Veronica Dussel

Summary

Affiliation: Harvard University
Country: USA

Publications

  1. pmc Initial validation of the Argentinean Spanish version of the PedsQL 4.0 Generic Core Scales in children and adolescents with chronic diseases: acceptability and comprehensibility in low-income settings
    Mariana Roizen
    Committee on Quality of Life, Hospital de Pediatria Prof Dr Juan P Garrahan, Pichincha 1890, Buenos Aires, Argentina
    Health Qual Life Outcomes 6:59. 2008
  2. doi request reprint Unmeasured costs of a child's death: perceived financial burden, work disruptions, and economic coping strategies used by American and Australian families who lost children to cancer
    Veronica Dussel
    Department of Psychosocial Oncology and Palliative Care, Dana Farber Cancer Institute, 44 Binney St SM 206, Boston, MA 02115, USA
    J Clin Oncol 29:1007-13. 2011
  3. doi request reprint End-of-life experience of children undergoing stem cell transplantation for malignancy: parent and provider perspectives and patterns of care
    Christina K Ullrich
    Department of Pediatric Oncology, Dana Farber Cancer Institute, Boston, MA, USA
    Blood 115:3879-85. 2010
  4. doi request reprint Considerations about hastening death among parents of children who die of cancer
    Veronica Dussel
    Center for Outcomes and Policy Research and Department of Psychosocial Oncology and Palliative Care, Dana Farber Cancer Institute, 44 Binney St, Boston, MA 02115, USA
    Arch Pediatr Adolesc Med 164:231-7. 2010
  5. doi request reprint Fatigue in children with cancer at the end of life
    Christina K Ullrich
    Center for Outcomes and Policy Research, Dana Farber Cancer Institute, Boston, Massachusetts 02115, USA
    J Pain Symptom Manage 40:483-94. 2010
  6. pmc Looking beyond where children die: determinants and effects of planning a child's location of death
    Veronica Dussel
    Center for Outcomes and Policy Research, Dana Farber Cancer Institute, Boston, MA 02115, USA
    J Pain Symptom Manage 37:33-43. 2009
  7. doi request reprint Easing of suffering in children with cancer at the end of life: is care changing?
    Joanne Wolfe
    Department of Pediatric Oncology, Dana Farber Cancer Institute, 44 Binney St, SM 205, Boston, MA 02115, USA
    J Clin Oncol 26:1717-23. 2008
  8. doi request reprint Economic impact of advanced pediatric cancer on families
    Kira Bona
    Department of Medicine, Boston Children s Hospital, Boston, Massachusetts, USA Department of Pediatric Hematology Oncology, Dana Farber Cancer Institute, Boston, Massachusetts, USA Harvard Medical School, Boston, Massachusetts, USA
    J Pain Symptom Manage 47:594-603. 2014
  9. doi request reprint Understanding of prognosis and goals of care among couples whose child died of cancer
    Kelly E Edwards
    Harvard Medical School, Center for Outcomes and Policy Research, Dana Farber Cancer Institute, Department of Medicine, Brigham and Women s Hospital, Boston, MA 02115, USA
    J Clin Oncol 26:1310-5. 2008

Collaborators

Detail Information

Publications9

  1. pmc Initial validation of the Argentinean Spanish version of the PedsQL 4.0 Generic Core Scales in children and adolescents with chronic diseases: acceptability and comprehensibility in low-income settings
    Mariana Roizen
    Committee on Quality of Life, Hospital de Pediatria Prof Dr Juan P Garrahan, Pichincha 1890, Buenos Aires, Argentina
    Health Qual Life Outcomes 6:59. 2008
    ..Reliability, and known-groups, and convergent validity were tested...
  2. doi request reprint Unmeasured costs of a child's death: perceived financial burden, work disruptions, and economic coping strategies used by American and Australian families who lost children to cancer
    Veronica Dussel
    Department of Psychosocial Oncology and Palliative Care, Dana Farber Cancer Institute, 44 Binney St SM 206, Boston, MA 02115, USA
    J Clin Oncol 29:1007-13. 2011
    ..We describe the financial hardship, work disruptions, income loss, and coping strategies of families who lost children to cancer...
  3. doi request reprint End-of-life experience of children undergoing stem cell transplantation for malignancy: parent and provider perspectives and patterns of care
    Christina K Ullrich
    Department of Pediatric Oncology, Dana Farber Cancer Institute, Boston, MA, USA
    Blood 115:3879-85. 2010
    ..SCT is associated with significant suffering and less opportunity to prepare for EOL. Children and families undergoing SCT may benefit from ongoing discussions regarding prognosis, goals, and opportunities to maximize quality of life...
  4. doi request reprint Considerations about hastening death among parents of children who die of cancer
    Veronica Dussel
    Center for Outcomes and Policy Research and Department of Psychosocial Oncology and Palliative Care, Dana Farber Cancer Institute, 44 Binney St, Boston, MA 02115, USA
    Arch Pediatr Adolesc Med 164:231-7. 2010
    ....
  5. doi request reprint Fatigue in children with cancer at the end of life
    Christina K Ullrich
    Center for Outcomes and Policy Research, Dana Farber Cancer Institute, Boston, Massachusetts 02115, USA
    J Pain Symptom Manage 40:483-94. 2010
    ..Fatigue is a prevalent source of suffering in children with advanced cancer; yet, little is known about it...
  6. pmc Looking beyond where children die: determinants and effects of planning a child's location of death
    Veronica Dussel
    Center for Outcomes and Policy Research, Dana Farber Cancer Institute, Boston, MA 02115, USA
    J Pain Symptom Manage 37:33-43. 2009
    ..Opportunity to plan LOD is associated with outcomes consistent with high-quality palliative care, even among nonhome deaths, and thus may represent a more relevant outcome than actual LOD...
  7. doi request reprint Easing of suffering in children with cancer at the end of life: is care changing?
    Joanne Wolfe
    Department of Pediatric Oncology, Dana Farber Cancer Institute, 44 Binney St, SM 205, Boston, MA 02115, USA
    J Clin Oncol 26:1717-23. 2008
    ..We sought to determine whether national and local efforts have led to changes in patterns of care, advanced care planning, and symptom control among children with cancer at the end of life...
  8. doi request reprint Economic impact of advanced pediatric cancer on families
    Kira Bona
    Department of Medicine, Boston Children s Hospital, Boston, Massachusetts, USA Department of Pediatric Hematology Oncology, Dana Farber Cancer Institute, Boston, Massachusetts, USA Harvard Medical School, Boston, Massachusetts, USA
    J Pain Symptom Manage 47:594-603. 2014
    ..Despite emerging evidence of substantial financial distress in families of children with complex illness, little is known about economic hardship in families of children with advanced cancer...
  9. doi request reprint Understanding of prognosis and goals of care among couples whose child died of cancer
    Kelly E Edwards
    Harvard Medical School, Center for Outcomes and Policy Research, Dana Farber Cancer Institute, Department of Medicine, Brigham and Women s Hospital, Boston, MA 02115, USA
    J Clin Oncol 26:1310-5. 2008
    ..We also investigated whether discordance within couples regarding treatment goals was related to parental perception of the child's end-of-life (EOL) experience...