Claire Julian-Reynier

Summary

Country: France

Publications

  1. ncbi request reprint Women's attitudes toward preventive strategies for hereditary breast or ovarian carcinoma differ from one country to another: differences among English, French, and Canadian women
    C M Julian-Reynier
    INSERM U379, Epidemiology and Social Sciences Applied to Medical Innovation, Paoli Calmettes Institute, 232 Boulevard Sainte Marguerite, 13273 Marseilles Cedex 9, France
    Cancer 92:959-68. 2001
  2. ncbi request reprint Physicians' attitudes towards mammography and prophylactic surgery for hereditary breast/ovarian cancer risk and subsequently published guidelines
    C Julian-Reynier
    INSERM U379, Paoli Calmettes Institute, Marseilles, France
    Eur J Hum Genet 8:204-8. 2000
  3. ncbi request reprint France: genetics education for non-genetics health care providers
    Claire Julian-Reynier
    INSERM, UMR379, Epidemiology and Social Sciences Unit, Institut Paoli Calmettes, Marseille, France
    Community Genet 9:227-34. 2006
  4. ncbi request reprint Assessment of care by breast cancer patients participating or not participating in a randomized controlled trial: a report with the Patients' Committee for Clinical Trials of the Ligue Nationale Contre le Cancer
    Claire Julian-Reynier
    Institut National de la Sante et de la Recherche Medicale, U379, Epidemiology and Social Sciences Unit, Marseille, France
    J Clin Oncol 25:3038-44. 2007
  5. ncbi request reprint Genetics in clinical practice: general practitioners' educational priorities in European countries
    Claire Julian-Reynier
    INSERM, UMR912, Marseilles, France
    Genet Med 10:107-13. 2008
  6. ncbi request reprint Risk communication strategies: state of the art and effectiveness in the context of cancer genetic services
    Claire Julian-Reynier
    1INSERM U379, Epidemiology and Social Sciences Applied to Medical Innovation, Institut Paoli Calmettes, Marseille, France
    Eur J Hum Genet 11:725-36. 2003
  7. ncbi request reprint Uptake of hereditary breast/ovarian cancer genetic testing in a French national sample of BRCA1 families. The French Cancer Genetic Network
    C Julian-Reynier
    Epidemiology and Social Sciences Unit INSERM U379, Marseille, France
    Psychooncology 9:504-10. 2000
  8. ncbi request reprint Disclosure to the family of breast/ovarian cancer genetic test results: patient's willingness and associated factors
    C Julian-Reynier
    Epidemiology and Social Sciences Unit, Institut National de la Santé et de la Recherche Médicale INSERM U379, Marseille, France
    Am J Med Genet 94:13-8. 2000
  9. ncbi request reprint Patients' characteristics and rate of Internet use to obtain cancer information
    Julien Mancini
    INSERM UMR379, Epidemiology and Social Sciences Unit, Institut Paoli Calmettes, 232 Bd Ste Marguerite, F 13273 Marseille cedex 09, France
    J Public Health (Oxf) 28:235-7. 2006
  10. pmc BRCA1/2 carriers: their childbearing plans and theoretical intentions about having preimplantation genetic diagnosis and prenatal diagnosis
    Claire Julian-Reynier
    INSERM, U912, Marseille, France
    Genet Med 14:527-34. 2012

Detail Information

Publications46

  1. ncbi request reprint Women's attitudes toward preventive strategies for hereditary breast or ovarian carcinoma differ from one country to another: differences among English, French, and Canadian women
    C M Julian-Reynier
    INSERM U379, Epidemiology and Social Sciences Applied to Medical Innovation, Paoli Calmettes Institute, 232 Boulevard Sainte Marguerite, 13273 Marseilles Cedex 9, France
    Cancer 92:959-68. 2001
    ..The authors aimed to discover the existence of specific factors that may affect acceptability of these preventative measures...
  2. ncbi request reprint Physicians' attitudes towards mammography and prophylactic surgery for hereditary breast/ovarian cancer risk and subsequently published guidelines
    C Julian-Reynier
    INSERM U379, Paoli Calmettes Institute, Marseilles, France
    Eur J Hum Genet 8:204-8. 2000
    ..Constantly evolving knowledge about the efficacy of preventive intervention will give practitioners new elements to integrate into their counselling...
  3. ncbi request reprint France: genetics education for non-genetics health care providers
    Claire Julian-Reynier
    INSERM, UMR379, Epidemiology and Social Sciences Unit, Institut Paoli Calmettes, Marseille, France
    Community Genet 9:227-34. 2006
    ..This paper explores the treatment of medical genetics in undergraduate medical education, specialists' training and continuing medical education (CME) for general practitioners, specialists, nurses and midwives...
  4. ncbi request reprint Assessment of care by breast cancer patients participating or not participating in a randomized controlled trial: a report with the Patients' Committee for Clinical Trials of the Ligue Nationale Contre le Cancer
    Claire Julian-Reynier
    Institut National de la Sante et de la Recherche Medicale, U379, Epidemiology and Social Sciences Unit, Marseille, France
    J Clin Oncol 25:3038-44. 2007
    ..Cancer patients participating in randomized controlled trials (RCTs) have not been found to have better clinical outcomes than other patients. Our objective was to assess the impact of RCTs on patients' satisfaction with care...
  5. ncbi request reprint Genetics in clinical practice: general practitioners' educational priorities in European countries
    Claire Julian-Reynier
    INSERM, UMR912, Marseilles, France
    Genet Med 10:107-13. 2008
    ..To assess how general practitioners (GPs) from European countries prioritized their genetic educational needs according to their geographic, sociodemographic, and educational characteristics...
  6. ncbi request reprint Risk communication strategies: state of the art and effectiveness in the context of cancer genetic services
    Claire Julian-Reynier
    1INSERM U379, Epidemiology and Social Sciences Applied to Medical Innovation, Institut Paoli Calmettes, Marseille, France
    Eur J Hum Genet 11:725-36. 2003
    ..In conclusion, this paper adds clinical relevance to the research evidence. We propose specific steps that could be integrated in standard clinical practice based on current evidence for their usefulness/effectiveness...
  7. ncbi request reprint Uptake of hereditary breast/ovarian cancer genetic testing in a French national sample of BRCA1 families. The French Cancer Genetic Network
    C Julian-Reynier
    Epidemiology and Social Sciences Unit INSERM U379, Marseille, France
    Psychooncology 9:504-10. 2000
    ..87; p < 0.001); women (43%) also attended more frequently than men (16%) (OR = 3.97, p < 0.001). In French BRCA1 mutated families, female first degree relatives of the index patient show the most interest in genetic testing...
  8. ncbi request reprint Disclosure to the family of breast/ovarian cancer genetic test results: patient's willingness and associated factors
    C Julian-Reynier
    Epidemiology and Social Sciences Unit, Institut National de la Santé et de la Recherche Médicale INSERM U379, Marseille, France
    Am J Med Genet 94:13-8. 2000
    ....
  9. ncbi request reprint Patients' characteristics and rate of Internet use to obtain cancer information
    Julien Mancini
    INSERM UMR379, Epidemiology and Social Sciences Unit, Institut Paoli Calmettes, 232 Bd Ste Marguerite, F 13273 Marseille cedex 09, France
    J Public Health (Oxf) 28:235-7. 2006
    ..6; 95% confidence interval (CI) 1.3-5.1], the most highly educated (adjOR 2.1; 95% CI 1.1-4.0) and those under 41 years of age (adjOR 7.3; 95% CI 2.1-26.2). Almost one of every three women was dissatisfied of this source of information...
  10. pmc BRCA1/2 carriers: their childbearing plans and theoretical intentions about having preimplantation genetic diagnosis and prenatal diagnosis
    Claire Julian-Reynier
    INSERM, U912, Marseille, France
    Genet Med 14:527-34. 2012
    ..To assess the impact of BRCA1/2 test results on carriers' reproductive decision-making and the factors determining their theoretical intentions about preimplantation genetic diagnosis (PGD) and prenatal diagnosis (PND)...
  11. ncbi request reprint Cross-cultural validation of the Decisional Conflict Scale in a sample of French patients
    Julien Mancini
    INSERM UMR379, Epidemiology and Social Sciences Unit, Institut Paoli Calmettes, 232 Bd Ste Marguerite, B P 156, F 13273, Marseille Cedex 09, France
    Qual Life Res 15:1063-8. 2006
    ..The Decisional Conflict Scale (DCS, 16 items, 5 dimensions) designed to measure the level of decisional conflict experienced by patients making health care decisions has not yet been validated in French...
  12. pmc Cancer risk management strategies and perceptions of unaffected women 5 years after predictive genetic testing for BRCA1/2 mutations
    Claire Julian-Reynier
    INSERM, U912, IRD, Institut Paoli Calmettes, Marseille, France
    Eur J Hum Genet 19:500-6. 2011
    ..Informed decision-making involves letting women know whether opting for RRSO and breast MRI surveillance is as effective in terms of survival as RRM and RRSO...
  13. ncbi request reprint Impact of gene patents on the cost-effective delivery of care: the case of BRCA1 genetic testing
    Christine Sevilla
    National Institute for Health and Medical Research, INSERM Unit 379, Institut Paoli Calmettes, Marseilles, France
    Int J Technol Assess Health Care 19:287-300. 2003
    ..Alternative strategies using prescreening techniques, however, have been experienced worldwide...
  14. doi request reprint Assessing educational priorities in genetics for general practitioners and specialists in five countries: factor structure of the Genetic-Educational Priorities (Gen-EP) scale
    Jean Marc Calefato
    INSERM, UMR912, Aix Marseille Universite, Marseille, France
    Genet Med 10:99-106. 2008
    ..The objective of this study was to determine its factor structure, to test scaling assumptions and to determine internal consistency...
  15. doi request reprint Time to prophylactic surgery in BRCA1/2 carriers depends on psychological and other characteristics
    Claire Julian-Reynier
    INSERM, UMR912, Institut Paoli Calmettes, Marseille, France
    Genet Med 12:801-7. 2010
    ..To investigate the medical and psychosocial factors determining the time to prophylactic surgery of unaffected women carriers of a deleterious BRCA1/2 mutation...
  16. ncbi request reprint [Perception by cancer patients of biomedical research in the era of large-scale biobanking]
    Julien Mancini
    Aix Marseille Univ, UMR 912, 13009, Marseille, France
    Med Sci (Paris) 28:28-32. 2012
    ..Patients are globally expressing a wish for more proposals to participate in research in collaboration with scientific teams...
  17. ncbi request reprint [The supply of breast/ovarian cancer genetic susceptibility tests in France]
    Christine Sevilla
    INSERM U 379, Institut Paoli Calmettes, 232, boulevard Sainte Marguerite, BP 156, 13273 Marseille Cedex 9, France
    Med Sci (Paris) 20:788-92. 2004
    ....
  18. pmc Spontaneous disclosure of BRCA1/2 genetic test results to employers: a French prospective study
    Francois Eisinger
    Institut Paoli Calmettes, Marseille, France
    Eur J Hum Genet 20:981-3. 2012
    ....
  19. doi request reprint [Genetic predisposition to breast and ovarian cancer: importance of test results]
    Claire Julian-Reynier
    UMR 912, INSERM, IRD, Universite d Aix Marseille, Institut Paoli Calmettes 232, boulevard Sainte Marguerite 13273 Marseille cedex 09, France
    Med Sci (Paris) 27:657-61. 2011
    ....
  20. ncbi request reprint Which factors predict proposal and uptake of psychological counselling after BRCA1/2 test result disclosure?
    Christine Maheu
    INSERM, UMR912, Marseille, France Aix Marseille Université, UMR912, Marseille, France IRD, UMR912, Marseille, France McGill University, Montreal, Canada
    Psychooncology 23:420-7. 2014
    ....
  21. doi request reprint Professionals assess the acceptability of preimplantation genetic diagnosis and prenatal diagnosis for managing inherited predisposition to cancer
    Claire Julian-Reynier
    U912, INSERM, IRD, Universite Aix Marseille, 232 Bd Sainte Marguerite, 13273 Marseille Cedex 09, France
    J Clin Oncol 27:4475-80. 2009
    ..The aim of this study was to determine French professionals' attitudes about the acceptability of PGD and PND for inherited predisposition to cancer...
  22. ncbi request reprint Impact of an information booklet on satisfaction and decision-making about BRCA genetic testing
    Julien Mancini
    INSERM, UMR379, Institut Paoli Calmettes, Epidemiology and Social Sciences Unit, 232 Bd Ste Marguerite, Marseille F 13000, France
    Eur J Cancer 42:871-81. 2006
    ..95%; P = 0.009). In addition to a consultation providing more tailored information, a standardized written document improved the decision-making process involved in giving informed consent to genetic testing...
  23. ncbi request reprint Development of a scale for assessing respondents' perceptions of health research questionnaires (the REP-HQ Scale)
    Anne Deborah Bouhnik
    Institut National de la Sante et de la Recherche Medicale, UMR912 Health Economy, Social Sciences and Medical Information Processing SESSTIM, 232, boulevard de Sainte Marguerite, 13009 Marseille, France
    J Clin Epidemiol 65:1098-106. 2012
    ..To develop a scale for assessing Respondents' Perceptions of Health Research Questionnaires (the REP-HQ Scale) and test this scale psychometrically...
  24. doi request reprint Patients' regrets after participating in a randomized controlled trials depended on their involvement in the decision making
    Julien Mancini
    Aix Marseille University, School of Medicine, Marseille F 13385, France
    J Clin Epidemiol 65:635-42. 2012
    ..To identify the factors associated with long-term regrets expressed a posteriori by randomized controlled trial (RCT) participants questioned about their decision to participate in an RCT...
  25. doi request reprint Women's perceptions and experience of adjuvant tamoxifen therapy account for their adherence: breast cancer patients' point of view
    Isabelle Pellegrini
    INSERM, U912 SE4S, Marseille, France
    Psychooncology 19:472-9. 2010
    ..The aim of this study on primary breast cancer patients undergoing adjuvant tamoxifen treatment was to determine how their perceptions of the treatment and their experience of side-effects contributed to their adherence to the treatment...
  26. ncbi request reprint Contributing to research via biobanks: what it means to cancer patients
    Isabelle Pellegrini
    INSERM UMR912 SE4S, Marseille Cedex 9IRD, UMR912, Marseille cedex 9Institut Paoli Calmettes, Marseille Cedex 9Inserm UMR891 CRCM, Marseille Cedex 9Aix Marseille Univ, UMR912, Marseille cedex 9Assistance Publique Hôpitaux de Marseille, Timone Hospital, Public Health Department, Marseille Cedex 5, France
    Health Expect 17:523-33. 2014
    ..Knowledge about the patients' perspective and of the psychological rewards associated with tumour donation should be taken into account by physicians and caregivers discussing this topic with their patients. ..
  27. pmc Psychometric properties of a French version of a Dutch scale for assessing breast and body image (BBIS) in healthy women
    Noémie Resseguier
    INSERM, U912, SESSTIM, Marseille, France
    BMC Womens Health 13:24. 2013
    ..The aim of this study was to examine the psychometric properties of a generic scale assessing breast and body image (BBIS) in healthy women tested for BRCA1/2 mutations...
  28. ncbi request reprint Behavioral and economic impact of a familial history of cancers
    Francois Eisinger
    Institute Paoli Calmettes INSERM UMR, Marseille, France
    Fam Cancer 4:307-11. 2005
    ....
  29. ncbi request reprint Testing for BRCA1 mutations: a cost-effectiveness analysis
    Christine Sevilla
    INSERM U379, Paoli Calmettes Institute, Marseilles, France
    Eur J Hum Genet 10:599-606. 2002
    ..The monopolist approach of the firm which owns the patents on the BRCA1/2 genes, may, therefore limit the use of the most cost-effective strategies...
  30. doi request reprint Cancer survivors: familial risk perception and management advice given to their relatives
    Francois Eisinger
    UMR912, Institut Paoli Calmettes, Marseille, France
    Fam Cancer 10:147-55. 2011
    ..If survivors were better informed, they could play a critical role by conveying relevant and sound risk reduction messages to their relatives...
  31. ncbi request reprint Effects of genetic consultation on perception of a family risk of breast/ovarian cancer and determinants of inaccurate perception after the consultation
    Laetitia Huiart
    Epidemiology and Social Sciences Unit INSERM U379, Institut Paoli Calmettes, 232 Bd Ste Marguerite, 13273 Marseille Cedex 09, France
    J Clin Epidemiol 55:665-75. 2002
    ..The question arises as to whether a more comprehensive approach should be implemented and how to go about providing efficient cancer risk information in the context of health care systems...
  32. ncbi request reprint [Advanced rectal cancer: attitudes of French surgeons]
    S Arnaud
    INSERM U 379, 232, boulevard Sainte Marguerite, 13273 cedex 9, Marseille, France
    Ann Chir 128:293-300; discussion 301-2. 2003
    ..French guidelines recommended the treatment of locally advanced rectal cancers. Our aim was first to describe therapeutic decision of digestive surgeons related to clinical cases and then to measure their knowledge of french guidelines...
  33. ncbi request reprint [Women's preferences for early discharge after conservative breast surgery: feasibility, patient profile and satisfaction]
    S Arnaud
    INSERM U379, Institut Paoli Calmettes, 232, boulevard Sainte Marguerite, 13273 Marseille, France
    Ann Chir 128:26-33. 2003
    ....
  34. ncbi request reprint Information-seeking behaviour and psycho-social interactions during the genetic testing process
    C Cypowyj
    Epidemiology and Social Sciences Unit, INSERM U379, Marseille, France
    Community Genet 6:224-34. 2003
    ..The second aim was to study the role of the social network used by the patients to collect various opinions on which to base their decisions about being tested...
  35. ncbi request reprint [Targeted chemotherapy for breast cancer: patients perception of the use of tumor gene profiling approaches to better adapt treatments]
    Isabelle Pellegrini
    Inserm UMR912, IRD, Marseille, France
    Med Sci (Paris) 28:24-7. 2012
    ..This will ensure that those who agree to their tumor gene analysis have realistic expectations and sound deductions of the final result disclosure process...
  36. doi request reprint Consent for biobanking: assessing the understanding and views of cancer patients
    Julien Mancini
    Universite d Aix Marseille, Marseille, France
    J Natl Cancer Inst 103:154-7. 2011
    ..We conclude that the opt-in consent procedure is positively perceived by most patients but should be improved for a better understanding and possibly an even better adherence to the consent process...
  37. ncbi request reprint Comparison of physicians' and cancer prone women's attitudes about breast/ovarian prophylactic surgery. Results from two national surveys
    F Eisinger
    INSERM U379, Marseille, France
    Fam Cancer 1:157-62. 2001
    ..Our results indicate that assumed reduced mortality is not the main criterion steering acceptability. It was anticipated that prophylactic mastectomy should be rarely performed in France...
  38. ncbi request reprint Decision-making and breast cancer clinical trials: how experience challenges attitudes
    Julien Mancini
    INSERM, UMR379, Epidemiology and Social Sciences Unit, Paoli Calmettes Institute, Marseille, F 13273, France
    Contemp Clin Trials 28:684-94. 2007
    ..The aim of this study was to measure women's preferences about decision-making and their impact to participate or not to a hypothetical randomised controlled trial (RCT)...
  39. ncbi request reprint Patients' and surgeons' perspectives on axillary surgery for breast cancer
    S Arnaud
    INSERM U379, 13273 Marseille 9, France
    Eur J Surg Oncol 30:735-43. 2004
    ..The objectives of this study were to compare the postoperative morbidity of Sentinel lymph node biopsy (SLNB) and axillary lymph node dissection (ALND) and to compare the views of surgeons and patients regarding postoperative morbidity...
  40. ncbi request reprint Determinants of patients' choice of reconstruction with mastectomy for primary breast cancer
    P Ananian
    INSERM U379, Institut Paoli Calmettes, 232 Boulevard Sainte Marguerite, 13273 Marseille Cedex 9, France
    Ann Surg Oncol 11:762-71. 2004
    ..The aim of the study was to measure women's decisions about breast reconstruction (BR) after mastectomy and to assess the factors contributing to their decisions, in a context involving shared decision-making and maximum patient autonomy...
  41. ncbi request reprint [Breast reconstruction after mastectomy for breast cancer: which reconstructive surgical procedure should be retained?]
    P Ananian
    INSERM U379, Institut Paoli Calmettes, GRECAM, 232, boulevard Sainte Marguerite, BP 156, Marseille 09, France
    Ann Chir 129:192-202. 2004
    ..Clinical surveys assessing relation between radiotherapy and clinical and psychosocial outcome of breast reconstruction are urgently expected...
  42. ncbi request reprint International perspectives on genetic counseling and testing for breast cancer risk
    Bettina Meiser
    Psychosocial Research Group, Department of Medical Oncology, Prince of Wales Hospital, Dickinson 3, Randwick, NSW, Australia
    Breast Dis 27:109-25. 2006
    ....
  43. ncbi request reprint Genetic education and nongenetic health professionals: educational providers and curricula in Europe
    Kirsty Challen
    GenEd Coordinating Centre, University of Manchester, UK
    Genet Med 7:302-10. 2005
    ....
  44. ncbi request reprint Communicating familial risks: individual and community issues involved in cancer genetics
    Claire Julian-Reynier
    Community Genet 6:189-91. 2003
  45. ncbi request reprint Congress report of the seventh international meeting on psychosocial aspects of genetic testing for hereditary breast and/or ovarian cancer (HBOC) and hereditary non-polyposis colorectal cancer (HNPCC)
    Jochen Jordan
    Clinic of Psychosomatic Medicine and Psychotherapy, Hospital of the Johann Wolfgang Goethe University, Frankfurt, Germany
    Psychooncology 11:536-9. 2002
  46. ncbi request reprint Testing participation in BRCA1/2-positive families: initiator role of index cases
    Cécile Blandy
    Service de Genetique, Institut Curie, 26 Rue d Ulm, F75248 Paris Cedex 5, France
    Genet Test 7:225-33. 2003
    ..A major challenge for genetic counseling is to ensure that consulting patients not only receive complete understanding but also understand this information and anticipate the impact of the test result before deciding to take the test...