R Harding

Summary

Affiliation: King's College London
Country: UK

Publications

  1. ncbi request reprint Pain and symptom control in HIV disease: under-researched and poorly managed
    Richard Harding
    Clin Infect Dis 40:491-2. 2005
  2. ncbi request reprint Development of the APCA African Palliative Outcome Scale
    Richard A Powell
    African Palliative Care Association, Kampala, Uganda
    J Pain Symptom Manage 33:229-32. 2007
  3. ncbi request reprint Wellbeing among sub-Saharan African patients with advanced HIV and/or cancer: an international multicentred comparison study of two outcome measures
    Richard Harding
    Department of Palliative Care, Policy and Rehabilitation, King s College London, Cicely Saunders Institute, Bessemer Road, London SE5 9PJ, UK
    Health Qual Life Outcomes 12:80. 2014
  4. doi request reprint Pediatric palliative care in sub-saharan Africa: a systematic review of the evidence for care models, interventions, and outcomes
    Richard Harding
    Department of Palliative Care, Policy and Rehabilitation, King s College London, Cicely Saunders Institute, London, United Kingdom Electronic address
    J Pain Symptom Manage 47:642-51. 2014
  5. pmc 'Peace' and 'life worthwhile' as measures of spiritual well-being in African palliative care: a mixed-methods study
    Lucy Selman
    King s College London, Department Palliative Care, Policy and Rehabilitation, Cicely Saunders Institute, Bessemer Road, Denmark Hill, London SE5 9PJ, UK
    Health Qual Life Outcomes 11:94. 2013
  6. pmc Evaluating complex interventions in end of life care: the MORECare statement on good practice generated by a synthesis of transparent expert consultations and systematic reviews
    Irene J Higginson
    King s College London, Cicely Saunders Institute, Department of Palliative Care, Policy and Rehabilitation, Bessmer Road, Denmark Hill, London SE5 9PJ, UK
    BMC Med 11:111. 2013
  7. pmc Treatment outcomes in palliative care: the TOPCare study. A mixed methods phase III randomised controlled trial to assess the effectiveness of a nurse-led palliative care intervention for HIV positive patients on antiretroviral therapy
    Keira Lowther
    Cicely Saunders Institute, Department of Palliative Care and Rehabilitation, Kings College London, London, UK
    BMC Infect Dis 12:288. 2012
  8. pmc 'Burden to others' as a public concern in advanced cancer: a comparative survey in seven European countries
    Claudia Bausewein
    Department of Palliative Care, Policy and Rehabilitation, Cicely Saunders Institute, King s College London, London, UK
    BMC Cancer 13:105. 2013
  9. doi request reprint Can palliative care integrated within HIV outpatient settings improve pain and symptom control in a low-income country? A prospective, longitudinal, controlled intervention evaluation
    Richard Harding
    Department of Palliative Care, Policy and Rehabilitation, Cicely Saunders Institute, King s College London, London, UK
    AIDS Care 25:795-804. 2013
  10. doi request reprint How to analyze palliative care outcome data for patients in Sub-Saharan Africa: an international, multicenter, factor analytic examination of the APCA African POS
    Richard Harding
    Department of Palliative Care, Policy, and Rehabilitation and The Cicely Saunders Institute of Palliative Care, King s College London, London, United Kingdom
    J Pain Symptom Manage 45:746-52. 2013

Collaborators

Detail Information

Publications99

  1. ncbi request reprint Pain and symptom control in HIV disease: under-researched and poorly managed
    Richard Harding
    Clin Infect Dis 40:491-2. 2005
  2. ncbi request reprint Development of the APCA African Palliative Outcome Scale
    Richard A Powell
    African Palliative Care Association, Kampala, Uganda
    J Pain Symptom Manage 33:229-32. 2007
  3. ncbi request reprint Wellbeing among sub-Saharan African patients with advanced HIV and/or cancer: an international multicentred comparison study of two outcome measures
    Richard Harding
    Department of Palliative Care, Policy and Rehabilitation, King s College London, Cicely Saunders Institute, Bessemer Road, London SE5 9PJ, UK
    Health Qual Life Outcomes 12:80. 2014
    ..This study aimed to measure multidimensional wellbeing among advanced HIV and/or cancer patients in three African countries, and determine the relationship between two validated outcome measures...
  4. doi request reprint Pediatric palliative care in sub-saharan Africa: a systematic review of the evidence for care models, interventions, and outcomes
    Richard Harding
    Department of Palliative Care, Policy and Rehabilitation, King s College London, Cicely Saunders Institute, London, United Kingdom Electronic address
    J Pain Symptom Manage 47:642-51. 2014
    ..The progressive disease burden among children in sub-Saharan Africa means the provision of palliative care is essential and should be provided alongside treatment where it is available...
  5. pmc 'Peace' and 'life worthwhile' as measures of spiritual well-being in African palliative care: a mixed-methods study
    Lucy Selman
    King s College London, Department Palliative Care, Policy and Rehabilitation, Cicely Saunders Institute, Bessemer Road, Denmark Hill, London SE5 9PJ, UK
    Health Qual Life Outcomes 11:94. 2013
    ..We aimed to determine the content and construct validity of these items as measures of spiritual wellbeing in African palliative care populations...
  6. pmc Evaluating complex interventions in end of life care: the MORECare statement on good practice generated by a synthesis of transparent expert consultations and systematic reviews
    Irene J Higginson
    King s College London, Cicely Saunders Institute, Department of Palliative Care, Policy and Rehabilitation, Bessmer Road, Denmark Hill, London SE5 9PJ, UK
    BMC Med 11:111. 2013
    ..It is hampered by research that is difficult to conduct with no common standards. We aimed to develop evidence-based guidance on the best methods for the design and conduct of research on EoLC to further knowledge in the field...
  7. pmc Treatment outcomes in palliative care: the TOPCare study. A mixed methods phase III randomised controlled trial to assess the effectiveness of a nurse-led palliative care intervention for HIV positive patients on antiretroviral therapy
    Keira Lowther
    Cicely Saunders Institute, Department of Palliative Care and Rehabilitation, Kings College London, London, UK
    BMC Infect Dis 12:288. 2012
    ....
  8. pmc 'Burden to others' as a public concern in advanced cancer: a comparative survey in seven European countries
    Claudia Bausewein
    Department of Palliative Care, Policy and Rehabilitation, Cicely Saunders Institute, King s College London, London, UK
    BMC Cancer 13:105. 2013
    ..We aimed to compare the level of public concern with different symptoms and problems in advanced cancer across Europe and examine factors influencing this...
  9. doi request reprint Can palliative care integrated within HIV outpatient settings improve pain and symptom control in a low-income country? A prospective, longitudinal, controlled intervention evaluation
    Richard Harding
    Department of Palliative Care, Policy and Rehabilitation, Cicely Saunders Institute, King s College London, London, UK
    AIDS Care 25:795-804. 2013
    ..The data offer substantive evidence to underpin the existing WHO clinical guidance that states an essential role for palliative care alongside HIV treatment, regardless of prognosis...
  10. doi request reprint How to analyze palliative care outcome data for patients in Sub-Saharan Africa: an international, multicenter, factor analytic examination of the APCA African POS
    Richard Harding
    Department of Palliative Care, Policy, and Rehabilitation and The Cicely Saunders Institute of Palliative Care, King s College London, London, United Kingdom
    J Pain Symptom Manage 45:746-52. 2013
    ..The incidence of life-limiting progressive disease in sub-Saharan Africa presents a significant clinical and public health challenge. The ability to easily measure patient outcomes is essential to improving care...
  11. doi request reprint Research into palliative care in sub-Saharan Africa
    Richard Harding
    Cicely Saunders Institute, Department of Palliative Care, Policy and Rehabilitation, King s College London, London, UK
    Lancet Oncol 14:e183-8. 2013
    ....
  12. doi request reprint Intensity and correlates of multidimensional problems in HIV patients receiving integrated palliative care in sub-Saharan Africa
    Richard Harding
    King s College London, Cicely Saunders Institute, Department of Palliative Care, Policy and Rehabilitation, London, UK
    Sex Transm Infect 88:607-11. 2012
    ....
  13. doi request reprint Palliative and end-of-life care in the global response to multidrug-resistant tuberculosis
    Richard Harding
    King s College London, Cicely Saunders Institute, London, UK, and University of Cape Town, Cape Town, South Africa
    Lancet Infect Dis 12:643-6. 2012
    ....
  14. doi request reprint Prevalence, burden, and correlates of physical and psychological symptoms among HIV palliative care patients in sub-Saharan Africa: an international multicenter study
    Richard Harding
    Department of Palliative Care, Policy, and Rehabilitation and The Cicely Saunders Institute of Palliative Care, King s College London, London, United Kingdom
    J Pain Symptom Manage 44:1-9. 2012
    ..Despite evidence of problems persisting throughout the trajectory and alongside treatment, scant attention has been paid to these manageable problems...
  15. doi request reprint What factors are associated with patient self-reported health status among HIV outpatients? A multi-centre UK study of biomedical and psychosocial factors
    Richard Harding
    King s College London, Department of Palliative Care, Policy and Rehabilitation, Cicely Saunders Institute, London, UK
    AIDS Care 24:963-71. 2012
    ..As HIV management focuses on treatment for extended survival and a chronic model of disease, clinical attention to physical and psychological dimensions of patient care are essential to achieve optimal well-being...
  16. doi request reprint Behavioral surveillance study: sexual risk taking behaviour in UK HIV outpatient attendees
    Richard Harding
    Department of Palliative Care, Policy and Rehabilitation, King s College London, Cicely Saunders Institute, King s Health Partners, UK
    AIDS Behav 16:1708-15. 2012
    ..Psychological symptoms should be assessed and managed in the HIV outpatient setting to ensure integrated care that enhances prevention...
  17. pmc Outcomes 'out of africa': the selection and implementation of outcome measures for palliative care in Africa
    Julia Downing
    Honorary Professor Palliative Care, Makerere University, Kampala, c o PO Box 72518, Kampala, Formerly Deputy Executive Director, African Palliative Care Association, Kampala, Uganda
    BMC Palliat Care 11:1. 2012
    ..abstract:..
  18. doi request reprint Needs, experiences, and preferences of sexual minorities for end-of-life care and palliative care: a systematic review
    Richard Harding
    King s College London, Cicely Saunders Institute, Department of Palliative Care, Policy and Rehabilitation, London, United Kingdom
    J Palliat Med 15:602-11. 2012
    ..To identify and appraise the existing evidence for the needs, experiences, and preferences for palliative and end-of-life (EOL) care in lesbian, gay, bisexual and transgender (LGBT) populations...
  19. doi request reprint How can informal caregivers in cancer and palliative care be supported? An updated systematic literature review of interventions and their effectiveness
    Richard Harding
    King s College London, School of Medicine, Cicely Saunders Institute, Department of Palliative Care, Policy and Rehabilitation, London, UK
    Palliat Med 26:7-22. 2012
    ..Informal caregivers needs in cancer/advanced disease are largely unmet. The science of carer intervention evaluation is methodologically challenging, and the evidence historically weak...
  20. pmc Pain control in the African context: the Ugandan introduction of affordable morphine to relieve suffering at the end of life
    Anne Merriman
    Department of Palliative Care, Policy and Rehabilitation, Cicely Saunders Institute, King s College, London, UK
    Philos Ethics Humanit Med 5:10. 2010
    ..Thus it is now possible to complete the ethical circle of care in resource poor circumstances...
  21. pmc Implementing patient reported outcome measures (PROMs) in palliative care--users' cry for help
    Claudia Bausewein
    King s College London, Cicely Saunders Institute, Department of Palliative Care, Policy and Rehabilitation, London, UK
    Health Qual Life Outcomes 9:27. 2011
    ..However, little is known about professionals' views using these measures. The aim of this study is to describe the use and experiences of palliative care professionals with outcome measures...
  22. pmc Quality of life among patients receiving palliative care in South Africa and Uganda: a multi-centred study
    Lucy E Selman
    King s College London, Department of Palliative Care, Policy and Rehabilitation, Cicely Saunders Institute, Bessemer Road, Denmark Hill, London SE5 9PJ, UK
    Health Qual Life Outcomes 9:21. 2011
    ....
  23. pmc An evaluation of a morphine public health programme for cancer and AIDS pain relief in Sub-Saharan Africa
    Dorothy E Logie
    Cheviot View, Bowden, Melrose, UK
    BMC Public Health 5:82. 2005
    ..Uganda has achieved a morphine roll-out programme in partnership with the Ministry of Health. This study aimed to evaluate that programme by identifying challenges to implementation that may inform replication...
  24. pmc Assessing the feasibility, acceptability and potential effectiveness of Dignity Therapy for people with advanced cancer referred to a hospital-based palliative care team: Study protocol
    Sue Hall
    Department of Palliative Care, Policy and Rehabilitation, King s College London, Weston Education Centre, Cutcombe Road, London SE5 9RJ, UK
    BMC Palliat Care 8:5. 2009
    ..TRIAL REGISTRATION: Current Controlled Clinical Trials: ISRCTN29868352...
  25. pmc Appraisal of literature reviews on end-of-life care for minority ethnic groups in the UK and a critical comparison with policy recommendations from the UK end-of-life care strategy
    Natalie Evans
    Barcelona Centre for International Health Research CRESIB, Hospital Clínic Universitat de Barcelona, C Rosselló 132 Sobre ático, 08036 Barcelona, Spain
    BMC Health Serv Res 11:141. 2011
    ..This article aims to review and evaluate literature reviews on minority ethnic groups and EoL care in the UK and assess their suitability as an evidence base for policy...
  26. pmc A Phase II randomised controlled trial assessing the feasibility, acceptability and potential effectiveness of dignity therapy for older people in care homes: study protocol
    Sue Hall
    Department of Palliative Care, Policy and Rehabilitation, King s College London, Weston Education Centre, London, UK
    BMC Geriatr 9:9. 2009
    ....
  27. pmc Multi-centred mixed-methods PEPFAR HIV care & support public health evaluation: study protocol
    Richard Harding
    King s College London, Cicely Saunders Institute, Department of Palliative Care, Policy and Rehabilitation School of Medicine at Guy s, King s and St Thomas Hospitals Bessemer Road, London SE5 9PJ, UK
    BMC Public Health 10:584. 2010
    ....
  28. doi request reprint Meeting the communication and information needs of chronic heart failure patients
    Richard Harding
    Department of Palliative Care, Policy and Rehabilitation, King s College London School of Medicine, London, United Kingdom
    J Pain Symptom Manage 36:149-56. 2008
    ....
  29. doi request reprint Generating an African palliative care evidence base: the context, need, challenges, and strategies
    Richard Harding
    Department of Palliative Care, Policy and Rehabilitation, King s College London School of Medicine, London, United Kingdom
    J Pain Symptom Manage 36:304-9. 2008
    ..Here, they report the methodological, ethical, logistic and capacity-based challenges of conducting research in the sub-Saharan context from their experience. A number of strategies and responses are presented...
  30. ncbi request reprint Palliative care in sub-Saharan Africa
    Richard Harding
    Department of Palliative Care and Policy, Guy s King s and St Thomas School of Medicine, King s College London, Weston Education Centre, Cutcombe Road, London SE5 9PJ, UK
    Lancet 365:1971-7. 2005
    ....
  31. doi request reprint The PRISMA Symposium 1: outcome tool use. Disharmony in European outcomes research for palliative and advanced disease care: too many tools in practice
    Richard Harding
    Department of Palliative Care, Policy and Rehabilitation and The Cicely Saunders Institute of Palliative Care, King s College London, London, UK
    J Pain Symptom Manage 42:493-500. 2011
    ..The measurement of outcomes in advanced disease is complex, and to conduct comparative research and meta-analyses, appropriate tool selection is essential...
  32. ncbi request reprint Paediatric antiretroviral therapy outcomes under HIV hospice care in South Africa
    Richard Harding
    King s College London, Department of Palliative Care, Policy and Rehabilitation, United Kingdom
    Int J Palliat Nurs 15:142-5. 2009
    ..This study aims to evaluate outcomes of children with advanced HIV disease who are initiated on antiretroviral therapy under multiprofessional specialist paediatric hospice care...
  33. pmc Provision of palliative care for chronic heart failure inpatients: how much do we need?
    Richard Harding
    Department of Palliative Care, Policy and Rehabilitation, King s College London, London, UK
    BMC Palliat Care 8:8. 2009
    ..This study aimed to: 1) Measure point prevalence of inpatients appropriate for palliative care. 2) Identify patient characteristics associated with palliative care appropriateness. 3) Propose evidence-based clinical referral criteria...
  34. doi request reprint Research priorities in health economics and funding for palliative care: views of an international think tank
    Richard Harding
    Department of Palliative Care, Policy and Rehabilitation, King s College London, London, United Kingdom
    J Pain Symptom Manage 38:11-4. 2009
    ..Recommendations for study included international comparative research into the components of care and settings, evaluative studies, methodologic development and strategies to initiate studies, and make better use of data...
  35. pmc Validation of a core outcome measure for palliative care in Africa: the APCA African Palliative Outcome Scale
    Richard Harding
    Dept Palliative Care, King s College London, Weston Education Centre, Denmark Hill, London SE5 9RJ, UK
    Health Qual Life Outcomes 8:10. 2010
    ..A primary reason has been the lack of appropriate locally-validated outcome tools. This study aimed to validate a multidimensional scale (the APCA African Palliative Outcome Scale) in a multi-centred international study...
  36. doi request reprint Symptoms are highly prevalent among HIV outpatients and associated with poor adherence and unprotected sexual intercourse
    Richard Harding
    King s College London, School of Medicine at Guy s, King s and St Thomas Hospitals, Department of Palliative Care, Policy and Rehabilitation, Cicely Saunders Institute, London SE5 9PJ, UK
    Sex Transm Infect 86:520-4. 2010
    ..This study aimed to measure symptom prevalence and determine associations with key variables: demographics, treatment status, adherence and risk behaviours...
  37. doi request reprint What is the evidence for effectiveness of interventions to enhance coping among people living with HIV disease? A systematic review
    Richard Harding
    King s College London, London, UK
    Psychol Health Med 16:564-87. 2011
    ..Despite a lack of common outcome tolls, there are useful data that demonstrate effectiveness. Further studies must address outcomes for women and children...
  38. doi request reprint How can we improve palliative care patient outcomes in low- and middle-income countries? Successful outcomes research in sub-Saharan Africa
    Richard Harding
    Cicely Saunders Institute, King s College London School of Medicine, London, United Kingdom
    J Pain Symptom Manage 40:23-6. 2010
    ..Here we report a novel collaborative effort to measure and improve outcomes for patients and families receiving palliative care in two sub-Saharan African countries...
  39. doi request reprint Provision of pain- and symptom-relieving drugs for HIV/AIDS in sub-Saharan Africa
    Richard Harding
    Department of Palliative Care, Policy and Rehabilitation, King s College London, London, United Kingdom
    J Pain Symptom Manage 40:405-15. 2010
    ..Although pain and burdensome symptoms among HIV-infected persons can be effectively managed, the availability of opioids and other symptom-controlling drugs is a particular challenge in sub-Saharan Africa...
  40. doi request reprint The prevalence and burden of symptoms amongst cancer patients attending palliative care in two African countries
    Richard Harding
    King s College London, Dept Palliative Care, Policy and Rehabilitation, Cicely Saunders Institute, Bessemer Road, Denmark Hill, London SE5 9PJ, UK
    Eur J Cancer 47:51-6. 2011
    ..This study aimed to determine the symptom prevalence and burden amongst advanced cancer patients in two African countries...
  41. doi request reprint Positive futures? The impact of HIV infection on achieving health, wealth and future planning
    Richard Harding
    Department of Palliative Care, King s College London, London, UK
    AIDS Care 20:565-70. 2008
    ..Gay men living with HIV require an integrated holistic approach to wellbeing that incorporates clinical, social and individual intervention in order to lead productive lives with maximum benefit from treatment gains...
  42. ncbi request reprint Is antiretroviral therapy associated with symptom prevalence and burden?
    Richard Harding
    Department of Palliative Care, Policy and Rehabilitation, King s College London School of Medicine at Guy s, King s College and St Thomas Hospitals, London, UK
    Int J STD AIDS 17:400-5. 2006
    ..The high symptom prevalence, particularly psychological symptoms, is comparable with end-stage malignant and non-malignant diseases. Greater attention needs to be paid to the assessment and management of burdensome symptoms...
  43. ncbi request reprint Outcomes and lessons from a pilot RCT of a community-based HIV prevention multi-session group intervention for gay men
    R Harding
    Department of Palliative Care and Policy, Guy s King s and St Thomas School of Medicine, King s College, London, UK
    AIDS Care 16:581-5. 2004
    ..This study has demonstrated that high-risk community samples can be recruited to multi-session interventions, and has provided feasibility data for future rigorous evaluation designs...
  44. ncbi request reprint Clinical notes for informal carers in palliative care: recommendations from a random patient file audit
    Richard Harding
    Department of Palliative Care, Policy and Rehabilitation, Guy s King s and St Thomas School of Medicine, King s College London, London, UK
    Palliat Med 19:639-42. 2005
    ....
  45. ncbi request reprint Access and equity in HIV/AIDS palliative care: a review of the evidence and responses
    Richard Harding
    Department of Palliative Care and Policy, GKT Medical School, King s College London, Weston Education Centre, London SE5 9RJ, UK
    Palliat Med 19:251-8. 2005
    ..Service responses that have attempted to increase access to palliative care are presented...
  46. pmc Targeting smoking cessation to high prevalence communities: outcomes from a pilot intervention for gay men
    Richard Harding
    Department of Palliative Care and Policy, Guy s King s and St Thomas School of Medicine, King s College London, Weston Education Centre, Cutcombe Road, London, SE5 9PJ, UK
    BMC Public Health 4:43. 2004
    ..Cigarette smoking prevalence among gay men is twice that of population levels. A pilot community-level intervention was developed and evaluated aiming to meet UK Government cessation and cancer prevention targets...
  47. pmc Current HIV/AIDS end-of-life care in sub-Saharan Africa: a survey of models, services, challenges and priorities
    Richard Harding
    Department of Palliative Care and Policy, Guy s King s and St Thomas School of Medicine, King s College London, UK
    BMC Public Health 3:33. 2003
    ..In response to increased global public health funding initiatives to HIV/AIDS care in Africa, this study aimed to describe practice models, strategies and challenges to delivering end-of-life care in sub-Saharan Africa...
  48. ncbi request reprint The relationship between patient characteristics and carer psychological status in home palliative cancer care
    Richard Harding
    Department of Palliative Care and Policy, Guy s King s and St Thomas School of Medicine, King s College London, Weston Education Centre, Cutcombe Road, SE5 9PJ, London, UK
    Support Care Cancer 11:638-43. 2003
    ..In order to develop supportive care strategies, this analysis aimed to identify which patient characteristics contribute to carer psychological distress and which coping strategies carers employ...
  49. pmc Does palliative care improve outcomes for patients with HIV/AIDS? A systematic review of the evidence
    R Harding
    Department of Palliative Care and Policy, Guy s King s and St Thomas s School of Medicine, King s College, London, UK
    Sex Transm Infect 81:5-14. 2005
    ....
  50. ncbi request reprint What is the best way to help caregivers in cancer and palliative care? A systematic literature review of interventions and their effectiveness
    R Harding
    Department of Palliative Care and Policy, Guy s, King s and St Thomas School of Medicine, Weston Education Centre, London, UK
    Palliat Med 17:63-74. 2003
    ..The current evidence contributes more to understanding feasibility and acceptability than to effectiveness. Practitioners and evaluators must prioritize the further development of intervention studies...
  51. ncbi request reprint Working with ambivalence: informal caregivers of patients at the end of life
    R Harding
    Department of Palliative Care and Policy, Guy s King s and St Thomas School of Medicine, Weston Education Centre, London, UK
    Support Care Cancer 9:642-5. 2001
    ....
  52. doi request reprint PRISMA: a pan-European co-ordinating action to advance the science in end-of-life cancer care
    Richard Harding
    King s College London, Department of Palliative Care, Policy and Rehabilitation, School of Medicine at Guy s King s and St Thomas Hospitals, Cicely Saunders Institute, Bessemer Road, London SE5 9PJ, UK
    Eur J Cancer 46:1493-501. 2010
    ....
  53. ncbi request reprint Successive switching of antiretroviral therapy is associated with high psychological and physical burden
    Lorraine Sherr
    Royal Free and University College Medical School, London, UK
    Int J STD AIDS 18:700-4. 2007
    ..A holistic approach is needed to understand the psychological effects of such switches if lifelong treatment is to be maintained and those on antiretroviral treatment are to attain good quality of life and minimize symptom burden...
  54. doi request reprint Doctor-patient concordance during HIV treatment switching decision-making
    C Clucas
    University College London, London, UK
    HIV Med 12:87-96. 2011
    ..The aim of the study was to explore levels of doctor-patient concordance during the making of decisions regarding HIV treatment switching and stopping in relation to patient health-related outcomes...
  55. ncbi request reprint A multi-professional short-term group intervention for informal caregivers of patients using a home palliative care service
    Richard Harding
    Department of Palliative Care and Policy, Guy s King s and St Thomas School of Medicine, London, U K
    J Palliat Care 18:275-81. 2002
    ..Qualitative data from attendees showed that identifying with other carers and validating feelings, asking questions of professionals, and providing each other with support and encouragement were valuable outcomes from the group...
  56. doi request reprint What are the perceived needs and challenges of informal caregivers in home cancer palliative care? Qualitative data to construct a feasible psycho-educational intervention
    R Harding
    Department of Palliative Care Policy and Rehabilitation, Cicely Saunders Institute, King s College London, London, UK
    Support Care Cancer 20:1975-82. 2012
    ..Tailored and specific interventions for informal caregivers in palliative care are rare. We aimed to generate evidence to inform a subsequent appropriate intervention based on caregivers' experiences...
  57. ncbi request reprint Generating the evidence base for the National Service Framework for Long Term Conditions: a new research typology
    Lynne Turner-Stokes
    Department of Palliative Care and Policy, King s College London, UK
    Clin Med 6:91-7. 2006
    ..Preliminary testing and application in development of the evidence base for the NSF are described...
  58. doi request reprint Adherence to antiretroviral treatment in patients with HIV in the UK: a study of complexity
    Lorraine Sherr
    Department of Primary Care and Population Sciences, Royal Free University College Medical School, London, UK
    AIDS Care 20:442-8. 2008
    ..42, p=0.01). The softer markers of adherence are not usually measured in follow up and may account for variations in treatment responses. The complexity of adherence needs to be understood and addressed to maximise treatment efficacy...
  59. doi request reprint The views of patients with advanced cancer regarding participation in serial questionnaire studies
    C Shipman
    King s College London, Department of Palliative Care, Policy and Rehabilitation, London, UK
    Palliat Med 22:913-20. 2008
    ..Developing flexible and responsive recruitment procedures is vital to retain patient participation as more than one contact might be required to successfully conclude an interview...
  60. ncbi request reprint Modelling services to meet the palliative care needs of chronic heart failure patients and their families: current practice in the UK
    Lucy Selman
    Dept of Palliative Care, Policy and Rehabilitation, King s College London School of Medicine, London
    Palliat Med 21:385-90. 2007
    ..To describe current provision of specialist palliative care for chronic heart failure (CHF) patients, and explore challenges, referral criteria and recommendations to inform service development...
  61. ncbi request reprint Evaluation of a short-term group intervention for informal carers of patients attending a home palliative care service
    Richard Harding
    Department of Palliative Care and Policy, Guy s, King s, and St Thomas School of Medicine, London, United Kingdom
    J Pain Symptom Manage 27:396-408. 2004
    ..Short-term interventions are unlikely to affect global psychological scores, and future evaluations should include additional time points of data collection to demonstrate support during attendance...
  62. ncbi request reprint Physical and psychological symptoms and risk of virologic rebound among patients with virologic suppression on antiretroviral therapy
    Fiona C Lampe
    Department of Infection and Population Health, University College London Medical School, London, UK
    J Acquir Immune Defic Syndr 54:500-5. 2010
    ..We examined the association of self-reported physical and psychological symptoms with subsequent virologic rebound among patients with viral suppression on combination antiretroviral therapy (cART)...
  63. pmc Meeting information needs of patients with incurable progressive disease and their families in South Africa and Uganda: multicentre qualitative study
    Lucy Selman
    King s College London, Department of Palliative Care, Policy and Rehabilitation, King s College London, London SE5 9RJ
    BMJ 338:b1326. 2009
    ..To explore the information needs of patients with progressive, life limiting disease and their family caregivers in South Africa and Uganda and to inform clinical practice and policy in this emerging field...
  64. doi request reprint Short-form Zarit Caregiver Burden Interviews were valid in advanced conditions
    Irene J Higginson
    King s College London, Department of Palliative Care, Policy and Rehabilitation, School of Medicine at Guy s, King s College and St Thomas Hospitals, London, United Kingdom
    J Clin Epidemiol 63:535-42. 2010
    ..To assess six short-form versions of Zarit Burden Interview (ZBI-12, ZBI-8, ZBI-7, ZBI-6, ZBI-4, and ZBI-1) among three caregiving populations...
  65. doi request reprint Optimal approaches to the health economics of palliative care: report of an international think tank
    Barbara Gomes
    King s College London Cicely Saunders International, London, United Kingdom
    J Pain Symptom Manage 38:4-10. 2009
    ....
  66. pmc Improving end-of-life care for patients with chronic heart failure: "Let's hope it'll get better, when I know in my heart of hearts it won't"
    Lucy Selman
    Department of Palliative Care, Policy and Rehabilitation, King s College London School of Medicine, Weston Education Centre, London, UK
    Heart 93:963-7. 2007
    ....
  67. doi request reprint Psychological, social and spiritual distress at the end of life in heart failure patients
    Lucy Selman
    Department of Palliative Care, Policy and Rehabilitation, King s College London, UK
    Curr Opin Support Palliat Care 1:260-6. 2007
    ..This review informs clinicians of the importance of understanding, assessing and managing patients' psychosocial and spiritual needs...
  68. pmc Constructing understandings of end-of-life care in Europe: a qualitative study involving cognitive interviewing with implications for cross-national surveys
    Barbara A Daveson
    King s College London, Cicely Saunders Institute, Department of Palliative Care, Policy and Rehabilitation, London, United Kingdom
    J Palliat Med 14:343-9. 2011
    ....
  69. ncbi request reprint Preferences for place of death if faced with advanced cancer: a population survey in England, Flanders, Germany, Italy, the Netherlands, Portugal and Spain
    B Gomes
    King s College London, Cicely Saunders Institute, Department of Palliative Care, Policy and Rehabilitation, London, UK
    Ann Oncol 23:2006-15. 2012
    ..Cancer end-of-life care (EoLC) policies assume people want to die at home. We aimed to examine variations in preferences for place of death cross-nationally...
  70. doi request reprint Are we heading in the same direction? European and African doctors' and nurses' views and experiences regarding outcome measurement in palliative care
    B A Daveson
    King s College London, Cicely Saunders Institute, Department of Palliative Care, Policy and Rehabilitation, London, UK
    Palliat Med 26:242-9. 2012
    ..To examine and compare doctors' and nurses' views and experiences regarding outcome measurement in palliative care, including patient-reported outcome measures (PROMs)...
  71. ncbi request reprint Evaluation of welfare rights advice in primary care: the general practice perspective
    Richard Harding
    Department of Primary Care and Population Sciences, Royal Free University College Medical School, London, UK and Institute of Advanced Legal Studies, London, UK
    Health Soc Care Community 10:417-22. 2002
    ..The current lack of basic information in surgeries must be addressed (e.g. information on local providers, printed information detailing range and eligibility criteria of welfare benefits)...
  72. doi request reprint Clinical and behavioural aspects of aging with HIV infection
    Lorraine Sherr
    Department of Thoracic Medicine, Royal Free and University College Medical School, London, UK
    Psychol Health Med 14:273-9. 2009
    ..The older group were similar in employment, education and disclosure, but complained less and reported much higher tolerance...
  73. doi request reprint Improving the delivery of hiv outpatient services in sub-saharan Africa
    L Gordge
    King s College London, Dept Palliative Care, Policy and Rehabilitation, Cicely Saunders Institute
    BMJ Support Palliat Care 3:134. 2013
    ..While the palliative care needs of HIV patients are well documented, it is not known how well HIV outpatient services meet these needs and evidence to improve service provision is lacking...
  74. ncbi request reprint Self-reported non-adherence to ART and virological outcome in a multiclinic UK study
    L Sherr
    Research Department of Infection and Population Health, University College London, London, UK
    AIDS Care 22:939-45. 2010
    ..Age should be an important consideration in clinical strategies to minimise non-adherence and in decisions regarding ART initiation. A simple measure of non-adherence can identify patients at risk of poorer virological outcome...
  75. doi request reprint What are the supportive and palliative care needs of patients with cutaneous T-cell lymphoma and their caregivers? A systematic review of the evidence
    T Beynon
    King s Health Partners, Guy s Hospital, London, SE1 9RT, U K Palliative Medicine, St Thomas Hospital, Westminster Bridge Road, London, SE1 7EH, U K Department of Palliative Care Policy and Rehabilitation, King s College London, Cicely Saunders Institute, Bessemer Road, Denmark Hill, London, SE5 9PJ, U K
    Br J Dermatol 170:599-608. 2014
    ..Primary cutaneous T-cell lymphoma (CTCL) is progressive, can cause significant symptoms, and impacts on quality of life. Therefore supportive and palliative care might have a role in the care of patients and families...
  76. doi request reprint Creating guidance for the use of patient reported outcome measures (proms) in clinical palliative care
    Lm van Vliet
    King s College London, Cicely Saunders Institute, Department of Palliative Care and Rehabilitation, UK
    BMJ Support Palliat Care 4:113. 2014
    ..One reason for this seems to be a lack of guidance on how to use PROMs in palliative care practice. This project aimed to provide such guidance...
  77. ncbi request reprint Needs assessments in palliative care: an appraisal of definitions and approaches used
    Irene J Higginson
    Department of Palliative Care, Policy and Rehabilitation, King s College London School of Medicine at Guy s, King s College and St Thomas Hospitals, London, UK
    J Pain Symptom Manage 33:500-5. 2007
    ..Careful consideration must be paid to any needs assessment data to ensure that the assessment is implemented...
  78. doi request reprint Suicidal ideation in UK HIV clinic attenders
    Lorraine Sherr
    Royal Free and University College Medical School, London, UK
    AIDS 22:1651-8. 2008
    ..Although new treatments have changed prognosis, they also bring new challenges. This study measured suicidal ideation in HIV clinic attenders in the United Kingdom (London/Southeast) and explored associated factors...
  79. ncbi request reprint Use of the palliative outcome scale in Argentina: a cross-cultural adaptation and validation study
    Jorge H Eisenchlas
    Palliative Care Unit, C Bonorino Udaondo Hospital, Buenos Aires, Argentina
    J Pain Symptom Manage 35:188-202. 2008
    ..Completion of the POS did not take more than 12 and 6 minutes for patients and staff, respectively. This study indicates that the Argentine POS is a valid and reliable measure of palliative care outcomes with advanced cancer patients...
  80. ncbi request reprint Welfare rights advice in primary care: prevalence, processes and specialist provision
    Richard Harding
    Department of Primary Care and Population Sciences, Royal Free University College Medical School, Rowland Hill Street, London NW3 2PF, UK
    Fam Pract 20:48-53. 2003
    ..Despite persistent poverty-related health inequalities, few sustained responses have been developed in primary care. Welfare rights provision has been proposed as one potential pathway to addressing health inequalities...
  81. pmc A theme issue by, for, and about Africa: palliative care and antiretroviral treatment can be integrated
    Catherine Senyimba
    BMJ 331:778-9. 2005
  82. ncbi request reprint Access to hospice care: multi-professional specialist perspectives in South Africa
    Carla D L Ens
    Community Health Sciences, Faculty of Medicine, University of Manitoba, Winnipeg, Manitoba, Canada
    Int J Palliat Nurs 14:169-74. 2008
    ..An interpretation of the themes led to the development of a model describing the ideal hospice referral system for South Africa...
  83. ncbi request reprint Prevalence, severity, duration and measurement of pain in sub-Saharan Africa
    Peter Cartledge
    Palliat Med 18:737-8. 2004
  84. ncbi request reprint Palliative care for management of small-cell lung cancer
    Richard Harding
    Lancet 367:474. 2006
  85. ncbi request reprint Test-retest reliability of the measurement of penile dimensions in a sample of gay men
    Richard Harding
    Family and Child Psychology Research Centre, City University, Department of Primary Care and Population Sciences, University College, Royal Free School of Medicine, London NW3 2PF, England
    Arch Sex Behav 31:351-7. 2002
    ..This may be due to both natural variability in penis size within subjects over time and unreliability of the measurement method...
  86. ncbi request reprint Arousal and ventilatory responses to hypoxia in sleeping infants: effects of maternal smoking
    Peter M Parsiow
    Department of Paediatrics, Ritchie Centre for Baby Health Research, Monash University, Level 5, Monash Medical Centre, 246 Clayton Road, Clayton, VIC 3168, Australia
    Respir Physiol Neurobiol 140:77-87. 2004
    ....
  87. ncbi request reprint Heart rate responses to non-arousing trigeminal stimulation in infants: effects of sleep position, sleep state and postnatal age
    Rita Tuladhar
    Ritchie Centre for Baby Health Research, Monash University, Melbourne, Victoria 3800, Australia
    Early Hum Dev 81:673-81. 2005
    ..The aim of this study was to examine the effects of maternal smoking, sleeping position, sleep state and postnatal age on heart rate changes following non-arousing trigeminal stimulation in infants...
  88. ncbi request reprint Early developmental origins of impaired lung structure and function
    Gert S Maritz
    Department of Medical Biosciences, University of the Western Cape, Bellville 7535, South Africa
    Early Hum Dev 81:763-71. 2005
    ..Ultimately however, a major goal should be to prevent prenatal compromises through clinical monitoring, and in the case of smoking through education, thereby ensuring that each fetus has the best possible environment in which to develop...
  89. ncbi request reprint Treating HIV/AIDS patients until the end of life
    Richard Harding
    J Acquir Immune Defic Syndr 44:364. 2007
  90. ncbi request reprint Effects into adulthood of single or repeated antenatal corticosteroids in sheep
    Timothy J M Moss
    School of Women s and Infants Health, The University of Western Australia, Crawley, Australia
    Am J Obstet Gynecol 192:146-52. 2005
    ..To determine effects of maternal or fetal injections of betamethasone on postnatal growth and arterial pressure...
  91. ncbi request reprint Positive end expiratory pressure during resuscitation of premature lambs rapidly improves blood gases without adversely affecting arterial pressure
    Megan E Probyn
    Neonatal Services, Royal Women s Hospital, Carlton, Victoria 3053, Australia
    Pediatr Res 56:198-204. 2004
    ..Applying PEEP during resuscitation of very premature infants might be advantageous and merits further investigation...
  92. ncbi request reprint Effects of sleep position, sleep state and age on heart rate responses following provoked arousal in term infants
    Rita Tuladhar
    Department of Paediatrics, Monash Medical Centre, Monash University, 246 Clayton Road, Melbourne, Victoria 3168, Australia
    Early Hum Dev 71:157-69. 2003
    ..Impairment of heart rate control in the prone position may be important in understanding the increased risk for SIDS in this position...
  93. ncbi request reprint Chronic placental insufficiency and foetal growth restriction lead to long-term effects on postnatal retinal structure
    Michelle Loeliger
    Department of Anatomy and Cell Biology, University of Melbourne, Victoria, Australia
    Clin Experiment Ophthalmol 31:250-3. 2003
    ....
  94. ncbi request reprint Influence of maternal tobacco smoking during pregnancy on uterine, umbilical and fetal cerebral artery blood flows
    Cheryl A Albuquerque
    Center for Perinatal Medicine, Deaconess Medical Center, Spokane, WA, USA
    Early Hum Dev 80:31-42. 2004
    ..Cigarette smoking during pregnancy is a major cause of adverse perinatal outcome but effects on critical fetal and maternal circulations remain unclear...
  95. ncbi request reprint Maturation of the initial ventilatory response to hypoxia in sleeping infants
    Heidi L Richardson
    Ritchie Centre for Baby Health Research, Monash Institute of Medical Research, Melbourne, Vic, Australia
    J Sleep Res 16:117-27. 2007
    ..We suggest that arousal in response to hypoxia, particularly in AS, is a vital survival mechanism throughout the first 6 months of life...
  96. ncbi request reprint Report from the 6th International AIDS Impact Conference. The enduring role of mental health in the experience of HIV
    Richard Harding
    Focus 18:1-4. 2003
  97. ncbi request reprint Of sleep state and postnatal age on arousal responses induced by mild hypoxia in infants
    Peter M Parslow
    Department of Paediatrics and Ritchie Centre for Baby Health Research, Monash University, Melbourne, Victoria
    Sleep 27:105-9. 2004
    ..Our aim was to characterize arousal responses of sleeping infants in both active sleep (AS) and QS under normoxic and mildly hypoxic (15% O2) conditions over the first 6 months of life...
  98. ncbi request reprint Fetal growth restriction induced by chronic placental insufficiency has long-term effects on the retina but not the optic nerve
    Michelle Loeliger
    Department of Anatomy and Cell Biology, University of Melbourne, 3010 Victoria, Australia
    Invest Ophthalmol Vis Sci 46:3300-8. 2005
    ..This study was undertaken to determine whether prenatal exposure to a chronic compromise sufficient to cause fetal growth restriction (FGR) results in long-term alterations to the retina and optic nerve...
  99. ncbi request reprint Study of white coat effect on the prognosis of women with breast cancer
    Lara Alloway
    Eur J Cancer Care (Engl) 13:193; author reply 193. 2004