- "You have to sit and explain it all, and explain yourself." Mothers' experiences of support services for their offspring with a rare genetic intellectual disability syndromeGemma Maria Griffith
School of Psychology, Bangor University, Brigantia Building, Penrhalt Road, Bangor, LL57 2AS, UK
J Genet Couns 20:165-77. 2011..Accessing appropriate social care services was reported to be a lengthy and complex process. These data may help inform care service providers about how best to support adults with rare genetic syndromes and their families...
- Psychological well-being in parents of children with Angelman, Cornelia de Lange and Cri du Chat syndromesG M Griffith
School of Psychology, Bangor University, Bangor, UK
J Intellect Disabil Res 55:397-410. 2011..The current study focuses on mothers and fathers of children with three rare genetic syndromes that are relatively unexplored in terms of family experience: Angelman syndrome, Cornelia de Lange syndrome and Cri du Chat syndrome...