Research Topics
| Jackie ParkesSummaryAffiliation: Queen's University Belfast Country: UK Publications
| Collaborators
|
Detail Information
Publications
Recruitment bias and characteristics of participants with severe cerebral palsy in a cross-sectional surveyJackie Parkes
Northern Ireland Cerebral Palsy Register School of Nursing and Midwifery, Nursing Midwifery Research Unit, Queen s University Belfast, UK
J Adv Nurs 68:368-78. 2012..This article is a report of recruitment bias in a sample of 5-25-year-old patients with severe cerebral palsy...
Assessment of data quality in a multi-centre cross-sectional study of participation and quality of life of children with cerebral palsyHeather Dickinson
School of Population and Health Sciences, Newcastle University, 21 Claremont Place, Newcastle, NE2 4AA, UK
BMC Public Health 6:273. 2006..The objective of this report is to assess data quality, in particular heterogeneity between regions, family and item non-response and potential for bias...
Parenting stress and children with cerebral palsy: a European cross-sectional surveyJackie Parkes
School of Nursing and Midwifery, Queen s University of Belfast, Belfast, UK
Dev Med Child Neurol 53:815-21. 2011..The aim of this study was to describe stress in the parents of children with cerebral palsy and investigate associations with very high stress...
Oromotor dysfunction and communication impairments in children with cerebral palsy: a register studyJackie Parkes
School of Nursing and Midwifery, Queen s University of Belfast, UK
Dev Med Child Neurol 52:1113-9. 2010..to report the prevalence, clinical associations, and trends over time of oromotor dysfunction and communication impairments in children with cerebral palsy (CP)...
To what extent do children with cerebral palsy participate in everyday life situations?Jackie Parkes
Nursing Midwifery Research Unit, School of Nursing and Midwifery, Queen s University Belfast, Belfast BT9 5BN, UK
Health Soc Care Community 18:304-15. 2010..Professionals have a role to play both at the level of addressing individual child and family needs as well as influencing legislation and policy to ensure improved access to services and local communities...
The health of children with cerebral palsy and stress in their parentsJackie Parkes
School of Nursing and Midwifery, Queen s University Belfast, Northern Ireland
J Adv Nurs 65:2311-23. 2009..The health of children with cerebral palsy and stress in their parents...
Psychological problems in children with hemiplegia: a European multicentre surveyJ Parkes
School of Nursing and Midwifery, Queen s University Belfast, Belfast, Northern Ireland
Arch Dis Child 94:429-33. 2009..To describe the prevalence and determinants of psychological problems in European children with hemiplegia...
Psychological problems in children with cerebral palsy: a cross-sectional European studyJackie Parkes
School of Nursing and Midwifery, Queen s University Belfast, UK
J Child Psychol Psychiatry 49:405-13. 2008..To describe psychological symptoms in 8-12-year-old children with cerebral palsy; to investigate predictors of these symptoms and their impact on the child and family...
Recruitment bias in a population-based study of children with cerebral palsyJackie Parkes
School of Nursing and Midwifery, Queen s University Belfast, Room 1 36, Mulhouse Building, Grosvenor Rd, Belfast, BT12 6BJ Ireland
Pediatrics 118:1616-22. 2006..The purpose of this analysis was to assess recruitment bias in a population-based study of locomotor ability in children with cerebral palsy...
Cerebral palsy in Northern Ireland: 1981--93J Parkes
Health and Social Care Research Unit, The Queen s University of Belfast, UK
Paediatr Perinat Epidemiol 15:278-86. 2001..We have demonstrated the methods necessary to ensure valid, standard and detailed information on CP for the purposes of surveillance, service planning and research...
What influences physiotherapy use by children with cerebral palsy?J Parkes
Health and Social Care Research Unit and School of Nursing and Midwifery, The Queen s University of Belfast, Northern Ireland, UK
Child Care Health Dev 30:151-60. 2004..To investigate factors that influence the frequency of physiotherapy currently used by a population of children with moderate to severe cerebral palsy (CP)...
Use of physiotherapy and alternatives by children with cerebral palsy: a population studyJ Parkes
Health and Social Care Research Unit, The Queen s University of Belfast, Belfast, UK
Child Care Health Dev 28:469-77. 2002..To describe the use of physiotherapy services and alternative therapies by a population of children with moderate to severe cerebral palsy (CP)...
Reliability and validity of the Child Health QuestionnairePF-50 for European children with cerebral palsyNichola McCullough
School of Nursing and Midwifery, Queen s University Belfast, Belfast, UK
J Pediatr Psychol 34:41-50. 2009..To evaluate the psychometric performance of the Child Health Questionnaire (CHQ) in children with cerebral palsy (CP)...
Age-related changes in energy efficiency of gait, activity, and participation in children with cerebral palsyClaire Kerr
School of Nursing and Midwifery, Queen s University Belfast, Belfast, Northern Ireland
Dev Med Child Neurol 53:61-7. 2011..The aim of this study was to use a prospective longitudinal study to describe age-related trends in energy efficiency during gait, activity, and participation in ambulatory children with cerebral palsy (CP)...
Interobserver agreement of the Gross Motor Function Classification System in an ambulant population of children with cerebral palsyBrona C McDowell
Gait Analysis Laboratory, Musgrave Park Hospital, Stockman s Lane, Belfast, UK
Dev Med Child Neurol 49:528-33. 2007..74) also demonstrates the potential for extrapolation of GMFCS rating from an existing CP registry, providing the latter has sufficient data on locomotor ability...
Socio-economic inequalities in cerebral palsy prevalence in the United Kingdom: a register-based studyHelen Dolk
Public Health and Primary Care Research Group, Institute for Nursing Research, University of Ulster, Shore Road, Newtownabbey, Northern Ireland, UK
Paediatr Perinat Epidemiol 24:149-55. 2010..The steeper gradients in some regions for normal birthweight cases and cases with severe intellectual impairment require further investigation...
Lifestyle limitations of children and young people with severe cerebral palsy: a population study protocolCollette Donnelly
Musgrave Park Hospital, Belfast Trust, School of Nursing and Midwifery, Queen s University Belfast, Belfast, UK
J Adv Nurs 61:557-69. 2008....
Energy efficiency in gait, activity, participation, and health status in children with cerebral palsyClaire Kerr
Gait Analysis Laboratory, Belfast Health and Social Care Trust, Musgrave Park Hospital, Stockman s Lane, Belfast, UK
Dev Med Child Neurol 50:204-10. 2008..The energy efficiency of walking is not reflective of participation restriction or health status. Thus, therapies leading to improved energy efficiency may not necessarily lead to improved participation or general health...
Experiences of fathers of babies in intensive careKathleen Deeney
School of Nursing and Midwifery, Queen s University Belfast
Paediatr Nurs 21:45-7. 2009..In addition, they may not perceive themselves as the primary caregiver to their sick infant, but rather providing a supporting role...
Use of the child health questionnaire in children with cerebral palsy: a systematic review and evaluation of the psychometric propertiesNichola McCullough
School of Nursing and Midwifery Research Unit, Queens University of Belfast, 10 Malone Road, Belfast
J Pediatr Psychol 33:80-90. 2008..To review the psychometric performance of the Child Health Questionnaire (CHQ) in samples of children with cerebral palsy (CP)...
The health of children and young people with cerebral palsy: A longitudinal, population-based studyNichola McCullough
School of Nursing and Midwifery, Queen s University Belfast, 10 Malone Road, Belfast, Northern Ireland, BT9 5BN, United Kingdom Electronic address
Int J Nurs Stud 50:747-56. 2013..Cerebral palsy (CP) is a chronic condition about which little is known in relation to the long term stability of and factors influencing health...
Validity of a 1 minute walk test for children with cerebral palsyBrona C McDowell
Gait Analysis Laboratory, Musgrave Park Hospital, Belfast, UK
Dev Med Child Neurol 47:744-8. 2005..Its cost-effectiveness and user friendliness make it a potentially useful tool in the clinical setting. Further study needs to address its reliability and ability to detect change over time...
Living through the death of a child: a qualitative study of bereaved parents' experiencesJayne Price
School of Nursing and Midwifery, Queen s University Belfast, Belfast BT9 7BL, United Kingdom
Int J Nurs Stud 48:1384-92. 2011..Cross-sectional qualitative study...
Self-reported quality of life of 8-12-year-old children with cerebral palsy: a cross-sectional European studyHeather O Dickinson
Institute of Health and Society, Newcastle University, Newcastle upon Tyne, UK
Lancet 369:2171-8. 2007..Little is known about the quality of life (QoL) of disabled children. We describe self-reported QoL of children with cerebral palsy, factors that influence it, and how it compares with QoL of the general population...
Parent-reported quality of life of children with cerebral palsy in EuropeCatherine Arnaud
National Institute of Health and Medical Research, U558, Research Unit on Perinatal Epidemiology, Child Health and Development, Toulouse University III Paul Sabatier, Toulouse, France
Pediatrics 121:54-64. 2008....
Accommodative dysfunction in children with cerebral palsy: a population-based studyJulie F McClelland
Vision Science Research Group, Biomedical Sciences, University of Ulster, Northern Ireland, United Kingdom
Invest Ophthalmol Vis Sci 47:1824-30. 2006..To determine the prevalence, nature, and degree of accommodative dysfunction among children with different types and severities of cerebral palsy (CP) in Northern Ireland...
Determinants of child-parent agreement in quality-of-life reports: a European study of children with cerebral palsyMelanie White-Koning
Institut National de la Sante et de la Recherche Medicale, U558, Faculte de Medecine, 37 Allees Jules Guesde, 31073 Toulouse Cedex, France
Pediatrics 120:e804-14. 2007..We examined whether child characteristics, severity of impairment, socioeconomic factors, and parental stress were associated with parent proxy reports being respectively higher or lower than child self-reports of quality of life...
Making doors open: caring for families of children with severe cerebral palsyAnne Ross
Children's Shortened Programme, Queen's University, Belfast
Paediatr Nurs 16:14-8. 2004
UKCP: a collaborative network of cerebral palsy registers in the United KingdomGeraldine Surman
National Perinatal Epidemiology Unit, University of Oxford, Old Road Campus, Headington, Oxford OX3 7LF, UK
J Public Health (Oxf) 28:148-56. 2006..The UKCP database is an important national resource for the surveillance of CP and the study of its epidemiology in the United Kingdom...
Trends in the prevalence of cerebral palsy in Northern Ireland, 1981-1997Helen Dolk
Faculty of Life and Health Sciences, University of Ulster at Jordanstown, Newtownabbey, County Antrim, UK
Dev Med Child Neurol 48:406-12; discussion 405. 2006..Occurrence of bilateral spasticity from 1994 to 1997 was associated with greater severity and likelihood of intellectual impairment for normal-birthweight individuals than for low- or very-low-birthweight individuals...
