M A Sprangers

Summary

Affiliation: Academic Medical Center
Country: The Netherlands

Publications

  1. pmc Which patient will feel down, which will be happy? The need to study the genetic disposition of emotional states
    Mirjam A G Sprangers
    Department of Medical Psychology J3 211, Academic Medical Center, University of Amsterdam, Meibergdreef 15, 1105 AZ, Amsterdam, The Netherlands
    Qual Life Res 19:1429-37. 2010
  2. doi request reprint Using patient-reported measurement to pave the path towards personalized medicine
    Mirjam A G Sprangers
    Department of Medical Psychology, Academic Medical Center, University of Amsterdam, Meibergdreef 15, 1105 AZ, Amsterdam, The Netherlands
    Qual Life Res 22:2631-7. 2013
  3. pmc The efficacy of a health-related quality-of-life intervention during 48 weeks of biologic treatment of patients with moderate to severe psoriasis: study protocol for a multicenter randomized controlled trial
    Cecilia A C Prinsen
    Academic Medical Center, Department of Dermatology, University of Amsterdam, Meibergdreef 9, 1105 AZ, Amsterdam, The Netherlands
    Trials 13:236. 2012
  4. pmc The effectiveness of cognitive behavioral therapy on the quality of life of patients with inflammatory bowel disease: multi-center design and study protocol (KL!C- study)
    Floor Bennebroek Evertsz'
    Department of Medical Psychology, Academic Medical Center, Meibergdreef 15, 1105 AZ, Amsterdam, The Netherlands
    BMC Psychiatry 12:227. 2012
  5. pmc The life in sight application study (LISA): design of a randomized controlled trial to assess the role of an assisted structured reflection on life events and ultimate life goals to improve quality of life of cancer patients
    Renske Kruizinga
    Department of Medical Oncology, Academic Medical Center, University of Amsterdam, Meibergdreef 9, 1105, AZ Amsterdam, The Netherlands
    BMC Cancer 13:360. 2013
  6. pmc Differential item functioning (DIF) analyses of health-related quality of life instruments using logistic regression
    Neil W Scott
    Section of Population Health, University of Aberdeen, UK
    Health Qual Life Outcomes 8:81. 2010
  7. pmc A 'short walk' is longer before radiotherapy than afterwards: a qualitative study questioning the baseline and follow-up design
    Elsbeth F Taminiau-Bloem
    Department of Medical Psychology, Academic Medical Center, University of Amsterdam, Amsterdam, The Netherlands
    Health Qual Life Outcomes 8:69. 2010
  8. pmc Responsiveness: a reinvention of the wheel?
    Robert Lindeboom
    Department of Clinical Epidemiology, Academic Medical Center, Amsterdam, The Netherlands
    Health Qual Life Outcomes 3:8. 2005
  9. pmc Health care providers underestimate symptom intensities of cancer patients: a multicenter European study
    Eivor A Laugsand
    Department of Cancer Research and Molecular Medicine, Faculty of Medicine, Norwegian University of Science and Technology NTNU, Trondheim, Norway
    Health Qual Life Outcomes 8:104. 2010
  10. pmc Laparoscopic ileocolic resection versus infliximab treatment of distal ileitis in Crohn's disease: a randomized multicenter trial (LIR!C-trial)
    Emma J Eshuis
    Department of Gastroenterology and Hepatology, Academic Medical Center, Amsterdam, The Netherlands
    BMC Surg 8:15. 2008

Detail Information

Publications83

  1. pmc Which patient will feel down, which will be happy? The need to study the genetic disposition of emotional states
    Mirjam A G Sprangers
    Department of Medical Psychology J3 211, Academic Medical Center, University of Amsterdam, Meibergdreef 15, 1105 AZ, Amsterdam, The Netherlands
    Qual Life Res 19:1429-37. 2010
    ....
  2. doi request reprint Using patient-reported measurement to pave the path towards personalized medicine
    Mirjam A G Sprangers
    Department of Medical Psychology, Academic Medical Center, University of Amsterdam, Meibergdreef 15, 1105 AZ, Amsterdam, The Netherlands
    Qual Life Res 22:2631-7. 2013
    ..This paper summarizes the three presentations and discusses their implications for quality-of-life research...
  3. pmc The efficacy of a health-related quality-of-life intervention during 48 weeks of biologic treatment of patients with moderate to severe psoriasis: study protocol for a multicenter randomized controlled trial
    Cecilia A C Prinsen
    Academic Medical Center, Department of Dermatology, University of Amsterdam, Meibergdreef 9, 1105 AZ, Amsterdam, The Netherlands
    Trials 13:236. 2012
    ..It is hypothesized that the application of a HRQoL intervention in dermatology practice will have a positive impact on patients' HRQoL as well as on doctor-patient communication...
  4. pmc The effectiveness of cognitive behavioral therapy on the quality of life of patients with inflammatory bowel disease: multi-center design and study protocol (KL!C- study)
    Floor Bennebroek Evertsz'
    Department of Medical Psychology, Academic Medical Center, Meibergdreef 15, 1105 AZ, Amsterdam, The Netherlands
    BMC Psychiatry 12:227. 2012
    ..Therefore, an adapted new CBT specifically designed for IBD patients was developed. The objective of this study is to evaluate the effectiveness of adapted CBT on QoL...
  5. pmc The life in sight application study (LISA): design of a randomized controlled trial to assess the role of an assisted structured reflection on life events and ultimate life goals to improve quality of life of cancer patients
    Renske Kruizinga
    Department of Medical Oncology, Academic Medical Center, University of Amsterdam, Meibergdreef 9, 1105, AZ Amsterdam, The Netherlands
    BMC Cancer 13:360. 2013
    ..The aim is to examine whether an assisted reflection on life events and ultimate life goals can improve quality of life of cancer patients...
  6. pmc Differential item functioning (DIF) analyses of health-related quality of life instruments using logistic regression
    Neil W Scott
    Section of Population Health, University of Aberdeen, UK
    Health Qual Life Outcomes 8:81. 2010
    ..This article reviews issues that arise when testing for DIF in HRQoL instruments. We focus on logistic regression methods, which are often used because of their efficiency, simplicity and ease of application...
  7. pmc A 'short walk' is longer before radiotherapy than afterwards: a qualitative study questioning the baseline and follow-up design
    Elsbeth F Taminiau-Bloem
    Department of Medical Psychology, Academic Medical Center, University of Amsterdam, Amsterdam, The Netherlands
    Health Qual Life Outcomes 8:69. 2010
    ....
  8. pmc Responsiveness: a reinvention of the wheel?
    Robert Lindeboom
    Department of Clinical Epidemiology, Academic Medical Center, Amsterdam, The Netherlands
    Health Qual Life Outcomes 3:8. 2005
    ....
  9. pmc Health care providers underestimate symptom intensities of cancer patients: a multicenter European study
    Eivor A Laugsand
    Department of Cancer Research and Molecular Medicine, Faculty of Medicine, Norwegian University of Science and Technology NTNU, Trondheim, Norway
    Health Qual Life Outcomes 8:104. 2010
    ..The extent of agreement between patient and provider symptom assessments and the association of agreement with demographic- and disease-related factors was examined...
  10. pmc Laparoscopic ileocolic resection versus infliximab treatment of distal ileitis in Crohn's disease: a randomized multicenter trial (LIR!C-trial)
    Emma J Eshuis
    Department of Gastroenterology and Hepatology, Academic Medical Center, Amsterdam, The Netherlands
    BMC Surg 8:15. 2008
    ..The objective of this study is to compare infliximab treatment with laparoscopic ileocolic resection in patients with recurrent Crohn's disease of the distal ileum with respect to quality of life and costs...
  11. ncbi request reprint The European Organization for Research and Treatment of Cancer breast cancer-specific quality-of-life questionnaire module: first results from a three-country field study
    M A Sprangers
    Netherlands Cancer Institute, Amsterdam, The Netherlands
    J Clin Oncol 14:2756-68. 1996
    ....
  12. ncbi request reprint Integrating response shift into health-related quality of life research: a theoretical model
    M A Sprangers
    Department of Medical Psychology, Academic Hospital Amsterdam, University of Amsterdam, The Netherlands
    Soc Sci Med 48:1507-15. 1999
    ....
  13. ncbi request reprint Explaining quality of life with crisis theory
    Mirjam A G Sprangers
    Department of Medical Psychology, Academic Hospital Amsterdam, University of Amsterdam, The Netherlands
    Psychooncology 11:419-26. 2002
    ..Patients in-crisis were not able to make their coping resources and strategies more effective, whereas patients post-crisis seemed to have enhanced the effectiveness of self-esteem in restoring their QL as compared to healthy persons...
  14. doi request reprint Disregarding clinical trial-based patient-reported outcomes is unwarranted: Five advances to substantiate the scientific stringency of quality-of-life measurement
    Mirjam A G Sprangers
    Department of Medical Psychology, Academic Medical Center, University of Amsterdam, Amsterdam, Amsterdam, The Netherlands
    Acta Oncol 49:155-63. 2010
    ..The objectives of this paper are to show that QL assessments build upon an empirically based and stringent approach to measurement and QL outcomes should not be viewed nor handled differently than any other parameter in medical research...
  15. ncbi request reprint Quality-of-life assessment in oncology. Achievements and challenges
    Mirjam A G Sprangers
    Department of Medical Psychology, Academic Medical Center, University of Amsterdam, Meibergdreef 15, 1105 AZ Amsterdam, The Netherlands
    Acta Oncol 41:229-37. 2002
    ..New research areas, such as HRQL related to genetic testing and as experienced by ethnic minorities urgently need to be taken on...
  16. ncbi request reprint Which chronic conditions are associated with better or poorer quality of life?
    M A Sprangers
    Department of Medical Psychology, Academic Medical Center, University of Amsterdam, Meibergdreef 15, 1105 AZ Amsterdam, The Netherlands
    J Clin Epidemiol 53:895-907. 2000
    ..This combined information will help to better plan and allocate resources for research, training, and health care...
  17. pmc Scientific imperatives, clinical implications, and theoretical underpinnings for the investigation of the relationship between genetic variables and patient-reported quality-of-life outcomes
    Mirjam A G Sprangers
    Department of Medical Psychology J3 211, Academic Medical Center, University of Amsterdam, Meibergdreef 15, 1105 AZ, Amsterdam, The Netherlands
    Qual Life Res 19:1395-403. 2010
    ....
  18. ncbi request reprint The construction and testing of the EORTC colorectal cancer-specific quality of life questionnaire module (QLQ-CR38). European Organization for Research and Treatment of Cancer Study Group on Quality of Life
    M A Sprangers
    Department of Medical Psychology, University of Amsterdam, The Netherlands
    Eur J Cancer 35:238-47. 1999
    ..Additional efforts to test the module's cross-cultural validity are needed...
  19. ncbi request reprint Revealing response shift in longitudinal research on fatigue--the use of the thentest approach
    M A Sprangers
    Academic Medical Center, Amsterdam, The Netherlands
    Acta Oncol 38:709-18. 1999
    ..Since response shift may adversely affect the results of self-reported outcomes in clinical trials or other longitudinal research, further research is very much needed...
  20. pmc The establishment of the GENEQOL consortium to investigate the genetic disposition of patient-reported quality-of-life outcomes
    Mirjam A G Sprangers
    Department of Medical Psychology, Academic Medical Center, University of Amsterdam, Amsterdam, The Netherlands
    Twin Res Hum Genet 12:301-11. 2009
    ..If we can identify patients who are susceptible to poor quality of life, we will be able to better target specific clinical interventions to enhance their quality of life and treatment outcomes...
  21. pmc Reflections on changeability versus stability of health-related quality of life: distinguishing between its environmental and genetic components
    Mirjam A G Sprangers
    Department of Medical Psychology, Academic Medical Center, University of Amsterdam, Meibergdreef 15, 1105 AZ Amsterdam, The Netherlands
    Health Qual Life Outcomes 6:89. 2008
    ..Distinguishing between those aspects that are amenable to change from those that are relatively fixed and stable will help better target specific support interventions...
  22. ncbi request reprint A study of the reliability, validity and responsiveness of the HIV overview of problems evaluation system (HOPES) in assessing the quality of life of patients with AIDS and symptomatic HIV infection
    J B de Boer
    Division of Psychosocial Research and Epidemiology, The Netherlands Cancer Institute, Amsterdam, The Netherlands
    Qual Life Res 5:339-47. 1996
    ..This study provides further evidence of the reliability and validity of the HOPES and shows that this instrument is responsive to changes in CD4 cell counts...
  23. ncbi request reprint Quality of life in asymptomatic- and symptomatic HIV infected patients in a trial of ritonavir/saquinavir therapy. The Prometheus Study Group
    P T Nieuwkerk
    Department of Medical Psychology, Tropical Medicine and AIDS, Academic Medical Center, University of Amsterdam, The Netherlands
    AIDS 14:181-7. 2000
    ....
  24. ncbi request reprint Limited patient adherence to highly active antiretroviral therapy for HIV-1 infection in an observational cohort study
    P T Nieuwkerk
    Department of Medical Psychology J4 410, Academic Medical Center, PO Box 22700, 1100 DE Amsterdam, The Netherlands
    Arch Intern Med 161:1962-8. 2001
    ..We investigated adherence to HAART among patients in a clinical cohort study...
  25. pmc Listen to their answers! Response behaviour in the measurement of physical and role functioning
    Marjan J Westerman
    Department of Public and Occupational Health, EMGO Institute, VU University Medical Centre, Amsterdam, The Netherlands
    Qual Life Res 17:549-58. 2008
    ..However, QoL research often yields findings that raise questions about what QoL measurement instruments actually assess and how the scores should be interpreted...
  26. ncbi request reprint Feasibility and effects of decision aids
    S Molenaar
    Department of Medical Psychology, Academic Medical Center, Amsterdam, The Netherlands
    Med Decis Making 20:112-27. 2000
    ..When studied, the beneficial effects of decision aids on these outcomes appear to be rather modest. Implications for future development of decision aids and the design of studies are discussed...
  27. ncbi request reprint Quality of life in newly diagnosed cancer patients waiting for surgery is seriously impaired
    Mechteld R M Visser
    Department of Medical Psychology, Academic Medical Centre, Meibergdreef 15, 1105AZ Amsterdam, The Netherlands
    J Surg Oncol 93:571-7. 2006
    ....
  28. ncbi request reprint Decision support for patients with early-stage breast cancer: effects of an interactive breast cancer CDROM on treatment decision, satisfaction, and quality of life
    S Molenaar
    Department of Medical Psychology, Academic Medical Center, University of Amsterdam, The Netherlands
    J Clin Oncol 19:1676-87. 2001
    ..To investigate the effects of the Interactive Breast Cancer CDROM as a decision aid for breast cancer patients with a choice between breast conserving therapy (BCT) and mastectomy (MT)...
  29. pmc Small-cell lung cancer patients are just 'a little bit' tired: response shift and self-presentation in the measurement of fatigue
    Marjan J Westerman
    Department of Public and Occupational Health, EMGO Institute, VU University Medical Centre, Van der Boechorststraat 7, 1081 BT, Amsterdam, The Netherlands
    Qual Life Res 16:853-61. 2007
    ..Response shift has gained increasing attention in the measurement of health-related quality of life (QoL) as it may explain counter-intuitive findings as a result of adaptation to deteriorating health...
  30. ncbi request reprint [Interactive cd-rom on the choice between breast-sparing treatment and mastectomy: positive responses from patients and surgeons]
    S Molenaar
    Academisch Medisch Centrum, afd Medische Psychologie, Meibergdreef 9, 1105 AZ Amsterdam
    Ned Tijdschr Geneeskd 145:1004-8. 2001
    ..To assess how breast cancer patients and surgeons rate an interactive decision aid, using CD-ROM technology, developed to support a choice between breast-conserving therapy and mastectomy...
  31. doi request reprint Clarifying quality of life assessment: do theoretical models capture the underlying cognitive processes?
    Elsbeth F Bloem
    Department of Medical Psychology, Academic Medical Center, University of Amsterdam, PO Box 22700, 1100 DE, Amsterdam, The Netherlands
    Qual Life Res 17:1093-102. 2008
    ..Tourangeau et al.'s (The psychology of survey response, 2000) and Rapkin and Schwartz' (Health Qual Life Outcomes 2:14, 2004) cognitive process models form the basis for this analysis scheme...
  32. ncbi request reprint Are retrospective measures of change in quality of life more valid than prospective measures?
    Pythia T Nieuwkerk
    Department of Medical Psychology, Academic Medical Center University of Amsterdam, Amsterdam, The Netherlands
    Med Care 45:199-205. 2007
    ..We investigated which of 3 commonly used methods for measuring change in QoL yielded the strongest associations with clinical measures of change in health status...
  33. pmc Somatically ill persons' self-nominated quality of life domains: review of the literature and guidelines for future studies
    Elsbeth F Taminiau-Bloem
    Department of Medical Psychology, Academic Medical Center, University of Amsterdam, P O Box 22700, 1100 DE Amsterdam, The Netherlands
    Qual Life Res 19:253-91. 2010
    ..To review which domains somatically ill persons nominate as constituting their QoL. Specific objective is to examine whether the method of enquiry affect these domains...
  34. doi request reprint Factors affecting quality of life of children and adolescents with anorectal malformations or Hirschsprung disease
    Esther E Hartman
    Division of Medical Psychology, University of Amsterdam, The Netherlands
    J Pediatr Gastroenterol Nutr 47:463-71. 2008
    ..First, to compare the quality of life (QL) and perceived self-competence of children and adolescents with anorectal malformations or Hirschsprung disease with that of reference groups. Second, to identify predictors of QL...
  35. doi request reprint Self-reported adherence is more predictive of virological treatment response among patients with a lower tendency towards socially desirable responding
    Pythia T Nieuwkerk
    Department of Medical Psychology, Academic Medical Center, Amsterdam, The Netherlands
    Antivir Ther 15:913-6. 2010
    ..We investigated whether stratifying patients according to their socially desirable response set might improve the prediction of virological treatment response by self-reported adherence...
  36. pmc Preoperative and early postoperative quality of life predict survival in potentially curable patients with esophageal cancer
    Mark van Heijl
    Department of Surgery, G4 115, Academic Medical Centre, University of Amsterdam, Amsterdam, The Netherlands
    Ann Surg Oncol 17:23-30. 2010
    ..In patients with esophageal cancer, evidence for prognostic significance of preoperative quality of life (QoL) is limited, while the prognostic significance of postoperative QoL has not been investigated at all...
  37. doi request reprint Health-related quality of life and survival among HIV-infected patients receiving highly active antiretroviral therapy: a study of patients in the AIDS Therapy Evaluation in the Netherlands (ATHENA) Cohort
    I Marion de Boer-van der Kolk
    Department of Medical Psychology, Tropical Medicine and AIDS, Department of Internal Medicine, Academic Medical Centre, Amsterdam, The Netherlands
    Clin Infect Dis 50:255-63. 2010
    ..This study investigates whether HRQL predicts survival among HIV-infected patients receiving HAART...
  38. doi request reprint Health-related quality of life assessment in dermatology: interpretation of Skindex-29 scores using patient-based anchors
    Cecilia A C Prinsen
    Department of Dermatology, Academic Medical Center, Amsterdam, The Netherlands
    J Invest Dermatol 130:1318-22. 2010
    ..The estimated cut-off scores can be used in clinical practice to identify patients with (very) severely impaired HRQL...
  39. ncbi request reprint Explaining change in quality of life of children and adolescents with anorectal malformations or Hirschsprung disease
    Esther E Hartman
    Pediatric Surgical Centers of Amsterdam, Emma Children s Hospital Academic Medical Centre VU Medical Center, Amsterdam, The Netherlands
    Pediatrics 119:e374-83. 2007
    ....
  40. ncbi request reprint Enhanced provider communication and patient education regarding return to work in cancer survivors following curative treatment: a pilot study
    Karen Nieuwenhuijsen
    Academic Medical Center, Universiteit van Amsterdam, Department Coronel Institute of Occupational Health, PO Box 22700, 1100 DE Amsterdam, The Netherlands
    J Occup Rehabil 16:647-57. 2006
    ..The purpose of this study is to test the feasibility of this intervention and to examine the relation of patient adherence to the advice of the leaflet and return to work...
  41. pmc Long-term surgical recurrence, morbidity, quality of life, and body image of laparoscopic-assisted vs. open ileocolic resection for Crohn's disease: a comparative study
    Emma J Eshuis
    Department of Surgery, Academic Medical Centre, G4 146 1, P O Box 22660, 1100 DD, Amsterdam, The Netherlands
    Dis Colon Rectum 51:858-67. 2008
    ..This study was designed to compare long-term results of surgical recurrence, quality of life, body image, and cosmesis in patients who underwent laparoscopic-assisted or open ileocolic resection for Crohn's disease...
  42. ncbi request reprint Methods to detect response shift in quality of life data: a convergent validity study
    Mechteld R M Visser
    Department of Medical Psychology, Academic Medical Centre, University of Amsterdam, The Netherlands
    Qual Life Res 14:629-39. 2005
    ..The convergent results of thentest and SEM support their validity, especially because they use statistically independent operationalizations of response shift. In this study, recall bias did not invalidate thentest results...
  43. ncbi request reprint An application of structural equation modeling to detect response shifts and true change in quality of life data from cancer patients undergoing invasive surgery
    Frans J Oort
    Department of Medical Psychology, Academic Medical Centre, University of Amsterdam, The Netherlands
    Qual Life Res 14:599-609. 2005
    ..The structural equation modeling approach was found to be useful in detecting response shift effects. The extent to which the procedure is guided by subjective decisions is discussed...
  44. ncbi request reprint Treatment of venous thromboembolism with vitamin K antagonists: patients' health state valuations and treatment preferences
    Mirjam Locadia
    Department of Medical Psychology J3 219, Academic Medical Centre, University of Amsterdam, PO Box 22700, 1100 DE Amsterdam, The Netherlands
    Thromb Haemost 92:1336-41. 2004
    ..Due to the substantial and unpredictable variability in valuations and treatment preferences, recommendations regarding treatment duration should be tailored to patients' specific values and concerns...
  45. ncbi request reprint A comparison of 3 valuation methods for temporary health states in patients treated with oral anticoagulants
    Mirjam Locadia
    Department of Medical Psychology, Academic Medical Centre, University of Amsterdam, Amsterdam, The Netherlands
    Med Decis Making 24:625-33. 2004
    ..The application of the time tradeoff (TTO) method in temporary health states may lead to less valid results because an unrealistic scenario is presented to patients. The chained TTO has been proposed to solve this problem...
  46. ncbi request reprint Development and validation of a colorectal functional outcome questionnaire
    Roel Bakx
    Department of Surgery, Academic Medical Center, PO Box 22660, Suite G4 130, 1100 DD, Amsterdam, The Netherlands
    Int J Colorectal Dis 20:126-36. 2005
    ..The available faecal incontinence grading systems have been validated, but have a limited focus, while more comprehensive questionnaires, which have been developed, have not been validated...
  47. ncbi request reprint Patients' preferences regarding the timing of highly active antiretroviral therapy initiation for chronic asymptomatic HIV-1 infection
    Mirjam Locadia
    Department of Medical Psychology, Academic Medical Center, Amsterdam, Netherlands
    Antivir Ther 11:335-41. 2006
    ..We investigated patients' preferences for immediate HAART initiation relative to delaying HAART for 1 year...
  48. ncbi request reprint Critical factors affecting quality of life of adult patients with anorectal malformations or Hirschsprung's disease
    Esther E Hartman
    Division of Medical Psychology of the University of Amsterdam, Amsterdam, The Netherlands
    Am J Gastroenterol 99:907-13. 2004
    ....
  49. ncbi request reprint Quality of life and the duration of treatment with vitamin K antagonists in patients with deep venous thrombosis
    Mirjam Locadia
    Department of Medical Psychology, Academic Medical Centre, University of Amsterdam, The Netherlands
    Thromb Haemost 90:101-7. 2003
    ..Since study centre was the most important factor associated with treatment duration, local policy appears to have a great influence on decisions regarding the duration of treatment with vitamin K antagonists...
  50. ncbi request reprint The suitability of quality-of-life questionnaires for psoriasis research: a systematic literature review
    John de Korte
    Department of Dermatology, Academic Medical Center, University of Amsterdam, PO Box 22700, 1100 DE Amsterdam, The Netherlands
    Arch Dermatol 138:1221-7; discussion 1227. 2002
    ..To critically appraise the suitability of current quality-of-life (QOL) questionnaires for psoriasis research...
  51. ncbi request reprint Anorectal malformations: does healthcare meet the needs?
    Esther E Hartman
    Pediatric Surgical Centre of Amsterdam Emma Children s Hospital, Academic Medical Centre University of Amsterdam, The Netherlands
    J Pediatr Gastroenterol Nutr 41:210-5. 2005
    ..The second aim was to evaluate specific areas in the healthcare system, including provided information, transfer from pediatric to adult care, and satisfaction with the provided care...
  52. ncbi request reprint Hirschsprung's disease: healthcare meets the needs
    Esther E Hartman
    Paediatric Surgical Centre of Amsterdam, Emma Children s Hospital AMC, VUMC, Amsterdam, The Netherlands
    J Pediatr Surg 41:1420-4. 2006
    ....
  53. ncbi request reprint Disease-specific quality of life: is it one construct?
    A G de Boer
    Department of Medical Psychology, Academic Medical Center, University of Amsterdam, The Netherlands
    Qual Life Res 7:135-42. 1998
    ..These results imply that one meaningful sum score can be obtained from these questionnaires...
  54. doi request reprint Formal definitions of measurement bias and explanation bias clarify measurement and conceptual perspectives on response shift
    Frans J Oort
    Department of Medical Psychology, Academic Medical Centre, University of Amsterdam, Amsterdam, The Netherlands
    J Clin Epidemiol 62:1126-37. 2009
    ..We propose definitions to accommodate both interpretations of response shift...
  55. ncbi request reprint Assessing meaningful change in quality of life over time: a users' guide for clinicians
    Mirjam A G Sprangers
    Department of Medical Psychology, Academic Medical Center, University of Amsterdam, The Netherlands
    Mayo Clin Proc 77:561-71. 2002
    ....
  56. doi request reprint Quality of life and fear of cancer recurrence after endoscopic and surgical treatment for early neoplasia in Barrett's esophagus
    W D Rosmolen
    Department of Gastroenterology and Hepatology, Academic Medical Center, Amsterdam, The Netherlands
    Endoscopy 42:525-31. 2010
    ..We explored QOL and fear of cancer recurrence 12 - 60 months after endoscopic and surgical treatment for early Barrett's neoplasia, using a cross-sectional design...
  57. ncbi request reprint Long-term quality of life outcomes in three antiretroviral treatment strategies for HIV-1 infection
    P T Nieuwkerk
    Department of Medical Psychology, Academic Medical Center, Amsterdam, The Netherlands
    AIDS 15:1985-91. 2001
    ....
  58. doi request reprint Impact of bile duct injury after laparoscopic cholecystectomy on quality of life: a longitudinal study after multidisciplinary treatment
    P R de Reuver
    Department of Surgery, Academic Medical Center, Amsterdam, The Netherlands
    Endoscopy 40:637-43. 2008
    ..The aim of the present study was to compare quality of life (QoL) between patients with BDI and those without after laparoscopic cholecystectomy. A longitudinal assessment was performed and risk factors for poor QoL were determined...
  59. doi request reprint Colonic stenting versus emergency surgery for acute left-sided malignant colonic obstruction: a multicentre randomised trial
    Jeanin E van Hooft
    Department of Gastroenterology and Hepatology, Academic Medical Centre, University of Amsterdam, Amsterdam, Netherlands
    Lancet Oncol 12:344-52. 2011
    ..We aimed to establish whether colonic stenting has better health outcomes than does emergency surgery...
  60. ncbi request reprint Body image, cosmesis, quality of life, and functional outcome of hand-assisted laparoscopic versus open restorative proctocolectomy: long-term results of a randomized trial
    S W Polle
    Department of Surgery, Academic Medical Center, P O Box 22660, 1100 DD, Amsterdam, The Netherlands
    Surg Endosc 21:1301-7. 2007
    ..The potential long-term advantages of LRP over ORP remain to be determined. The most likely advantage of LRP is the superior cosmetic result. It is, however, unclear whether the size and location of incisions affect body image and QOL...
  61. doi request reprint Adult attachment as mediator between recollections of childhood and satisfaction with life
    Chris Hinnen
    Department of Medical Psychology, Slotervaart Ziekenhuis, The Netherlands
    Clin Psychol Psychother 16:10-21. 2009
    ..Sobel test confirmed these findings. These finding are in accordance with attachment theory and highlight the importance of this theory for understanding how early childhood experiences may impact adult life...
  62. ncbi request reprint Factors reported to influence the return to work of cancer survivors: a literature review
    Evelien R Spelten
    Coronel Institute, Academic Medical Center, Amsterdam, Netherlands
    Psychooncology 11:124-31. 2002
    ....
  63. doi request reprint Predictors of general quality of life and the mediating role of health related quality of life in patients with schizophrenia
    Carin J Meijer
    Dept of Psychiatry, Academic Medical Center, University of Amsterdam, Amsterdam, The Netherlands
    Soc Psychiatry Psychiatr Epidemiol 44:361-8. 2009
    ..This study examines the mediating role of health related quality of life (HRQoL) in the prediction of general quality of life (GQoL)...
  64. doi request reprint The role of neuropsychological functioning in cancer survivors' return to work one year after diagnosis
    Karen Nieuwenhuijsen
    Academic Medical Center, Department Coronel Institute of Occupational Health, University of Amsterdam, Amsterdam, The Netherlands
    Psychooncology 18:589-97. 2009
    ..The objective of this study was to investigate the relationship between neuropsychological functioning and the ability to work in cancer survivors...
  65. pmc Factors associated with posttraumatic stress symptoms in a prospective cohort of patients after abdominal sepsis: a nomogram
    Kimberly R Boer
    Department of Clinical Epidemiology, Biostatistics and Bioinformatics, Academic Medical Center, University of Amsterdam, 1100 DE, PO Box 22700, Amsterdam, The Netherlands
    Intensive Care Med 34:664-74. 2008
    ..To determine to what extent patients who have survived abdominal sepsis suffer from symptoms of posttraumatic stress disorder (PTSD) and depression, and to identify potential risk factors for PTSD symptoms...
  66. pmc Colonic stenting as bridge to surgery versus emergency surgery for management of acute left-sided malignant colonic obstruction: a multicenter randomized trial (Stent-in 2 study)
    Jeanin E van Hooft
    Department of Gastroenterology, Academic Medical Center, Amsterdam, The Netherlands
    BMC Surg 7:12. 2007
    ....
  67. ncbi request reprint The clinical significance of adaptation to changing health: a meta-analysis of response shift
    Carolyn E Schwartz
    DeltaQuest Foundation, Inc, Concord, MA 01742, USA
    Qual Life Res 15:1533-50. 2006
    ..To fill this gap in knowledge about response shift phenomena, we performed a meta-analysis on published QOL articles on response shift...
  68. ncbi request reprint Quality of life after starting highly active antiretroviral therapy for chronic HIV-1 infection at different CD4 cell counts
    Pythia T Nieuwkerk
    J Acquir Immune Defic Syndr 45:600-1. 2007
  69. ncbi request reprint The role of health care providers and significant others in evaluating the quality of life of patients with chronic disease
    Kommer C A Sneeuw
    Child Health Division, TNO Prevention and Health, P O Box 2215, 2301 CE Leiden, The Netherlands
    J Clin Epidemiol 55:1130-43. 2002
    ....
  70. ncbi request reprint An introduction to quality of life assessment in oncology: the value of measuring patient-reported outcomes
    Carolyn E Schwartz
    Department of Family Medicine and Community Health, University of Massachusetts Medical School, Worcester, USA
    Am J Manag Care 8:S550-9. 2002
    ....
  71. ncbi request reprint The development of the EORTC QLQ-C15-PAL: a shortened questionnaire for cancer patients in palliative care
    Mogens Groenvold
    Research Unit, Department of Palliative Medicine, Bispebjerg Hospital, 23, Bispebjerg Bakke, DK 2400 Copenhagen NV, Denmark
    Eur J Cancer 42:55-64. 2006
    ..The resulting 15-item EORTC QLQ-C15-PAL is a 'core questionnaire' for palliative care. Depending on the research questions, it may be supplemented by additional items, modules or questionnaires...
  72. doi request reprint The relationship between overall quality of life and its subdimensions was influenced by culture: analysis of an international database
    Neil W Scott
    Department of Public Health, University of Aberdeen, UK
    J Clin Epidemiol 61:788-95. 2008
    ....
  73. ncbi request reprint Change of perspective: a measurable and desired outcome of chronic disease self-management intervention programs that violates the premise of preintervention/postintervention assessment
    Richard H Osborne
    Arthritis Foundation of Victoria Centre for Rheumatic Diseases, Royal Melbourne Hospital, The University of Melbourne, Parkville, Victoria, Australia
    Arthritis Rheum 55:458-65. 2006
    ..To determine if participants in chronic disease self-management courses have a change of perspective of their health status (a response shift), and if this is measurable with a paper-based questionnaire...
  74. doi request reprint Characteristics of patients with universal vitiligo and health-related quality of life
    May W Linthorst Homan
    Arch Dermatol 144:1062-4. 2008
  75. ncbi request reprint Validity of utilities of patients with esophageal cancer
    Peep F M Stalmeier
    Department of Medical Technology Assessment, University Medical Centre, Nijmegen, Netherlands
    Int J Technol Assess Health Care 21:113-8. 2005
    ..The convergent validity between utility assessment methods was assessed...
  76. ncbi request reprint Quality of life in adult survivors of correction of esophageal atresia
    Jacqueline A Deurloo
    Pediatric Surgical Center of Amsterdam, Emma Children s Hospital AMC, 1100 DD Amsterdam, The Netherlands
    Arch Surg 140:976-80. 2005
    ..Long-term quality of life (QOL) in adults after correction of esophageal atresia (EA) is comparable with that of healthy adults...
  77. ncbi request reprint Understanding self-rated health
    Peter M Fayers
    Department of Public Health, Aberdeen University Medical School, AB25 2ZD, Aberdeen, UK
    Lancet 359:187-8. 2002
  78. ncbi request reprint Spontaneous reports of most distressing concerns in patients with inoperable lung cancer: at present, in retrospect and in comparison with EORTC-QLQ-C30+LC13
    Eva Broberger
    Department of Neurobiology, Care Sciences and Society, Division of Nursing, Karolinska Institutet, Stockholm, Sweden
    Qual Life Res 16:1635-45. 2007
    ..In addition to standardized questionnaires, individualized measures may be useful in the clinical palliative setting for providing detailed information about the individual's problems and prioritizations...
  79. ncbi request reprint EORTC QLQ-C15-PAL: the new standard in the assessment of health-related quality of life in advanced cancer?
    Mogens Groenvold
    Palliat Med 20:59-61. 2006
  80. ncbi request reprint Symptom prevalence, intensity, and distress in patients with inoperable lung cancer in relation to time of death
    Carol Tishelman
    Department of Neurobiology, Care Sciences and Society, Division of Nursing, Karolinska Institutet Research and Development Unit, Stockholms Sjukhem Foundation, Stockholm, Sweden
    J Clin Oncol 25:5381-9. 2007
    ..To examine symptom prevalence, intensity, and association with distress in patients with inoperable lung cancer (LC), using time to death as point of reference...
  81. ncbi request reprint Validation of the Chinese version of the EORTC colorectal cancer-specific quality-of-life questionnaire module (QLQ-CR38)
    Chi Ching Law
    Department of Clinical Oncology, Queen Elizabeth Hospital, Kowloon, Hong Kong
    J Pain Symptom Manage 35:203-13. 2008
    ..Although, the results lend support to the clinical validity of the QLQ-C38, the symptom scales would benefit from further refinement to enhance their usefulness...
  82. ncbi request reprint Breast cancer patients on adjuvant chemotherapy report a wide range of problems not identified by health-care staff
    Mogens Groenvold
    The Research Unit, Department of Palliative Medicine, Bispebjerg Hospital, Bispebjerg Bakke 23, 2400, Copenhagen, Denmark
    Breast Cancer Res Treat 103:185-95. 2007
    ....