Irene Tuffrey-Wijne

Summary

Affiliation: St George's
Country: UK

Publications

  1. ncbi request reprint The palliative care needs of people with intellectual disabilities: a literature review
    Irene Tuffrey-Wijne
    Department of Psychiatry of Disability, St George s Hospital Medical School, London, UK
    Palliat Med 17:55-62. 2003
  2. pmc People with learning disabilities who have cancer: an ethnographic study
    Irene Tuffrey-Wijne
    St George s, Division of Mental Health, University of London, London
    Br J Gen Pract 59:503-9. 2009
  3. doi request reprint Developing guidelines for disclosure or non-disclosure of bad news around life-limiting illness and death to people with intellectual disabilities
    Irene Tuffrey-Wijne
    Division of Population Health Sciences and Education, St George s University of London, London, UK
    J Appl Res Intellect Disabil 26:231-42. 2013
  4. doi request reprint A new model for breaking bad news to people with intellectual disabilities
    Irene Tuffrey-Wijne
    Division of Population Health Sciences and Education, St George s University of London, London, UK
    Palliat Med 27:5-12. 2013
  5. doi request reprint People with intellectual disabilities who are affected by a relative or friend with cancer: a qualitative study exploring experiences and support needs
    Irene Tuffrey-Wijne
    St George s University of London, Division of Population Health Sciences and Education, Cranmer Terrace, London SW17 0RE, UK
    Eur J Oncol Nurs 16:512-9. 2012
  6. doi request reprint Disclosure and understanding of cancer diagnosis and prognosis for people with intellectual disabilities: findings from an ethnographic study
    Irene Tuffrey-Wijne
    St George s, University of London, Division of Mental Health, Cranmer Terrace, London SW17 0RE, UK
    Eur J Oncol Nurs 14:224-30. 2010
  7. doi request reprint Co-researching with people with learning disabilities: an experience of involvement in qualitative data analysis
    Irene Tuffrey-Wijne
    Division of Mental Health, St George s University of London, London, UK
    Health Expect 13:174-84. 2010
  8. ncbi request reprint Communication difficulties and intellectual disability in end-of-life care
    Irene Tuffrey-Wijne
    St George s University of London, Division of Mental Health, London, UK
    Int J Palliat Nurs 14:189-94. 2008
  9. doi request reprint Palliative care provision for people with intellectual disabilities: a questionnaire survey of specialist palliative care professionals
    I Tuffrey-Wijne
    Division of Mental Health, St George s, University of London, Cranmer Terrace, London, UK
    Palliat Med 22:281-90. 2008
  10. ncbi request reprint Palliative care provision for people with intellectual disabilities: interviews with specialist palliative care professionals in London
    I Tuffrey-Wijne
    Division of Mental Health, St George s, University of London, UK
    Palliat Med 21:493-9. 2007

Detail Information

Publications15

  1. ncbi request reprint The palliative care needs of people with intellectual disabilities: a literature review
    Irene Tuffrey-Wijne
    Department of Psychiatry of Disability, St George s Hospital Medical School, London, UK
    Palliat Med 17:55-62. 2003
    ..Areas for possible future development include symptom assessment, evaluation of current practice and access to services and the development of information and training materials...
  2. pmc People with learning disabilities who have cancer: an ethnographic study
    Irene Tuffrey-Wijne
    St George s, Division of Mental Health, University of London, London
    Br J Gen Pract 59:503-9. 2009
    ..Cancer incidence among people with learning disabilities is rising. There have been no published studies of the needs and experiences of people with learning disabilities and cancer, from their own perspective...
  3. doi request reprint Developing guidelines for disclosure or non-disclosure of bad news around life-limiting illness and death to people with intellectual disabilities
    Irene Tuffrey-Wijne
    Division of Population Health Sciences and Education, St George s University of London, London, UK
    J Appl Res Intellect Disabil 26:231-42. 2013
    ..There is insufficient evidence to guide decisions around (non-)disclosure of bad news of life-limiting illness and death to people with intellectual disabilities...
  4. doi request reprint A new model for breaking bad news to people with intellectual disabilities
    Irene Tuffrey-Wijne
    Division of Population Health Sciences and Education, St George s University of London, London, UK
    Palliat Med 27:5-12. 2013
    ..To develop a model for breaking bad news that meets the needs of people with intellectual disabilities (IDs)...
  5. doi request reprint People with intellectual disabilities who are affected by a relative or friend with cancer: a qualitative study exploring experiences and support needs
    Irene Tuffrey-Wijne
    St George s University of London, Division of Population Health Sciences and Education, Cranmer Terrace, London SW17 0RE, UK
    Eur J Oncol Nurs 16:512-9. 2012
    ..To explore the experiences of people with intellectual disabilities (ID) who have a relative or friend with cancer, and to identify their support needs...
  6. doi request reprint Disclosure and understanding of cancer diagnosis and prognosis for people with intellectual disabilities: findings from an ethnographic study
    Irene Tuffrey-Wijne
    St George s, University of London, Division of Mental Health, Cranmer Terrace, London SW17 0RE, UK
    Eur J Oncol Nurs 14:224-30. 2010
    ..The study aim was to explore how much people with intellectual disabilities who have cancer understand about their diagnosis and prognosis, and to explore how much they are told about their cancer...
  7. doi request reprint Co-researching with people with learning disabilities: an experience of involvement in qualitative data analysis
    Irene Tuffrey-Wijne
    Division of Mental Health, St George s University of London, London, UK
    Health Expect 13:174-84. 2010
    ..However, there is limited literature about the processes of involving people with learning disabilities in the more intellectual and analytical stages of the research process...
  8. ncbi request reprint Communication difficulties and intellectual disability in end-of-life care
    Irene Tuffrey-Wijne
    St George s University of London, Division of Mental Health, London, UK
    Int J Palliat Nurs 14:189-94. 2008
    ..The authors conclude that the ability to communicate effectively with people with intellectual disabilities is a useful skill that will benefit all patients...
  9. doi request reprint Palliative care provision for people with intellectual disabilities: a questionnaire survey of specialist palliative care professionals
    I Tuffrey-Wijne
    Division of Mental Health, St George s, University of London, Cranmer Terrace, London, UK
    Palliat Med 22:281-90. 2008
    ..Future research should include epidemiological studies to assess need and include people with ID as informants to evaluate the effectiveness of palliative care provision...
  10. ncbi request reprint Palliative care provision for people with intellectual disabilities: interviews with specialist palliative care professionals in London
    I Tuffrey-Wijne
    Division of Mental Health, St George s, University of London, UK
    Palliat Med 21:493-9. 2007
    ..The importance of collaboration with carers and ID services is highlighted. Further studies are needed to investigate how widespread the problems are...
  11. ncbi request reprint Using Nominal Group Technique to investigate the views of people with intellectual disabilities on end-of-life care provision
    Irene Tuffrey-Wijne
    Division of Mental Health, St George s University of London, London, UK
    J Adv Nurs 58:80-9. 2007
    ..This paper is a report of a study using the Nominal Group Technique as a method to elicit the views of people with intellectual disabilities on sensitive issues, in this example end-of-life care provision...
  12. ncbi request reprint People with intellectual disabilities and their need for cancer information
    Irene Tuffrey-Wijne
    St George s, University of London, Department of Mental Health Learning Disabilities, Jenner Wing, Cranmer Terrace, London SW17 0RE, UK
    Eur J Oncol Nurs 10:106-16. 2006
    ..They wanted this information, and appeared to be capable of comprehending it. Further development of accessible information materials around cancer and palliative care is needed...
  13. ncbi request reprint Supporting patients who have intellectual disabilities: a survey investigating staff training needs
    Irene Tuffrey-Wijne
    St George s University of London, Department of Mental Health Learning Disability, Jenner Wing, Cranmer Terrace, London SE17 0RE, UK
    Int J Palliat Nurs 11:182-8. 2005
    ..This article reports on a small exploratory survey aimed at establishing the perceived training needs of palliative care staff related to supporting people with intellectual disabilities...
  14. ncbi request reprint Exploring the lived experiences of people with learning disabilities who are dying of cancer
    Irene Tuffrey-Wijne
    St George s, University of London
    Nurs Times 106:15-8. 2010
    ..Growing numbers of people with learning disabilities are living longer and dying of age related illnesses such as cancer...
  15. ncbi request reprint The palliative care needs of people with intellectual disabilities: a case study
    Irene Tuffrey-Wijne
    St George s Hospital Medical School, London, UK
    Int J Palliat Nurs 8:222-32. 2002
    ..A close collaboration between all professionals, carers, family and the client, and the mutual sharing of expertise, is essential to ensure the best possible care...