Marie Louise Essink-Bot

..To investigate the sources of cross-national variation in disability-adjusted life-years (DALYs) in the European Disability Weights Project...

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..This knowledge should be used during surveillance appointments in order to improve and individualise support for these women...

..71 to.72). The data support the feasibility and reliability of mailed HUI3 valuation questionnaires to a considerable extent, but further methodological studies regarding other formats and different populations are recommended...

..To assess ethnic differences in participation in prenatal screening for Down syndrome in the Netherlands...

..Anxiety and distress may be present in patients with low risk prostate cancer who are on active surveillance. This may be a reason to discontinue active surveillance...

..The objective of this study was to assess ethnic and socio-economic differences in the uptake of maternal age-based prenatal diagnostic testing for Down's syndrome by amniocentesis or chorionic villus sampling...

..We report on a large follow-up study in a comprehensive population of injury patients...

..Evaluating the information provision procedure about prenatal screening for Down syndrome, using informed decision-making as a quality-indicator...

..Scores of both patient groups remained above those of norm populations. Innovative graphs describing disease-specific and generic functions after treatment can help patients and physicians in their treatment choices...

..Being at hereditary risk of breast cancer (BC) may lead to elevated levels of distress because of the impact of the BC-process in relatives...

..The first group appeared to be sexually active more frequently and had less erectile dysfunction. The study was non-randomized. No other studies exist on the effect of active surveillance on sexual function vs other treatment methods...

..This study evaluates the effectiveness of a web-based health risk assessment with individually-tailored feedback on lifestyle behaviour, conducted in a worksite setting...

..Men with prostate cancer (PC) may show specific disease-related anxiety. We evaluated the psychometric properties of the Dutch adaptation of the Memorial Anxiety Scale for Prostate Cancer (MAX-PC)...

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..To evaluate ethnic differences in considerations whether or not to participate in prenatal screening for Down syndrome and to relate these to differences in participation...

..We investigated the determinants of patients' reported burden of upper gastrointestinal (GI) endoscopy by comparing data from three patient groups...

..To assess the prevalence and the prognostic factors of disabilities after minor and major childhood injuries and to analyze which sociodemographic and injury-related factors are predictive for suboptimal functioning in the long term...

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..uroweb.org) was developed. This risk indicator is embedded in a leaflet that informs men about the pros and cons of PCa screening and enables calculation of the individual risk of having a biopsy detectable PCa...

..Study Type - Survey (prospective cohort) Level of Evidence 1b...

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..This study assessed the feasibility, reliability, and validity of the 28 item short child health questionnaire parent form (CHQ-PF28) containing the same 13 scales, but only a subset of the items in the widely used 50 item CHQ-PF50...

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..In the current study, the authors assessed the discomfort associated with CT scanning and the subsequent wait for results and health-related quality of life (HRQoL) over time...

..The collection of empirical data on the frequency, severity, and duration of functioning is a prerequisite to identify patient groups with long term or permanent disability...

..This is the first study in cancer screening to explore this association in subjects participating in a lung cancer computed tomography (CT) screening trial...

..The aim of this study was to assess ethnic variations in informed decision-making about prenatal screening for Down's syndrome and to examine the contribution of background and decision-making variables...

..We assessed if urinary, bowel, and sexual dysfunction and associated bother were part of the "normal" aging process in the general male Dutch population...

..The methodological implication is that considering a post-diagnosis assessment as 'baseline' may lead to an underestimation of the patient's mental health...

..To investigate whether high estimates of the burden of depression could be attributed to an overestimation of disability weights (reflecting more severe disability)...

..The general introduction of HPV vaccination, as the primary prevention of cervical cancer, is the subject of debate in the Netherlands...

..These results provide additional evidence for the importance of monitoring the language development and its consequences during childhood...

..Whether a prostate cancer diagnosis induces response shift has not been established so far. Therefore, we assessed response shift in men who were diagnosed with localized prostate cancer...

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..05). In conclusion, decreases in HRQOL among preschoolers with parent-reported respiratory symptoms are measurable with the TAPQOL. We recommend studying the impact of doctor-diagnosed respiratory symptoms on HRQOL in future studies...

..Screening for cervical cancer may have favourable or unfavourable effects at the individual level. This study assesses whether invitees in The Netherlands made an informed choice about screen uptake...

..Discrete choice experiment...

..By presenting these findings we want to draw attention to issues that complicate QoL assessments in general and in prostate cancer patients in particular...

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..In a population-based sample of cervical cancer survivors, health-related quality of life (HRQoL) was assessed 2-10 years postdiagnosis...

..We compared four health status measures for the evaluation of quality of life after hip fracture...

..We empirically compared the feasibility, respondents' trading behavior, and convergent validity between a labeled and an unlabeled DCE for colorectal cancer (CRC) screening programs in The Netherlands...

..By offering information, instead of providing information, prospective parents are enabled to either accept or decline the information, which respects both their right to know and their right not-to-know...

..During the past decade, a variety of measures have been used at various moments in different study populations. Guidelines are needed to increase comparability between studies...

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..We assessed the quality of consumer information available through the Internet per November 2009 and its possible contribution to informed decision-making by potential screenees...

..The time-based model maximises numbers of life years gained by treating the young and non-smokers, or 'the one who has will be given more' (Matthew 25:29). We explored practical consequences of risk- or time-based allocation...

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..Differences in opinions on the desirability of preventive treatment initiation may hamper the process and outcome of shared decision making between physician and patient...

..Here, we have derived social discount rates for health, money, and environmental benefits by means of a choice experiment...

..At present, there are no strict transfusion criteria for this specific indication, resulting in a wide variation in postpartum policy of RBC transfusion in the Netherlands...

..The course of general distress differed significantly for women closely involved in a sister's BC-process. These more vulnerable subgroups may be in need of extra counselling and care...

..We conducted a labelled discrete choice experiment with realistic choices to investigate patients' trade-offs between the expected health gains and the burden of testing in surveillance of Barrett esophagus (BE)...

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..Erectile dysfunction (ED) is more prevalent with increasing age. Previous studies showed that ED was negatively associated with mental health (MH) in specific patient groups...

..To develop a theoretical framework for analysing ethnic differences in determinants of participation and non-participation in prenatal screening for Down syndrome...

..However, the extent to which harms to quality of life resulting from overdiagnosis and treatment counterbalance this benefit is uncertain...

..5%) (p<0.01). Levels of distress were not severe, but were elevated compared to participants with a low affective risk perception, and therefore, attention for this group is recommended...

..In this study, these feelings were quantified, and their associations with various psychologic, medical, demographic, and decision-related factors were assessed...

..To determine the incidence of cervical cancer after several negative cervical smear tests at different ages...

..To review studies on the association between health literacy (HL), diabetes self-management and possible mediating variables...

..The risk of developing esophageal adenocarcinoma (EAC) for patients with Barrett's esophagus (BE) is approximately 0.5% per year...

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..Promising new instruments for future research are the WHOQOL and the Skindex-17...

..The objectives were to investigate fatigue and HRQoL in women after vaginal delivery (VD), elective caesarean section (CS) and emergency CS, and its relationship with postpartum hemoglobin (Hb) levels during the first 6 weeks postpartum...

..If further validated, this score can provide an evidence-based tool for the selection of palliative treatment in esophageal cancer patients...

..The purpose of this study was to assess the prevalence and determinants of disabilities and return to work after severe injury in a Dutch, Level I trauma center...

..Modeling interventions in children at risk of bacterial meningitis should include long-term consequences in terms of costs and QALYs...

..This may be different in a cost-utility analysis of therapeutic strategies. Hence, sensitivity analysis to quality weights is recommended...