Els Geelen

Summary

Publications

  1. ncbi Unravelling fears of genetic discrimination: an exploratory study of Dutch HCM families in an era of genetic non-discrimination acts
    Els Geelen
    Department of Health, Ethics and Society, Faculty of Health, Medicine and Life Sciences, Maastricht University, Maastricht, The Netherlands
    Eur J Hum Genet 20:1018-23. 2012
  2. ncbi Constructing "best interests": genetic testing of children in families with hypertrophic cardiomyopathy
    Els Geelen
    Department of Health, Ethics and Society, Maastricht University, Maastricht, The Netherlands
    Am J Med Genet A 155:1930-8. 2011
  3. ncbi Making genetics not so important: family work in dealing with familial hypertrophic cardiomyopathy
    Els Geelen
    Department of Health Ethics and Society Caphri, Faculty of Health, Medicine and Life Sciences, Maastricht University, Maastricht, The Netherlands
    Soc Sci Med 72:1752-9. 2011

Detail Information

Publications3

  1. ncbi Unravelling fears of genetic discrimination: an exploratory study of Dutch HCM families in an era of genetic non-discrimination acts
    Els Geelen
    Department of Health, Ethics and Society, Faculty of Health, Medicine and Life Sciences, Maastricht University, Maastricht, The Netherlands
    Eur J Hum Genet 20:1018-23. 2012
    ..These results help identify the possible limitations of genetic non-discrimination regulations and provide direction to clinicians supporting their clients as they confront issues of genetic testing and genetic discrimination...
  2. ncbi Constructing "best interests": genetic testing of children in families with hypertrophic cardiomyopathy
    Els Geelen
    Department of Health, Ethics and Society, Maastricht University, Maastricht, The Netherlands
    Am J Med Genet A 155:1930-8. 2011
    ..quot; To enable professionals to deal with the variety in family life, these learning processes should be documented closely...
  3. ncbi Making genetics not so important: family work in dealing with familial hypertrophic cardiomyopathy
    Els Geelen
    Department of Health Ethics and Society Caphri, Faculty of Health, Medicine and Life Sciences, Maastricht University, Maastricht, The Netherlands
    Soc Sci Med 72:1752-9. 2011
    ..Moreover, as these families demonstrate different styles of family work, establishing a single norm of 'good communication' in clinical genetics might in fact be more harmful for family life than genetic testing itself...