LAURA MARI BESKOW
Affiliation: Duke University Medical Center
Beskow L, DAME L, Costello E. Research ethics. Certificates of confidentiality and compelled disclosure of data. Science. 2008;322:1054-5 pubmed publisher
Beskow L, Smolek S. Prospective biorepository participants' perspectives on access to research results. J Empir Res Hum Res Ethics. 2009;4:99-111 pubmed publisher
..Our findings highlight the importance for sound policy development of soliciting stakeholder input, and exploring the complexities behind their evaluations. ..
Beskow L, Burke W. Offering individual genetic research results: context matters. Sci Transl Med. 2010;2:38cm20 pubmed publisher
Beskow L, Friedman J, Hardy N, Lin L, Weinfurt K. Developing a simplified consent form for biobanking. PLoS ONE. 2010;5:e13302 pubmed publisher
Beskow L, Namey E, Cadigan R, Brazg T, Crouch J, Henderson G, et al
. Research participants' perspectives on genotype-driven research recruitment. J Empir Res Hum Res Ethics. 2011;6:3-20 pubmed publisher
..g., trusted researchers). Also, for genotype-driven recruitment, it may be appropriate to set a lower bar for disclosure of individual results than the clinical utility threshold recommended more generally. ..
Beskow L. Lessons from HeLa Cells: The Ethics and Policy of Biospecimens. Annu Rev Genomics Hum Genet. 2016;17:395-417 pubmed publisher
..There is a need for consent approaches that are guided by realistic aspirations and a balanced view of autonomy within an expanded ethical framework. ..