P Mosconi

Summary

Affiliation: Istituto di Ricerche Farmacologiche Mario Negri
Country: Italy

Publications

  1. pmc Open-access clinical trial registries: the Italian scenario
    Paola Mosconi
    Laboratory of Medical Research and Consumer Involvement, Mario Negri Institute for Pharmacological Research, Via La Masa 19, 20156, Milan, Italy
    Trials 13:194. 2012
  2. pmc Does a consumer training work? a follow-up survey of the PartecipaSalute training programs
    Paola Mosconi
    Laboratory of Medical Research and Consumer Involvement, Mario Negri Institute for Pharmacological Research, Via La Masa 19, Milan, 20156, Italy
    Health Res Policy Syst 10:27. 2012
  3. pmc Development and validation of the short version of the Psychological General Well-Being Index (PGWB-S)
    Enzo Grossi
    Medical Department Bracco SpA, Milan, Italy
    Health Qual Life Outcomes 4:88. 2006
  4. pmc Quality of life in colon cancer patients with skin side effects: preliminary results from a monocentric cross sectional study
    Federica Andreis
    UO di Oncologia Medica, Fondazione Poliambulanza, Via Bissolati 57, 25124 Brescia, Italy
    Health Qual Life Outcomes 8:40. 2010
  5. ncbi Quality of life assessment and instruments in end-stage renal disease
    Paola Mosconi
    Mario Negri Institute of Pharmacology Research, Via La Masa 19, Milan, Italy
    J Nephrol 21:S107-12. 2008
  6. ncbi Ethics committees in Italy: a survey on a sample of oncologists
    Paola Mosconi
    Department of Oncology, Istituto di Ricerche Farmacologiche Mario Negri, Milan, Italy
    Tumori 89:189-92. 2003
  7. ncbi PartecipaSalute, an Italian project to involve lay people, patients' associations and scientific-medical representatives in the health debate
    Paola Mosconi
    Istituto di Ricerche Farmacologiche, Mario Negri, Via Eritrea 62, Milan, Italy
    Health Expect 10:194-204. 2007
  8. ncbi [Development and validation of a questionnaire measuring hospital consumer satisfaction ]
    P Mosconi
    Ist di Igiene, Universita di Siena, Siena
    Ann Ig 15:341-62. 2003
  9. ncbi How Italian health consumers feel about clinical research: a questionnaire survey
    Paola Mosconi
    Istituto di Ricerche Farmacologiche Mario Negri, Milan, Italy
    Eur J Public Health 15:372-9. 2005
  10. ncbi Consumer health information: the role of breast cancer associations
    Paola Mosconi
    Department of Oncology, Istituto di Ricerche Farmacologiche Mario Negri, Milano, Italy
    Breast Cancer Res Treat 76:89-94. 2002

Detail Information

Publications40

  1. pmc Open-access clinical trial registries: the Italian scenario
    Paola Mosconi
    Laboratory of Medical Research and Consumer Involvement, Mario Negri Institute for Pharmacological Research, Via La Masa 19, 20156, Milan, Italy
    Trials 13:194. 2012
    ..The aims of the present survey were to assess the availability of clinical trial registries for Italian citizens and to examine the transparency of the data items reported...
  2. pmc Does a consumer training work? a follow-up survey of the PartecipaSalute training programs
    Paola Mosconi
    Laboratory of Medical Research and Consumer Involvement, Mario Negri Institute for Pharmacological Research, Via La Masa 19, Milan, 20156, Italy
    Health Res Policy Syst 10:27. 2012
    ..After five editions of this training program, a survey of the long-term satisfaction and the impact on activities has been carried out...
  3. pmc Development and validation of the short version of the Psychological General Well-Being Index (PGWB-S)
    Enzo Grossi
    Medical Department Bracco SpA, Milan, Italy
    Health Qual Life Outcomes 4:88. 2006
    ..The purpose of the present paper is to describe the methods adopted and to report and discuss the relevance of results...
  4. pmc Quality of life in colon cancer patients with skin side effects: preliminary results from a monocentric cross sectional study
    Federica Andreis
    UO di Oncologia Medica, Fondazione Poliambulanza, Via Bissolati 57, 25124 Brescia, Italy
    Health Qual Life Outcomes 8:40. 2010
    ..This monocentric cross sectional study is carried out to assess quality of life in colon cancer patients experienced skin side effects due to anti epidermal growth factor receptor inhibitors therapy...
  5. ncbi Quality of life assessment and instruments in end-stage renal disease
    Paola Mosconi
    Mario Negri Institute of Pharmacology Research, Via La Masa 19, Milan, Italy
    J Nephrol 21:S107-12. 2008
    ..The domains investigated are well defined in terms of generic concepts and disease-specific domains, principal symptoms, and the validity of the questionnaires is generally well documented...
  6. ncbi Ethics committees in Italy: a survey on a sample of oncologists
    Paola Mosconi
    Department of Oncology, Istituto di Ricerche Farmacologiche Mario Negri, Milan, Italy
    Tumori 89:189-92. 2003
    ..A prospective study was launched to evaluate oncologists' opinions on Italian EC functioning...
  7. ncbi PartecipaSalute, an Italian project to involve lay people, patients' associations and scientific-medical representatives in the health debate
    Paola Mosconi
    Istituto di Ricerche Farmacologiche, Mario Negri, Via Eritrea 62, Milan, Italy
    Health Expect 10:194-204. 2007
  8. ncbi [Development and validation of a questionnaire measuring hospital consumer satisfaction ]
    P Mosconi
    Ist di Igiene, Universita di Siena, Siena
    Ann Ig 15:341-62. 2003
    ..These analyses demonstrate a good performance of the questionnaire in terms of both validity and reliability, suggesting that this instrument can represent a solid base for future applications...
  9. ncbi How Italian health consumers feel about clinical research: a questionnaire survey
    Paola Mosconi
    Istituto di Ricerche Farmacologiche Mario Negri, Milan, Italy
    Eur J Public Health 15:372-9. 2005
    ..Because little information is available about the public's awareness of and attitudes toward clinical research, we planned a survey on a convenience sample of health consumers...
  10. ncbi Consumer health information: the role of breast cancer associations
    Paola Mosconi
    Department of Oncology, Istituto di Ricerche Farmacologiche Mario Negri, Milano, Italy
    Breast Cancer Res Treat 76:89-94. 2002
    ....
  11. ncbi Quality of life in breast and colon cancer long-term survivors: an assessment with the EORTC QLQ-C30 and SF-36 questionnaires
    Paola Mosconi
    Department of Oncology, Istituto di Ricerche Farmacologiche Mario Negri, Milan, Italy
    Tumori 88:110-6. 2002
    ..In order to better understand the outcomes on a long-term survivor population, a sample of breast and colon cancer patients was evaluated using state-of-the-art health-related quality of life (HRQoL) approaches and instruments..
  12. ncbi Are Italian medical societies bridging the distance from citizen and patients' associations? Results of a survey
    P Mosconi
    Laboratory for medical research and consumer involvement, Mario Negri Institute, Milan, Italy
    J Prev Med Hyg 49:112-5. 2008
    ..The aims of the survey were to know medical societies attitude vs. patients involvement in research activities and healthcare setting and to find out possible projects conducted in partnership with patients associations...
  13. pmc Informing women about hormone replacement therapy: the consensus conference statement
    Paola Mosconi
    Laboratory for medical research and consumer involvement, Istituto di Ricerche Farmacologiche Mario Negri, Via La Masa 19, 20156 Milan, Italy
    BMC Womens Health 9:14. 2009
    ..Women are exposed to messages that are often partial, non evidence-based nor transparently developed. The structured and participative methodology of this CC allowed a multidisciplinary perspective and a substantial lay people input...
  14. doi Fostering a strategic alliance between patients' associations and health care professionals
    Paola Mosconi
    Laboratory for medical research and consumer involvement, Istituto di Ricerche Farmacologiche Mario Negri, Milan, Italy
    J Ambul Care Manage 33:223-30. 2010
    ..We are now developing ways of evaluating our activities, and trying to boost citizens' and patients' participation in decisional settings, concerning health care assistance and research studies...
  15. ncbi EUROPA DONNA: has strength in its heterogeneity
    P Mosconi
    Department of Oncology, Istituto di Richerche Farmacologiche, Mario Negri, Milan, Italy
    Eur J Cancer 40:1145-9. 2004
    ..These results highlight the importance of a coalition to establish a consensus among the Fora, and the need for coordinated initiatives in different European countries...
  16. ncbi The multi-centre assessment of quality of life: the Interdisciplinary Group for Cancer Care Evaluation (GIVIO) experience in Italy
    P Mosconi
    Istituto di Ricerche Farmacologiche Mario Negri, Milano, Italy
    Stat Med 17:577-85. 1998
    ..In order to cope with the problem of missing data, in both the trials the strategy of follow-up mailing was adopted, which proved to be an effective way to increase the response rate by nearly 50 per cent at each time point...
  17. ncbi Quality of care of colorectal cancer patients in general hospitals: diffusion and impact of management guidelines
    G Apolone
    Laboratorio di Epidemiologia Clinica, Istituto di Ricerche Farmacologiche M. Negri, Milano, Italy
    Tumori 76:261-9. 1990
    ..S.A. Our results underscore the importance of analyzing the process of diffusion in any assessment of interventions based on knowledge dissemination...
  18. ncbi Subjective health status assessment: evaluation of the Italian version of the SF-12 Health Survey. Results from the MiOS Project
    G Kodraliu
    Istituto di Ricerche Farmacologiche Mario Negri, Milan, Italy
    J Epidemiol Biostat 6:305-16. 2001
    ..CONCLUSIONS: This analysis shows that the SF-12 has good validity, while some issues related to its most appropriate mode of administration and target groups might require further attention...
  19. ncbi Evaluation of the EORTC QLQ-C30 questionnaire: a comparison with SF-36 Health Survey in a cohort of Italian long-survival cancer patients
    G Apolone
    Laboratorio per la Ricerca Clinica Oncologica, Istituto di Ricerche Farmacologiche Mario Negri, Milano, Italy
    Ann Oncol 9:549-57. 1998
    ..Despite the large amount of data available about the EORTC QLQ-C30 questionnaire, there have been very few studies focussed on long-survival cancer patients, and no data are available on its performance in the Italian setting...
  20. ncbi Trends in patterns of care for breast cancer in Italy (1979-1987)
    R Grilli
    Laboratorio di Epidemiologia Clinica, Istituto di Richerche Farmacologiche Mario Negri, Milano, Italy
    Tumori 76:184-9. 1990
    ..Among more narrowly defined clinical issues, there appeared to be some dissonance between the rapid acceptance of adjuvant treatments and the still slow pace of acceptance of less aggressive procedures by surgeons...
  21. ncbi Evaluation of quality of life in patients with malignant dysphagia
    C Brunelli
    Istituto Nazionale per lo Studio e la Cura dei Tumori, Milan, Italy
    Tumori 86:134-8. 2000
    ....
  22. ncbi Genetic testing and breast cancer: the women's point of view
    P Mosconi
    Italian Forum of EUROPA DONNA, Istituto di Ricerche Farmacologiche Mario Negri, Milan, Italy
    Ann Oncol 15:I40-I42. 2004
    ..This article reports the different points of view raised by women's movements, so that useful suggestions may be provided to improve breast cancer prevention modalities...
  23. ncbi Survival, quality of life and breast cancer
    P Mosconi
    Department of Oncology, Istituto di Ricerche Farmacologiche Mario Negri, Milan, Italy
    Ann Oncol 12:S15-9. 2001
    ..This paper, after a general introduction to the present debate on the methodological issues involved in QoL evaluation, reviews results and open questions regarding the use of this measure in surgical, adjuvant and metastatic studies...
  24. pmc Validation of Italian multiple sclerosis quality of life 54 questionnaire
    A Solari
    Istituto Nazionale Neurologico C Besta, Milan, Italy
    J Neurol Neurosurg Psychiatry 67:158-62. 1999
    ..The authors translated and culturally adapted into Italian the MS-18 module of the MSQOL-54 questionnaire, and clinically validated the whole questionnaire...
  25. ncbi Post-traumatic stress disorder
    Giovanni Apolone
    N Engl J Med 346:1495-8; author reply 1495-8. 2002
  26. ncbi Knowledge and opinions about clinical research. A cross-sectional survey in a sample of Italian citizens
    Giovanni Apolone
    Clinical Research in Oncology Laboratory, Istituto di Richerche Farmacologiche Mario Negri, Milan, Italy
    J Ambul Care Manage 26:83-7. 2003
    ..These findings might be useful in helping design and implement effective interventions to improve people's participation in the main phases of clinical research...
  27. pmc Association of mild anemia with cognitive, functional, mood and quality of life outcomes in the elderly: the "Health and Anemia" study
    Ugo Lucca
    Laboratory of Geriatric Neuropsychiatry, Istituto di Ricerche Farmacologiche Mario Negri, Milano, Italy
    PLoS ONE 3:e1920. 2008
    ..The objective of the present study was to cross-sectionally investigate the association of mild grade anemia with cognitive, functional, mood, and quality of life (QoL) variables in community-dwelling elderly persons...
  28. ncbi Women's perception of the benefits of mammography screening: population-based survey in four countries
    Gianfranco Domenighetti
    Cantonal Health Office, Via Orico 5, 6500 Bellinzona, Switzerland
    Int J Epidemiol 32:816-21. 2003
    ..Screening programmes are often actively promoted to achieve high coverage, which may result in unrealistic expectations. We examined women's understanding of the likely benefits of mammography screening...
  29. ncbi A multidisciplinary project to improve the quality of cancer pain management in Italy: background, methods, and preliminary results
    Giovanni Apolone
    Istituto di Ricerche Farmacologiche Mario Negri, Milan, Italy
    J Ambul Care Manage 29:332-41. 2006
    ..Activities started in 2005. Some results and outputs are already available; others will be ready by the end of 2007...
  30. ncbi Oncologists' opinions about research ethics committees in Italy: an update, 2004
    Paola Mosconi
    Laboratory of Medical Research and Consumer Involvement, Department of Oncology, Istituto di Ricerche Farmacologiche Mario Negri, Milan, Italy
    Eur J Cancer Prev 15:91-4. 2006
    ..This latter finding clearly identifies the need for educational activities, and the possibility of using this approach to foster interactions between RECs and researchers...
  31. ncbi Health-related quality of life in Italian patients with narcolepsy: the SF-36 health survey
    Luca Vignatelli
    Dipartimento di Scienze Neurologiche, Universita degli Studi di Bologna, Via Ugo Foscolo 7, 40123 Bologna, Italy
    Sleep Med 5:467-75. 2004
    ..To compare the HRQoL of patients with narcolepsy with the Italian norm. To disclose the clinical predictors influencing the HRQoL...
  32. ncbi Quality of life in randomized trials of cytotoxic or hormonal treatment of advanced breast cancer. Is there added value?
    Roldano Fossati
    Department of Oncology, Laboratory of Clinical Research in Oncology, Istituto di Ricerche Farmacologiche Mario Negri, Milano, Italy
    Breast Cancer Res Treat 87:233-43. 2004
    ..e. survival, response, time to progression, toxicity) in the choice of the best treatment option...
  33. ncbi Health-related quality of life and need for IVF in 1000 Italian infertile couples
    Guido Ragni
    Infertility Unit, Department of Obstetrics and Gynecology, University of Milan, Italy
    Hum Reprod 20:1286-91. 2005
    ..A specific and still poorly investigated issue in the field of infertility is represented by the impact that the need for IVF techniques may have on health-related quality of life (HRQoL)...
  34. ncbi Impact of a major thermoelectric plant on self-perceived health status
    Liliane Chatenoud
    Istituto di Ricerche Farmacologiche Mario Negri, Via Eritrea, 62 20157 Milano, Italy
    Prev Med 41:328-33. 2005
    ..Measuring self-perceived health status and risk perception according to environmental factors remains a major open issue with important health policy implications...
  35. ncbi Europa DONNA, the European Breast Cancer Coalition: lobbying at European and local levels
    Mary Buchanan
    EUROPA DONNA, European Breast Cancer Coalition, Milan, Italy
    J Ambul Care Manage 27:146-53. 2004
    ..Lobbying is one of the most important activities of EUROPA DONNA. In fact, only by involving institutions both on a local and a national level is it possible to achieve results that can benefit a large number of women...
  36. ncbi Health-related quality of life associated with chronic conditions in eight countries: results from the International Quality of Life Assessment (IQOLA) Project
    Jordi Alonso
    Health Services Research Unit, Institut Municipal d Investigacio Medica IMIM IMAS, Barcelona, Spain
    Qual Life Res 13:283-98. 2004
    ..Few studies and no international comparisons have examined the impact of multiple chronic conditions on populations using a comprehensive health-related quality of life (HRQL) questionnaire...
  37. ncbi Epilepsy and quality of life in adults: a review of instruments
    Maurizio A Leone
    Clinica Neurologica, Ospedale Maggiore della Carita, Novara, Italy
    Epilepsy Res 66:23-44. 2005
    ..All the other instruments should at present be considered only for second choice...
  38. ncbi Cyproterone acetate versus a continuous monophasic oral contraceptive in the treatment of recurrent pelvic pain after conservative surgery for symptomatic endometriosis
    Paolo Vercellini
    Istituto Ostetrico e Ginecologico Luigi Mangiagalli, University of Milan, Milan, Italy
    Fertil Steril 77:52-61. 2002
    ..To evaluate the efficacy and safety of cyproterone acetate versus an oral contraceptive in the treatment of endometriosis-associated recurrent pelvic pain...
  39. pmc Industry funding of patients' support groups: declaration of competing interests is rare in Italian breast cancer associations
    Paola Mosconi
    BMJ 327:344. 2003
  40. ncbi Satisfaction surveys: do we really need new questionnaires?
    Giovanni Apolone
    Int J Qual Health Care 17:463-4. 2005