Jackie Parkes

Summary

Affiliation: Queen's University Belfast
Country: UK

Publications

  1. pmc Predictors of drop-out in a multi-centre longitudinal study of participation and quality of life of children with cerebral palsy
    Heather O Dickinson
    Institute of Health and Society, Newcastle University, Royal Victoria Infirmary, Newcastle upon Tyne, NE1 4LP, UK
    BMC Res Notes 5:300. 2012
  2. doi request reprint Recruitment bias and characteristics of participants with severe cerebral palsy in a cross-sectional survey
    Jackie Parkes
    Northern Ireland Cerebral Palsy Register School of Nursing and Midwifery, Nursing Midwifery Research Unit, Queen s University Belfast, UK
    J Adv Nurs 68:368-78. 2012
  3. pmc Assessment of data quality in a multi-centre cross-sectional study of participation and quality of life of children with cerebral palsy
    Heather Dickinson
    School of Population and Health Sciences, Newcastle University, 21 Claremont Place, Newcastle, NE2 4AA, UK
    BMC Public Health 6:273. 2006
  4. ncbi request reprint Cerebral palsy in Northern Ireland: 1981--93
    J Parkes
    Health and Social Care Research Unit, The Queen s University of Belfast, UK
    Paediatr Perinat Epidemiol 15:278-86. 2001
  5. doi request reprint Psychological problems in children with hemiplegia: a European multicentre survey
    J Parkes
    School of Nursing and Midwifery, Queen s University Belfast, Belfast, Northern Ireland
    Arch Dis Child 94:429-33. 2009
  6. doi request reprint To what extent do children with cerebral palsy participate in everyday life situations?
    Jackie Parkes
    Nursing Midwifery Research Unit, School of Nursing and Midwifery, Queen s University Belfast, Belfast BT9 5BN, UK
    Health Soc Care Community 18:304-15. 2010
  7. ncbi request reprint Psychological problems in children with cerebral palsy: a cross-sectional European study
    Jackie Parkes
    School of Nursing and Midwifery, Queen s University Belfast, UK
    J Child Psychol Psychiatry 49:405-13. 2008
  8. doi request reprint Oromotor dysfunction and communication impairments in children with cerebral palsy: a register study
    Jackie Parkes
    School of Nursing and Midwifery, Queen s University of Belfast, UK
    Dev Med Child Neurol 52:1113-9. 2010
  9. ncbi request reprint Recruitment bias in a population-based study of children with cerebral palsy
    Jackie Parkes
    School of Nursing and Midwifery, Queen s University Belfast, Room 1 36, Mulhouse Building, Grosvenor Rd, Belfast, BT12 6BJ Ireland
    Pediatrics 118:1616-22. 2006
  10. doi request reprint The health of children with cerebral palsy and stress in their parents
    Jackie Parkes
    School of Nursing and Midwifery, Queen s University Belfast, Northern Ireland
    J Adv Nurs 65:2311-23. 2009

Detail Information

Publications32

  1. pmc Predictors of drop-out in a multi-centre longitudinal study of participation and quality of life of children with cerebral palsy
    Heather O Dickinson
    Institute of Health and Society, Newcastle University, Royal Victoria Infirmary, Newcastle upon Tyne, NE1 4LP, UK
    BMC Res Notes 5:300. 2012
    ....
  2. doi request reprint Recruitment bias and characteristics of participants with severe cerebral palsy in a cross-sectional survey
    Jackie Parkes
    Northern Ireland Cerebral Palsy Register School of Nursing and Midwifery, Nursing Midwifery Research Unit, Queen s University Belfast, UK
    J Adv Nurs 68:368-78. 2012
    ..This article is a report of recruitment bias in a sample of 5-25-year-old patients with severe cerebral palsy...
  3. pmc Assessment of data quality in a multi-centre cross-sectional study of participation and quality of life of children with cerebral palsy
    Heather Dickinson
    School of Population and Health Sciences, Newcastle University, 21 Claremont Place, Newcastle, NE2 4AA, UK
    BMC Public Health 6:273. 2006
    ..The objective of this report is to assess data quality, in particular heterogeneity between regions, family and item non-response and potential for bias...
  4. ncbi request reprint Cerebral palsy in Northern Ireland: 1981--93
    J Parkes
    Health and Social Care Research Unit, The Queen s University of Belfast, UK
    Paediatr Perinat Epidemiol 15:278-86. 2001
    ..We have demonstrated the methods necessary to ensure valid, standard and detailed information on CP for the purposes of surveillance, service planning and research...
  5. doi request reprint Psychological problems in children with hemiplegia: a European multicentre survey
    J Parkes
    School of Nursing and Midwifery, Queen s University Belfast, Belfast, Northern Ireland
    Arch Dis Child 94:429-33. 2009
    ..To describe the prevalence and determinants of psychological problems in European children with hemiplegia...
  6. doi request reprint To what extent do children with cerebral palsy participate in everyday life situations?
    Jackie Parkes
    Nursing Midwifery Research Unit, School of Nursing and Midwifery, Queen s University Belfast, Belfast BT9 5BN, UK
    Health Soc Care Community 18:304-15. 2010
    ..Professionals have a role to play both at the level of addressing individual child and family needs as well as influencing legislation and policy to ensure improved access to services and local communities...
  7. ncbi request reprint Psychological problems in children with cerebral palsy: a cross-sectional European study
    Jackie Parkes
    School of Nursing and Midwifery, Queen s University Belfast, UK
    J Child Psychol Psychiatry 49:405-13. 2008
    ..To describe psychological symptoms in 8-12-year-old children with cerebral palsy; to investigate predictors of these symptoms and their impact on the child and family...
  8. doi request reprint Oromotor dysfunction and communication impairments in children with cerebral palsy: a register study
    Jackie Parkes
    School of Nursing and Midwifery, Queen s University of Belfast, UK
    Dev Med Child Neurol 52:1113-9. 2010
    ..to report the prevalence, clinical associations, and trends over time of oromotor dysfunction and communication impairments in children with cerebral palsy (CP)...
  9. ncbi request reprint Recruitment bias in a population-based study of children with cerebral palsy
    Jackie Parkes
    School of Nursing and Midwifery, Queen s University Belfast, Room 1 36, Mulhouse Building, Grosvenor Rd, Belfast, BT12 6BJ Ireland
    Pediatrics 118:1616-22. 2006
    ..The purpose of this analysis was to assess recruitment bias in a population-based study of locomotor ability in children with cerebral palsy...
  10. doi request reprint The health of children with cerebral palsy and stress in their parents
    Jackie Parkes
    School of Nursing and Midwifery, Queen s University Belfast, Northern Ireland
    J Adv Nurs 65:2311-23. 2009
    ..The health of children with cerebral palsy and stress in their parents...
  11. ncbi request reprint Use of physiotherapy and alternatives by children with cerebral palsy: a population study
    J Parkes
    Health and Social Care Research Unit, The Queen s University of Belfast, Belfast, UK
    Child Care Health Dev 28:469-77. 2002
    ..To describe the use of physiotherapy services and alternative therapies by a population of children with moderate to severe cerebral palsy (CP)...
  12. ncbi request reprint What influences physiotherapy use by children with cerebral palsy?
    J Parkes
    Health and Social Care Research Unit and School of Nursing and Midwifery, The Queen s University of Belfast, Northern Ireland, UK
    Child Care Health Dev 30:151-60. 2004
    ..To investigate factors that influence the frequency of physiotherapy currently used by a population of children with moderate to severe cerebral palsy (CP)...
  13. doi request reprint Parenting stress and children with cerebral palsy: a European cross-sectional survey
    Jackie Parkes
    School of Nursing and Midwifery, Queen s University of Belfast, Belfast, UK
    Dev Med Child Neurol 53:815-21. 2011
    ..The aim of this study was to describe stress in the parents of children with cerebral palsy and investigate associations with very high stress...
  14. doi request reprint Reliability and validity of the Child Health QuestionnairePF-50 for European children with cerebral palsy
    Nichola McCullough
    School of Nursing and Midwifery, Queen s University Belfast, Belfast, UK
    J Pediatr Psychol 34:41-50. 2009
    ..To evaluate the psychometric performance of the Child Health Questionnaire (CHQ) in children with cerebral palsy (CP)...
  15. doi request reprint Age-related changes in energy efficiency of gait, activity, and participation in children with cerebral palsy
    Claire Kerr
    School of Nursing and Midwifery, Queen s University Belfast, Belfast, Northern Ireland
    Dev Med Child Neurol 53:61-7. 2011
    ..The aim of this study was to use a prospective longitudinal study to describe age-related trends in energy efficiency during gait, activity, and participation in ambulatory children with cerebral palsy (CP)...
  16. doi request reprint The health of children and young people with cerebral palsy: a longitudinal, population-based study
    Nichola McCullough
    School of Nursing and Midwifery, Queen s University Belfast, 10 Malone Road, Belfast, Northern Ireland, United Kingdom
    Int J Nurs Stud 50:747-56. 2013
    ..Cerebral palsy (CP) is a chronic condition about which little is known in relation to the long term stability of and factors influencing health...
  17. doi request reprint Socio-economic inequalities in cerebral palsy prevalence in the United Kingdom: a register-based study
    Helen Dolk
    Public Health and Primary Care Research Group, Institute for Nursing Research, University of Ulster, Shore Road, Newtownabbey, Northern Ireland, UK
    Paediatr Perinat Epidemiol 24:149-55. 2010
    ..The steeper gradients in some regions for normal birthweight cases and cases with severe intellectual impairment require further investigation...
  18. ncbi request reprint Interobserver agreement of the Gross Motor Function Classification System in an ambulant population of children with cerebral palsy
    Brona C McDowell
    Gait Analysis Laboratory, Musgrave Park Hospital, Stockman s Lane, Belfast, UK
    Dev Med Child Neurol 49:528-33. 2007
    ..74) also demonstrates the potential for extrapolation of GMFCS rating from an existing CP registry, providing the latter has sufficient data on locomotor ability...
  19. ncbi request reprint Lifestyle limitations of children and young people with severe cerebral palsy: a population study protocol
    Collette Donnelly
    Musgrave Park Hospital, Belfast Trust, School of Nursing and Midwifery, Queen s University Belfast, Belfast, UK
    J Adv Nurs 61:557-69. 2008
    ....
  20. doi request reprint Energy efficiency in gait, activity, participation, and health status in children with cerebral palsy
    Claire Kerr
    Gait Analysis Laboratory, Belfast Health and Social Care Trust, Musgrave Park Hospital, Stockman s Lane, Belfast, UK
    Dev Med Child Neurol 50:204-10. 2008
    ..The energy efficiency of walking is not reflective of participation restriction or health status. Thus, therapies leading to improved energy efficiency may not necessarily lead to improved participation or general health...
  21. ncbi request reprint Use of the child health questionnaire in children with cerebral palsy: a systematic review and evaluation of the psychometric properties
    Nichola McCullough
    School of Nursing and Midwifery Research Unit, Queens University of Belfast, 10 Malone Road, Belfast
    J Pediatr Psychol 33:80-90. 2008
    ..To review the psychometric performance of the Child Health Questionnaire (CHQ) in samples of children with cerebral palsy (CP)...
  22. ncbi request reprint Experiences of fathers of babies in intensive care
    Kathleen Deeney
    School of Nursing and Midwifery, Queen s University Belfast
    Paediatr Nurs 21:45-7. 2009
    ..In addition, they may not perceive themselves as the primary caregiver to their sick infant, but rather providing a supporting role...
  23. doi request reprint Comparing the needs of families of children dying from malignant and non-malignant disease: an in-depth qualitative study
    Jayne Price
    School of Nursing and Midwifery, Queen s University Belfast, Belfast, UK
    BMJ Support Palliat Care 2:127-32. 2012
    ..To examine the experiences of bereaved parents concerning the care provided to children who died from cancer compared to those who died from a non-malignant condition...
  24. ncbi request reprint Validity of a 1 minute walk test for children with cerebral palsy
    Brona C McDowell
    Gait Analysis Laboratory, Musgrave Park Hospital, Belfast, UK
    Dev Med Child Neurol 47:744-8. 2005
    ..Its cost-effectiveness and user friendliness make it a potentially useful tool in the clinical setting. Further study needs to address its reliability and ability to detect change over time...
  25. doi request reprint Living through the death of a child: a qualitative study of bereaved parents' experiences
    Jayne Price
    School of Nursing and Midwifery, Queen s University Belfast, Belfast BT9 7BL, United Kingdom
    Int J Nurs Stud 48:1384-92. 2011
    ..Cross-sectional qualitative study...
  26. ncbi request reprint Accommodative dysfunction in children with cerebral palsy: a population-based study
    Julie F McClelland
    Vision Science Research Group, Biomedical Sciences, University of Ulster, Northern Ireland, United Kingdom
    Invest Ophthalmol Vis Sci 47:1824-30. 2006
    ..To determine the prevalence, nature, and degree of accommodative dysfunction among children with different types and severities of cerebral palsy (CP) in Northern Ireland...
  27. ncbi request reprint Self-reported quality of life of 8-12-year-old children with cerebral palsy: a cross-sectional European study
    Heather O Dickinson
    Institute of Health and Society, Newcastle University, Newcastle upon Tyne, UK
    Lancet 369:2171-8. 2007
    ..Little is known about the quality of life (QoL) of disabled children. We describe self-reported QoL of children with cerebral palsy, factors that influence it, and how it compares with QoL of the general population...
  28. ncbi request reprint Determinants of child-parent agreement in quality-of-life reports: a European study of children with cerebral palsy
    Melanie White-Koning
    Institut National de la Sante et de la Recherche Medicale, U558, Faculte de Medecine, 37 Allees Jules Guesde, 31073 Toulouse Cedex, France
    Pediatrics 120:e804-14. 2007
    ..We examined whether child characteristics, severity of impairment, socioeconomic factors, and parental stress were associated with parent proxy reports being respectively higher or lower than child self-reports of quality of life...
  29. doi request reprint Parent-reported quality of life of children with cerebral palsy in Europe
    Catherine Arnaud
    National Institute of Health and Medical Research, U558, Research Unit on Perinatal Epidemiology, Child Health and Development, Toulouse University III Paul Sabatier, Toulouse, France
    Pediatrics 121:54-64. 2008
    ....
  30. ncbi request reprint Trends in the prevalence of cerebral palsy in Northern Ireland, 1981-1997
    Helen Dolk
    Faculty of Life and Health Sciences, University of Ulster at Jordanstown, Newtownabbey, County Antrim, UK
    Dev Med Child Neurol 48:406-12; discussion 405. 2006
    ..Occurrence of bilateral spasticity from 1994 to 1997 was associated with greater severity and likelihood of intellectual impairment for normal-birthweight individuals than for low- or very-low-birthweight individuals...
  31. ncbi request reprint UKCP: a collaborative network of cerebral palsy registers in the United Kingdom
    Geraldine Surman
    National Perinatal Epidemiology Unit, University of Oxford, Old Road Campus, Headington, Oxford OX3 7LF, UK
    J Public Health (Oxf) 28:148-56. 2006
    ..The UKCP database is an important national resource for the surveillance of CP and the study of its epidemiology in the United Kingdom...
  32. ncbi request reprint Making doors open: caring for families of children with severe cerebral palsy
    Anne Ross
    Children s Shortened Programme, Queen s University, Belfast
    Paediatr Nurs 16:14-8. 2004