- Psychosocial consequences of predictive genetic testing for Lynch syndrome and associations to surveillance behaviour in a 7-year follow-up studyKatja Aktan-Collan
Department of Medical Genetics, Haartman Institute Biomedicum, University of Helsinki, PO Box 63, FIN 00014, Helsinki, Finland
Fam Cancer 12:639-46. 2013..Some non-carriers were still worried about their risk and had doubts about the validity of their genetic testing results predicting post-test colonoscopy...
- Sharing genetic risk with next generation: mutation-positive parents' communication with their offspring in Lynch SyndromeKatja I Aktan-Collan
Department of Medical Genetics, Haartman Institute Biomedicum, University of Helsinki, Helsinki, Finland
Fam Cancer 10:43-50. 2011..The challenge is to improve the communication processes, so that all offspring would get the information important for their health care, and parents would get the professional support desired at disclosure...