Research Topics
| Irene Tuffrey-WijneSummaryAffiliation: St George's Country: UK Publications
| Collaborators |
Detail Information
Publications
The palliative care needs of people with intellectual disabilities: a literature reviewIrene Tuffrey-Wijne
Department of Psychiatry of Disability, St George s Hospital Medical School, London, UK
Palliat Med 17:55-62. 2003..Areas for possible future development include symptom assessment, evaluation of current practice and access to services and the development of information and training materials...
People with learning disabilities who have cancer: an ethnographic studyIrene Tuffrey-Wijne
St George s, Division of Mental Health, University of London, London
Br J Gen Pract 59:503-9. 2009..Cancer incidence among people with learning disabilities is rising. There have been no published studies of the needs and experiences of people with learning disabilities and cancer, from their own perspective...
A new model for breaking bad news to people with intellectual disabilitiesIrene Tuffrey-Wijne
Division of Population Health Sciences and Education, St George s University of London, London, UK
Palliat Med 27:5-12. 2013..To develop a model for breaking bad news that meets the needs of people with intellectual disabilities (IDs)...- People with intellectual disabilities who are affected by a relative or friend with cancer: A qualitative study exploring experiences and support needsIrene Tuffrey-Wijne
St George s University of London, Division of Population Health Sciences and Education, Cranmer Terrace, London SW17 0RE, UK Electronic address
Eur J Oncol Nurs 16:512-9. 2012..To explore the experiences of people with intellectual disabilities (ID) who have a relative or friend with cancer, and to identify their support needs... - Disclosure and understanding of cancer diagnosis and prognosis for people with intellectual disabilities: findings from an ethnographic studyIrene Tuffrey-Wijne
St George s, University of London, Division of Mental Health, Cranmer Terrace, London SW17 0RE, UK
Eur J Oncol Nurs 14:224-30. 2010..The study aim was to explore how much people with intellectual disabilities who have cancer understand about their diagnosis and prognosis, and to explore how much they are told about their cancer... - Co-researching with people with learning disabilities: an experience of involvement in qualitative data analysisIrene Tuffrey-Wijne
Division of Mental Health, St George s University of London, London, UK
Health Expect 13:174-84. 2010..However, there is limited literature about the processes of involving people with learning disabilities in the more intellectual and analytical stages of the research process... - Communication difficulties and intellectual disability in end-of-life careIrene Tuffrey-Wijne
St George s University of London, Division of Mental Health, London, UK
Int J Palliat Nurs 14:189-94. 2008..The authors conclude that the ability to communicate effectively with people with intellectual disabilities is a useful skill that will benefit all patients... - Palliative care provision for people with intellectual disabilities: a questionnaire survey of specialist palliative care professionalsI Tuffrey-Wijne
Division of Mental Health, St George s, University of London, Cranmer Terrace, London, UK
Palliat Med 22:281-90. 2008..Future research should include epidemiological studies to assess need and include people with ID as informants to evaluate the effectiveness of palliative care provision... - Palliative care provision for people with intellectual disabilities: interviews with specialist palliative care professionals in LondonI Tuffrey-Wijne
Division of Mental Health, St George s, University of London, UK
Palliat Med 21:493-9. 2007..The importance of collaboration with carers and ID services is highlighted. Further studies are needed to investigate how widespread the problems are... - Using Nominal Group Technique to investigate the views of people with intellectual disabilities on end-of-life care provisionIrene Tuffrey-Wijne
Division of Mental Health, St George s University of London, London, UK
J Adv Nurs 58:80-9. 2007..This paper is a report of a study using the Nominal Group Technique as a method to elicit the views of people with intellectual disabilities on sensitive issues, in this example end-of-life care provision... - People with intellectual disabilities and their need for cancer informationIrene Tuffrey-Wijne
St George s, University of London, Department of Mental Health Learning Disabilities, Jenner Wing, Cranmer Terrace, London SW17 0RE, UK
Eur J Oncol Nurs 10:106-16. 2006..They wanted this information, and appeared to be capable of comprehending it. Further development of accessible information materials around cancer and palliative care is needed... - Supporting patients who have intellectual disabilities: a survey investigating staff training needsIrene Tuffrey-Wijne
St George s University of London, Department of Mental Health Learning Disability, Jenner Wing, Cranmer Terrace, London SE17 0RE, UK
Int J Palliat Nurs 11:182-8. 2005..This article reports on a small exploratory survey aimed at establishing the perceived training needs of palliative care staff related to supporting people with intellectual disabilities... - Exploring the lived experiences of people with learning disabilities who are dying of cancerIrene Tuffrey-Wijne
St George s, University of London
Nurs Times 106:15-8. 2010..Growing numbers of people with learning disabilities are living longer and dying of age related illnesses such as cancer... - The palliative care needs of people with intellectual disabilities: a case studyIrene Tuffrey-Wijne
St George's Hospital Medical School, London, UK
Int J Palliat Nurs 8:222-32. 2002..A close collaboration between all professionals, carers, family and the client, and the mutual sharing of expertise, is essential to ensure the best possible care...