Research Topics
| Agnes van der HeideSummaryAffiliation: Erasmus MC Country: The Netherlands Publications
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Detail Information
Publications
End-of-life decision-making in six European countries: descriptive studyAgnes van der Heide
Erasmus MC, University Medical Center Rotterdam, Department of Public Health, Rotterdam, Netherlands
Lancet 362:345-50. 2003..We aimed to investigate frequency and characteristics of end-of-life decision-making practices in six European countries: Belgium, Denmark, Italy, the Netherlands, Sweden, and Switzerland...
[Fourth evaluation of the law on the review of termination of life on request and assisted suicide (Euthanasia Act)]A van der Heide
Erasmus MC, afd Maatschappelijke Gezondheidszorg, Rotterdam
Ned Tijdschr Geneeskd 149:2187-9. 2005..It is expected that this study, by providing up-to-date information on and insight into end-of-life care in the Netherlands, will do the same...
End-of-life decision making for cancer patients in different clinical settings and the impact of the LCPAgnes van der Heide
Department of Public Health, Erasmus Medical Center, 3000 CA Rotterdam, The Netherlands
J Pain Symptom Manage 39:33-43. 2010..The LCP has an impact on the use of potentially life-shortening medication during the dying phase. Communication about medical decision making tends to be better in the nursing home and at home...
End-of-life practices in the Netherlands under the Euthanasia ActAgnes van der Heide
Department of Public Health, Erasmus Medical Center, Rotterdam, Netherlands
N Engl J Med 356:1957-65. 2007..In 2005, we performed a follow-up study of euthanasia, physician-assisted suicide, and other end-of-life practices...
Medical and nonmedical determinants of decision making about potentially life-prolonging interventionsAgnes van der Heide
Department of Public Health, Erasmus MC, University Medical Center Rotterdam, P O Box 1738, 3000 DR Rotterdam, The Netherlands
Med Decis Making 24:518-24. 2004..Medical decision making is not exclusively based on empirical evidence but also related to morally complex issues such as patient age and social status...
Dying at home or in an institution: perspectives of Dutch physicians and bereaved relativesAgnes van der Heide
Department of Public Health, Erasmus MC, University Medical Center Rotterdam, P O Box 2040, 3000 CA, Rotterdam, The Netherlands
Support Care Cancer 15:1413-21. 2007..Previous studies have shown that most people prefer to die at their own home. We investigated whether physicians or bereaved relatives in retrospect differently appreciate the dying of patients in an institution or at home...
Using drugs to end life without an explicit request of the patientJudith A C Rietjens
Erasmus MC, University Medical Center Rotterdam, Department of Public Health, Erasmus MC, P O Box 2040, 3000CA Rotterdam, The Netherlands
Death Stud 31:205-21. 2007..The use of drugs with the intention to hasten death without an explicit request of the patient is part of medical end-of-life practice in the studied countries, regardless of their legal framework, and it occurs in similar fashion...
Continuous palliative sedation for cancer and noncancer patientsSiebe J Swart
Department of Public Health, Erasmus Medical Center, Rotterdam, The Netherlands
J Pain Symptom Manage 43:172-81. 2012..Palliative care is often focused on cancer patients. Palliative sedation at the end of life is an intervention to address severe suffering in the last stage of life...
Using the LCP: bereaved relatives' assessments of communication and bereavementLaetitia Veerbeek
Department of Public Health, Erasmus MC, University Medical Center Rotterdam, Rotterdam, The Netherlands
Am J Hosp Palliat Care 25:207-14. 2008..01). Communication was evaluated similarly for both periods. We conclude that LCP use during the dying phase seems to moderately contribute to lower levels of bereavement in relatives...
[End-of-life decision making in six European countries]Agnes van der Heide
Erasmus MC, University Medical Center, Rotterdam, Department of Public Health,
Lakartidningen 100:2434-9. 2003
[End-of-life decision making in six European countries]Agnes van der Heide
Department of Public Health, Erasmus MC, University Medical Center Rotterdam
Ugeskr Laeger 166:156-9. 2004
Medical end-of-life decisions for children in the NetherlandsAstrid M Vrakking
Department of Public Health, Erasmus MC and Erasmus MC Sophia, Children s Hospital, University Medical Center Rotterdam, Rotterdam, The Netherlands
Arch Pediatr Adolesc Med 159:802-9. 2005..Most end-of-life decision-making studies have, until now, involved either the general population or newborn infants...
Preferences of the Dutch general public for a good death and associations with attitudes towards end-of-life decision-makingJudith A C Rietjens
Department of Public Health, University Medical Center Rotterdam, Rotterdam, The Netherlands
Palliat Med 20:685-92. 2006..Insight in the relationships of such acceptance, with characteristics considered important for a 'good death', may contribute to the understanding of this liberal attitude...
Considerations of physicians about the depth of palliative sedation at the end of lifeSiebe J Swart
Department of Public Health, Erasmus MC, Rotterdam, Netherlands
CMAJ 184:E360-6. 2012..Although guidelines advise titration of palliative sedation at the end of life, in practice the depth of sedation can range from mild to deep. We investigated physicians' considerations about the depth of continuous sedation...
Striving for quality or length at the end-of-life: attitudes of the Dutch general publicJudith A C Rietjens
Erasmus MC, University Medical Center Rotterdam, Department of Public Health, The Netherlands
Patient Educ Couns 59:158-63. 2005..The latter was related to undertaking initiatives to engage in advance care planning. Awareness of differences in attitudes towards life-prolonging treatment within the public may improve communication about appropriate end-of-life care...
Patient evaluation of end-of-life careElsbeth de Vogel-Voogt
Erasmus MC, University Medical Center Rotterdam, Department of Public Health, Rotterdam, The Netherlands
Palliat Med 21:243-8. 2007..We conclude that comprehensive and interdisciplinary end-of-life care may address patients' needs, but that it simultaneously is a challenge to optimal communication among disciplines and between caregivers and the patient...
Requests to forgo potentially life-prolonging treatment and to hasten death in terminally ill cancer patients: a prospective studyJean Jacques Georges
Department of Public and Occupational Health, Erasmus University Medical Center, Rotterdam, The Netherlands
J Pain Symptom Manage 31:100-10. 2006..The results emphasize the importance of gaining insight into the patients' suffering to provide meaningful assistance...
The effect of the Liverpool Care Pathway for the dying: a multi-centre studyLaetitia Veerbeek
Department of Public Health, Erasmus MC, University Medical Center Rotterdam, The Netherlands
Palliat Med 22:145-51. 2008..LCP use contributes to the quality of documentation and symptom control...
Forgoing artificial nutrition or hydration in patients nearing death in six European countriesHilde M Buiting
Department of Public Health, Erasmus MC, University Medical Center Rotterdam, Rotterdam, The Netherlands
J Pain Symptom Manage 34:305-14. 2007..Providing all patients who are in the terminal stage of a lethal disease with ANH does not seem to be a widely accepted standard among physicians in Western Europe...
Discussing prognosis with terminally ill cancer patients and relatives: a survey of physicians' intentions in seven countriesJennifer Voorhees
Department of Public Health, Erasmus University Medical Center, Rotterdam, The Netherlands
Patient Educ Couns 77:430-6. 2009..To determine the extent to which physicians in different countries intend to inform terminal patients and relatives about prognosis, and to identify physician characteristics associated with an active approach to such discussions...
Presence, communication and treatment of fatigue and pain complaints in incurable cancer patientsSusan Collins
Department of Public Health, Erasmus MC, University Medical Center Rotterdam, Rotterdam, The Netherlands
Patient Educ Couns 72:102-8. 2008..This study describes the experiences of fatigue and pain in incurable cancer patients and the treatment they receive...
Terminal sedation and euthanasia: a comparison of clinical practicesJudith A C Rietjens
Department of Public Health, Erasmus MC, University Medical Center Rotterdam, Rotterdam, The Netherlands
Arch Intern Med 166:749-53. 2006..An important issue in the debate about terminal sedation is the extent to which it differs from euthanasia. We studied clinical differences and similarities between both practices in the Netherlands...
End-of-life decision making in neonates and infants: comparison of The Netherlands and Belgium (Flanders)Astrid M Vrakking
Department of Public Health, Erasmus MC, University Medical Center Rotterdam, The Netherlands
Acta Paediatr 96:820-4. 2007..We compared the results of two recent studies on end-of-life decisions (ELDs) for neonates and infants in Belgium (Flanders) and The Netherlands...
A comparison of physicians' end-of-life decision making for non-western migrants and Dutch natives in the NetherlandsHilde M Buiting
Department of Public Health, Erasmus MC, Rotterdam, The Netherlands
Eur J Public Health 18:681-7. 2008..As the first wave of this relatively young group is growing older, we investigated, for the first time, whether end-of-life decision-making practices for non-western migrants differ from Dutch natives...
Reporting of euthanasia and physician-assisted suicide in the Netherlands: descriptive studyHilde Buiting
Department of Public Health, Erasmus MC, University Medical Center Rotterdam, Rotterdam, The Netherlands
BMC Med Ethics 10:18. 2009..We studied which arguments Dutch physicians use to substantiate their adherence to the criteria and which aspects attract review committees' attention...
Considerations of healthcare professionals in medical decision-making about treatment for clinical end-stage cancer patientsAnna F van Leeuwen
Department of Public Health, Erasmus MC, University Medical Center Rotterdam, The Netherlands
J Pain Symptom Manage 28:351-5. 2004..When healthcare professionals establish that a decision would be medically appropriate, the patient's wish will often be an important consideration...
Medical decision-making for seriously ill non-elderly and elderly patientsAstrid M Vrakking
Department of Public Health, Erasmus MC, Rotterdam, The Netherlands
Health Policy 75:40-8. 2005..Our study aimed to increase the insight in medical decision-making about life-prolonging interventions for patients from non-elderly and elderly age groups...
Physician reports of terminal sedation without hydration or nutrition for patients nearing death in the NetherlandsJudith A C Rietjens
Department of Public Health, Erasmus MC, Rotterdam, The Netherlands
Ann Intern Med 141:178-85. 2004..Terminal sedation in patients nearing death is an important issue related to end-of-life care...
Does recognition of the dying phase have an effect on the use of medical interventions?Laetitia Veerbeek
Department of Public Health, Erasmus MC, University Medical Center, Rotterdam, The Netherlands
J Palliat Care 24:94-9. 2008..57%) (p = 0.00). Therapeutic interventions were used in similar frequencies in both groups. We conclude that recognition of the dying phase reduces the number of undesirable diagnostic interventions...
Physicians' willingness to grant requests for assistance in dying for children: a study of hypothetical casesAstrid M Vrakking
Department of Public Health, Room Ee2079, Erasmus MC, University Medical Center, PO Box 1738, 3000 DR Rotterdam, The Netherlands
J Pediatr 146:611-7. 2005..To study the willingness of Dutch physicians to use potentially life-shortening or lethal drugs for severely ill children...
Medical end-of-life decisions made for neonates and infants in the Netherlands, 1995-2001Astrid M Vrakking
Department of Public Health, Erasmus MC, University Medical Centre Rotterdam, Netherlands
Lancet 365:1329-31. 2005..Decisions to actively end the lives of infants not dependent on life-sustaining treatment remained stable at 1%. The practice of end-of-life decision-making in neonatology of 2001 has changed little since 1995...
Palliative sedation in a specialized unit for acute palliative care in a cancer hospital: comparing patients dying with and without palliative sedationJudith A C Rietjens
Department of Public Health, Erasmus MC, Rotterdam, The Netherlands
J Pain Symptom Manage 36:228-34. 2008....
A comparison of attitudes towards end-of-life decisions: survey among the Dutch general public and physiciansJudith A C Rietjens
Department of Public Health, Erasmus MC, University Medical Center Rotterdam, P O Box 1738, 3000 DR Rotterdam, The Netherlands
Soc Sci Med 61:1723-32. 2005..Continued monitoring of practices and informing the general public and policymakers about the clinical and ethical consequences of different types of end-of-life decisions is important...
Regulating physician-assisted dying for minors in the Netherlands: views of paediatricians and other physiciansAstrid M Vrakking
Department of Public Health, Erasmus MC, University Medical Center Rotterdam, Rotterdam, The Netherlands
Acta Paediatr 96:117-21. 2007..The objective of our study was to gain insight into how Dutch paediatricians and other physicians treating children feel about the regulation of physician-assisted dying...
Information needs of patients with incurable cancerElsbeth Voogt
Department of Public Health, Erasmus MC, University Medical Center Rotterdam, PO Box 1738, 3000 Rotterdam, The Netherlands
Support Care Cancer 13:943-8. 2005..The aims of this study were to describe to what extent cancer patients with incurable cancer report to have been informed about disease-related topics and how they evaluate the quality of the information giving...
The last 3 days of life in three different care settings in The NetherlandsLaetitia Veerbeek
Department of Public Health, Erasmus MC, University Medical Center Rotterdam, P O Box 2040, 3000 CA, Rotterdam, The Netherlands
Support Care Cancer 15:1117-23. 2007..Little is known about the characteristics of dying in different care settings, such as the hospital, the nursing home, or the home-care setting...
Impact of decision-making in a multidisciplinary perinatal teamHilmar H Bijma
Department of Obstetrics and Gynaecology, Erasmus MC, University Medical Centre Rotterdam, The Netherlands
Prenat Diagn 27:97-103. 2007..3) To evaluate the impact of the team discussions on the arguments used by physicians for their preferences concerning management...
Issues and needs in end-of-life decision making: an international modified Delphi studyNatasja J H Raijmakers
Department of Public Health, Erasmus MC, Rotterdam, The Netherlands
Palliat Med 26:947-53. 2012..end-of-life decision making is an important aspect of end-of-life care that can have a significant impact on the process of dying and patients' comfort in the last days of life...
Awareness of dying: it needs wordsMartine E Lokker
Department of Public Health, Erasmus Medical Centre, PO Box 2040, 3000 CA, Rotterdam, The Netherlands
Support Care Cancer 20:1227-33. 2012....
Variation in attitudes towards artificial hydration at the end of life: a systematic literature reviewNatasja J H Raijmakers
Department of Public Health, Erasmus MC, Rotterdam, The Netherlands
Curr Opin Support Palliat Care 5:265-72. 2011..The aim of this review was to give an overview of currently available evidence around opinions and attitudes towards artificial hydration at the end of life...
Parental decision-making after ultrasound diagnosis of a serious foetal abnormalityHilmar H Bijma
Department of Public Health, Erasmus MC University Hospital Rotterdam, Rotterdam, The Netherlands
Fetal Diagn Ther 20:321-7. 2005....
Attitudes of patients with incurable cancer toward medical treatment in the last phase of lifeElsbeth Voogt
Department of Public Health, Erasmus MC, University Medical Center Rotterdam, P O Box 1738, 3000 DR Rotterdam, The Netherlands
J Clin Oncol 23:2012-9. 2005..We studied the relationship of patients' attitudes toward treatment with advance care planning and the development of these attitudes after diagnosis of incurable cancer...
Audit of the Liverpool Care Pathway for the Dying Patient in a Dutch cancer hospitalLaetitia Veerbeek
Department of Public Health, Erasmus MC, University Medical Centre, Rotterdam, The Netherlands
J Palliat Care 22:305-8. 2006
Doctor-assisted dying: what difference does legalisation make?Agnes van der Heide
Department of Public Health, Erasmus MC, University Medical Centre, Rotterdam, The Netherlands
Lancet 364:s24-5. 2004
Artificial nutrition and hydration for patients with advanced dementia: perspectives from medical practitioners in the Netherlands and AustraliaHilde M Buiting
Department of Public Health, Erasmus MC, Rotterdam, The Netherlands
Palliat Med 25:83-91. 2011..Combining the Dutch comprehensive approach and the Australian analytic approach may serve the interest of patients and their families best...
Psychiatric consultation with regard to requests for euthanasia or physician-assisted suicideJohanna H Groenewoud
Department of Public Health, Erasmus MC, University Medical Center Rotterdam, P O Box 1738, 3000 DR, Rotterdam, The Netherlands
Gen Hosp Psychiatry 26:323-30. 2004..The issue of psychiatric consultation with regard to requests for physician-assisted death, especially in patients with a physical disease, needs to be further addressed...
Decision-making after ultrasound diagnosis of fetal abnormalityHilmar H Bijma
Department of Obstetrics and Gynaecology, Erasmus University Medical Centre, Rotterdam, Netherlands
Reprod Health Matters 16:82-9. 2008..These complex parental reactions have implications for the counselling strategy...
[Palliative sedation largely in accordance with Dutch national guideline]Siebe J Swart
Erasmus Medisch Centrum, Rotterdam, Netherlands
Ned Tijdschr Geneeskd 155:A2857. 2011..To evaluate the practice of continuous palliative sedation after the introduction of a national guideline...
Dutch experience of monitoring active ending of life for newbornsHilde M Buiting
Erasmus MC, Department of Public Health, University Medical Center Rotterdam, Rotterdam 3000 CA, The Netherlands
J Med Ethics 36:234-7. 2010..To date, however, only one case has been reported to this committee. Reporting is essential to obtain societal control and transparency; the possible explanations for this lack of reporting were therefore explored...
[Sharp upturn of life expectancy in the Netherlands: effect of increased healthcare for the elderly]Johan P Mackenbach
Erasmus MC, afd Maatschappelijke Gezondheidszorg, Rotterdam, The Netherlands
Ned Tijdschr Geneeskd 156:A4535. 2012..To investigate the reasons behind the sharp upturn of life expectancy in the Netherlands around 2002...
Survival after non-aggressive obstetric management in cases of severe fetal anomalies: a retrospective studyHilmar H Bijma
Department of Public Health, Erasmus MC University Hospital, Rotterdam, The Netherlands
BJOG 112:1630-5. 2005..Eight infants survived; all with severe health problems. CONCLUSION: Life-sustaining neonatal support after non-aggressive obstetric management in the presence of severe fetal malformation has little impact on survival...
Continuous deep sedation for patients nearing death in the Netherlands: descriptive studyJudith Rietjens
Department of Public Health, Erasmus MC, PO Box 2040, 3000 CA Rotterdam, Netherlands
BMJ 336:810-3. 2008..To study the practice of continuous deep sedation in 2005 in the Netherlands and compare it with findings from 2001...
Having a difficult time leaving: experiences and attitudes of nurses with palliative sedationJudith A C Rietjens
Buehler Center on Aging, Health and Society, Northwestern University s Feinberg School of Medicine, Rotterdam, The Netherlands
Palliat Med 21:643-9. 2007..Palliative sedation is an important topic of medical and ethical debates. Although nurses often participate in its use, little is known about their attitudes and experiences...
Day-to-day care in palliative sedation: survey of nurses' experiences with decision-making and performanceJimmy J Arevalo
Department of Public Health, Erasmus MC, Rotterdam, The Netherlands
Int J Nurs Stud 50:613-21. 2013..Therefore, it is important to understand the experience of nurses in continuous palliative sedation...
The experiences of relatives with the practice of palliative sedation: a systematic reviewSophie M Bruinsma
Department of Public Health, Erasmus MC, Rotterdam, The Netherlands
J Pain Symptom Manage 44:431-45. 2012..Guidelines about palliative sedation typically include recommendations to protect the well-being of relatives...
Palliative sedation: reliability and validity of sedation scalesJimmy J Arevalo
Department of Anesthesiology, VU University Medical Center, Amsterdam, The Netherlands Department of Public Health, Erasmus MC, Rotterdam, The Netherlands
J Pain Symptom Manage 44:704-14. 2012..Observer-based sedation scales have been used to provide a measurable estimate of the comfort of nonalert patients in palliative sedation. However, their usefulness and appropriateness in this setting has not been demonstrated...
Ultrasound diagnosis of fetal anomalies: an analysis of perinatal management of 318 consecutive pregnancies in a multidisciplinary settingHilmar H Bijma
Department of Obstetrics and Gynaecology, Erasmus MC University Medical Centre, Rotterdam, The Netherlands
Prenat Diagn 24:890-5. 2004....
An ethical framework for the prevention of overweight and obesity: a tool for thinking through a programme's ethical aspectsMarieke ten Have
1 Department of Medical Ethics, Erasmus Medical Centre, Rotterdam, The Netherlands
Eur J Public Health 23:299-305. 2013..In this article, we present an ethical framework for facilitating a structured analysis to the extent to which a programme prevents overweight or obesity is ethically acceptable...
Sharp upturn of life expectancy in the Netherlands: effect of more health care for the elderly?Johan Pieter Mackenbach
Department of Public Health, Erasmus MC, University Medical Center Rotterdam, P O Box 2040, 3000 CA, Rotterdam, The Netherlands
Eur J Epidemiol 26:903-14. 2011....
News media coverage of euthanasia: a content analysis of Dutch national newspapersJudith A C Rietjens
Department of Public Health, Erasmus MC, PO Box 2040, Rotterdam, 3000 CA, The Netherlands
BMC Med Ethics 14:11. 2013..This study investigates whether Dutch newspaper articles use the term 'euthanasia' according to the legal definition and determines what arguments for and against euthanasia they contain...
Palliative sedation: a focus group study on the experiences of relativesSophie Bruinsma
Department of Public Health, Erasmus MC, Rotterdam, The Netherlands
J Palliat Med 16:349-55. 2013..Most studies that have investigated the practice of palliative sedation have focused on physicians' practices and attitudes...
An overview of ethical frameworks in public health: can they be supportive in the evaluation of programs to prevent overweight?Marieke ten Have
Department of Medical Ethics, Erasmus Medical Centre, Dr Molewaterplein 50, Rotterdam, The Netherlands
BMC Public Health 10:638. 2010..We give an overview of the purpose, form and contents of such public health frameworks and investigate to which extent they are useful for evaluating programs to prevent overweight and/or obesity...
