Research Topics
Species | J M SoucieSummaryAffiliation: Centers for Disease Control and Prevention Country: USA Publications
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Detail Information
Publications
Joint range-of-motion limitations among young males with hemophilia: prevalence and risk factorsJ Michael Soucie
Hematologic Diseases Branch, Division of AIDS, STD, and TB Laboratory Research, National Center for Infectious Disease, Centers for Disease Control and Prevention, Atlanta, GA, USA
Blood 103:2467-73. 2004..We conclude that ROM limitations begin at an early age, especially for those with severe and moderate disease, and that BMI is an important, potentially modifiable risk factor...- Renal disease among males with haemophiliaR Kulkarni
Department of Pediatrics/Human Development, Michigan State University, East Lansing, MI, USA
Haemophilia 9:703-10. 2003..In summary, we found that HIV infection and haemophilia-related factors including inhibitors and kidney bleeds were associated with renal disease in a cohort of males with haemophilia... 
Public health surveillance and data collection: general principles and impact on hemophilia careJ Michael Soucie
Centers for Disease Control and Prevention, Division of Blood Disorders, National Centers for Birth Defects and Developmental Disabilities, Atlanta, GA 30333, USA
Hematology 17:S144-6. 2012..The effectiveness of these interventions can be assessed by continued surveillance, thereby assuring improvement in care of people affected by hemophilia around the world...- The universal data collection surveillance system for rare bleeding disordersJ Michael Soucie
Division of Blood Disorders, National Center on Birth Defects and Developmental Disabilities, CDC, Atlanta, Georgia 30333, USA
Am J Prev Med 38:S475-81. 2010..Future analyses of data collected on babies, women, and individuals with rarer bleeding disorders than hemophilia will provide further information, leading to improved public health prevention strategies... - The longitudinal effect of body adiposity on joint mobility in young males with Haemophilia AJ M Soucie
National Center on Birth Defects and Developmental Disabilities, Division of Blood Disorders, Centers for Disease Control and Prevention, Atlanta, GA 30333, USA
Haemophilia 17:196-203. 2011..Our findings suggest that body weight control and effective treatment of bleeds should be implemented together to achieve better joint ROM outcomes in males with haemophilia... - Human parvovirus B19 in young male patients with hemophilia A: associations with treatment product exposure and joint range-of-motion limitationJ Michael Soucie
Division of Hereditary Blood Disorders, National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, Atlanta, Georgia 30303, USA
Transfusion 44:1179-85. 2004..Also, data collected on joints were used to assess relations between B19 serostatus and joint range-of-motion (ROM) limitation... - Home-based factor infusion therapy and hospitalization for bleeding complications among males with haemophiliaJ M Soucie
Hematologic Diseases Branch, Division of AIDS, STD, and TB Laboratory Research, National Center for Infectious Diseases, Centers for Disease Control and Prevention, Atlanta, GA 30333, USA
Haemophilia 7:198-206. 2001..We conclude that the use of home therapy and receipt of care in HTCs are each associated with a substantially lower risk for HBC among males with haemophilia... - Range of motion measurements: reference values and a database for comparison studiesJ M Soucie
National Center on Birth Defects and Developmental Disabilities, Division of Blood Disorders, Centers for Disease Control and Prevention, Atlanta, GA 30333, USA
Haemophilia 17:500-7. 2011..Our study of ROM measurements taken by trained physical therapists on a large sample of healthy individuals revealed significant gender- and age-related variation that may be an important consideration in patient assessment... - Mortality among males with hemophilia: relations with source of medical care. The Hemophilia Surveillance System Project InvestigatorsJ M Soucie
Hematologic Diseases Branch, Division of AIDS, STD, and TB Laboratory Research, National Center for Infectious Diseases, Centers for Disease Control and Prevention, Atlanta, GA 30333, USA
Blood 96:437-42. 2000..6,.002). Although HIV infection and the presence of severe liver disease remain strong predictors of mortality, survival is significantly greater among hemophilics who receive medical care in HTCs. (Blood. 2000;96:437-442).. - Health care expenditures for Medicaid-covered males with haemophilia in the United States, 2008S Guh
Division of Blood Disorders, National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, Atlanta, GA, USA
Haemophilia 18:276-83. 2012..Further research is needed to understand the effects of public health insurance on haemophilia care and expenditures, to evaluate treatment strategies and to implement strategies that may improve outcomes and reduce costs of care... - F8 and F9 mutations in US haemophilia patients: correlation with history of inhibitor and race/ethnicityC H Miller
Division of Blood Disorders, National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, Atlanta, GA 30333, USA
Haemophilia 18:375-82. 2012..White patients with history of inhibitor did not exhibit rare F8 haplotypes. F8 gene analysis did not reveal a cause for the higher inhibitor frequencies in Black and Hispanic patients... - Investigation of porcine parvovirus among persons with hemophilia receiving Hyate:C porcine factor VIII concentrateJ M Soucie
Division of AIDS, STD, and TB Laboratory Research, and the Respiratory and Enterovirus Branch, National Center for Infectious Diseases, Centers for Disease Control and Prevention, Atlanta, GA 30033, USA
Transfusion 40:708-11. 2000..This report describes an investigation to determine the extent of product contamination and to evaluate past recipients of porcine clotting factor (Hyate:C, Speywood Biopharm) for evidence of PPV infection... - Validation of Nijmegen-Bethesda assay modifications to allow inhibitor measurement during replacement therapy and facilitate inhibitor surveillanceC H Miller
Division of Blood Disorders, National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, Atlanta, GA 30333, USA
J Thromb Haemost 10:1055-61. 2012..As part of a pilot U.S. inhibitor surveillance project initiated at the Centers for Disease Control and Prevention (CDC) in 2006, a centralized inhibitor measurement was instituted... - In non-severe hemophilia A the risk of inhibitor after intensive factor treatment is greater in older patients: a case-control studyC L Kempton
Aflac Cancer Center and Blood Disorders Service and Department of Hematology and Medical Oncology, Emory University, Atlanta, GA, USA
J Thromb Haemost 8:2224-31. 2010..Although intensive FVIII treatment has long been considered a risk factor for inhibitor development in those with non-severe disease, its strength of association and the influence of other factors have remained undefined... - Evidence of porcine endogenous retroviruses in porcine factor VIII and evaluation of transmission to recipients with hemophiliaW Heneine
HIV and Retrovirology Branch, Centers for Disease Control and Prevention, 1600 Clifton Road, Atlanta, GA 30333, USA
J Infect Dis 183:648-52. 2001..None of the samples was positive. Our data document that PERV particles are a common contaminant of Hyate:C products and suggest that the risk of PERV transmission from these percutaneous exposures is very low... - Risk factors for infection with HBV and HCV in a largecohort of hemophiliac malesJ M Soucie
Hematologic Diseases Branch, Division of AIDS, Sexually Transmitted Diseases, and Tuberculosis Laboratory Research, National Center for Infectious Diseases, Centers for Disease Control and Prevention, Atlanta, Georgia 30333, USA
Transfusion 41:338-43. 2001..Before the implementation of donor screening and the development of effective virus-inactivation procedures, persons with hemophilia (PWHs) were at risk of infection with HBV and HCV transmitted through clotting factor concentrates... - Healthcare expenditures for males with haemophilia and employer-sponsored insurance in the United States, 2008S Guh
Division of Blood Disorders, National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, Atlanta, GA, USA
Haemophilia 18:268-75. 2012..Efforts to understand the cause of inhibitors are needed so that prevention strategies can be implemented and the excess costs resulting from this serious complication of hemophilia care can be avoided... - Occurrence of hemophilia in the United States. The Hemophilia Surveillance System Project InvestigatorsJ M Soucie
National Center for Infectious Diseases, Hematologic Diseases Branch, Centers for Disease Control and Prevention, Atlanta, Georgia 30333, USA
Am J Hematol 59:288-94. 1998..For the 10-year period 1982-1991, the average incidence of hemophilia A and B in the hemophilia surveillance system (HSS) states was estimated to be 1 in 5,032 live male births... - Hepatitis A virus infections associated with clotting factor concentrate in the United StatesJ M Soucie
Division of AIDS, STD, Centers for Disease Control and Prevention, Atlanta, Georgia, USA
Transfusion 38:573-9. 1998..An investigation was conducted to find additional cases and determine the source of infection... - Assessing emerging infectious threats to blood safety for the blood disorders communitySean R Trimble
Division of Blood Disorders, National Center on Birth Defects and Developmental Disabilities, CDC, Atlanta, GA 30333, USA
Am J Prev Med 38:S468-74. 2010..A coordinated approach to addressing blood safety and continued development of sensitive diagnostic testing are necessary to reduce risk in an increasingly globalized society... - Burden of disease resulting from hemophilia in the U.SAzfar E Alam Siddiqi
Division of Blood Disorders, National Center on Birth Defects and Developmental Disabilities, CDC, Atlanta, Georgia 30333, USA
Am J Prev Med 38:S482-8. 2010..Hemophilia is a hereditary bleeding disorder. Its complications can result in substantial morbidity, but few efforts have been made to quantify the disease burden... - Sites of initial bleeding episodes, mode of delivery and age of diagnosis in babies with haemophilia diagnosed before the age of 2 years: a report from The Centers for Disease Control and Prevention's (CDC) Universal Data Collection (UDC) projectR Kulkarni
Division of Blood Disorders, Centers for Disease Control and Prevention, Atlanta, GA, USA
Haemophilia 15:1281-90. 2009..This study highlights the significant rate and the sites of initial bleeding unique to very young children with haemophilia and underscores the need for research to identify optimal evidence-based recommendations for their management... - Surveillance of female patients with inherited bleeding disorders in United States Haemophilia Treatment CentresV R Byams
Division of Blood Disorders, National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, Atlanta, GA 30333, USA
Haemophilia 17:6-13. 2011..The female UDC is the first prospective, longitudinal surveillance in the US focusing on FBD and has the potential to further identify complications and reduce adverse outcomes in this population... - Incidence of inhibitors in a cohort of 838 males with hemophilia A previously treated with factor VIII concentratesC L Kempton
Aflac Cancer Center and Blood Disorders Service, Emory University, Atlanta, GA, USA
J Thromb Haemost 4:2576-81. 2006..Understanding the baseline rate of inhibitor development in the population of previously treated patients (PTPs) is important when evaluating the effect of exposure to new factor replacement products on inhibitor formation... - Risk factors for candidal bloodstream infections in surgical intensive care unit patients: the NEMIS prospective multicenter study. The National Epidemiology of Mycosis SurveyH M Blumberg
Division of Infectious Diseases, Department of Medicine, Emory University School of Medicinel, Atlanta, GA 30303, USA
Clin Infect Dis 33:177-86. 2001..3). Prospective clinical studies are needed to identify which antifungal agents are most protective and which high-risk patients will benefit from antifungal prophylaxis... - Improving the care of patients treated with hemodialysis: a report from the Health Care Financing Administration's ESRD Core Indicators ProjectW M McClellan
Department of Medicine, Center for Clinical Evaluation Sciences, Rollins School of Public Health, Emory University, Atlanta, GA, USA
Am J Kidney Dis 31:584-92. 1998..4% increase in facility-specific mean URR. We conclude that the intervention was associated with improvement in hemodialysis care... - Racial disparities in the prevalence of cardiovascular disease among incident end-stage renal disease patientsNataliya Volkova
Department of Epidemiology, Rollins School of Public Health, Emory University, 1518 Clifton Road, N E, Atlanta, GA 30322, USA
Nephrol Dial Transplant 21:2202-9. 2006..This study describes unexpected racial differences in the prevalence of CHD and HF among incident dialysis patients, with whites being at a disadvantage... - Prophylaxis versus episodic treatment to prevent joint disease in boys with severe hemophiliaMarilyn J Manco-Johnson
University of Colorado and Health Sciences Center, Denver, USA
N Engl J Med 357:535-44. 2007..Effective ways to prevent arthropathy in severe hemophilia are unknown... - Prevalence and risk factors for heart disease among males with hemophiliaRoshni Kulkarni
Department of Pediatrics and Human Development, Michigan State University, East Lansing, Michigan, USA
Am J Hematol 79:36-42. 2005..In summary, persons with hemophilia have unique risk factors such as infusion of factor concentrates and infection with HIV that may predispose them to heart disease as their life expectancy increases...