hospital of Philadelphia, 3400 Civic Center Boulevard, 4th Floor Wood Building, Philadelphia, PA 19104, USA
Pediatr Clin North Am 54:673-89, x. 2007..Aggressive management of these symptoms is essential to improving the quality of life for these children...
