Mh Gysels

Summary

Affiliation: King's College London
Country: UK

Publications

  1. pmc Is the qualitative research interview an acceptable medium for research with palliative care patients and carers?
    Marjolein Gysels
    Palliative Care, Policy and Rehabilitation, School of Medicine, King s College London, London, SE5 9RJ, UK
    BMC Med Ethics 9:7. 2008
  2. doi request reprint Access to services for patients with chronic obstructive pulmonary disease: the invisibility of breathlessness
    Marjolein Gysels
    King s College London, Department of Palliative Care, Policy and Rehabilitation, School of Medicine, London, United Kingdom
    J Pain Symptom Manage 36:451-60. 2008
  3. doi request reprint Caring for a person in advanced illness and suffering from breathlessness at home: threats and resources
    Marjolein H Gysels
    King s College London, Department of Palliative Care, Policy and Rehabilitation, School of Medicine, London, United Kingdom
    Palliat Support Care 7:153-62. 2009
  4. doi request reprint Self-management for breathlessness in COPD: the role of pulmonary rehabilitation
    M H Gysels
    King s College London, Department of Palliative Care, Policy and Rehabilitation School of Medicine, London, UK
    Chron Respir Dis 6:133-40. 2009
  5. ncbi request reprint Experiences of breathlessness: a systematic review of the qualitative literature
    Marjolein Gysels
    Palliative Care, Policy and Rehabilitation, King s College London School of Medicine at Guy s, King s College and St Thomas Hospitals, Weston Education Centre, Cutcombe Road, London SE5 9RJ, UK
    Palliat Support Care 5:281-302. 2007
  6. ncbi request reprint Does the patient-held record improve continuity and related outcomes in cancer care: a systematic review
    Marjolein Gysels
    Department of Palliative Care, Policy and Rehabilitation, School of Medicine at Guy s, King s College, London, UK
    Health Expect 10:75-91. 2007
  7. ncbi request reprint Interactive technologies and videotapes for patient education in cancer care: systematic review and meta-analysis of randomised trials
    Marjolein Gysels
    Department of Palliative Care, Policy and Rehabilitation, King s College London School of Medicine at Guy s, King s College and St Thomas Hospitals, London, UK
    Support Care Cancer 15:7-20. 2007
  8. ncbi request reprint The adventures of the Randy Professor and Angela the Sugar Mummy: sex in fictional serials in Ugandan popular magazines
    M Gysels
    Department of Palliative Care and Policy, King s College, London
    AIDS Care 17:967-77. 2005
  9. ncbi request reprint Communication training for health professionals who care for patients with cancer: a systematic review of training methods
    Marjolein Gysels
    Department of Palliative Care and Policy, King s College, London, UK
    Support Care Cancer 13:356-66. 2005
  10. ncbi request reprint What methods do stakeholders prefer for feeding back performance data: a qualitative study in palliative care
    Marjolein Gysels
    Department of Palliative Care and Policy, King s College, London, UK
    Int J Qual Health Care 16:375-81. 2004

Detail Information

Publications22

  1. pmc Is the qualitative research interview an acceptable medium for research with palliative care patients and carers?
    Marjolein Gysels
    Palliative Care, Policy and Rehabilitation, School of Medicine, King s College London, London, SE5 9RJ, UK
    BMC Med Ethics 9:7. 2008
    ....
  2. doi request reprint Access to services for patients with chronic obstructive pulmonary disease: the invisibility of breathlessness
    Marjolein Gysels
    King s College London, Department of Palliative Care, Policy and Rehabilitation, School of Medicine, London, United Kingdom
    J Pain Symptom Manage 36:451-60. 2008
    ..quot; Problems with access to care are an additional dimension of suffering added to the illness experience. A palliative care approach is promoted and essential priorities identified to reduce barriers to access...
  3. doi request reprint Caring for a person in advanced illness and suffering from breathlessness at home: threats and resources
    Marjolein H Gysels
    King s College London, Department of Palliative Care, Policy and Rehabilitation, School of Medicine, London, United Kingdom
    Palliat Support Care 7:153-62. 2009
    ....
  4. doi request reprint Self-management for breathlessness in COPD: the role of pulmonary rehabilitation
    M H Gysels
    King s College London, Department of Palliative Care, Policy and Rehabilitation School of Medicine, London, UK
    Chron Respir Dis 6:133-40. 2009
    ..The findings have implications for notions such as adherence, patient involvement and responsibility in the management of chronic obstructive pulmonary disease...
  5. ncbi request reprint Experiences of breathlessness: a systematic review of the qualitative literature
    Marjolein Gysels
    Palliative Care, Policy and Rehabilitation, King s College London School of Medicine at Guy s, King s College and St Thomas Hospitals, Weston Education Centre, Cutcombe Road, London SE5 9RJ, UK
    Palliat Support Care 5:281-302. 2007
    ..The subjective nature of the symptom has been acknowledged in many definitions, emphasizing that it can only be fully perceived and interpreted by the patients themselves...
  6. ncbi request reprint Does the patient-held record improve continuity and related outcomes in cancer care: a systematic review
    Marjolein Gysels
    Department of Palliative Care, Policy and Rehabilitation, School of Medicine at Guy s, King s College, London, UK
    Health Expect 10:75-91. 2007
    ..To assess the effectiveness of the patient-held record (PHR) in cancer care...
  7. ncbi request reprint Interactive technologies and videotapes for patient education in cancer care: systematic review and meta-analysis of randomised trials
    Marjolein Gysels
    Department of Palliative Care, Policy and Rehabilitation, King s College London School of Medicine at Guy s, King s College and St Thomas Hospitals, London, UK
    Support Care Cancer 15:7-20. 2007
    ..This paper investigates whether interactive technologies and videotapes for patient education in cancer care improve knowledge, satisfaction or other outcomes...
  8. ncbi request reprint The adventures of the Randy Professor and Angela the Sugar Mummy: sex in fictional serials in Ugandan popular magazines
    M Gysels
    Department of Palliative Care and Policy, King s College, London
    AIDS Care 17:967-77. 2005
    ..Illustrated popular magazines such as those discussed here could be suitable as intervention, though they would need some adaptation to counter gender stereotypes and sexual violence...
  9. ncbi request reprint Communication training for health professionals who care for patients with cancer: a systematic review of training methods
    Marjolein Gysels
    Department of Palliative Care and Policy, King s College, London, UK
    Support Care Cancer 13:356-66. 2005
    ..Many health and social care professionals, however, do not feel adequately trained in communicating and in handling interpersonal issues that arise in the care of patients with cancer...
  10. ncbi request reprint What methods do stakeholders prefer for feeding back performance data: a qualitative study in palliative care
    Marjolein Gysels
    Department of Palliative Care and Policy, King s College, London, UK
    Int J Qual Health Care 16:375-81. 2004
    ..To investigate the opinions of stakeholders (service commissioners and providers) on how performance data should be presented, in order to develop effective feedback methods to facilitate the use of these data in decision making...
  11. ncbi request reprint Communication training for health professionals who care for patients with cancer: a systematic review of effectiveness
    Marjolein Gysels
    Department of Palliative Care and Policy, King s College, London, UK
    Support Care Cancer 12:692-700. 2004
    ..Effective communication is increasingly recognised as a core clinical skill. However, there is evidence that health and social care professionals still lack basic communication skills...
  12. doi request reprint Individual breathlessness trajectories do not match summary trajectories in advanced cancer and chronic obstructive pulmonary disease: results from a longitudinal study
    Claudia Bausewein
    Department of Palliative Care, Policy and Rehabilitation, Kings College London, UK
    Palliat Med 24:777-86. 2010
    ..Symptom trajectories on the population level reflecting the whole group mask individual variation, which is reflected in distinct symptom trajectories with different patterns...
  13. doi request reprint Understanding breathlessness: cross-sectional comparison of symptom burden and palliative care needs in chronic obstructive pulmonary disease and cancer
    Claudia Bausewein
    Department of Palliative Care, Policy and Rehabilitation, King s College London, London, United Kingdom
    J Palliat Med 13:1109-18. 2010
    ..Little is known about symptom burden and palliative care needs of breathless patients with advanced cancer and chronic obstructive pulmonary disease (COPD)...
  14. doi request reprint Access to care in advanced COPD: factors that influence contact with general practice services
    Cathy Shipman
    Department of General Practice and Primary Care, King s College London, London, UK
    Prim Care Respir J 18:273-8. 2009
    ..To explore factors that influence the use of general practice services by people with advanced COPD...
  15. pmc Improving generalist end of life care: national consultation with practitioners, commissioners, academics, and service user groups
    Cathy Shipman
    King s College London, Department of Palliative Care, Policy and Rehabilitation, Weston Education Centre, London SE5 9RJ
    BMJ 337:a1720. 2008
    ..To identify major concerns of national and local importance in the provision, commissioning, research, and use of generalist end of life care...
  16. pmc Effectiveness of a hand-held fan for breathlessness: a randomised phase II trial
    Claudia Bausewein
    King s College London, Department of Palliative Care, Policy and Rehabilitation, Cicely Saunders Institute, London, UK
    BMC Palliat Care 9:22. 2010
    ..This phase II study aimed to determine the use and acceptance of a hand-held fan (HHF) to relieve breathlessness, to test the effectiveness of the HHF and to evaluate the recruitment into the study...
  17. doi request reprint The experience of breathlessness: the social course of chronic obstructive pulmonary disease
    Marjolein Gysels
    Palliative Care Policy and Rehabilitation, School of Medicine, King s College London, London, United Kingdom
    J Pain Symptom Manage 39:555-63. 2010
    ..There is a trend toward extending palliative care to nonmalignant diseases. There is no evidence that chronic obstructive pulmonary disease (COPD) requires its own model...
  18. doi request reprint "I will do it if it will help others:" motivations among patients taking part in qualitative studies in palliative care
    Marjolein Gysels
    Palliative Care, Policy and Rehabilitation, King s College London School of Medicine at Guy s, King s College and St Thomas Hospitals, London, United Kingdom
    J Pain Symptom Manage 35:347-55. 2008
    ..This suggests a need for ethics committees to reconsider their views and widen their perspectives on the involvement of palliative care patients and carers in research...
  19. pmc Reconciling employment with caring for a husband with an advanced illness
    Marjolein Gysels
    King s College London, Department of Palliative Care Policy and Rehabilitation, School of Medicine, London, UK
    BMC Health Serv Res 9:216. 2009
    ..The aim of this paper was to explore the meaning of work for women caring for a husband with an advanced illness and the consequences of combining these two roles...
  20. ncbi request reprint Women who sell sex in a Ugandan trading town: life histories, survival strategies and risk
    Marjolein Gysels
    Medical Research Council Programme on AIDS in Uganda, Entebbe
    Soc Sci Med 54:179-92. 2002
    ..This has implications for interventions, and part of the longer-term solution should lie in improving the economic position of women vis-à-vis men...
  21. ncbi request reprint Do religious or spiritual beliefs influence bereavement? A systematic review
    Gerhild Becker
    Department of Internal Medicine, University Hospital of Freiburg, Freiburg, Germany
    Palliat Med 21:207-17. 2007
    ..Responses to bereavement may be influenced by characteristics such as age or gender, but also by factors like culture and religion...
  22. ncbi request reprint The impact of a breathlessness intervention service (BIS) on the lives of patients with intractable dyspnea: a qualitative phase 1 study
    Sara Booth
    Addenbrooke s Hospital, Hills Road, Cambridge, UK
    Palliat Support Care 4:287-93. 2006
    ..It is usually intractable, even when patients receive maximal medical therapy for their underlying condition. A pilot study was undertaken to evaluate a newly formed palliative Breathlessness Intervention Service (BIS)...