A M Stiggelbout

Summary

Affiliation: Leiden University Medical Center
Country: The Netherlands

Publications

  1. pmc Ideals of patient autonomy in clinical decision making: a study on the development of a scale to assess patients' and physicians' views
    A M Stiggelbout
    Department of Medical Decision Making, Leiden University Medical Center, PO Box 9600, 2300 RC Leiden, The Netherlands
    J Med Ethics 30:268-74. 2004
  2. pmc Integrating evidence on patient preferences in healthcare policy decisions: protocol of the patient-VIP study
    Carmen D Dirksen
    Department of Clinical Epidemiology and Medical Technology Assessment, Maastricht University Medical Centre, P O Box 5800, 6202 AZ, Maastricht, The Netherlands
    Implement Sci 8:64. 2013
  3. pmc Designing an implementation strategy to improve interprofessional shared decision making in sciatica: study protocol of the DISC study
    Stefanie N Hofstede
    Department of Medical Decision Making, Leiden University Medical Center, Albinusdreef 2, 2333 ZA Leiden, The Netherlands
    Implement Sci 7:55. 2012
  4. pmc Decision making around living and deceased donor kidney transplantation: a qualitative study exploring the importance of expected relationship changes
    Ingrid B de Groot
    Department of Medical Decision Making, Leiden University Medical Center, Leiden, The Netherlands
    BMC Nephrol 13:103. 2012
  5. ncbi request reprint Shared decision making: really putting patients at the centre of healthcare
    A M Stiggelbout
    Department of Medical Decision Making, Leiden University Medical Centre, Netherlands
    BMJ 344:e256. 2012
  6. pmc How to integrate individual patient values and preferences in clinical practice guidelines? A research protocol
    Trudy van der Weijden
    Department of General Practice, Maastricht University, School of Public Health and Primary care Caphri, Maastricht, The Netherlands
    Implement Sci 5:10. 2010
  7. pmc Effect of adaptive abilities on utilities, direct or mediated by mental health?
    Yvette Peeters
    Department of Medical Decision Making, Leiden University Medical Centre, Leiden, The Netherlands
    Health Qual Life Outcomes 8:130. 2010
  8. pmc Clinical ethical dilemmas: convergent and divergent views of two scholarly communities
    A M Stiggelbout
    Department of Medical Decision Making, Leiden University Medical Center, P O Box 9600, 2300 RC Leiden, The Netherlands
    J Med Ethics 32:381-8. 2006
  9. pmc Individual quality of life: adaptive conjoint analysis as an alternative for direct weighting?
    A M Stiggelbout
    Department of Medical Decision Making, Leiden University Medical Center, Leiden, The Netherlands
    Qual Life Res 17:641-9. 2008
  10. doi request reprint The impact of individualized evidence-based decision support on aneurysm patients' decision making, ideals of autonomy, and quality of life
    Anne M Stiggelbout
    Department of Medical Decision Making, Leiden University Medical Center, Leiden, The Netherlands
    Med Decis Making 28:751-62. 2008

Collaborators

Detail Information

Publications81

  1. pmc Ideals of patient autonomy in clinical decision making: a study on the development of a scale to assess patients' and physicians' views
    A M Stiggelbout
    Department of Medical Decision Making, Leiden University Medical Center, PO Box 9600, 2300 RC Leiden, The Netherlands
    J Med Ethics 30:268-74. 2004
    ..This paper describes the development of a questionnaire to assess such concepts of autonomy...
  2. pmc Integrating evidence on patient preferences in healthcare policy decisions: protocol of the patient-VIP study
    Carmen D Dirksen
    Department of Clinical Epidemiology and Medical Technology Assessment, Maastricht University Medical Centre, P O Box 5800, 6202 AZ, Maastricht, The Netherlands
    Implement Sci 8:64. 2013
    ....
  3. pmc Designing an implementation strategy to improve interprofessional shared decision making in sciatica: study protocol of the DISC study
    Stefanie N Hofstede
    Department of Medical Decision Making, Leiden University Medical Center, Albinusdreef 2, 2333 ZA Leiden, The Netherlands
    Implement Sci 7:55. 2012
    ..All related relevant professionals and patients are involved to develop a tailored strategy to implement SDM for sciatica patients...
  4. pmc Decision making around living and deceased donor kidney transplantation: a qualitative study exploring the importance of expected relationship changes
    Ingrid B de Groot
    Department of Medical Decision Making, Leiden University Medical Center, Leiden, The Netherlands
    BMC Nephrol 13:103. 2012
    ..Purpose of this study was to explore motivations to donate or accept a (living donor) kidney, whether expected relationship changes influence decision making and whether relationship changes are actually experienced...
  5. ncbi request reprint Shared decision making: really putting patients at the centre of healthcare
    A M Stiggelbout
    Department of Medical Decision Making, Leiden University Medical Centre, Netherlands
    BMJ 344:e256. 2012
    Although many clinicians feel they already use shared decision making, research shows a perception-reality gap. A M Stiggelbout and colleagues discuss why it is important and highlight some best practices.
  6. pmc How to integrate individual patient values and preferences in clinical practice guidelines? A research protocol
    Trudy van der Weijden
    Department of General Practice, Maastricht University, School of Public Health and Primary care Caphri, Maastricht, The Netherlands
    Implement Sci 5:10. 2010
    ..be adapted to elicit patient preferences and to support shared decision making? What type of clinical decisions are perceived as most requiring consideration of individual patients' preferences rather than promoting a single best choice?..
  7. pmc Effect of adaptive abilities on utilities, direct or mediated by mental health?
    Yvette Peeters
    Department of Medical Decision Making, Leiden University Medical Centre, Leiden, The Netherlands
    Health Qual Life Outcomes 8:130. 2010
    ..Both the direct effect of persons' adaptive abilities on health state utilities and the indirect effect, where HRQL mediates the effect of ability to adapt, are examined...
  8. pmc Clinical ethical dilemmas: convergent and divergent views of two scholarly communities
    A M Stiggelbout
    Department of Medical Decision Making, Leiden University Medical Center, P O Box 9600, 2300 RC Leiden, The Netherlands
    J Med Ethics 32:381-8. 2006
    ....
  9. pmc Individual quality of life: adaptive conjoint analysis as an alternative for direct weighting?
    A M Stiggelbout
    Department of Medical Decision Making, Leiden University Medical Center, Leiden, The Netherlands
    Qual Life Res 17:641-9. 2008
    ..We conclude that, because weights did not improve the correlation between the index score and global quality of life scores, it seems sufficient to use the unweighted index score as a measure for global individual quality of life...
  10. doi request reprint The impact of individualized evidence-based decision support on aneurysm patients' decision making, ideals of autonomy, and quality of life
    Anne M Stiggelbout
    Department of Medical Decision Making, Leiden University Medical Center, Leiden, The Netherlands
    Med Decis Making 28:751-62. 2008
    ..Before and after receiving the brochure, patients filled out questionnaires on their behavior during the consultation, ideals of patient autonomy, and quality of life. Surgeons answered a short checklist evaluating the consultation...
  11. ncbi request reprint How important is the opinion of significant others to cancer patients' adjuvant chemotherapy decision-making?
    A M Stiggelbout
    Department of Medical Decision Making, Leiden University Medical Center, P O Box 9600, 2300, Leiden, The Netherlands
    Support Care Cancer 15:319-25. 2007
    ..We surveyed patients with breast and colorectal cancer about the importance they assigned to the opinions of their significant others and assessed correlates of these importance scores...
  12. doi request reprint Health state utilities: a framework for studying the gap between the imagined and the real
    Anne M Stiggelbout
    Department of Medical Decision Making, Leiden University Medical Center, Leiden, The Netherlands
    Value Health 11:76-87. 2008
    ..It aims at connecting research from within different fields so that cross-fertilization of ideas may occur...
  13. ncbi request reprint Explaining differences in attitude toward adjuvant chemotherapy between experienced and inexperienced breast cancer patients
    S J T Jansen
    Department of Medical Decision Making, Leiden University Medical Center, PO Box 9600, 2300 RC Leiden, The Netherlands
    J Clin Oncol 23:6623-30. 2005
    ..We used this theory to explore in what way the beliefs of experienced patients differed from those of inexperienced patients...
  14. doi request reprint A comprehensive model of health-related quality of life in Parkinson's disease
    M Visser
    Department of Neurology, K5 Q 92, Leiden University Medical Center, 9600, 2300 RC Leiden, The Netherlands
    J Neurol 255:1580-7. 2008
    ..Insight in how impairments and disabilities related to Parkinson's disease (PD) influence health-related quality of life (HRQoL) is required to review adequacy of current management strategies...
  15. ncbi request reprint Patient-reported autonomic symptoms in Parkinson disease
    D Verbaan
    Department of Neurology, Leiden University Medical Center, Leiden, The Netherlands
    Neurology 69:333-41. 2007
    ....
  16. ncbi request reprint Stability of patients' preferences for chemotherapy: the impact of experience
    S J Jansen
    Department of Clinical Oncology, Leiden University Medical Center, The Netherlands
    Med Decis Making 21:295-306. 2001
    ..However, other studies have found that utilities for a particular health state may differ between patient groups who are and who are not experiencing the particular health state (between-group differences)...
  17. pmc The impact of the perception of treatment choice on satisfaction with treatment, experienced chemotherapy burden and current quality of life
    S J T Jansen
    Department of Medical Decision Making, J10S, Leiden University Medical Center, PO Box 9600, 2300 RC Leiden, The Netherlands
    Br J Cancer 91:56-61. 2004
    ..In cases when the decision to be treated or not has potential consequences for the chance of survival, patients' QoL may not be improved by the perception of having had a choice of treatment...
  18. pmc Clinician and cancer patient views on patient participation in treatment decision-making: a quantitative and qualitative exploration
    A H Pieterse
    Department of Medical Decision Making, University Medical Center Leiden, Leiden, The Netherlands
    Br J Cancer 99:875-82. 2008
    ..Clinicians should acknowledge the legitimacy of patients' values in treatment decisions. Guidelines should recommend elicitation of patient values at specific decision points...
  19. doi request reprint Stability of preferences with regard to adjuvant chemotherapy: impact of treatment decision, experience and the passing of time
    S J T Jansen
    Department of Medical Decision Making, Leiden University Medical Center, Leiden, The Netherlands
    Eur J Cancer Care (Engl) 17:74-83. 2008
    ..We conclude that the frequently observed discrepancy in treatment preferences between experienced and inexperienced patients seems to be an effect of the treatment decision and not of experience of the treatment...
  20. pmc Patients' preferences for adjuvant chemotherapy in early-stage breast cancer: is treatment worthwhile?
    S J Jansen
    Department of Medical Decision Making, K6 R Leiden University Medical Center, PO Box 9600, 2300 RC Leiden, The Netherlands
    Br J Cancer 84:1577-85. 2001
    ....
  21. ncbi request reprint Patients' needs and preferences in routine follow-up for early breast cancer; an evaluation of the changing role of the nurse practitioner
    M van Hezewijk
    Departments of Radiation Oncology, Leiden University Medical Center, P O Box 9600, 2300 RC Leiden, The Netherlands
    Eur J Surg Oncol 37:765-73. 2011
    ..The aim of this study was to evaluate the effect of the introduction of nurse practitioners (NPs) in a breast cancer unit on patients' informational needs, preferences and attitude towards follow-up...
  22. pmc Value of the time trade off method for measuring utilities in patients with rheumatoid arthritis
    G J Tijhuis
    Department of Rheumatology, Leiden University Medical Centre, Leiden, The Netherlands
    Ann Rheum Dis 59:892-7. 2000
    ..To assess the feasibility, reliability, and validity of the time trade off (TTO) in patients with rheumatoid arthritis (RA)...
  23. ncbi request reprint Implicit normativity in evidence-based medicine: a plea for integrated empirical ethics research
    A C Molewijk
    Department of Medical Decision Making 1087, Leiden University Medical Center LUMC, P O Box 9600, 2300 RC Leiden, The Netherlands
    Health Care Anal 11:69-92. 2003
    ..e., a cooperation that goes beyond the discipline-specific epistemic values and that takes place during all phases of the research process...
  24. ncbi request reprint Patient preference for cancer therapy: an overview of measurement approaches
    A M Stiggelbout
    Department of Medical Decision Making, Leiden University Medical Center, Leiden, The Netherlands
    J Clin Oncol 19:220-30. 2001
    ..The purpose is to provide clinicians with the background knowledge needed to interpret preference studies published in the literature and to judge whether the reported findings are relevant to their own patients...
  25. ncbi request reprint The construction of standard gamble utilities
    Sylvie M C van Osch
    Department of Medical Decision Making, Leiden University Medical Center, Leiden, The Netherlands
    Health Econ 17:31-40. 2008
    ..SG utilities should be corrected for loss aversion and probability weighting with the mixed correction formula proposed by prospect theory. Scale compatibility will likely still bias SG utilities, calling for research on a correction...
  26. ncbi request reprint Adjuvant chemotherapy in node negative breast cancer: patterns of use and oncologists' preferences
    A M Stiggelbout
    Department of Medical Decision Making, Leiden University Medical Center, The Netherlands
    Ann Oncol 11:631-3. 2000
    ..After the first presentations of the 10-year EBCTCG results, a study was carried out in the Netherlands to assess patterns of care and to obtain the views of oncologists as to what constitutes a worthwhile benefit from treatment...
  27. ncbi request reprint The effect of individually assessed preference weights on the relationship between holistic utilities and nonpreference-based assessment
    S J Jansen
    Department of Medical Decision Making, Leiden University Medical Center, Leiden, The Netherlands
    Qual Life Res 9:541-57. 2000
    ..In this study, assigning individually assessed preference weights to self-reported level of functioning did not result in stronger relationships with utilities...
  28. ncbi request reprint Missing forms and dropout in the TME quality of life substudy
    H Putter
    Department of Medical Statistics, Leiden University Medical Centre, Leiden, The Netherlands
    Qual Life Res 14:857-65. 2005
    ..We study patterns of dropout and evaluate the impact of missing forms in the TME QOL substudy...
  29. ncbi request reprint Factors affecting patients' perceptions of choice regarding adjuvant chemotherapy for breast cancer
    Sylvia J T Jansen
    Department of Medical Decision Making, Leiden University Medical Center, Leiden, The Netherlands
    Breast Cancer Res Treat 99:35-45. 2006
    ..Our purpose was to explore (1) whether early-stage breast cancer patients perceived to have had a choice with regard to adjuvant chemotherapy, and (2) their reasons for having perceived no choice...
  30. pmc Benefit from preoperative radiotherapy in rectal cancer treatment: disease-free patients' and oncologists' preferences
    A H Pieterse
    Department of Medical Decision Making, University Medical Center Leiden, Leiden, The Netherlands
    Br J Cancer 97:717-24. 2007
    ..Oncologists should adequately inform their patients about the risks and benefits of PRT, and elicit patient preferences regarding treatment outcomes...
  31. doi request reprint Risk factors for sexual dysfunction after rectal cancer treatment
    M M Lange
    Department of Surgery, Leiden University Medical Center, K6 R, P O Box 9600, 2300 RC Leiden, The Netherlands
    Eur J Cancer 45:1578-88. 2009
    ..Patients should be informed preoperatively, and education of surgeons in neuroanatomy may provide the key to the improvement of functional outcome...
  32. pmc Patient's needs and preferences in routine follow-up after treatment for breast cancer
    G H de Bock
    Department of Medical Decision Making, Leiden University Medical Center, Leiden, The Netherlands
    Br J Cancer 90:1144-50. 2004
    ....
  33. ncbi request reprint Cost-effectiveness analysis of colorectal cancer treatments
    W B van den Hout
    Department of Medical Decision Making, Leiden University Medical Center, PO Box 9600, 2300 RC, Leiden, The Netherlands
    Eur J Cancer 38:953-63. 2002
    ..To gain credibility, the methodology applied in CEAs must be further improved. Costs are rarely estimated from the societal perspective, and little is known about how colorectal patients value their treatment and health...
  34. ncbi request reprint Cost-utility analysis of preoperative radiotherapy in patients with rectal cancer undergoing total mesorectal excision: a study of the Dutch Colorectal Cancer Group
    Mandy Van Den Brink
    Department of Medical Decision Making, J10 S, Leiden University Medical Center, PO Box 9600, 2300 RC Leiden, The Netherlands
    J Clin Oncol 22:244-53. 2004
    ..To compare the societal costs and the (quality-adjusted) life expectancy of patients with rectal cancer undergoing total mesorectal excision (TME) with or without short-term preoperative radiotherapy (5 x 5 Gy)...
  35. ncbi request reprint Evaluation of the hospital anxiety and depression scale in patients with Parkinson's disease
    Johan Marinus
    Department of Neurology, Leiden University Medical Center, The Netherlands
    Clin Neuropharmacol 25:318-24. 2002
    ..5 and 16.9. The psychometric performance of the HADS in patients with PD is satisfactory. In addition, almost 50% of the patients displayed symptoms of anxiety, whereas nearly 40% showed signs of depression...
  36. ncbi request reprint The utility of health states after stroke: a systematic review of the literature
    P N Post
    Department of Medical Decision Making, Leiden University Medical Center, Netherlands
    Stroke 32:1425-9. 2001
    ..We reviewed the literature to obtain estimates of the utility of stroke and explored the impact of the study population and the elicitation method...
  37. ncbi request reprint Assessment of cognition in Parkinson's disease
    J Marinus
    Department of Neurology, Leiden University Medical Center, The Netherlands
    Neurology 61:1222-8. 2003
    ..To develop a short, practical instrument that is sensitive to the specific cognitive deficits in Parkinson's disease (PD) for comparing groups in research situations and for assessing change in cognitive functioning over time...
  38. pmc Health related quality of life in Parkinson's disease: a systematic review of disease specific instruments
    J Marinus
    Department of Neurology, Leiden University Medical Center, Leiden, The Netherlands
    J Neurol Neurosurg Psychiatry 72:241-8. 2002
    ..To compare and contrast disease-specific quality of life instruments in Parkinson's disease and assess their clinimetric properties...
  39. ncbi request reprint Responsiveness of impairments and disabilities in Parkinson's disease
    M Visser
    Department of Neurology, K5 Q 92, Leiden University Medical Centre, P O Box 9600, NL 2300 RC Leiden, The Netherlands
    Parkinsonism Relat Disord 12:314-8. 2006
    ..A more responsive ADL section would omit the self-assessed symptoms and the Motor section would retain only rest tremor arms of the tremor items...
  40. doi request reprint Evaluation of the treatment tradeoff method in rectal cancer patients: is surgery preference related to outcome utilities?
    Ercolie R Bossema
    Department of Clinical Oncology, Leiden University Medical Center, The Netherlands
    Med Decis Making 28:888-98. 2008
    ..Despite its wide use in oncology research, few methodological studies regarding validity have been conducted...
  41. doi request reprint Family communication matters: the impact of telling relatives about unclassified variants and uninformative DNA-test results
    Joël Vos
    Department of Clinical Genetics, Center for Human and Clinical Genetics, Leiden University Medical Center, Leiden, The Netherlands
    Genet Med 13:333-41. 2011
    ....
  42. doi request reprint Validation of the Pelvic Floor Inventories Leiden (PelFIs) in English
    Petra J Voorham-van der Zalm
    Department of Urology, Leiden University Medical Center, Leiden, The Netherlands
    Neurourol Urodyn 30:536-40. 2011
    ....
  43. ncbi request reprint First the facts, then the values? Implicit normativity in evidence-based decision aids for shared decision-making
    Bert Molewijk
    Department of Medical Decision Making, Leiden University Medical Center, The Netherlands
    Z Evid Fortbild Qual Gesundhwes 102:415-20. 2008
    ..Consequences for both the development of decision-aids and the practice of shared decision-making are discussed...
  44. doi request reprint Valuing health: does enriching a scenario lead to higher utilities?
    Yvette Peeters
    Leiden University Medical Centre, Department of Medical Decision Making, Leiden, The Netherlands
    Med Decis Making 29:334-42. 2009
    ....
  45. doi request reprint Methodologic evaluation of adaptive conjoint analysis to assess patient preferences: an application in oncology
    Arwen H Pieterse
    Department of Medical Decision Making, Leiden University Medical Center, Leiden, The Netherlands
    Health Expect 13:392-405. 2010
    ..ACA is increasingly applied in patient preferences assessments but formal evaluation of its validity and reliability is lacking...
  46. doi request reprint Adaptive Conjoint Analysis as individual preference assessment tool: feasibility through the internet and reliability of preferences
    Arwen H Pieterse
    Department of Medical Decision Making, University Medical Center Leiden, 2300 RCLeiden, The Netherlands
    Patient Educ Couns 78:224-33. 2010
    ..Adaptive Conjoint Analysis (ACA) is increasingly applied in studies assessing treatment preferences, and could provide a means to routinely assess individual patients' treatment preferences...
  47. pmc A whisper-game perspective on the family communication of DNA-test results: a retrospective study on the communication process of BRCA1/2-test results between proband and relatives
    Joël Vos
    Department of Clinical Genetics, Center for Human and Clinical Genetics, Leiden University Medical Center, Leiden, The Netherlands
    Fam Cancer 10:87-96. 2011
    ..More attention is required for how probands disseminate information to relatives. Genetic-counsellors may help by supporting the probands in communicating to relatives, e.g. by providing clear summary letters for relatives...
  48. ncbi request reprint Disentangling the Babylonian speech confusion in genetic counseling: an analysis of the reliability and validity of the nomenclature for BRCA1/2 DNA-test results other than pathogenic
    Joël Vos
    Department of Clinical Genetics, Center for Human and Clinical Genetics, Leiden University Medical Center, Leiden, The Netherlands
    Genet Med 11:742-9. 2009
    ..Therefore, we conducted a theoretical and empirical analysis of the terms most frequently used in articles between 2002 and 2007 for BRCA 1/2-test results other than pathogenic...
  49. ncbi request reprint Health state valuations of patients and the general public analytically compared: a meta-analytical comparison of patient and population health state utilities
    Yvette Peeters
    Department of Medical Decision Making, Leiden University Medical Centre, Leiden, The Netherlands
    Value Health 13:306-9. 2010
    ..Until now, it remains unclear if the respondent group has an influence on the values obtained. We assessed this issue through meta-analysis...
  50. ncbi request reprint Impact of short-term preoperative radiotherapy on health-related quality of life and sexual functioning in primary rectal cancer: report of a multicenter randomized trial
    Corrie A M Marijnen
    Department of Clinical Oncology, Leiden University Medical Center, K1 P, PO Box 9600, 2300 RC Leiden, The Netherlands
    J Clin Oncol 23:1847-58. 2005
    ..This report describes the HRQL and sexual functioning of 990 patients who underwent TME and were randomly assigned to short-term PRT (5 x 5 Gy)...
  51. ncbi request reprint Correcting biases in standard gamble and time tradeoff utilities
    Sylvie M C van Osch
    Leiden University Medical Center, Department of Medical Decision Making, J10 S, PO Box 9600, 2300 RC Leiden, The Netherlands
    Med Decis Making 24:511-7. 2004
    ..TheTTOscores are higher than the theoretically most preferred correction of the SG, the mixed correction. These findings suggest that uncorrected SG scores, which are higher than TTO scores, are too high...
  52. ncbi request reprint Assessment of autonomic dysfunction in Parkinson's disease: the SCOPA-AUT
    Martine Visser
    Department of Neurology, Leiden University Medical Center, Leiden, The Netherlands
    Mov Disord 19:1306-12. 2004
    ..We conclude that SCOPA-AUT is a reliable and valid questionnaire that evaluates autonomic dysfunction in PD...
  53. ncbi request reprint Assessing comorbidity in patients with Parkinson's disease
    Martine Visser
    Department of Neurology of the Leiden University Medical Center, Leiden, The Netherlands
    Mov Disord 19:824-8. 2004
    ..40 (moderate agreement). The comorbidity summary scores had a moderate correlation with age and disability. The interview-based assessment of the CIRS-G is easy to apply and is an accurate method to assess comorbidity in patients with PD...
  54. ncbi request reprint The impact of diagnosis and treatment of rectal cancer on paid and unpaid labor
    Mandy Van Den Brink
    Department of Medical Decision Making, Leiden University Medical Center, Leiden, The Netherlands
    Dis Colon Rectum 48:1875-82. 2005
    ....
  55. ncbi request reprint Understanding VAS valuations: qualitative data on the cognitive process
    Sylvie M C van Osch
    Department of Medical Decision Making, Leiden University Medical Center, RC, The Netherlands
    Qual Life Res 14:2171-5. 2005
    ..Thus, awareness of approach may improve reliability. Reducing the number of health states to be valued concurrently diminishes the complexity of the task; this may enhance the validity of the VAS...
  56. ncbi request reprint Reliability and validity of the Beck depression inventory in patients with Parkinson's disease
    Martine Visser
    Department of Neurology, Leiden University Medical Center, Leiden, and Deparment of Psychiatry, Maastricht University Hospital, The Netherlands
    Mov Disord 21:668-72. 2006
    ..The smallest real difference was 3.3 for the total BDI. The BDI is a valid, reliable, and potential responsive instrument to assess the severity of depression in PD. However, an adjusted cutoff is recommended...
  57. ncbi request reprint Effects of magnetic stimulation in the treatment of pelvic floor dysfunction
    Petra J Voorham-van der Zalm
    Department of Urology, Leiden University Medical Center, The Netherlands
    BJU Int 97:1035-8. 2006
    ..To correlate, in a pilot study, the clinical results of extracorporeal magnetic innervation therapy (ExMI) of the pelvic floor muscles with functional changes in the pelvic floor musculature, urodynamics and quality of life...
  58. ncbi request reprint A short psychosocial questionnaire for patients with Parkinson's disease: the SCOPA-PS
    Johan Marinus
    Department of Neurology, Leiden University Medical Center K5 Q 92, P O Box 9600, NL 2300 RC Leiden, The Netherlands
    J Clin Epidemiol 56:61-7. 2003
    ..The summary index revealed a significant increase with increasing disease severity. The SCOPA-PS is a new, short psychosocial questionnaire for patients with PD with good clinimetric properties...
  59. ncbi request reprint Development and validation of the pelvic floor inventories Leiden (PelFIs)
    Petra J Voorham-van der Zalm
    Department of Urology, Leiden University Medical Center, Leiden, The Netherlands
    Neurourol Urodyn 27:301-5. 2008
    ....
  60. ncbi request reprint Assessment of psychiatric complications in Parkinson's disease: The SCOPA-PC
    Martine Visser
    Department of Neurology, Leiden University Medical Center, Leiden, The Netherlands
    Mov Disord 22:2221-8. 2007
    ..49. In conclusion, the SCOPA-PC is a reliable, valid, and easily-administered semistructured questionnaire for both psychotic and compulsive complications in PD...
  61. ncbi request reprint Review of determinants of patients' preferences for adjuvant therapy in cancer
    Sylvia J T Jansen
    Department of Medical Decision Making, Leiden University Medical Center, PO Box 9600, 2300 RC Leiden, The Netherlands
    J Clin Oncol 22:3181-90. 2004
    ..However, little is known about the determinants that influence these preferences. Our research goal was to explore which determinants underlie patients' preferences by means of a literature review...
  62. ncbi request reprint Evaluation of the Dutch version of the Parkinson's Disease Questionnaire 39
    Johan Marinus
    Department of Neurology, Leiden University Medical Center, Leiden, The Netherlands
    Parkinsonism Relat Disord 14:24-7. 2008
    ..We conclude that the PDQ39-DV displays satisfactory psychometric properties and is an appropriate instrument to assess quality of life in Dutch patients with PD...
  63. ncbi request reprint High dose chemotherapy and hematopoietic stem cell transplantation: a study of treatment preference in patients with rheumatoid arthritis and rheumatologists
    Robert J Verburg
    Department of Rheumatology, Leiden University Medical Center, The Netherlands
    J Rheumatol 29:1653-8. 2002
    ....
  64. ncbi request reprint Exploring the reference point in prospect theory: gambles for length of life
    Sylvie M C van Osch
    Department of Medical Decision Making, Leiden University Medical Center, J10 S, PO Box 9600, 2300 RC Leiden, Netherlands
    Med Decis Making 26:338-46. 2006
    ..This relationship is more apparent for the near future as opposed to the remote future, as goals are mostly set for the near future...
  65. ncbi request reprint Intramuscular or combined intramuscular/intra-arterial administration of bone marrow mononuclear cells: a clinical trial in patients with advanced limb ischemia
    R B Van Tongeren
    Department of Surgery, Leiden University Medical Center, Leiden, The Netherlands
    J Cardiovasc Surg (Torino) 49:51-8. 2008
    ..The aim of this study was to evaluate feasibility, safety and effect of exclusive IM versus combined IM+IA delivery of autologous BMC in patients who were not candidates for surgical or endovascular treatment...
  66. doi request reprint Professionals' opinion on follow-up in breast cancer patients; perceived purpose and influence of patients' risk factors
    M van Hezewijk
    Department of Radiation Oncology, Leiden University Medical Center, The Netherlands
    Eur J Surg Oncol 37:217-24. 2011
    ..The study focuses on current practice, purpose and perceived effects, and preferred frequency and duration of follow-up...
  67. ncbi request reprint What is the impact of fecal incontinence on quality of life?
    J Rothbarth
    Department of Gastrointestinal Surgery, Leiden University Medical Center, Leiden, The Netherlands
    Dis Colon Rectum 44:67-71. 2001
    ..The objective of this study was to determine at what point fecal incontinence affects quality of life...
  68. ncbi request reprint Clinical relevance of quality of life outcome in cochlear implantation in postlingually deafened adults
    Willem Martin C Klop
    ENT Department, Leiden University Medical Centre, Leiden, The Netherlands
    Otol Neurotol 29:615-21. 2008
    ..To evaluate the benefits of cochlear implantation in postlingually deafened adults and estimate the clinical relevance of these benefits...
  69. ncbi request reprint Cost measurement in economic evaluations of health care: whom to ask?
    Mandy Van Den Brink
    Department of Medical Decision Making, Leiden University Medical Center, Leiden, The Netherlands
    Med Care 42:740-6. 2004
    ....
  70. ncbi request reprint Treatment preferences and involvement in treatment decision making of patients with endometrial cancer and clinicians
    M Kunneman
    Leiden University Medical Center, Department of Medical Decision Making, P O Box 9600, 2300 RC Leiden, The Netherlands
    Br J Cancer 111:674-9. 2014
    ..Our aim was to assess treatment preferences of EC patients and clinicians regarding VBT and WWP, and to evaluate their preferred and perceived involvement in treatment decision making...
  71. doi request reprint Perceiving cancer-risks and heredity-likelihood in genetic-counseling: how counselees recall and interpret BRCA 1/2-test results
    J Vos
    Department of Clinical Genetics, Center for Human and Clinical Genetics, Leiden University Medical Center, Leiden, The Netherlands
    Clin Genet 79:207-18. 2011
    ..Genetic counsellors should explicitly address the counsellees' recollections and interpretations, and be aware of possible inaccuracies...
  72. pmc A short scale for the assessment of motor impairments and disabilities in Parkinson's disease: the SPES/SCOPA
    J Marinus
    Department of Neurology, Leiden University Medical Center, Leiden, The Netherlands
    J Neurol Neurosurg Psychiatry 75:388-95. 2004
    ..To evaluate the reliability and validity of the Short Parkinson's Evaluation Scale (SPES)/SCales for Outcomes in Parkinson's disease (SCOPA)-a short scale developed to assess motor function in patients with Parkinson's disease (PD)...
  73. ncbi request reprint Activity-based diary for Parkinson's disease
    Johan Marinus
    Department of Neurology, Leiden University Medical Center, Leiden, The Netherlands
    Clin Neuropharmacol 25:43-50. 2002
    ....
  74. ncbi request reprint Preoperative risk information and patient involvement in surgical treatment for rectal and sigmoid cancer
    H S Snijders
    Department of Surgery, Leiden University Medical Centre, Leiden, The Netherlands
    Colorectal Dis 16:O43-9. 2014
    ..In addition, we assessed surgeons' attitudes towards SDM and compared these with patient involvement...
  75. pmc Cognitive impairment in Parkinson's disease
    D Verbaan
    Department of Neurology, K5Q 92, Leiden University Medical Centre, PO Box 9600, NL 2300 RC Leiden, The Netherlands
    J Neurol Neurosurg Psychiatry 78:1182-7. 2007
    ..In this study, a reliable and valid instrument, the SCales for Outcomes in PArkinson's disease-COGnition (SCOPA-COG), was used...
  76. ncbi request reprint Clinical nature and prognosis of locally recurrent rectal cancer after total mesorectal excision with or without preoperative radiotherapy
    Mandy Van Den Brink
    Department of Medical Decision Making, Leiden University Medical Center, PO Box 9600, 2300 RC Leiden, The Netherlands
    J Clin Oncol 22:3958-64. 2004
    ....
  77. ncbi request reprint Cochlear implant outcomes and quality of life in adults with prelingual deafness
    W Martin C Klop
    ENT Department, Leiden University Medical Centre, Leiden, The Netherlands
    Laryngoscope 117:1982-7. 2007
    ..To evaluate sound and speech perception and quality of life in prelingually deafened adults implanted with state of the art devices. To investigate which patient factors influence postoperative performance...
  78. ncbi request reprint Self-reports of health-care utilization: diary or questionnaire?
    Mandy Van Den Brink
    Leiden University Medical Center, The Netherlands
    Int J Technol Assess Health Care 21:298-304. 2005
    ..The feasibility and convergent validity of a cost diary and a cost questionnaire was investigated...
  79. ncbi request reprint Choice-based evaluation for the improvement of upper-extremity function compared with other impairments in tetraplegia
    Govert J Snoek
    Spinal Cord Injury Department, Roessingh Rehabilitation Centre, Enschede, The Netherlands Research and Development Department, Roessingh Rehabilitation Centre, Enschede, The Netherlands
    Arch Phys Med Rehabil 86:1623-30. 2005
    ....
  80. ncbi request reprint What you may learn from the Dutch experience
    Mandy Van Den Brink
    J Clin Oncol 23:3632-3; author reply 3633-4. 2005
  81. ncbi request reprint Health state classification systems: how comparable are our cost-effectiveness ratios?
    Anne M Stiggelbout
    Med Decis Making 26:223-5. 2006