AMY LYNN MCGUIRE

Summary

Affiliation: Baylor College of Medicine
Country: USA

Publications

  1. McGuire A, Fisher R, Cusenza P, Hudson K, Rothstein M, McGraw D, et al. Confidentiality, privacy, and security of genetic and genomic test information in electronic health records: points to consider. Genet Med. 2008;10:495-9 pubmed publisher
    ..These discussions can help guide policy that will facilitate the biological and clinical resource development to support the introduction of this information into health care. ..
  2. Frankel L, Pereira S, McGuire A. Potential Psychosocial Risks of Sequencing Newborns. Pediatrics. 2016;137 Suppl 1:S24-9 pubmed publisher
    ....
  3. request reprint
    Bruce C, Majumder M, Stephens A, Malek J, McGuire A. Cultivating Administrative Support for a Clinical Ethics Consultation Service. J Clin Ethics. 2016;27:341-351 pubmed
    ..Specifically, we discuss two elements that clinical ethics leaders must critically appraise and successfully argue to meet the expectations of administrators-the value of a CECS and its fit in clinical workflow. ..
  4. request reprint
    McGuire A, Gibbs R. Genetics. No longer de-identified. Science. 2006;312:370-1 pubmed
  5. McGuire A, Beskow L. Informed consent in genomics and genetic research. Annu Rev Genomics Hum Genet. 2010;11:361-81 pubmed publisher
    ..All of these models attempt to balance the obligation to respect and protect research participants with the larger social interest in advancing beneficial research as quickly as possible. ..
  6. Deverka P, Majumder M, Villanueva A, Anderson M, Bakker A, Bardill J, et al. Creating a data resource: what will it take to build a medical information commons?. Genome Med. 2017;9:84 pubmed publisher
    ..These principles promote formation of an ethically sound, inclusive, participant-centric MIC and provide a framework for advancing the policy response to data-sharing opportunities and challenges. ..

Detail Information

Publications6

  1. McGuire A, Fisher R, Cusenza P, Hudson K, Rothstein M, McGraw D, et al. Confidentiality, privacy, and security of genetic and genomic test information in electronic health records: points to consider. Genet Med. 2008;10:495-9 pubmed publisher
    ..These discussions can help guide policy that will facilitate the biological and clinical resource development to support the introduction of this information into health care. ..
  2. Frankel L, Pereira S, McGuire A. Potential Psychosocial Risks of Sequencing Newborns. Pediatrics. 2016;137 Suppl 1:S24-9 pubmed publisher
    ....
  3. request reprint
    Bruce C, Majumder M, Stephens A, Malek J, McGuire A. Cultivating Administrative Support for a Clinical Ethics Consultation Service. J Clin Ethics. 2016;27:341-351 pubmed
    ..Specifically, we discuss two elements that clinical ethics leaders must critically appraise and successfully argue to meet the expectations of administrators-the value of a CECS and its fit in clinical workflow. ..
  4. request reprint
    McGuire A, Gibbs R. Genetics. No longer de-identified. Science. 2006;312:370-1 pubmed
  5. McGuire A, Beskow L. Informed consent in genomics and genetic research. Annu Rev Genomics Hum Genet. 2010;11:361-81 pubmed publisher
    ..All of these models attempt to balance the obligation to respect and protect research participants with the larger social interest in advancing beneficial research as quickly as possible. ..
  6. Deverka P, Majumder M, Villanueva A, Anderson M, Bakker A, Bardill J, et al. Creating a data resource: what will it take to build a medical information commons?. Genome Med. 2017;9:84 pubmed publisher
    ..These principles promote formation of an ethically sound, inclusive, participant-centric MIC and provide a framework for advancing the policy response to data-sharing opportunities and challenges. ..