J M Soucie

Summary

Affiliation: Centers for Disease Control and Prevention
Country: USA

Publications

  1. ncbi request reprint Joint range-of-motion limitations among young males with hemophilia: prevalence and risk factors
    J Michael Soucie
    Hematologic Diseases Branch, Division of AIDS, STD, and TB Laboratory Research, National Center for Infectious Disease, Centers for Disease Control and Prevention, Atlanta, GA, USA
    Blood 103:2467-73. 2004
  2. ncbi request reprint Renal disease among males with haemophilia
    R Kulkarni
    Department of Pediatrics Human Development, Michigan State University, East Lansing, MI, USA
    Haemophilia 9:703-10. 2003
  3. doi request reprint Evidence for the transmission of parvovirus B19 in patients with bleeding disorders treated with plasma-derived factor concentrates in the era of nucleic acid test screening
    J Michael Soucie
    Division of Blood Disorders, National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, Atlanta, Georgia 30333, USA
    Transfusion 53:1217-25. 2013
  4. doi request reprint Public health surveillance and data collection: general principles and impact on hemophilia care
    J Michael Soucie
    Centers for Disease Control and Prevention, Division of Blood Disorders, National Centers for Birth Defects and Developmental Disabilities, Atlanta, GA 30333, USA
    Hematology 17:S144-6. 2012
  5. doi request reprint The longitudinal effect of body adiposity on joint mobility in young males with Haemophilia A
    J M Soucie
    National Center on Birth Defects and Developmental Disabilities, Division of Blood Disorders, Centers for Disease Control and Prevention, Atlanta, GA 30333, USA
    Haemophilia 17:196-203. 2011
  6. doi request reprint Range of motion measurements: reference values and a database for comparison studies
    J M Soucie
    National Center on Birth Defects and Developmental Disabilities, Division of Blood Disorders, Centers for Disease Control and Prevention, Atlanta, GA 30333, USA
    Haemophilia 17:500-7. 2011
  7. doi request reprint The universal data collection surveillance system for rare bleeding disorders
    J Michael Soucie
    Division of Blood Disorders, National Center on Birth Defects and Developmental Disabilities, CDC, Atlanta, Georgia 30333, USA
    Am J Prev Med 38:S475-81. 2010
  8. ncbi request reprint Human parvovirus B19 in young male patients with hemophilia A: associations with treatment product exposure and joint range-of-motion limitation
    J Michael Soucie
    Division of Hereditary Blood Disorders, National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, Atlanta, Georgia 30303, USA
    Transfusion 44:1179-85. 2004
  9. ncbi request reprint Home-based factor infusion therapy and hospitalization for bleeding complications among males with haemophilia
    J M Soucie
    Hematologic Diseases Branch, Division of AIDS, STD, and TB Laboratory Research, National Center for Infectious Diseases, Centers for Disease Control and Prevention, Atlanta, GA 30333, USA
    Haemophilia 7:198-206. 2001
  10. ncbi request reprint Mortality among males with hemophilia: relations with source of medical care. The Hemophilia Surveillance System Project Investigators
    J M Soucie
    Hematologic Diseases Branch, Division of AIDS, STD, and TB Laboratory Research, National Center for Infectious Diseases, Centers for Disease Control and Prevention, Atlanta, GA 30333, USA
    Blood 96:437-42. 2000

Collaborators

Detail Information

Publications32

  1. ncbi request reprint Joint range-of-motion limitations among young males with hemophilia: prevalence and risk factors
    J Michael Soucie
    Hematologic Diseases Branch, Division of AIDS, STD, and TB Laboratory Research, National Center for Infectious Disease, Centers for Disease Control and Prevention, Atlanta, GA, USA
    Blood 103:2467-73. 2004
    ..We conclude that ROM limitations begin at an early age, especially for those with severe and moderate disease, and that BMI is an important, potentially modifiable risk factor...
  2. ncbi request reprint Renal disease among males with haemophilia
    R Kulkarni
    Department of Pediatrics Human Development, Michigan State University, East Lansing, MI, USA
    Haemophilia 9:703-10. 2003
    ..In summary, we found that HIV infection and haemophilia-related factors including inhibitors and kidney bleeds were associated with renal disease in a cohort of males with haemophilia...
  3. doi request reprint Evidence for the transmission of parvovirus B19 in patients with bleeding disorders treated with plasma-derived factor concentrates in the era of nucleic acid test screening
    J Michael Soucie
    Division of Blood Disorders, National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, Atlanta, Georgia 30333, USA
    Transfusion 53:1217-25. 2013
    ....
  4. doi request reprint Public health surveillance and data collection: general principles and impact on hemophilia care
    J Michael Soucie
    Centers for Disease Control and Prevention, Division of Blood Disorders, National Centers for Birth Defects and Developmental Disabilities, Atlanta, GA 30333, USA
    Hematology 17:S144-6. 2012
    ..The effectiveness of these interventions can be assessed by continued surveillance, thereby assuring improvement in care of people affected by hemophilia around the world...
  5. doi request reprint The longitudinal effect of body adiposity on joint mobility in young males with Haemophilia A
    J M Soucie
    National Center on Birth Defects and Developmental Disabilities, Division of Blood Disorders, Centers for Disease Control and Prevention, Atlanta, GA 30333, USA
    Haemophilia 17:196-203. 2011
    ..Our findings suggest that body weight control and effective treatment of bleeds should be implemented together to achieve better joint ROM outcomes in males with haemophilia...
  6. doi request reprint Range of motion measurements: reference values and a database for comparison studies
    J M Soucie
    National Center on Birth Defects and Developmental Disabilities, Division of Blood Disorders, Centers for Disease Control and Prevention, Atlanta, GA 30333, USA
    Haemophilia 17:500-7. 2011
    ..Our study of ROM measurements taken by trained physical therapists on a large sample of healthy individuals revealed significant gender- and age-related variation that may be an important consideration in patient assessment...
  7. doi request reprint The universal data collection surveillance system for rare bleeding disorders
    J Michael Soucie
    Division of Blood Disorders, National Center on Birth Defects and Developmental Disabilities, CDC, Atlanta, Georgia 30333, USA
    Am J Prev Med 38:S475-81. 2010
    ..Future analyses of data collected on babies, women, and individuals with rarer bleeding disorders than hemophilia will provide further information, leading to improved public health prevention strategies...
  8. ncbi request reprint Human parvovirus B19 in young male patients with hemophilia A: associations with treatment product exposure and joint range-of-motion limitation
    J Michael Soucie
    Division of Hereditary Blood Disorders, National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, Atlanta, Georgia 30303, USA
    Transfusion 44:1179-85. 2004
    ..Also, data collected on joints were used to assess relations between B19 serostatus and joint range-of-motion (ROM) limitation...
  9. ncbi request reprint Home-based factor infusion therapy and hospitalization for bleeding complications among males with haemophilia
    J M Soucie
    Hematologic Diseases Branch, Division of AIDS, STD, and TB Laboratory Research, National Center for Infectious Diseases, Centers for Disease Control and Prevention, Atlanta, GA 30333, USA
    Haemophilia 7:198-206. 2001
    ..We conclude that the use of home therapy and receipt of care in HTCs are each associated with a substantially lower risk for HBC among males with haemophilia...
  10. ncbi request reprint Mortality among males with hemophilia: relations with source of medical care. The Hemophilia Surveillance System Project Investigators
    J M Soucie
    Hematologic Diseases Branch, Division of AIDS, STD, and TB Laboratory Research, National Center for Infectious Diseases, Centers for Disease Control and Prevention, Atlanta, GA 30333, USA
    Blood 96:437-42. 2000
    ..6,.002). Although HIV infection and the presence of severe liver disease remain strong predictors of mortality, survival is significantly greater among hemophilics who receive medical care in HTCs. (Blood. 2000;96:437-442)..
  11. doi request reprint Comparison of clot-based, chromogenic and fluorescence assays for measurement of factor VIII inhibitors in the US Hemophilia Inhibitor Research Study
    C H Miller
    Division of Blood Disorders, National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, Atlanta, GA 30333, USA
    J Thromb Haemost 11:1300-9. 2013
    ..Detection and validation of inhibitors (antibodies) to hemophilia treatment products are important for clinical care, evaluation of product safety and assessment of population trends...
  12. doi request reprint Health care expenditures for Medicaid-covered males with haemophilia in the United States, 2008
    S Guh
    Division of Blood Disorders, National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, Atlanta, GA, USA
    Haemophilia 18:276-83. 2012
    ..Further research is needed to understand the effects of public health insurance on haemophilia care and expenditures, to evaluate treatment strategies and to implement strategies that may improve outcomes and reduce costs of care...
  13. ncbi request reprint Investigation of porcine parvovirus among persons with hemophilia receiving Hyate:C porcine factor VIII concentrate
    J M Soucie
    Division of AIDS, STD, and TB Laboratory Research, and the Respiratory and Enterovirus Branch, National Center for Infectious Diseases, Centers for Disease Control and Prevention, Atlanta, GA 30033, USA
    Transfusion 40:708-11. 2000
    ..This report describes an investigation to determine the extent of product contamination and to evaluate past recipients of porcine clotting factor (Hyate:C, Speywood Biopharm) for evidence of PPV infection...
  14. doi request reprint F8 and F9 mutations in US haemophilia patients: correlation with history of inhibitor and race/ethnicity
    C H Miller
    Division of Blood Disorders, National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, Atlanta, GA 30333, USA
    Haemophilia 18:375-82. 2012
    ..White patients with history of inhibitor did not exhibit rare F8 haplotypes. F8 gene analysis did not reveal a cause for the higher inhibitor frequencies in Black and Hispanic patients...
  15. doi request reprint Validation of Nijmegen-Bethesda assay modifications to allow inhibitor measurement during replacement therapy and facilitate inhibitor surveillance
    C H Miller
    Division of Blood Disorders, National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, Atlanta, GA 30333, USA
    J Thromb Haemost 10:1055-61. 2012
    ..As part of a pilot U.S. inhibitor surveillance project initiated at the Centers for Disease Control and Prevention (CDC) in 2006, a centralized inhibitor measurement was instituted...
  16. pmc In non-severe hemophilia A the risk of inhibitor after intensive factor treatment is greater in older patients: a case-control study
    C L Kempton
    Aflac Cancer Center and Blood Disorders Service and Department of Hematology and Medical Oncology, Emory University, Atlanta, GA, USA
    J Thromb Haemost 8:2224-31. 2010
    ..Although intensive FVIII treatment has long been considered a risk factor for inhibitor development in those with non-severe disease, its strength of association and the influence of other factors have remained undefined...
  17. doi request reprint Healthcare expenditures for males with haemophilia and employer-sponsored insurance in the United States, 2008
    S Guh
    Division of Blood Disorders, National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, Atlanta, GA, USA
    Haemophilia 18:268-75. 2012
    ..Efforts to understand the cause of inhibitors are needed so that prevention strategies can be implemented and the excess costs resulting from this serious complication of hemophilia care can be avoided...
  18. ncbi request reprint Risk factors for infection with HBV and HCV in a largecohort of hemophiliac males
    J M Soucie
    Hematologic Diseases Branch, Division of AIDS, Sexually Transmitted Diseases, and Tuberculosis Laboratory Research, National Center for Infectious Diseases, Centers for Disease Control and Prevention, Atlanta, Georgia 30333, USA
    Transfusion 41:338-43. 2001
    ..Before the implementation of donor screening and the development of effective virus-inactivation procedures, persons with hemophilia (PWHs) were at risk of infection with HBV and HCV transmitted through clotting factor concentrates...
  19. ncbi request reprint Evidence of porcine endogenous retroviruses in porcine factor VIII and evaluation of transmission to recipients with hemophilia
    W Heneine
    HIV and Retrovirology Branch, Centers for Disease Control and Prevention, 1600 Clifton Road, Atlanta, GA 30333, USA
    J Infect Dis 183:648-52. 2001
    ..None of the samples was positive. Our data document that PERV particles are a common contaminant of Hyate:C products and suggest that the risk of PERV transmission from these percutaneous exposures is very low...
  20. ncbi request reprint Occurrence of hemophilia in the United States. The Hemophilia Surveillance System Project Investigators
    J M Soucie
    National Center for Infectious Diseases, Hematologic Diseases Branch, Centers for Disease Control and Prevention, Atlanta, Georgia 30333, USA
    Am J Hematol 59:288-94. 1998
    ..For the 10-year period 1982-1991, the average incidence of hemophilia A and B in the hemophilia surveillance system (HSS) states was estimated to be 1 in 5,032 live male births...
  21. ncbi request reprint Hepatitis A virus infections associated with clotting factor concentrate in the United States
    J M Soucie
    Division of AIDS, STD, Centers for Disease Control and Prevention, Atlanta, Georgia, USA
    Transfusion 38:573-9. 1998
    ..An investigation was conducted to find additional cases and determine the source of infection...
  22. doi request reprint Assessing emerging infectious threats to blood safety for the blood disorders community
    Sean R Trimble
    Division of Blood Disorders, National Center on Birth Defects and Developmental Disabilities, CDC, Atlanta, GA 30333, USA
    Am J Prev Med 38:S468-74. 2010
    ..A coordinated approach to addressing blood safety and continued development of sensitive diagnostic testing are necessary to reduce risk in an increasingly globalized society...
  23. doi request reprint Burden of disease resulting from hemophilia in the U.S
    Azfar E Alam Siddiqi
    Division of Blood Disorders, National Center on Birth Defects and Developmental Disabilities, CDC, Atlanta, Georgia 30333, USA
    Am J Prev Med 38:S482-8. 2010
    ..Hemophilia is a hereditary bleeding disorder. Its complications can result in substantial morbidity, but few efforts have been made to quantify the disease burden...
  24. doi request reprint A study of prospective surveillance for inhibitors among persons with haemophilia in the United States
    J M Soucie
    Division of Blood Disorders, National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, Atlanta, GA, USA
    Haemophilia 20:230-7. 2014
    ....
  25. doi request reprint Surveillance of female patients with inherited bleeding disorders in United States Haemophilia Treatment Centres
    V R Byams
    Division of Blood Disorders, National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, Atlanta, GA 30333, USA
    Haemophilia 17:6-13. 2011
    ..The female UDC is the first prospective, longitudinal surveillance in the US focusing on FBD and has the potential to further identify complications and reduce adverse outcomes in this population...
  26. doi request reprint Sites of initial bleeding episodes, mode of delivery and age of diagnosis in babies with haemophilia diagnosed before the age of 2 years: a report from The Centers for Disease Control and Prevention's (CDC) Universal Data Collection (UDC) project
    R Kulkarni
    Division of Blood Disorders, Centers for Disease Control and Prevention, Atlanta, GA, USA
    Haemophilia 15:1281-90. 2009
    ..This study highlights the significant rate and the sites of initial bleeding unique to very young children with haemophilia and underscores the need for research to identify optimal evidence-based recommendations for their management...
  27. ncbi request reprint Incidence of inhibitors in a cohort of 838 males with hemophilia A previously treated with factor VIII concentrates
    C L Kempton
    Aflac Cancer Center and Blood Disorders Service, Emory University, Atlanta, GA, USA
    J Thromb Haemost 4:2576-81. 2006
    ..Understanding the baseline rate of inhibitor development in the population of previously treated patients (PTPs) is important when evaluating the effect of exposure to new factor replacement products on inhibitor formation...
  28. ncbi request reprint Risk factors for candidal bloodstream infections in surgical intensive care unit patients: the NEMIS prospective multicenter study. The National Epidemiology of Mycosis Survey
    H M Blumberg
    Division of Infectious Diseases, Department of Medicine, Emory University School of Medicinel, Atlanta, GA 30303, USA
    Clin Infect Dis 33:177-86. 2001
    ..3). Prospective clinical studies are needed to identify which antifungal agents are most protective and which high-risk patients will benefit from antifungal prophylaxis...
  29. ncbi request reprint Improving the care of patients treated with hemodialysis: a report from the Health Care Financing Administration's ESRD Core Indicators Project
    W M McClellan
    Department of Medicine, Center for Clinical Evaluation Sciences, Rollins School of Public Health, Emory University, Atlanta, GA, USA
    Am J Kidney Dis 31:584-92. 1998
    ..4% increase in facility-specific mean URR. We conclude that the intervention was associated with improvement in hemodialysis care...
  30. ncbi request reprint Racial disparities in the prevalence of cardiovascular disease among incident end-stage renal disease patients
    Nataliya Volkova
    Department of Epidemiology, Rollins School of Public Health, Emory University, 1518 Clifton Road, N E, Atlanta, GA 30322, USA
    Nephrol Dial Transplant 21:2202-9. 2006
    ..This study describes unexpected racial differences in the prevalence of CHD and HF among incident dialysis patients, with whites being at a disadvantage...
  31. ncbi request reprint Prophylaxis versus episodic treatment to prevent joint disease in boys with severe hemophilia
    Marilyn J Manco-Johnson
    University of Colorado and Health Sciences Center, Denver, USA
    N Engl J Med 357:535-44. 2007
    ..Effective ways to prevent arthropathy in severe hemophilia are unknown...
  32. ncbi request reprint Prevalence and risk factors for heart disease among males with hemophilia
    Roshni Kulkarni
    Department of Pediatrics and Human Development, Michigan State University, East Lansing, Michigan, USA
    Am J Hematol 79:36-42. 2005
    ..In summary, persons with hemophilia have unique risk factors such as infusion of factor concentrates and infection with HIV that may predispose them to heart disease as their life expectancy increases...