Fiona A Miller

Summary

Affiliation: University of Toronto
Country: Canada

Publications

  1. pmc What is a meaningful result? Disclosing the results of genomic research in autism to research participants
    Fiona Alice Miller
    Department of Health Policy, Management and Evaluation, University of Toronto, Toronto, Ontario, Canada
    Eur J Hum Genet 18:867-71. 2010
  2. doi request reprint The primary care physician role in cancer genetics: a qualitative study of patient experience
    Fiona A Miller
    Department of Health Policy, Management and Evaluation, Mount Sinai Hospital, University of Toronto, Toronto, Ontario, Canada
    Fam Pract 27:563-9. 2010
  3. doi request reprint Do canadian researchers and the lay public prioritize biomedical research outcomes equally? A choice experiment
    Fiona A Miller
    Institute of Health Policy, Management and Evaluation, University of Toronto, Toronto, Ontario, Canada
    Acad Med 88:519-26. 2013
  4. pmc One thing leads to another: the cascade of obligations when researchers report genetic research results to study participants
    Fiona Alice Miller
    Institute of Health Policy, Management and Evaluation, University of Toronto, Toronto, Ontario, Canada
    Eur J Hum Genet 20:837-43. 2012
  5. doi request reprint Clinical obligations and public health programmes: healthcare provider reasoning about managing the incidental results of newborn screening
    F A Miller
    Department of Health Policy, Management and Evaluation, University of Toronto, Ontario, Canada
    J Med Ethics 35:626-34. 2009
  6. pmc Understanding sickle cell carrier status identified through newborn screening: a qualitative study
    Fiona A Miller
    Faculty of Medicine, Department of Health Policy, Management and Evaluation, University of Toronto, Toronto, Ontario, Canada
    Eur J Hum Genet 18:303-8. 2010
  7. doi request reprint Consent for newborn screening: the attitudes of health care providers
    F A Miller
    University of Toronto, Toronto, Ont, Canada
    Public Health Genomics 13:181-90. 2010
  8. doi request reprint What does 'respect for persons' require? Attitudes and reported practices of genetics researchers in informing research participants about research
    Fiona Alice Miller
    Department of Health Policy, Management and Evaluation, University of Toronto, 155 College Street, Toronto, Ontario, Canada
    J Med Ethics 38:48-52. 2012
  9. ncbi request reprint The complex promise of newborn screening
    Fiona A Miller
    Department of Health Policy, Management and Evaluation, University of Toronto, Toronto M5T 3M6 Canada
    Indian J Med Ethics 6:142-8. 2009
  10. pmc Postal survey of physicians and laboratories: practices and perceptions of molecular oncology testing
    Fiona A Miller
    Department of Health Policy, Management and Evaluation, University of Toronto, Toronto, Canada
    BMC Health Serv Res 9:131. 2009

Detail Information

Publications27

  1. pmc What is a meaningful result? Disclosing the results of genomic research in autism to research participants
    Fiona Alice Miller
    Department of Health Policy, Management and Evaluation, University of Toronto, Toronto, Ontario, Canada
    Eur J Hum Genet 18:867-71. 2010
    ....
  2. doi request reprint The primary care physician role in cancer genetics: a qualitative study of patient experience
    Fiona A Miller
    Department of Health Policy, Management and Evaluation, Mount Sinai Hospital, University of Toronto, Toronto, Ontario, Canada
    Fam Pract 27:563-9. 2010
    ..The perspective of primary care physicians (PCPs) regarding their role in support of genetic testing has been explored, but little is known about the expectations of patients or the PCP role once genetic test results are received...
  3. doi request reprint Do canadian researchers and the lay public prioritize biomedical research outcomes equally? A choice experiment
    Fiona A Miller
    Institute of Health Policy, Management and Evaluation, University of Toronto, Toronto, Ontario, Canada
    Acad Med 88:519-26. 2013
    ..To quantify and compare the preferences of researchers and laypeople in Canada regarding the outcomes of basic biomedical research...
  4. pmc One thing leads to another: the cascade of obligations when researchers report genetic research results to study participants
    Fiona Alice Miller
    Institute of Health Policy, Management and Evaluation, University of Toronto, Toronto, Ontario, Canada
    Eur J Hum Genet 20:837-43. 2012
    ..In addition, they raise challenging questions about how any cascading obligations are to be met, especially where access challenges are already prevalent...
  5. doi request reprint Clinical obligations and public health programmes: healthcare provider reasoning about managing the incidental results of newborn screening
    F A Miller
    Department of Health Policy, Management and Evaluation, University of Toronto, Ontario, Canada
    J Med Ethics 35:626-34. 2009
    ..Healthcare providers play a key role in educating families or caring for screened infants and have strong beliefs about the management of incidental results...
  6. pmc Understanding sickle cell carrier status identified through newborn screening: a qualitative study
    Fiona A Miller
    Faculty of Medicine, Department of Health Policy, Management and Evaluation, University of Toronto, Toronto, Ontario, Canada
    Eur J Hum Genet 18:303-8. 2010
    ..Disclosure policy related to incidentally generated infant carrier results needs to account for these complex realities...
  7. doi request reprint Consent for newborn screening: the attitudes of health care providers
    F A Miller
    University of Toronto, Toronto, Ont, Canada
    Public Health Genomics 13:181-90. 2010
    ..As newborn screening (NBS) expands to meet a broader definition of benefit, the scope of parental consent warrants reconsideration...
  8. doi request reprint What does 'respect for persons' require? Attitudes and reported practices of genetics researchers in informing research participants about research
    Fiona Alice Miller
    Department of Health Policy, Management and Evaluation, University of Toronto, 155 College Street, Toronto, Ontario, Canada
    J Med Ethics 38:48-52. 2012
    ..Yet little research explores researchers' attitudes and practices regarding the range of initiatives that might serve these ends...
  9. ncbi request reprint The complex promise of newborn screening
    Fiona A Miller
    Department of Health Policy, Management and Evaluation, University of Toronto, Toronto M5T 3M6 Canada
    Indian J Med Ethics 6:142-8. 2009
    ..Frameworks for public health ethics can aid sound policy development in India, and help to inform the larger international debate about the expansion and benefits of NBS...
  10. pmc Postal survey of physicians and laboratories: practices and perceptions of molecular oncology testing
    Fiona A Miller
    Department of Health Policy, Management and Evaluation, University of Toronto, Toronto, Canada
    BMC Health Serv Res 9:131. 2009
    ..Yet knowledge limitations regarding the delivery of testing services may constrain the translation of scientific advancements into effective health care...
  11. doi request reprint Imagining value, imagining users: academic technology transfer for health innovation
    Fiona Alice Miller
    Health Policy, Management and Evaluation, University of Toronto, Ontario, Canada M5T 3M6
    Soc Sci Med 68:1481-8. 2009
    ..Judgments of value are rendered sensible in relation to the logic of valuation for systems of innovation that, in turn, configure users of health innovation in systemic ways...
  12. pmc Questioning the consensus: managing carrier status results generated by newborn screening
    Fiona Alice Miller
    Department of Health Policy, Faculty of Medicine, University of Toronto, Toronto, ON, Canada
    Am J Public Health 99:210-5. 2009
    ..Resolving this dilemma demands consideration of a distinctive body of public health ethics to highlight the moral imperatives associated with the exercise of collective authority in the pursuit of public health benefits...
  13. doi request reprint Contending visions in the evolution of genetic medicine: the case of cancer genetic services in Ontario, Canada
    Fiona Alice Miller
    Health Policy, Management and Evaluation, University of Toronto, 155 College Street, 4th Floor, Toronto, Ontario M5T 3M6, Canada
    Soc Sci Med 67:152-60. 2008
    ..Yet questions about who will control genetic technologies are not simply turf battles between the professions: they are also inescapably questions about what the genetic technologies should and will accomplish clinically...
  14. doi request reprint Duty to disclose what? Querying the putative obligation to return research results to participants
    F A Miller
    Department of Health, Policy, Management and Evaluation, University of Toronto, 155 College St, 4th Floor, Toronto, Ontario MST 3M6, Canada
    J Med Ethics 34:210-3. 2008
    ..Even where policy guidance and scholarly commentary have been most forceful in support of an ethical imperative to disclose research results, ambiguity regarding what is to be disclosed confounds ethical action...
  15. pmc When research seems like clinical care: a qualitative study of the communication of individual cancer genetic research results
    Fiona A Miller
    Department of Health Policy, Management and Evaluation, University of Toronto, Toronto, Canada
    BMC Med Ethics 9:4. 2008
    ..Empirical data on these questions are limited. Available evidence suggests, on the one hand, growing support for disclosure, and on the other, the potential for significant harm...
  16. doi request reprint Citizens' values regarding research with stored samples from newborn screening in Canada
    Yvonne Bombard
    Institute of Health Policy, Management and Evaluation, University of Toronto, Toronto, Canada
    Pediatrics 129:239-47. 2012
    ..We explored Canadian values regarding storage and use of NBS samples for various purposes and the forms of parental choice for anonymous research with NBS samples...
  17. pmc Health-care providers' views on pursuing reproductive benefit through newborn screening: the case of sickle cell disorders
    Yvonne Bombard
    Department of Health Policy, Management and Evaluation, University of Toronto, Toronto, Ontario, Canada
    Eur J Hum Genet 20:498-504. 2012
    ..Broader discussion of the balance between benefits to screened individuals and those to families and societies, in the context of public health programs, is needed...
  18. doi request reprint Informing parents about expanded newborn screening: influences on provider involvement
    Robin Z Hayeems
    Department of Health Policy, Management, and Evaluation, Mount Sinai Hospital, University of Toronto, Ontario, Canada
    Pediatrics 124:950-8. 2009
    ..Expanded newborn screening (NBS) identifies some disorders for which clinical benefit is uncertain, as well as "incidental" findings (eg, carrier status), thus enhancing the need to inform parents about NBS before sample collection...
  19. pmc Primary care role in expanded newborn screening: After the heel prick test
    Robin Z Hayeems
    Department of Health Policy, Management and Evaluation, University of Toronto, 155 College St, 4th Floor, Toronto, ON M5T 3M6, Canada
    Can Fam Physician 59:861-8. 2013
    ..To examine the role of primary care providers in informing and supporting families who receive positive screening results...
  20. doi request reprint Parents' perspectives on participating in genetic research in autism
    Magan Trottier
    Division of Clinical and Metabolic Genetics, The Hospital for Sick Children, Toronto, ON, Canada
    J Autism Dev Disord 43:556-68. 2013
    ..The results of this study highlight complex factors involved in families' decisions to participate in autism genetic research and provide points to consider for this population of research participants...
  21. doi request reprint A systematic review of the effects of disclosing carrier results generated through newborn screening
    R Z Hayeems
    Department of Health Policy Management and Evaluation, University of Toronto, 155 College Street, 4th Floor, Toronto, ON, M5T 3M6, Canada
    J Genet Couns 17:538-49. 2008
    ..As key players in the management of carrier results clinically, genetic counselors are well positioned to engage in formative research and policy development in this area...
  22. doi request reprint Does a duty of disclosure foster special treatment of genetic research participants?
    Robin Z Hayeems
    Institute of Health Policy, Management and Evaluation, University of Toronto, 155 College Street, 4th Floor, Toronto, Ontario, M5T 3M6, Canada
    J Genet Couns 22:654-61. 2013
    ..For researchers, feeling obliged to report research results may be in conflict with the obligation to avoid special treatment of research participants; this may in turn threaten principles of voluntariness, autonomy, and justice...
  23. doi request reprint Ethics in Canadian health technology assessment: a descriptive review
    Deirdre DeJean
    Health Research Methodology Programme, McMaster University, Ontario, Canada
    Int J Technol Assess Health Care 25:463-9. 2009
    ..This study examines both whether and how ethical issues are incorporated into HTA...
  24. doi request reprint Testing personalized medicine: patient and physician expectations of next-generation genomic sequencing in late-stage cancer care
    Fiona A Miller
    1 Institute of Health Policy, Management and Evaluation, University of Toronto, Toronto, ON, Canada 2 Joint Centre for Bioethics, University of Toronto, Toronto, ON, Canada
    Eur J Hum Genet 22:391-5. 2014
    ..These findings suggest the need for information and decision tools to support physicians in communicating realistic prospects of benefit, and for cautious approaches to the generation of incidental genetic information. ..
  25. doi request reprint Parents' preferences for drug treatments in juvenile idiopathic arthritis: a discrete choice experiment
    Heather F Burnett
    The Hospital for Sick Children, Toronto, Ontario, Canada
    Arthritis Care Res (Hoboken) 64:1382-91. 2012
    ..To examine parents' preferences for drug treatments and health outcomes in juvenile idiopathic arthritis (JIA) and identify demographic and health-related factors that significantly impact choice...
  26. pmc Reconsidering reproductive benefit through newborn screening: a systematic review of guidelines on preconception, prenatal and newborn screening
    Yvonne Bombard
    Department of Health Policy, Management and Evaluation, Faculty of Medicine, University of Toronto, Toronto, ON, Canada
    Eur J Hum Genet 18:751-60. 2010
    ..Traditional norms for NBS may require reconsideration where the remit of screening exceeds the primary goal of clinical benefits for infants...
  27. ncbi request reprint Incorporating documents into qualitative nursing research
    Fiona A Miller
    Department of Clinical Epidemiology and Biostatistics, Centre for Health Economics and Policy Analysis, McMaster University, Hamilton, Ontario, Canada
    J Nurs Scholarsh 37:348-53. 2005
    ..To present an overview of how documents can be incorporated as key sources of data in qualitative nursing research...