Marion McAllister

Summary

Affiliation: University of Manchester
Country: UK

Publications

  1. doi The Genetic Counseling Outcome Scale: a new patient-reported outcome measure for clinical genetics services
    M McAllister
    Medical Genetics Research Group, School of Biomedicine, The University of Manchester, Manchester, UK
    Clin Genet 79:413-24. 2011
  2. doi What process attributes of clinical genetics services could maximise patient benefits?
    Marion McAllister
    The Nowgen Centre for Genetics in Healthcare, Manchester, UK
    Eur J Hum Genet 16:1467-76. 2008
  3. doi Patient empowerment in clinical genetics services
    Marion McAllister
    Nowgen, Manchester, UK
    J Health Psychol 13:895-905. 2008
  4. pmc Empowerment: qualitative underpinning of a new clinical genetics-specific patient-reported outcome
    Marion McAllister
    Medical Genetics Research Group, School of Biomedicine, The University of Manchester, The Nowgen Centre for Genetics in Healthcare, Manchester, UK
    Eur J Hum Genet 19:125-30. 2011
  5. ncbi The emotional effects of genetic diseases: implications for clinical genetics
    Marion McAllister
    Nowgen, The North West Genetics Knowledge Park, Manchester, UK
    Am J Med Genet A 143:2651-61. 2007
  6. pmc Understanding the impact of genetic testing for inherited retinal dystrophy
    Ryan Combs
    University of Manchester, Manchester, UK
    Eur J Hum Genet 21:1209-13. 2013
  7. doi Outcome measurement in clinical genetics services: a systematic review of validated measures
    Katherine Payne
    Nowgen, The North West Genetics Knowledge Park, Manchester, UK
    Value Health 11:497-508. 2008
  8. doi Understanding the expectations of patients with inherited retinal dystrophies
    Ryan Combs
    Manchester Centre for Genomic Medicine, Institute of Human Development, Faculty of Medical and Human Sciences, University of Manchester, MAHSC, Manchester, UK
    Br J Ophthalmol 97:1057-61. 2013
  9. doi Valuing the benefits of genetic testing for retinitis pigmentosa: a pilot application of the contingent valuation method
    Martin Eden
    Manchester Centre for Health Economics, Institute of Population Health, University of Manchester, Manchester, UK
    Br J Ophthalmol 97:1051-6. 2013
  10. ncbi Improving service evaluation in clinical genetics: identifying effects of genetic diseases on individuals and families
    Marion McAllister
    Nowgen, The North West Genetics Knowledge Park, Manchester, United Kingdom
    J Genet Couns 16:71-83. 2007

Collaborators

Detail Information

Publications14

  1. doi The Genetic Counseling Outcome Scale: a new patient-reported outcome measure for clinical genetics services
    M McAllister
    Medical Genetics Research Group, School of Biomedicine, The University of Manchester, Manchester, UK
    Clin Genet 79:413-24. 2011
    ..86) are good. The GCOS-24 shows convergent and divergent validities, and sensitivity to change over time with a medium-to-large effect size (Cohen's d = 0.70). The GCOS-24 has potential as a clinical genetics-specific PROM...
  2. doi What process attributes of clinical genetics services could maximise patient benefits?
    Marion McAllister
    The Nowgen Centre for Genetics in Healthcare, Manchester, UK
    Eur J Hum Genet 16:1467-76. 2008
    ..These findings will be useful in designing models of service delivery that could be tested in intervention studies...
  3. doi Patient empowerment in clinical genetics services
    Marion McAllister
    Nowgen, Manchester, UK
    J Health Psychol 13:895-905. 2008
    ..However, empowerment includes some benefits not captured by PPC related to empowerment of other at risk relatives, and future generations...
  4. pmc Empowerment: qualitative underpinning of a new clinical genetics-specific patient-reported outcome
    Marion McAllister
    Medical Genetics Research Group, School of Biomedicine, The University of Manchester, The Nowgen Centre for Genetics in Healthcare, Manchester, UK
    Eur J Hum Genet 19:125-30. 2011
    ..A study is underway to operationalise Empowerment by developing a psychometrically sound PRO measure that will take the form of a short questionnaire...
  5. ncbi The emotional effects of genetic diseases: implications for clinical genetics
    Marion McAllister
    Nowgen, The North West Genetics Knowledge Park, Manchester, UK
    Am J Med Genet A 143:2651-61. 2007
    ..Interventions designed to (1) adjust the modifying conditions and (2) help manage the emotional effects may facilitate adjustment and improve patient outcomes...
  6. pmc Understanding the impact of genetic testing for inherited retinal dystrophy
    Ryan Combs
    University of Manchester, Manchester, UK
    Eur J Hum Genet 21:1209-13. 2013
    ..The benefits and risks identified will inform future evaluation of models of service delivery. This research was part of a wider study exploring experiences of families with retinal dystrophy. ..
  7. doi Outcome measurement in clinical genetics services: a systematic review of validated measures
    Katherine Payne
    Nowgen, The North West Genetics Knowledge Park, Manchester, UK
    Value Health 11:497-508. 2008
    ..This systematic review aimed to inform researchers and policymakers about what validated outcome measures are available to evaluate clinical genetics services (CGS) and the need for new measures...
  8. doi Understanding the expectations of patients with inherited retinal dystrophies
    Ryan Combs
    Manchester Centre for Genomic Medicine, Institute of Human Development, Faculty of Medical and Human Sciences, University of Manchester, MAHSC, Manchester, UK
    Br J Ophthalmol 97:1057-61. 2013
    ..Little research exists to define service requirements, or expectations, of patients and their families. This study aimed to explore the views and perceived benefits of genetic ophthalmology services among members of families with RD...
  9. doi Valuing the benefits of genetic testing for retinitis pigmentosa: a pilot application of the contingent valuation method
    Martin Eden
    Manchester Centre for Health Economics, Institute of Population Health, University of Manchester, Manchester, UK
    Br J Ophthalmol 97:1051-6. 2013
    ..This pilot study aimed to explore if contingent valuation method (CVM) can be used to value the benefits of genetic testing for RP...
  10. ncbi Improving service evaluation in clinical genetics: identifying effects of genetic diseases on individuals and families
    Marion McAllister
    Nowgen, The North West Genetics Knowledge Park, Manchester, United Kingdom
    J Genet Couns 16:71-83. 2007
    ..These findings will be used to inform the evaluation of existing outcome measures and develop robust measures of outcome for clinical genetics services...
  11. doi The perceived personal control (PPC) questionnaire: reliability and validity in a sample from the United Kingdom
    Marion McAllister
    School of Biomedicine, University of Manchester, Manchester, UK
    Am J Med Genet A 158:367-72. 2012
    ..40). These properties suggest the English language PPC measure is a useful tool for both clinical genetics research and for use as a Patient Reported Outcome Measure (PROM) in service evaluation...
  12. ncbi Outcome measures for clinical genetics services: a comparison of genetics healthcare professionals and patients' views
    Katherine Payne
    The North West Genetics Knowledge Park NOWGEN, Manchester, UK
    Health Policy 84:112-22. 2007
    ..To explore genetics professionals' and patients' views about which outcome domains are most appropriate to measure the patient benefits of using a clinical genetics service...
  13. doi Valuing the economic benefits of complex interventions: when maximising health is not sufficient
    Katherine Payne
    Health Sciences Economics, The University of Manchester, Manchester, UK
    Health Econ 22:258-71. 2013
    ..We do not advocate a move away from QALY maximisation but do suggest that there is a need for a more considered approach that can take account of the perceived value for non-health attributes for some complex interventions...
  14. doi Shock, adjust, decide: reproductive decision making in cystic fibrosis (CF) carrier couples--a qualitative study
    Jessica Myring
    Genetic Medicine, Manchester Academic Health Science Centre, University of Manchester, Central Manchester University Hospitals NHS Foundation Trust, Manchester, UK
    J Genet Couns 20:404-17. 2011
    ....