P Mosconi

..The aims of the present survey were to assess the availability of clinical trial registries for Italian citizens and to examine the transparency of the data items reported...

..After five editions of this training program, a survey of the long-term satisfaction and the impact on activities has been carried out...

..The purpose of the present paper is to describe the methods adopted and to report and discuss the relevance of results...

..This monocentric cross sectional study is carried out to assess quality of life in colon cancer patients experienced skin side effects due to anti epidermal growth factor receptor inhibitors therapy...

..The domains investigated are well defined in terms of generic concepts and disease-specific domains, principal symptoms, and the validity of the questionnaires is generally well documented...

..A prospective study was launched to evaluate oncologists' opinions on Italian EC functioning...

..These analyses demonstrate a good performance of the questionnaire in terms of both validity and reliability, suggesting that this instrument can represent a solid base for future applications...

..Because little information is available about the public's awareness of and attitudes toward clinical research, we planned a survey on a convenience sample of health consumers...

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..In order to better understand the outcomes on a long-term survivor population, a sample of breast and colon cancer patients was evaluated using state-of-the-art health-related quality of life (HRQoL) approaches and instruments..

..The aims of the survey were to know medical societies attitude vs. patients involvement in research activities and healthcare setting and to find out possible projects conducted in partnership with patients associations...

..Women are exposed to messages that are often partial, non evidence-based nor transparently developed. The structured and participative methodology of this CC allowed a multidisciplinary perspective and a substantial lay people input...

..We are now developing ways of evaluating our activities, and trying to boost citizens' and patients' participation in decisional settings, concerning health care assistance and research studies...

..These results highlight the importance of a coalition to establish a consensus among the Fora, and the need for coordinated initiatives in different European countries...

..In order to cope with the problem of missing data, in both the trials the strategy of follow-up mailing was adopted, which proved to be an effective way to increase the response rate by nearly 50 per cent at each time point...

..S.A. Our results underscore the importance of analyzing the process of diffusion in any assessment of interventions based on knowledge dissemination...

..CONCLUSIONS: This analysis shows that the SF-12 has good validity, while some issues related to its most appropriate mode of administration and target groups might require further attention...

..Despite the large amount of data available about the EORTC QLQ-C30 questionnaire, there have been very few studies focussed on long-survival cancer patients, and no data are available on its performance in the Italian setting...

..Among more narrowly defined clinical issues, there appeared to be some dissonance between the rapid acceptance of adjuvant treatments and the still slow pace of acceptance of less aggressive procedures by surgeons...

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..This article reports the different points of view raised by women's movements, so that useful suggestions may be provided to improve breast cancer prevention modalities...

..This paper, after a general introduction to the present debate on the methodological issues involved in QoL evaluation, reviews results and open questions regarding the use of this measure in surgical, adjuvant and metastatic studies...

..The authors translated and culturally adapted into Italian the MS-18 module of the MSQOL-54 questionnaire, and clinically validated the whole questionnaire...

..These findings might be useful in helping design and implement effective interventions to improve people's participation in the main phases of clinical research...

..The objective of the present study was to cross-sectionally investigate the association of mild grade anemia with cognitive, functional, mood, and quality of life (QoL) variables in community-dwelling elderly persons...

..Screening programmes are often actively promoted to achieve high coverage, which may result in unrealistic expectations. We examined women's understanding of the likely benefits of mammography screening...

..Activities started in 2005. Some results and outputs are already available; others will be ready by the end of 2007...

..This latter finding clearly identifies the need for educational activities, and the possibility of using this approach to foster interactions between RECs and researchers...

..EDS is the main symptom determining this impairment. However, disease duration plays a role in counterbalancing this feature, probably by means of adaptation...

..e. survival, response, time to progression, toxicity) in the choice of the best treatment option...

..CONCLUSION: The need for IVF did not seem to markedly influence subjective health status. Conversely, duration of infertility and failure to achieve a pregnancy through IVF might have a negative impact...

..Measuring self-perceived health status and risk perception according to environmental factors remains a major open issue with important health policy implications...

..Lobbying is one of the most important activities of EUROPA DONNA. In fact, only by involving institutions both on a local and a national level is it possible to achieve results that can benefit a large number of women...

..Few studies and no international comparisons have examined the impact of multiple chronic conditions on populations using a comprehensive health-related quality of life (HRQL) questionnaire...

..All the other instruments should at present be considered only for second choice...

..To evaluate the efficacy and safety of cyproterone acetate versus an oral contraceptive in the treatment of endometriosis-associated recurrent pelvic pain...