N K Aaronson

Summary

Affiliation: The Netherlands Cancer Institute
Country: The Netherlands

Publications

  1. pmc Responsiveness and minimal important differences for patient reported outcomes
    Dennis A Revicki
    Center for Health Outcomes Research, United BioSource Corporation, 7101 Wisconsin Ave, Suite 600, Bethesda, MD 20814, USA
    Health Qual Life Outcomes 4:70. 2006
  2. ncbi request reprint Translation, validation, and norming of the Dutch language version of the SF-36 Health Survey in community and chronic disease populations
    N K Aaronson
    Division of Psychosocial Research and Epidemiology, The Netherlands Cancer Institute, Amsterdam
    J Clin Epidemiol 51:1055-68. 1998
  3. doi request reprint Distress in partners of individuals diagnosed with or at high risk of developing tumors due to rare hereditary cancer syndromes
    C R M Lammens
    The Netherlands Cancer Institute Antoni van Leeuwenhoek Hospital, Division of Psychosocial Research and Epidemiology, Amsterdam, The Netherlands
    Psychooncology 20:631-8. 2011
  4. doi request reprint Quality of life and consequences for daily life of familial adenomatous polyposis (FAP) family members
    K F L Douma
    Division of Psychosocial Research and Epidemiology, The Netherlands Cancer Institute, Antoni van Leeuwenhoek Hospital, Amsterdam, The Netherlands
    Colorectal Dis 13:669-77. 2011
  5. ncbi request reprint A study of the reliability, validity and responsiveness of the HIV overview of problems evaluation system (HOPES) in assessing the quality of life of patients with AIDS and symptomatic HIV infection
    J B de Boer
    Division of Psychosocial Research and Epidemiology, The Netherlands Cancer Institute, Amsterdam, The Netherlands
    Qual Life Res 5:339-47. 1996
  6. doi request reprint Opt-out plus, the patients' choice: preferences of cancer patients concerning information and consent regimen for future research with biological samples archived in the context of treatment
    E Vermeulen
    Division of Psychosocial Research and Epidemiology, The Netherlands Cancer Institute, Amsterdam, The Netherlands
    J Clin Pathol 62:275-8. 2009
  7. doi request reprint Psychosocial issues in genetic testing for familial adenomatous polyposis: a review of the literature
    K F L Douma
    The Netherlands Cancer Institute, Division of Psychosocial Research and Epidemiology, Plesmanlaan 121, 1066 CX Amsterdam, The Netherlands
    Psychooncology 17:737-45. 2008
  8. pmc Evaluating the quality of life of cancer patients: assessments by patients, significant others, physicians and nurses
    K C Sneeuw
    Division of Psychosocial Research and Epidemiology, The Netherlands Cancer Institute Antoni van Leeuwenhoek Hospital, Amsterdam
    Br J Cancer 81:87-94. 1999
  9. pmc Regular surveillance for Li-Fraumeni Syndrome: advice, adherence and perceived benefits
    C R M Lammens
    Division of Psychosocial Research and Epidemiology, The Netherlands Cancer Institute Antoni van Leeuwenhoek Hospital NKI AVL, Amsterdam, The Netherlands
    Fam Cancer 9:647-54. 2010
  10. ncbi request reprint The relevance of intraventricular chemotherapy for leptomeningeal metastasis in breast cancer: a randomised study
    W Boogerd
    Department of Neuro Oncology, The Netherlands Cancer Institute Antoni van Leeuwenhoek Hospital, Plesmanlaan 121, 1066 CX Amsterdam, The Netherlands
    Eur J Cancer 40:2726-33. 2004

Collaborators

  • M A Sprangers
  • H F A Vasen
  • F J Hes
  • M Muller
  • F S van Dam
  • J M Lange
  • S B Detmar
  • W Boogerd
  • I S Fentiman
  • Martin J van den Bent
  • C R M Lammens
  • E M A Bleiker
  • K F L Douma
  • T A M van Os
  • S Verhoef
  • T Nagtegaal
  • M G E M Ausems
  • L Spruijt
  • M W G Ruijs
  • R H Sijmons
  • E Vermeulen
  • Dennis A Revicki
  • H E M Van Luijn
  • J C J M de Haes
  • E B Gomez-Garcia
  • D Majoor-Krakauer
  • C M Gundy
  • R B Van der Luijt
  • A M W van den Ouweland
  • C Gundy
  • A Cats
  • A Wagner
  • E B Gomez Garcia
  • A H J T Vriends
  • P van der Valk
  • F E van Leeuwen
  • C Sietses
  • P van den Tol
  • M Kuenen
  • M K Schmidt
  • K C Sneeuw
  • A W Musschenga
  • Jeff A Sloan
  • R B Keus
  • David Cella
  • William R Lenderking
  • Ron D Hays
  • D Curran
  • J B de Boer
  • L D Wever
  • J H Schornagel

Detail Information

Publications13

  1. pmc Responsiveness and minimal important differences for patient reported outcomes
    Dennis A Revicki
    Center for Health Outcomes Research, United BioSource Corporation, 7101 Wisconsin Ave, Suite 600, Bethesda, MD 20814, USA
    Health Qual Life Outcomes 4:70. 2006
    ..Responsiveness and MID must be demonstrated and documented for the particular study population, and these measurement characteristics are needed for PRO labeling and promotional claims...
  2. ncbi request reprint Translation, validation, and norming of the Dutch language version of the SF-36 Health Survey in community and chronic disease populations
    N K Aaronson
    Division of Psychosocial Research and Epidemiology, The Netherlands Cancer Institute, Amsterdam
    J Clin Epidemiol 51:1055-68. 1998
    ..On-going studies will generate data on the responsiveness of the SF-36 to within-group changes in health over time. Efforts are underway to translate and validate the questionnaire for use among ethnic minority groups in the Netherlands...
  3. doi request reprint Distress in partners of individuals diagnosed with or at high risk of developing tumors due to rare hereditary cancer syndromes
    C R M Lammens
    The Netherlands Cancer Institute Antoni van Leeuwenhoek Hospital, Division of Psychosocial Research and Epidemiology, Amsterdam, The Netherlands
    Psychooncology 20:631-8. 2011
    ..Therefore, this study aims to evaluate the prevalence of and factors associated with psychological distress among partners of individuals with or at high risk of LFS or VHL...
  4. doi request reprint Quality of life and consequences for daily life of familial adenomatous polyposis (FAP) family members
    K F L Douma
    Division of Psychosocial Research and Epidemiology, The Netherlands Cancer Institute, Antoni van Leeuwenhoek Hospital, Amsterdam, The Netherlands
    Colorectal Dis 13:669-77. 2011
    ..This study is the first to compare HRQOL between patients with FAP, at-risk individuals and noncarriers...
  5. ncbi request reprint A study of the reliability, validity and responsiveness of the HIV overview of problems evaluation system (HOPES) in assessing the quality of life of patients with AIDS and symptomatic HIV infection
    J B de Boer
    Division of Psychosocial Research and Epidemiology, The Netherlands Cancer Institute, Amsterdam, The Netherlands
    Qual Life Res 5:339-47. 1996
    ..This study provides further evidence of the reliability and validity of the HOPES and shows that this instrument is responsive to changes in CD4 cell counts...
  6. doi request reprint Opt-out plus, the patients' choice: preferences of cancer patients concerning information and consent regimen for future research with biological samples archived in the context of treatment
    E Vermeulen
    Division of Psychosocial Research and Epidemiology, The Netherlands Cancer Institute, Amsterdam, The Netherlands
    J Clin Pathol 62:275-8. 2009
    ....
  7. doi request reprint Psychosocial issues in genetic testing for familial adenomatous polyposis: a review of the literature
    K F L Douma
    The Netherlands Cancer Institute, Division of Psychosocial Research and Epidemiology, Plesmanlaan 121, 1066 CX Amsterdam, The Netherlands
    Psychooncology 17:737-45. 2008
    ..Being a carrier for FAP is hypothesized to have a negative impact on psychosocial well-being. This paper reviews the current literature on the psychosocial aspects of FAP...
  8. pmc Evaluating the quality of life of cancer patients: assessments by patients, significant others, physicians and nurses
    K C Sneeuw
    Division of Psychosocial Research and Epidemiology, The Netherlands Cancer Institute Antoni van Leeuwenhoek Hospital, Amsterdam
    Br J Cancer 81:87-94. 1999
    ..The results indicate that both significant others and health care providers can be useful sources of information about cancer patients' QOL...
  9. pmc Regular surveillance for Li-Fraumeni Syndrome: advice, adherence and perceived benefits
    C R M Lammens
    Division of Psychosocial Research and Epidemiology, The Netherlands Cancer Institute Antoni van Leeuwenhoek Hospital NKI AVL, Amsterdam, The Netherlands
    Fam Cancer 9:647-54. 2010
    ..Despite its limited clinical benefits, the majority of high risk LFS family are advised to undergo, and are adherent to, and report psychological benefit from, regular surveillance programs...
  10. ncbi request reprint The relevance of intraventricular chemotherapy for leptomeningeal metastasis in breast cancer: a randomised study
    W Boogerd
    Department of Neuro Oncology, The Netherlands Cancer Institute Antoni van Leeuwenhoek Hospital, Plesmanlaan 121, 1066 CX Amsterdam, The Netherlands
    Eur J Cancer 40:2726-33. 2004
    ..Addition of intraventricular chemotherapy does not lead to survival benefit or improved neurological response, and is associated with an increased risk of neurotoxicity...
  11. ncbi request reprint Quality of life in breast cancer patients aged over 70 years, participating in the EORTC 10850 randomised clinical trial
    J C J M de Haes
    Department of Medical Psychology, Academic Medical Hospital, PO Box 22700, 1100 DE Amsterdam, The Netherlands
    Eur J Cancer 39:945-51. 2003
    ..04) and a shift, although borderline significant, in the direction of a benefit in body image (P=0.06). As QOL seems to be better after conservative treatment, such treatment is to be preferred in both elderly and younger patients...
  12. ncbi request reprint Role of health-related quality of life in palliative chemotherapy treatment decisions
    S B Detmar
    Division of Psychosocial Research and Epidemiology and Department of Medical Oncology, The Netherlands Cancer Institute, Antoni van Leeuwenhoek Hospital, Amsterdam, The Netherlands
    J Clin Oncol 20:1056-62. 2002
    ....
  13. pmc The evaluation of the risks and benefits of phase II cancer clinical trials by institutional review board (IRB) members: a case study
    H E M Van Luijn
    Department of Philosophy, Vrije Universiteit, De Boelelaan 1105, 1081 HV Amsterdam, The Netherlands
    J Med Ethics 32:170-6. 2006
    ..This study examined how IRB members assessed the risk/benefit ratio (RBR) of a specific phase II breast cancer clinical trial. Participants and..