I J Higginson

Summary

Affiliation: King's College London
Country: UK

Publications

  1. ncbi request reprint A multi-professional short-term group intervention for informal caregivers of patients using a home palliative care service
    Richard Harding
    Department of Palliative Care and Policy, Guy s King s and St Thomas School of Medicine, London, U K
    J Palliat Care 18:275-81. 2002
  2. pmc Development and evaluation of the feasibility and effects on staff, patients, and families of a new tool, the Psychosocial Assessment and Communication Evaluation (PACE), to improve communication and palliative care in intensive care and during clinical u
    Irene J Higginson
    Department of Palliative Care, Policy and Rehabilitation, Cicely Saunders Institute, King s College London, School of Medicine, Bessemer Road, Denmark Hill, London SE5 9PJ, UK
    BMC Med 11:213. 2013
  3. pmc 'Peace' and 'life worthwhile' as measures of spiritual well-being in African palliative care: a mixed-methods study
    Lucy Selman
    King s College London, Department Palliative Care, Policy and Rehabilitation, Cicely Saunders Institute, Bessemer Road, Denmark Hill, London SE5 9PJ, UK
    Health Qual Life Outcomes 11:94. 2013
  4. pmc Development, effectiveness and cost-effectiveness of a new out-patient Breathlessness Support Service: study protocol of a phase III fast-track randomised controlled trial
    Claudia Bausewein
    King s College London, Cicely Saunders Institute, Department of Palliative Care, Policy and Rehabilitation, London, UK
    BMC Pulm Med 12:58. 2012
  5. pmc Heterogeneity and changes in preferences for dying at home: a systematic review
    Barbara Gomes
    King s College London, Cicely Saunders Institute, Department of Palliative Care, Policy and Rehabilitation, Bessemer Road, London, SE5 9PJ, UK
    BMC Palliat Care 12:7. 2013
  6. pmc Patient, caregiver, health professional and researcher views and experiences of participating in research at the end of life: a critical interpretive synthesis of the literature
    Marjolein H Gysels
    King s College London, Cicely Saunders Institute, Department of Palliative Care, Policy and Rehabilitation School of Medicine, London, UK
    BMC Med Res Methodol 12:123. 2012
  7. pmc Treatment outcomes in palliative care: the TOPCare study. A mixed methods phase III randomised controlled trial to assess the effectiveness of a nurse-led palliative care intervention for HIV positive patients on antiretroviral therapy
    Keira Lowther
    Cicely Saunders Institute, Department of Palliative Care and Rehabilitation, Kings College London, London, UK
    BMC Infect Dis 12:288. 2012
  8. pmc 'Burden to others' as a public concern in advanced cancer: a comparative survey in seven European countries
    Claudia Bausewein
    Department of Palliative Care, Policy and Rehabilitation, Cicely Saunders Institute, King s College London, London, UK
    BMC Cancer 13:105. 2013
  9. pmc Evaluating complex interventions in end of life care: the MORECare statement on good practice generated by a synthesis of transparent expert consultations and systematic reviews
    Irene J Higginson
    King s College London, Cicely Saunders Institute, Department of Palliative Care, Policy and Rehabilitation, Bessmer Road, Denmark Hill, London SE5 9PJ, UK
    BMC Med 11:111. 2013
  10. doi request reprint Opioid prescribing for cancer pain during the last 3 months of life: associated factors and 9-year trends in a nationwide United Kingdom cohort study
    Irene J Higginson
    Cicely Saunders Institute, King s College London, London, United Kingdom
    J Clin Oncol 30:4373-9. 2012

Collaborators

Detail Information

Publications132 found, 100 shown here

  1. ncbi request reprint A multi-professional short-term group intervention for informal caregivers of patients using a home palliative care service
    Richard Harding
    Department of Palliative Care and Policy, Guy s King s and St Thomas School of Medicine, London, U K
    J Palliat Care 18:275-81. 2002
    ..Qualitative data from attendees showed that identifying with other carers and validating feelings, asking questions of professionals, and providing each other with support and encouragement were valuable outcomes from the group...
  2. pmc Development and evaluation of the feasibility and effects on staff, patients, and families of a new tool, the Psychosocial Assessment and Communication Evaluation (PACE), to improve communication and palliative care in intensive care and during clinical u
    Irene J Higginson
    Department of Palliative Care, Policy and Rehabilitation, Cicely Saunders Institute, King s College London, School of Medicine, Bessemer Road, Denmark Hill, London SE5 9PJ, UK
    BMC Med 11:213. 2013
    ..Therefore, we aimed to develop and evaluate an interventional tool to improve communication and palliative care, using the ICU as an example of where this is difficult...
  3. pmc 'Peace' and 'life worthwhile' as measures of spiritual well-being in African palliative care: a mixed-methods study
    Lucy Selman
    King s College London, Department Palliative Care, Policy and Rehabilitation, Cicely Saunders Institute, Bessemer Road, Denmark Hill, London SE5 9PJ, UK
    Health Qual Life Outcomes 11:94. 2013
    ..We aimed to determine the content and construct validity of these items as measures of spiritual wellbeing in African palliative care populations...
  4. pmc Development, effectiveness and cost-effectiveness of a new out-patient Breathlessness Support Service: study protocol of a phase III fast-track randomised controlled trial
    Claudia Bausewein
    King s College London, Cicely Saunders Institute, Department of Palliative Care, Policy and Rehabilitation, London, UK
    BMC Pulm Med 12:58. 2012
    ..The aim of this study is to develop and evaluate the effectiveness and cost effectiveness of this multidisciplinary out-patient BSS for the palliation of breathlessness, in advanced malignant and non-malignant disease...
  5. pmc Heterogeneity and changes in preferences for dying at home: a systematic review
    Barbara Gomes
    King s College London, Cicely Saunders Institute, Department of Palliative Care, Policy and Rehabilitation, Bessemer Road, London, SE5 9PJ, UK
    BMC Palliat Care 12:7. 2013
    ..We examined the heterogeneity in preferences for home death and explored, for the first time, changes of preference with illness progression...
  6. pmc Patient, caregiver, health professional and researcher views and experiences of participating in research at the end of life: a critical interpretive synthesis of the literature
    Marjolein H Gysels
    King s College London, Cicely Saunders Institute, Department of Palliative Care, Policy and Rehabilitation School of Medicine, London, UK
    BMC Med Res Methodol 12:123. 2012
    ....
  7. pmc Treatment outcomes in palliative care: the TOPCare study. A mixed methods phase III randomised controlled trial to assess the effectiveness of a nurse-led palliative care intervention for HIV positive patients on antiretroviral therapy
    Keira Lowther
    Cicely Saunders Institute, Department of Palliative Care and Rehabilitation, Kings College London, London, UK
    BMC Infect Dis 12:288. 2012
    ....
  8. pmc 'Burden to others' as a public concern in advanced cancer: a comparative survey in seven European countries
    Claudia Bausewein
    Department of Palliative Care, Policy and Rehabilitation, Cicely Saunders Institute, King s College London, London, UK
    BMC Cancer 13:105. 2013
    ..We aimed to compare the level of public concern with different symptoms and problems in advanced cancer across Europe and examine factors influencing this...
  9. pmc Evaluating complex interventions in end of life care: the MORECare statement on good practice generated by a synthesis of transparent expert consultations and systematic reviews
    Irene J Higginson
    King s College London, Cicely Saunders Institute, Department of Palliative Care, Policy and Rehabilitation, Bessmer Road, Denmark Hill, London SE5 9PJ, UK
    BMC Med 11:111. 2013
    ..It is hampered by research that is difficult to conduct with no common standards. We aimed to develop evidence-based guidance on the best methods for the design and conduct of research on EoLC to further knowledge in the field...
  10. doi request reprint Opioid prescribing for cancer pain during the last 3 months of life: associated factors and 9-year trends in a nationwide United Kingdom cohort study
    Irene J Higginson
    Cicely Saunders Institute, King s College London, London, United Kingdom
    J Clin Oncol 30:4373-9. 2012
    ..To determine time trends and characteristics associated with opioid analgesic prescribing to patients with cancer who are approaching the end of life...
  11. pmc Symptoms and quality of life in late stage Parkinson syndromes: a longitudinal community study of predictive factors
    Irene J Higginson
    Cicely Saunders Institute, King s College London, London, United Kingdom
    PLoS ONE 7:e46327. 2012
    ..We aimed to determine how symptoms and quality of life of these patients change over time; and what demographic and clinical factors predicted changes...
  12. ncbi request reprint Republished: which questions of two commonly used multidimensional palliative care patient reported outcome measures are most useful? Results from the European and African PRISMA survey
    Irene J Higginson
    Cicely Saunders Institute, Department of Palliative Care, Policy and Rehabilitation, King s College London, Bessemer Road, London SE5 9PJ, UK
    Postgrad Med J 88:451-7. 2012
    ..To evaluate the views of clinicians and researchers on their use of outcome measures and which questions are most important in palliative and end-of-life care...
  13. pmc Outcomes 'out of africa': the selection and implementation of outcome measures for palliative care in Africa
    Julia Downing
    Honorary Professor Palliative Care, Makerere University, Kampala, c o PO Box 72518, Kampala, Formerly Deputy Executive Director, African Palliative Care Association, Kampala, Uganda
    BMC Palliat Care 11:1. 2012
    ..abstract:..
  14. pmc Study protocol: Phase III single-blinded fast-track pragmatic randomised controlled trial of a complex intervention for breathlessness in advanced disease
    Morag C Farquhar
    General Practice and Primary Care Research Unit, Dept Public Health and Primary Care, University of Cambridge, Institute of Public Health, Robinson Way, Cambridge CB2 0SR, UK
    Trials 12:130. 2011
    ..BIS is being continuously developed and its impact evaluated using the MRC's framework for complex interventions (PreClinical, Phase I and Phase II completed). This paper presents the protocol for Phase III...
  15. pmc Implementing patient reported outcome measures (PROMs) in palliative care--users' cry for help
    Claudia Bausewein
    King s College London, Cicely Saunders Institute, Department of Palliative Care, Policy and Rehabilitation, London, UK
    Health Qual Life Outcomes 9:27. 2011
    ..However, little is known about professionals' views using these measures. The aim of this study is to describe the use and experiences of palliative care professionals with outcome measures...
  16. pmc Quality of life among patients receiving palliative care in South Africa and Uganda: a multi-centred study
    Lucy E Selman
    King s College London, Department of Palliative Care, Policy and Rehabilitation, Cicely Saunders Institute, Bessemer Road, Denmark Hill, London SE5 9PJ, UK
    Health Qual Life Outcomes 9:21. 2011
    ....
  17. pmc Validation of a core outcome measure for palliative care in Africa: the APCA African Palliative Outcome Scale
    Richard Harding
    Dept Palliative Care, King s College London, Weston Education Centre, Denmark Hill, London SE5 9RJ, UK
    Health Qual Life Outcomes 8:10. 2010
    ..A primary reason has been the lack of appropriate locally-validated outcome tools. This study aimed to validate a multidimensional scale (the APCA African Palliative Outcome Scale) in a multi-centred international study...
  18. pmc Multi-centred mixed-methods PEPFAR HIV care & support public health evaluation: study protocol
    Richard Harding
    King s College London, Cicely Saunders Institute, Department of Palliative Care, Policy and Rehabilitation School of Medicine at Guy s, King s and St Thomas Hospitals Bessemer Road, London SE5 9PJ, UK
    BMC Public Health 10:584. 2010
    ....
  19. pmc Current HIV/AIDS end-of-life care in sub-Saharan Africa: a survey of models, services, challenges and priorities
    Richard Harding
    Department of Palliative Care and Policy, Guy s King s and St Thomas School of Medicine, King s College London, UK
    BMC Public Health 3:33. 2003
    ..In response to increased global public health funding initiatives to HIV/AIDS care in Africa, this study aimed to describe practice models, strategies and challenges to delivering end-of-life care in sub-Saharan Africa...
  20. pmc The lived experience of breathlessness and its implications for care: a qualitative comparison in cancer, COPD, heart failure and MND
    Marjolein H Gysels
    King s College London, Department of Palliative Care, Policy and Rehabilitation School of Medicine, London, UK
    BMC Palliat Care 10:15. 2011
    ..abstract:..
  21. pmc Expert opinion on detecting and treating depression in palliative care: A Delphi study
    Lauren Rayner
    Department of Palliative Care, Policy and Rehabilitation, Cicely Saunders Institute, King s College London, UK
    BMC Palliat Care 10:10. 2011
    ..abstract:..
  22. pmc Assessing the feasibility, acceptability and potential effectiveness of Dignity Therapy for people with advanced cancer referred to a hospital-based palliative care team: Study protocol
    Sue Hall
    Department of Palliative Care, Policy and Rehabilitation, King s College London, Weston Education Centre, Cutcombe Road, London SE5 9RJ, UK
    BMC Palliat Care 8:5. 2009
    ..TRIAL REGISTRATION: Current Controlled Clinical Trials: ISRCTN29868352...
  23. pmc Provision of palliative care for chronic heart failure inpatients: how much do we need?
    Richard Harding
    Department of Palliative Care, Policy and Rehabilitation, King s College London, London, UK
    BMC Palliat Care 8:8. 2009
    ..This study aimed to: 1) Measure point prevalence of inpatients appropriate for palliative care. 2) Identify patient characteristics associated with palliative care appropriateness. 3) Propose evidence-based clinical referral criteria...
  24. pmc Effectiveness of a hand-held fan for breathlessness: a randomised phase II trial
    Claudia Bausewein
    King s College London, Department of Palliative Care, Policy and Rehabilitation, Cicely Saunders Institute, London, UK
    BMC Palliat Care 9:22. 2010
    ..This phase II study aimed to determine the use and acceptance of a hand-held fan (HHF) to relieve breathlessness, to test the effectiveness of the HHF and to evaluate the recruitment into the study...
  25. pmc The feasibility of a single-blinded fast-track pragmatic randomised controlled trial of a complex intervention for breathlessness in advanced disease
    Morag C Farquhar
    General Practice and Primary Care Research Unit, Dept Public Health and Primary Care, University of Cambridge, Institute of Public Health, Robinson Way, Cambridge, CB2 0SR, UK
    BMC Palliat Care 8:9. 2009
    ..TRIAL REGISTRATION: Clinical Trials.gov NCT00711438...
  26. pmc Is the qualitative research interview an acceptable medium for research with palliative care patients and carers?
    Marjolein Gysels
    Palliative Care, Policy and Rehabilitation, School of Medicine, King s College London, London, SE5 9RJ, UK
    BMC Med Ethics 9:7. 2008
    ....
  27. pmc Appraisal of literature reviews on end-of-life care for minority ethnic groups in the UK and a critical comparison with policy recommendations from the UK end-of-life care strategy
    Natalie Evans
    Barcelona Centre for International Health Research CRESIB, Hospital Clínic Universitat de Barcelona, C Rosselló 132 Sobre ático, 08036 Barcelona, Spain
    BMC Health Serv Res 11:141. 2011
    ..This article aims to review and evaluate literature reviews on minority ethnic groups and EoL care in the UK and assess their suitability as an evidence base for policy...
  28. pmc Reconciling employment with caring for a husband with an advanced illness
    Marjolein Gysels
    King s College London, Department of Palliative Care Policy and Rehabilitation, School of Medicine, London, UK
    BMC Health Serv Res 9:216. 2009
    ..The aim of this paper was to explore the meaning of work for women caring for a husband with an advanced illness and the consequences of combining these two roles...
  29. pmc Implementing a quality improvement programme in palliative care in care homes: a qualitative study
    Sue Hall
    Department of Palliative Care, Policy and Rehabilitation, Cicely Saunders Institute, King s College London, Bessemer Road, Denmark Hill, London, UK
    BMC Geriatr 11:31. 2011
    ..The aim of this study is to explore the perceived benefits of, and barriers to, implementation of the Gold Standards Framework for Care Homes (GSFCH), a quality improvement programme in palliative care...
  30. pmc A Phase II randomised controlled trial assessing the feasibility, acceptability and potential effectiveness of dignity therapy for older people in care homes: study protocol
    Sue Hall
    Department of Palliative Care, Policy and Rehabilitation, King s College London, Weston Education Centre, London, UK
    BMC Geriatr 9:9. 2009
    ....
  31. pmc Challenges to conducting research with older people living in nursing homes
    Sue Hall
    King s College London, Department of Palliative Care, Policy and Rehabilitation, Weston Education Centre, Cutcombe Road, London SE5 9RJ, UK
    BMC Geriatr 9:38. 2009
    ..The aim of this paper is to discuss some of these, along with residents' views on taking part in a study of the perceptions of dignity of older people in care homes and make recommendations for future research in these settings...
  32. pmc Variations in the quality and costs of end-of-life care, preferences and palliative outcomes for cancer patients by place of death: the QUALYCARE study
    Barbara Gomes
    Department of Palliative Care, King s College London, Cicely Saunders Institute, Bessemer Road, London SE5 9PJ, UK
    BMC Cancer 10:400. 2010
    ..The QUALYCARE study aims to examine variations in the quality and costs of end-of-life care, preferences and palliative outcomes associated with dying at home or in an institution for cancer patients...
  33. ncbi request reprint Communication in end-of-life cancer care: a comparison of team assessments in three European countries
    Irene J Higginson
    Department of Palliative Care and Policy, King s College London, Weston Education Centre, London, United Kingdom
    J Clin Oncol 20:3674-82. 2002
    ..To compare team assessments of end-of-life communication in three European countries, and to identify factors associated with problematic communication...
  34. doi request reprint Short-form Zarit Caregiver Burden Interviews were valid in advanced conditions
    Irene J Higginson
    King s College London, Department of Palliative Care, Policy and Rehabilitation, School of Medicine at Guy s, King s College and St Thomas Hospitals, London, United Kingdom
    J Clin Epidemiol 63:535-42. 2010
    ..To assess six short-form versions of Zarit Burden Interview (ZBI-12, ZBI-8, ZBI-7, ZBI-6, ZBI-4, and ZBI-1) among three caregiving populations...
  35. ncbi request reprint End-of-life care: lessons from other nations
    Irene J Higginson
    Department of Palliative Care and Policy at Guy s, King s and St Thomas School of Medicine, King s College London, England, and The Cicely Saunders Foundation, London, England
    J Palliat Med 8:S161-73. 2005
    ....
  36. ncbi request reprint The end of life: unknown and unplanned?
    Irene J Higginson
    Department of Palliative Care, Policy and Rehabilitation King s College, London, UK
    Eur J Public Health 17:331-2. 2007
  37. ncbi request reprint Do we need palliative care audit in developing countries?
    I J Higginson
    Department of Palliative Care and Policy, Guy s, King s and St Thomas School of Medicine, King s College London, Weston Education Centre, Denmark Hill, England, UK
    Palliat Med 16:546-7. 2002
  38. doi request reprint Dying with cancer, living well with advanced cancer
    Irene J Higginson
    Department of Palliative Care, Policy and Rehabilitation, King s College London School of Medicine, Weston Education Centre, Cutcombe Road, London SE5 9RJ, UK
    Eur J Cancer 44:1414-24. 2008
    ..Furthermore, as new therapies are developed, people are living longer with cancer than in the past, and the population with cancer will be older...
  39. pmc Children and young people who die from cancer: epidemiology and place of death in England (1995-9)
    Irene J Higginson
    Department of Palliative Care and Policy, Guy s, King s, and St Thomas s School of Medicine, King s College London, London SE5 9RJ
    BMJ 327:478-9. 2003
  40. ncbi request reprint Attitudes to timeliness of death and euthanasia among first generation black Caribbean and white patients and their families living in the United Kingdom
    Irene J Higginson
    Department of Palliative Care and Policy, GKT School of Medicine, King s College London, Weston Education Centre, London, United Kingdom
    J Palliat Med 6:245-9. 2003
    ..The study highlights that communication with patients needs to be improved among both black Caribbean and white patients, but suggests that attitudes to timeliness of death are similar in both groups...
  41. pmc Caregiver assessment of patients with advanced cancer: concordance with patients, effect of burden and positivity
    Irene J Higginson
    King s College London, School of Medicine at Guy s, King s College and St Thomas Hospitals, Department of Palliative Care, Policy and Rehabilitation, Weston Education Centre, Cutcombe Road, London, SE5 9RJ, UK
    Health Qual Life Outcomes 6:42. 2008
    ..This study aims to assess the validity (using patients' assessment as the gold standard) of caregiver reports of patient concerns and the roles of caregiver burden and positivity...
  42. doi request reprint What is the evidence that palliative care teams improve outcomes for cancer patients and their families?
    Irene J Higginson
    Department of Palliative Care, Policy and Rehabilitation, Cicely Saunders Institute, King s College London, London, UK
    Cancer J 16:423-35. 2010
    ..Although the appraisal of evidence found improvements across domains, there is a need to understand better the effects of different models of palliative care and to use standardized outcome measurement...
  43. doi request reprint Does a social model of hospice day care affect advanced cancer patients' use of other health and social services? A prospective quasi-experimental trial
    Irene J Higginson
    School of Medicine at Guy s, King s College and St Thomas Hospitals, Department of Palliative Care, Policy and Rehabilitation, King s College London, Weston Education Centre, Denmark Hill, London SE5 9RJ, UK
    Support Care Cancer 18:627-37. 2010
    ..Hospice day care (HDC) services have developed but no trials evaluate their impact on the other health and social care services...
  44. ncbi request reprint Palliative day care: what do services do? Palliative Day Care Project Group
    I J Higginson
    Department of Palliative Care and Policy, King s College London
    Palliat Med 14:277-86. 2000
    ..The findings suggest that there are core activities offered in palliative day care, but also variations in medical assessments, nurse-led clinics, trips, art and music therapy, and artistic activities...
  45. pmc Relationship between three palliative care outcome scales
    Irene J Higginson
    Department of Palliative Care and Policy, King s College London, Weston Education Centre, Cutcombe Road, London SE5 9RJ, UK
    Health Qual Life Outcomes 2:68. 2004
    ..This study aimed to determine the relationships between, and factorial structure of, three widely used scales among advanced cancer patients...
  46. doi request reprint Evaluation of a new model of short-term palliative care for people severely affected with multiple sclerosis: a randomised fast-track trial to test timing of referral and how long the effect is maintained
    Irene J Higginson
    Department of Palliative Care, Policy and Rehabilitation, King s College London, Cicely Saunders Institute, Bessemer Road, London, UK
    Postgrad Med J 87:769-75. 2011
    ....
  47. ncbi request reprint Public health and palliative care
    Irene J Higginson
    Department of Palliative Care and Policy, GKT School of Medicine, King s College London, Weston Education Centre, Cutcombe Road, London SE5 9RJ, UK
    Clin Geriatr Med 21:45-55, viii. 2005
    ..Cost-effective ways to provide care are needed, and public health has a role in ensuring equity of access to effective care and prevention of suffering and problems during bereavement...
  48. doi request reprint The randomized fast-track trial in palliative care: role, utility and ethics in the evaluation of interventions in palliative care?
    Irene J Higginson
    Cicely Saunders Institute, King s College London, Department of Palliative Care, Policy and Rehabilitation, London, UK
    Palliat Med 25:741-7. 2011
    ..Randomized trials are the gold standard method for evaluating treatments and services in health care. However, they are often difficult to complete in palliative care, and suffer from poor recruitment...
  49. doi request reprint Cultural meanings of pain: a qualitative study of Black Caribbean and White British patients with advanced cancer
    J Koffman
    King s College London, Department of Palliative Care, Policy and Rehabilitation, London, UK
    Palliat Med 22:350-9. 2008
    ..Pain assessment needs to consider the patients' narratives that include the meanings they attribute to this symptom, and which may be governed by culture...
  50. ncbi request reprint Accounts of carers' satisfaction with health care at the end of life: a comparison of first generation black Caribbeans and white patients with advanced disease
    J Koffman
    Department of Palliative Care and Policy, Guy s, King s and St Thomas Schools of Medicine, St Christopher s Hospice, London, UK
    Palliat Med 15:337-45. 2001
    ..Access to specialist palliative care services needs to be improved...
  51. ncbi request reprint Symptom prevalence and severity in people severely affected by multiple sclerosis
    Irene J Higginson
    Department of Palliative Care, Policy and Rehabilitation, Kings College London, School of Medicine, London, England, UK
    J Palliat Care 22:158-65. 2006
    ..This study sought to assess symptom severity and prevalence in people severely affected by multiple sclerosis (MS)...
  52. doi request reprint The views of patients with advanced cancer regarding participation in serial questionnaire studies
    C Shipman
    King s College London, Department of Palliative Care, Policy and Rehabilitation, London, UK
    Palliat Med 22:913-20. 2008
    ..Developing flexible and responsive recruitment procedures is vital to retain patient participation as more than one contact might be required to successfully conclude an interview...
  53. doi request reprint Vulnerability in palliative care research: findings from a qualitative study of black Caribbean and white British patients with advanced cancer
    J Koffman
    King s College London, Department of Palliative Care, Policy and Rehabilitation, Weston Education Centre, Cutcombe Road, London SE5 9RJ, UK
    J Med Ethics 35:440-4. 2009
    ..A recent addition to the literature represents a taxonomy of vulnerability developed by Kipnis, but this refers to the conduct of clinical trials rather than qualitative research, which may raise different issues...
  54. doi request reprint What are the perceived needs and challenges of informal caregivers in home cancer palliative care? Qualitative data to construct a feasible psycho-educational intervention
    R Harding
    Department of Palliative Care Policy and Rehabilitation, Cicely Saunders Institute, King s College London, London, UK
    Support Care Cancer 20:1975-82. 2012
    ..Tailored and specific interventions for informal caregivers in palliative care are rare. We aimed to generate evidence to inform a subsequent appropriate intervention based on caregivers' experiences...
  55. ncbi request reprint Assessing the effectiveness and acceptability of interprofessional palliative care education
    Jonathan Koffman
    Department of Palliative Care and Policy, King s College School of Medicine at Guy s, King s College and St Thomas Hospital, London, UK
    J Palliat Care 21:262-9. 2005
    ..Funding should be made available to extend interprofessional education to a wide range of professionals who care for patients with advanced disease and their families...
  56. ncbi request reprint Symptom prevalence among people affected by advanced and progressive neurological conditions--a systematic review
    Tariq Saleem
    Department of Palliative Care, Policy and Rehabilitation, King s College London, UK
    J Palliat Care 23:291-9. 2007
  57. ncbi request reprint Symptoms in advanced renal disease: a cross-sectional survey of symptom prevalence in stage 5 chronic kidney disease managed without dialysis
    Fliss E M Murtagh
    Department of Palliative Care, Policy and Rehabilitation, Weston Education Centre, King s College London, London, United Kingdom
    J Palliat Med 10:1266-76. 2007
    ..Numbers of patients with stage 5 chronic kidney disease (CKD) managed conservatively (without dialysis) are increasing steadily but prevalence and severity of symptoms in this population are not yet known...
  58. doi request reprint Population, mortality and place of death in Germany (1950-2050) - implications for end-of-life care in the future
    S T Simon
    King s College London, Cicely Saunders Institute, Department of Palliative Care, Policy and Rehabilitation WHO Collaborating Centre for Palliative Care and Older People, London, UK
    Public Health 126:937-46. 2012
    ..Future numbers and proportions of deaths by PoD - hospital deaths (HDs) and non-hospital deaths (NHDs) - were based on recent trends (2005-2009). Linear models accounted for the effect of age and gender...
  59. ncbi request reprint Do specialist palliative care teams improve outcomes for cancer patients? A systematic literature review
    J Hearn
    Department of Palliative Care and Policy, King s College School of Medicine and Dentistry and St Christopher s Hospice, London, UK
    Palliat Med 12:317-32. 1998
    ..Moreover, multiprofessional approaches to palliative care reduce the overall cost of care by reducing the amount of time patients spend in acute hospital settings...
  60. doi request reprint Are we heading in the same direction? European and African doctors' and nurses' views and experiences regarding outcome measurement in palliative care
    B A Daveson
    King s College London, Cicely Saunders Institute, Department of Palliative Care, Policy and Rehabilitation, London, UK
    Palliat Med 26:242-9. 2012
    ..To examine and compare doctors' and nurses' views and experiences regarding outcome measurement in palliative care, including patient-reported outcome measures (PROMs)...
  61. ncbi request reprint 'Fighting for everything': service experiences of people severely affected by multiple sclerosis
    P Edmonds
    Department of Palliative Care, Policy and Rehabilitation, King s College London, and King s College Hospital, Denmark Hill, London, UK
    Mult Scler 13:660-7. 2007
    ..No previous research exists specifically exploring the needs of those people severely affected by multiple sclerosis (MS)...
  62. ncbi request reprint The level of need for palliative care: a systematic review of the literature
    P J Franks
    Centre for Research and Implementation of Clinical Practice, Thames Valley University, London, UK
    Palliat Med 14:93-104. 2000
    ..Despite this provision, there remains evidence that in certain areas of care such as pain control, there still remains a high degree of unmet need...
  63. ncbi request reprint What is the best way to help caregivers in cancer and palliative care? A systematic literature review of interventions and their effectiveness
    R Harding
    Department of Palliative Care and Policy, Guy s, King s and St Thomas School of Medicine, Weston Education Centre, London, UK
    Palliat Med 17:63-74. 2003
    ..The current evidence contributes more to understanding feasibility and acceptability than to effectiveness. Practitioners and evaluators must prioritize the further development of intervention studies...
  64. ncbi request reprint Palliative day care: what does it cost to run a centre and does attendance affect use of other services?
    H R Douglas
    Health Services Research Unit, London School of Hygiene and Tropical Medicine, Keppel Street, London, UK
    Palliat Med 17:628-37. 2003
    ..To describe the cost of palliative day care (PDC), assessing the value of all resources whether paid for or not. To examine different patterns of resource use resulting from attending PDC...
  65. ncbi request reprint Building user involvement in motor neurone disease: key lessons
    Rhidian A Hughes
    Guy s, King s and St Thomas School of Medicine, King s College, London, UK
    J Interprof Care 18:80-1. 2004
  66. ncbi request reprint Preferences for place of death if faced with advanced cancer: a population survey in England, Flanders, Germany, Italy, the Netherlands, Portugal and Spain
    B Gomes
    King s College London, Cicely Saunders Institute, Department of Palliative Care, Policy and Rehabilitation, London, UK
    Ann Oncol 23:2006-15. 2012
    ..Cancer end-of-life care (EoLC) policies assume people want to die at home. We aimed to examine variations in preferences for place of death cross-nationally...
  67. ncbi request reprint Minimum dataset activity for hospice and hospital palliative care services in the UK 1997/98
    A Eve
    Hospice Information Service at St Christopher s, London, UK
    Palliat Med 14:395-404. 2000
    ..Increasingly, patients appear to be admitted to a hospice earlier in care and are discharged home...
  68. doi request reprint The experience of breathlessness: the social course of chronic obstructive pulmonary disease
    Marjolein Gysels
    Palliative Care Policy and Rehabilitation, School of Medicine, King s College London, London, United Kingdom
    J Pain Symptom Manage 39:555-63. 2010
    ..There is a trend toward extending palliative care to nonmalignant diseases. There is no evidence that chronic obstructive pulmonary disease (COPD) requires its own model...
  69. ncbi request reprint What is the potential for the use of clinical outcome measures to be computerised? Findings from a qualitative research study
    Rhidian A Hughes
    Department of Palliative Care and Policy, King s College London, London, UK
    Int J Health Care Qual Assur Inc Leadersh Health Serv 17:47-52. 2004
    ....
  70. doi request reprint Psychological distress in cancer from survivorship to end of life care: prevalence, associated factors and clinical implications
    Wei Gao
    King s College London, Department of Palliative Care, Policy and Rehabilitation, King s Healthcare Partners, Weston Education Centre, 3rd Floor, Cutcombe Road, Denmark Hill, London SE5 9RJ, United Kingdom
    Eur J Cancer 46:2036-44. 2010
    ..We aimed to determine the prevalence of psychological distress, its associated factors and clinical implications at three different stages in the cancer trajectory...
  71. ncbi request reprint Professionals' views and experiences of using outcome measures in palliative care
    Rhidian Hughes
    Department of Palliative Care and Policy, King s College London, The Weston Education Centre, Cutcombe Road, London SE5 9RJ, UK
    Int J Palliat Nurs 9:234-8. 2003
    ..As the drive towards outcome measures continues, it is essential that measures are not developed in a vacuum. Instead they should always be informed by the needs and experiences of individuals and services...
  72. ncbi request reprint Religious faith and support at the end of life: a comparison of first generation black Caribbean and white populations
    J Koffman
    Department of Palliative Care and Policy, King s College London, Weston Education Centre, London, UK
    Palliat Med 16:540-1. 2002
  73. ncbi request reprint Effective methods of giving information in cancer: a systematic literature review of randomized controlled trials
    C J McPherson
    Department of Palliative Care and Policy, GKT School of Medicine and St Christopher s Hospice, London
    J Public Health Med 23:227-34. 2001
    ..In the majority of studies the interventions had no effect on psychological indices. Furthermore, the review highlighted that certain methods should be based on individual preferences for information rather than uniformly administered...
  74. pmc Psychological services in hospices in the UK and Republic of Ireland
    A Price
    Institute of Psychiatry, Department of Psychological Medicine, Kings College London, Weston Education Centre, Cutcombe Road, London SE5 9RJ, UK
    J R Soc Med 99:637-9. 2006
    ..To evaluate the level of psychological services available to patients and staff in hospices...
  75. ncbi request reprint Measurement of breathlessness in advanced disease: a systematic review
    C Bausewein
    Department of Palliative Care, Policy and Rehabilitation, King s College London, Weston Education Centre, Denmark Hill, Cutcombe Road, London SE5 9RJ, UK
    Respir Med 101:399-410. 2007
    ..The aim of this systematic review was to identify all measures available via standard search techniques and review their usefulness for patients with advanced disease...
  76. ncbi request reprint Symptom management in patients with established renal failure managed without dialysis
    F E M Murtagh
    Dept of Palliative Care and Policy, Kings College London, UK
    EDTNA ERCA J 32:93-8. 2006
    ..Collaboration between renal and palliative specialists can help identify ways to achieve best care for these patients...
  77. doi request reprint Self-management for breathlessness in COPD: the role of pulmonary rehabilitation
    M H Gysels
    King s College London, Department of Palliative Care, Policy and Rehabilitation School of Medicine, London, UK
    Chron Respir Dis 6:133-40. 2009
    ..The findings have implications for notions such as adherence, patient involvement and responsibility in the management of chronic obstructive pulmonary disease...
  78. ncbi request reprint Communication training for health professionals who care for patients with cancer: a systematic review of effectiveness
    Marjolein Gysels
    Department of Palliative Care and Policy, King s College, London, UK
    Support Care Cancer 12:692-700. 2004
    ..Effective communication is increasingly recognised as a core clinical skill. However, there is evidence that health and social care professionals still lack basic communication skills...
  79. doi request reprint Research priorities in health economics and funding for palliative care: views of an international think tank
    Richard Harding
    Department of Palliative Care, Policy and Rehabilitation, King s College London, London, United Kingdom
    J Pain Symptom Manage 38:11-4. 2009
    ..Recommendations for study included international comparative research into the components of care and settings, evaluative studies, methodologic development and strategies to initiate studies, and make better use of data...
  80. ncbi request reprint 'A softening of edges': a comparison of yoga classes at palliative care services in New Delhi and London
    Lucy Selman
    Department of Palliative Care, Policy and Rehabilitation, King s College London, London, United Kingdom
    Int J Palliat Nurs 16:548-54. 2010
    ..Recommendations include supporting and educating yoga teachers working with this population, and the need for robust trials...
  81. doi request reprint Palliative care for people severely affected by multiple sclerosis: evaluation of a novel palliative care service
    Polly Edmonds
    Palliative Care Team, King s College Hospital NHS Foundation Trust, Denmark Hill, London, UK
    Mult Scler 16:627-36. 2010
    ..60, p = 0.013). Involvement with the palliative care service appeared to positively affect some key symptoms and reduced informal caregiver burden...
  82. doi request reprint Psychological well-being and quality of care: a factor-analytic examination of the palliative care outcome scale
    Richard J Siegert
    King s College London, Department of Palliative Care, Policy and Rehabilitation, School of Medicine at Guy s, King s College and St Thomas Hospitals, King s College London, London, United Kingdom
    J Pain Symptom Manage 40:67-74. 2010
    ..It has been used for clinical or research purposes in specialist cancer centers, nursing homes, day hospice units, and hospice settings in a growing number of countries. However, the POS has not yet been examined using factor analysis...
  83. doi request reprint Symptoms in the month before death for stage 5 chronic kidney disease patients managed without dialysis
    Fliss E Murtagh
    Department of Palliative Care, Policy and Rehabilitation, King s College London, London, United Kingdom
    J Pain Symptom Manage 40:342-52. 2010
    ....
  84. pmc Symptom severity in advanced cancer, assessed in two ethnic groups by interviews with bereaved family members and friends
    Jonathan Koffman
    Department of Palliative Care and Policy, Guy s, King s and St Thomas Schools of Medicine, King s College London, Weston Education Centre, Cutcombe Road, UK
    J R Soc Med 96:10-6. 2003
    ..The findings suggest a need for better assessment and management of cancer symptoms in first-generation Caribbean Londoners, guided by a deeper understanding of cultural influences on their responses to advanced illness...
  85. pmc Factors influencing death at home in terminally ill patients with cancer: systematic review
    Barbara Gomes
    The Cicely Saunders Foundation Department of Palliative Care, Policy, and Rehabilitation, King s College London, London SE5 9RJ
    BMJ 332:515-21. 2006
    ..To determine the relative influence of different factors on place of death in patients with cancer...
  86. ncbi request reprint Dying to be home? Preferred location of death of first-generation black Caribbean and native-born white patients in the United Kingdom
    Jonathan Koffman
    Department of Palliative Care and Policy, Guy s King s and St Thomas Schools of Medicine, King s College London, Weston Education Centre, London, United Kingdom
    J Palliat Med 7:628-36. 2004
    ....
  87. ncbi request reprint Systematic review of specialist palliative day-care for adults with cancer
    Elizabeth Davies
    Department of Palliative Care and Policy, Weston Education Centre, Guy s, King s and St Thomas School of Medicine, Cutcombe Road, London SE5 9RJ, UK
    Support Care Cancer 13:607-27. 2005
    ..To inform future practice, research and policy in specialist palliative day-care by systematically reviewing the evidence for how the structure and process of this form of care relate to outcomes for adults with cancer...
  88. ncbi request reprint Palliative care in sub-Saharan Africa
    Richard Harding
    Department of Palliative Care and Policy, Guy s King s and St Thomas School of Medicine, King s College London, Weston Education Centre, Cutcombe Road, London SE5 9PJ, UK
    Lancet 365:1971-7. 2005
    ....
  89. ncbi request reprint Access and equity in HIV/AIDS palliative care: a review of the evidence and responses
    Richard Harding
    Department of Palliative Care and Policy, GKT Medical School, King s College London, Weston Education Centre, London SE5 9RJ, UK
    Palliat Med 19:251-8. 2005
    ..Service responses that have attempted to increase access to palliative care are presented...
  90. ncbi request reprint Communication training for health professionals who care for patients with cancer: a systematic review of training methods
    Marjolein Gysels
    Department of Palliative Care and Policy, King s College, London, UK
    Support Care Cancer 13:356-66. 2005
    ..Many health and social care professionals, however, do not feel adequately trained in communicating and in handling interpersonal issues that arise in the care of patients with cancer...
  91. ncbi request reprint What methods do stakeholders prefer for feeding back performance data: a qualitative study in palliative care
    Marjolein Gysels
    Department of Palliative Care and Policy, King s College, London, UK
    Int J Qual Health Care 16:375-81. 2004
    ..To investigate the opinions of stakeholders (service commissioners and providers) on how performance data should be presented, in order to develop effective feedback methods to facilitate the use of these data in decision making...
  92. ncbi request reprint Pain experienced by lung cancer patients: a review of prevalence, causes and pathophysiology
    Jean Potter
    Department of Palliative Care and Policy, GKT School of Medicine, King s College London, Weston Education Centre, Cutcombe Road, London SE5 9RJ, UK
    Lung Cancer 43:247-57. 2004
    ..Lung cancer is one of the commonest cancers to cause pain, but little is known regarding the extent of this complex problem in these patients...
  93. ncbi request reprint Evaluation of a short-term group intervention for informal carers of patients attending a home palliative care service
    Richard Harding
    Department of Palliative Care and Policy, Guy s, King s, and St Thomas School of Medicine, London, United Kingdom
    J Pain Symptom Manage 27:396-408. 2004
    ..Short-term interventions are unlikely to affect global psychological scores, and future evaluations should include additional time points of data collection to demonstrate support during attendance...
  94. ncbi request reprint Managing bereavement in the classroom: a conspiracy of silence?
    Karen Lowton
    Department of Palliative Care and Policy, King s College London, Denmark Hill, London, England
    Death Stud 27:717-41. 2003
    ..The article recommends that future research needs to concentrate on finding the most effective way of supporting routinely bereaved children, their families, and teachers...
  95. pmc Doctors should not discuss resuscitation with terminally ill patients: AGAINST
    Irene J Higginson
    Department of Palliative Care and Policy, King s College London, Weston Education Centre, London SE5 9RJ irene higginson kcl ac uk
    BMJ 327:615-6. 2003
  96. pmc Identifying neuropathic pain in patients with head and neck cancer: use of the Leeds Assessment of Neuropathic Symptoms and Signs Scale
    Jean Potter
    Department of Palliative Care and Policy, GKT School of Medicine, King s College London, UK
    J R Soc Med 96:379-83. 2003
    ..The LANSS is a simple and suitable screening test for neuropathic pain in patients with head and neck cancer related pain, although some modifications might improve it...
  97. ncbi request reprint Using satisfaction to measure the quality of palliative care: a review of the literature
    Fiona Aspinal
    Department of Palliative Care and Policy, Guy s, King s and St Thomas School of Medicine, King s College London, Weston Education Centre, London, UK
    J Adv Nurs 42:324-39. 2003
    ..Thus, it is important to establish alternative approaches to measuring the quality of palliative care services and interventions...
  98. ncbi request reprint Interactive technologies and videotapes for patient education in cancer care: systematic review and meta-analysis of randomised trials
    Marjolein Gysels
    Department of Palliative Care, Policy and Rehabilitation, King s College London School of Medicine at Guy s, King s College and St Thomas Hospitals, London, UK
    Support Care Cancer 15:7-20. 2007
    ..This paper investigates whether interactive technologies and videotapes for patient education in cancer care improve knowledge, satisfaction or other outcomes...
  99. doi request reprint Measurement of dyspnoea in the clinical rather than the research setting
    Claudia Bausewein
    Department of Palliative Care, Policy and Rehabilitation, King s College London School of Medicine, UK
    Curr Opin Support Palliat Care 2:95-9. 2008
    ..Refractory dyspnoea is a common and difficult to treat symptom in advanced disease. Accurate assessment helps to guide treatment and prognosis...
  100. ncbi request reprint Is antiretroviral therapy associated with symptom prevalence and burden?
    Richard Harding
    Department of Palliative Care, Policy and Rehabilitation, King s College London School of Medicine at Guy s, King s College and St Thomas Hospitals, London, UK
    Int J STD AIDS 17:400-5. 2006
    ..The high symptom prevalence, particularly psychological symptoms, is comparable with end-stage malignant and non-malignant diseases. Greater attention needs to be paid to the assessment and management of burdensome symptoms...
  101. ncbi request reprint Experiences of breathlessness: a systematic review of the qualitative literature
    Marjolein Gysels
    Palliative Care, Policy and Rehabilitation, King s College London School of Medicine at Guy s, King s College and St Thomas Hospitals, Weston Education Centre, Cutcombe Road, London SE5 9RJ, UK
    Palliat Support Care 5:281-302. 2007
    ..The subjective nature of the symptom has been acknowledged in many definitions, emphasizing that it can only be fully perceived and interpreted by the patients themselves...