Jane Kaye

Summary

Affiliation: University of Oxford
Country: UK

Publications

  1. pmc Towards a data sharing Code of Conduct for international genomic research
    Bartha Maria Knoppers
    Department of Human Genetics, McGill University, 740 Dr Penfield Avenue, Montreal, Quebec H3A 1A4, Canada
    Genome Med 3:46. 2011
  2. pmc Data sharing in genomics--re-shaping scientific practice
    Jane Kaye
    The Ethox Centre, Department of Public Health and Primary Care, University of Oxford, Old Road Campus, Headington, Oxford OX3 7LF, UK
    Nat Rev Genet 10:331-5. 2009
  3. pmc The regulation of direct-to-consumer genetic tests
    Jane Kaye
    Ethox Centre, University of Oxford, Old Road Campus, Headington, Oxford OX3 7LG, UK
    Hum Mol Genet 17:R180-3. 2008
  4. pmc Ethical implications of the use of whole genome methods in medical research
    Jane Kaye
    Department of Public Health, Ethox Centre, University of Oxford, Headington, DPHPC, Old Road Campus, Headington, Oxford, Oxon OX3 7LF, UK
    Eur J Hum Genet 18:398-403. 2010
  5. pmc Patents and translational research in genomics
    Jane Kaye
    Oxford Genetics Knowledge Park, The Ethox Centre, DPHPC, University of Oxford, Gibson Building Block 21, Radcliffe Infirmary, Woodstock Road, Oxford, OX2 6HA, UK
    Nat Biotechnol 25:739-41. 2007
  6. ncbi request reprint Do we need a uniform regulatory system for biobanks across Europe?
    Jane Kaye
    Oxford Genetic Knowledge Park, The Ethox Centre, DPHPC, University of Oxford, Headington, Oxford, UK
    Eur J Hum Genet 14:245-8. 2006
  7. ncbi request reprint Consent forms in genomics: the difference between law and practice
    Paula Boddington
    HeLEX Centre for Health, Law and Emerging Technologies, Department of Public Health, University of Oxford, Oxford OX3 7LF, UK
    Eur J Health Law 18:491-519. 2011
  8. ncbi request reprint Identifiability, genomics and U.K. data protection law
    Liam Curren
    Centre for Health, Law and Emerging Technologies at Oxford HeLEX, Department of Public Health and Primary Care, University of Oxford, Old Road Campus, Oxford OX3 7LF, UK
    Eur J Health Law 17:329-44. 2010
  9. pmc Can I access my personal genome? The current legal position in the uk
    Jane Kaye
    Department of Population Health, University of Oxford, Oxford, UK
    Med Law Rev 22:64-86. 2014
  10. doi request reprint The tension between data sharing and the protection of privacy in genomics research
    Jane Kaye
    HeLEX, Department of Public Health, University of Oxford, Oxford OX3 7LF, UK
    Annu Rev Genomics Hum Genet 13:415-31. 2012

Collaborators

Detail Information

Publications17

  1. pmc Towards a data sharing Code of Conduct for international genomic research
    Bartha Maria Knoppers
    Department of Human Genetics, McGill University, 740 Dr Penfield Avenue, Montreal, Quebec H3A 1A4, Canada
    Genome Med 3:46. 2011
    ..We propose seven different principles and a preliminary international data sharing Code of Conduct for ongoing discussion...
  2. pmc Data sharing in genomics--re-shaping scientific practice
    Jane Kaye
    The Ethox Centre, Department of Public Health and Primary Care, University of Oxford, Old Road Campus, Headington, Oxford OX3 7LF, UK
    Nat Rev Genet 10:331-5. 2009
    ..We discuss the challenges that must be addressed if the full benefits of data sharing, as envisaged by funders, are to be realized...
  3. pmc The regulation of direct-to-consumer genetic tests
    Jane Kaye
    Ethox Centre, University of Oxford, Old Road Campus, Headington, Oxford OX3 7LG, UK
    Hum Mol Genet 17:R180-3. 2008
    ..The purpose of this paper is to explore some of these issues, at a time when the science and the law are changing rapidly...
  4. pmc Ethical implications of the use of whole genome methods in medical research
    Jane Kaye
    Department of Public Health, Ethox Centre, University of Oxford, Headington, DPHPC, Old Road Campus, Headington, Oxford, Oxon OX3 7LF, UK
    Eur J Hum Genet 18:398-403. 2010
    ..Many of the questions that lie ahead of us in terms of the next generation sequencing methods will have been foreshadowed by GWAS and the debates around ethical and policy issues that these have created...
  5. pmc Patents and translational research in genomics
    Jane Kaye
    Oxford Genetics Knowledge Park, The Ethox Centre, DPHPC, University of Oxford, Gibson Building Block 21, Radcliffe Infirmary, Woodstock Road, Oxford, OX2 6HA, UK
    Nat Biotechnol 25:739-41. 2007
  6. ncbi request reprint Do we need a uniform regulatory system for biobanks across Europe?
    Jane Kaye
    Oxford Genetic Knowledge Park, The Ethox Centre, DPHPC, University of Oxford, Headington, Oxford, UK
    Eur J Hum Genet 14:245-8. 2006
    ..The purpose of this paper is to discuss some of the preliminary issues that would need to be considered before such a regulatory system for biobanks could be developed within Europe...
  7. ncbi request reprint Consent forms in genomics: the difference between law and practice
    Paula Boddington
    HeLEX Centre for Health, Law and Emerging Technologies, Department of Public Health, University of Oxford, Oxford OX3 7LF, UK
    Eur J Health Law 18:491-519. 2011
    ..This raises questions about what should be put in informed consent forms for research participants. These findings could be beneficial for the formulation of participant information and consent documentation in the future studies...
  8. ncbi request reprint Identifiability, genomics and U.K. data protection law
    Liam Curren
    Centre for Health, Law and Emerging Technologies at Oxford HeLEX, Department of Public Health and Primary Care, University of Oxford, Old Road Campus, Oxford OX3 7LF, UK
    Eur J Health Law 17:329-44. 2010
    ..We undertake a timely reappraisal of these laws--particularly new penalties--and identifiability in genomic research...
  9. pmc Can I access my personal genome? The current legal position in the uk
    Jane Kaye
    Department of Population Health, University of Oxford, Oxford, UK
    Med Law Rev 22:64-86. 2014
    ..The authors describe the policy implications in this area and conclude that, for now, the law appears to strike an appropriate balance, but new policy will need to be developed to address this issue. ..
  10. doi request reprint The tension between data sharing and the protection of privacy in genomics research
    Jane Kaye
    HeLEX, Department of Public Health, University of Oxford, Oxford OX3 7LF, UK
    Annu Rev Genomics Hum Genet 13:415-31. 2012
    ..These new governance structures must be able to address the concerns of research participants while at the same time ensuring effective data sharing that promotes public trust in genomics research...
  11. pmc Planning for translational research in genomics
    Naomi Hawkins
    The Ethox Centre, Department of Public Health, University of Oxford, Old Road Campus, Headington, Oxford OX3 7LF, UK
    Genome Med 1:87. 2009
    ..This piece discusses the key areas of collaboration agreements, distribution of revenues and recruitment and sample collection that are increasingly important to successful translational research in genomics...
  12. pmc From patients to partners: participant-centric initiatives in biomedical research
    Jane Kaye
    HeLEX, Department of Public Health, University of Oxford, Old Road Campus, Headington, Oxford OX3 7LF, UK
    Nat Rev Genet 13:371-6. 2012
    ..Here, we give an overview of this rapidly moving field by providing an analysis of the different PCI approaches, as well as the benefits and challenges of implementing PCIs...
  13. pmc From single biobanks to international networks: developing e-governance
    Jane Kaye
    Department of Public Health, University of Oxford, Oxford, UK
    Hum Genet 130:377-82. 2011
    ..I suggest that a move to digital governance mechanisms might be a start to making research governance systems more appropriate for the 21st century...
  14. ncbi request reprint Lessons from European population genetic databases: comparing the law in Estonia, Iceland, Sweden and the United Kingdom
    Susan M C Gibbons
    ELSAGEN project, The Ethox Centre, University of Oxford, UK
    Eur J Health Law 12:103-33. 2005
    ..This analysis may offer some guidance for policymakers in other jurisdictions where PGDs have been proposed or are being established...
  15. doi request reprint Sample, data use and protection in biobanking in Europe: legal issues
    Eleni Zika
    IPTS Institute for Prospective Technological Studies, Joint Research Centre, European Commission, Seville, Spain
    Pharmacogenomics 9:773-81. 2008
    ..The workshop focused on the internal linkage of data and samples stored in a biobank, and the external linkage of biobanks with secondary information resources, such as cancer registries...
  16. ncbi request reprint Governing UK Biobank: the importance of ensuring public trust
    Richard Tutton
    Institute for the Study of Genetics, Biorisks and Society IGBiS, University of Nottingham, Nottingham NG7 2RD, UK
    Trends Biotechnol 22:284-5. 2004
    ..Therefore, they must be considered carefully because the UK Biobank will be the first ever genetic database of a general population of this size to become operational, and will be used as a model for other projects of this kind...
  17. pmc Research ethics recommendations for whole-genome research: consensus statement
    Timothy Caulfield
    Health Law Institute, University of Alberta, Edmonton, Alberta, Canada
    PLoS Biol 6:e73. 2008