Nancy L Young

Summary

Affiliation: The Hospital for Sick Children
Country: Canada

Publications

  1. ncbi request reprint Telehomecare: a comparison of three Canadian models
    Nancy L Young
    The Hospital for Sick Children, Toronto, Ontario, Canada
    Telemed J E Health 10:45-52. 2004
  2. ncbi request reprint Taking the call-bell home: a qualitative evaluation of Tele-HomeCare for children
    Nancy L Young
    Community Health Systems Resource Group, The Hospital for Sick Children, 555 University Avenue, Toronto, Ontario, Canada M5G 1X8
    Health Soc Care Community 14:231-41. 2006
  3. ncbi request reprint Use of health care among adults with chronic and complex physical disabilities of childhood
    Nancy L Young
    The Hospital for Sick Children, Toronto, Canada
    Disabil Rehabil 27:1455-60. 2005
  4. ncbi request reprint How well does the Canadian Haemophilia Outcomes-Kids' Life Assessment Tool (CHO-KLAT) measure the quality of life of boys with haemophilia?
    Nancy L Young
    The Hospital for Sick Children, Toronto, Ontario, Canada
    Pediatr Blood Cancer 47:305-11. 2006
  5. ncbi request reprint Development of a health-related quality of life measure for boys with haemophilia: the Canadian Haemophilia Outcomes--Kids Life Assessment Tool (CHO-KLAT)
    N L Young
    The Hospital for Sick Children, Toronto, Canada
    Haemophilia 10:34-43. 2004
  6. ncbi request reprint Preference for pediatric telehome care support following hospitalization: a report on preference and satisfaction
    Paul T Dick
    Paediatric Outcomes Research Team, Division of Paediatric Medicine, The Hospital for Sick Children, Toronto, Ontario, Canada
    Telemed J E Health 10:S-45-53. 2004
  7. doi request reprint Transition to adult-oriented health care: perspectives of youth and adults with complex physical disabilities
    Nancy L Young
    School of Rural and Northern Health, Laurentian University, Sudbury, Ontario, Canada
    Phys Occup Ther Pediatr 29:345-61. 2009
  8. doi request reprint The health and quality of life outcomes among youth and young adults with cerebral palsy
    Nancy L Young
    School of Rural and Northern Health, Laurentian University, Sudbury, Ontario, Canada
    Arch Phys Med Rehabil 91:143-8. 2010
  9. ncbi request reprint Using exploratory focus groups to establish a sampling strategy to investigate disability experienced by adults living with HIV
    Kelly K O'Brien
    Centre for Research on Inner City Health, The Keenan Research Centre in the Li Ka Shing Knowledge Institute, St Michael s Hospital, Ontario, Canada
    Curr HIV Res 7:626-33. 2009
  10. pmc How do existing HIV-specific instruments measure up? Evaluating the ability of instruments to describe disability experienced by adults living with HIV
    Kelly K O'Brien
    Department of Health Policy, Management and Evaluation, University of Toronto, Toronto, Ontario, Canada
    Health Qual Life Outcomes 8:88. 2010

Collaborators

Detail Information

Publications45

  1. ncbi request reprint Telehomecare: a comparison of three Canadian models
    Nancy L Young
    The Hospital for Sick Children, Toronto, Ontario, Canada
    Telemed J E Health 10:45-52. 2004
    ..THC provides opportunities to address limitations in the current system and to improve upon equity of access to quality care for children making the transition from hospital to home...
  2. ncbi request reprint Taking the call-bell home: a qualitative evaluation of Tele-HomeCare for children
    Nancy L Young
    Community Health Systems Resource Group, The Hospital for Sick Children, 555 University Avenue, Toronto, Ontario, Canada M5G 1X8
    Health Soc Care Community 14:231-41. 2006
    ..However, our findings are consistent with previous reports of the benefits of THC. Thus, THC is a successful method of healthcare service delivery that enables a safe return home with professional support provided remotely...
  3. ncbi request reprint Use of health care among adults with chronic and complex physical disabilities of childhood
    Nancy L Young
    The Hospital for Sick Children, Toronto, Canada
    Disabil Rehabil 27:1455-60. 2005
    ..Their admission rate is 9.0 times that of the general population, and few have a primary care physician. A new model of service may be necessary for this high-needs group...
  4. ncbi request reprint How well does the Canadian Haemophilia Outcomes-Kids' Life Assessment Tool (CHO-KLAT) measure the quality of life of boys with haemophilia?
    Nancy L Young
    The Hospital for Sick Children, Toronto, Ontario, Canada
    Pediatr Blood Cancer 47:305-11. 2006
    ..This paper describes the final phase of development of a disease-specific measure of QoL for boys with haemophilia: the Canadian Haemophilia Outcomes-Kids Life Assessment Tool (CHO-KLAT)...
  5. ncbi request reprint Development of a health-related quality of life measure for boys with haemophilia: the Canadian Haemophilia Outcomes--Kids Life Assessment Tool (CHO-KLAT)
    N L Young
    The Hospital for Sick Children, Toronto, Canada
    Haemophilia 10:34-43. 2004
    ..This child-centric focus distinguishes the CHO-KLAT from alternative measures of QoL. Further research will assess the measurement properties of the CHO-KLAT...
  6. ncbi request reprint Preference for pediatric telehome care support following hospitalization: a report on preference and satisfaction
    Paul T Dick
    Paediatric Outcomes Research Team, Division of Paediatric Medicine, The Hospital for Sick Children, Toronto, Ontario, Canada
    Telemed J E Health 10:S-45-53. 2004
    ..Additional evidence on costs and benefits may be important for promoting further development of this type of service...
  7. doi request reprint Transition to adult-oriented health care: perspectives of youth and adults with complex physical disabilities
    Nancy L Young
    School of Rural and Northern Health, Laurentian University, Sudbury, Ontario, Canada
    Phys Occup Ther Pediatr 29:345-61. 2009
    ..The transition to adulthood is extremely difficult for individuals with disabilities. We sought to explore the specific issue of transition to adult-oriented health care in a Canadian context...
  8. doi request reprint The health and quality of life outcomes among youth and young adults with cerebral palsy
    Nancy L Young
    School of Rural and Northern Health, Laurentian University, Sudbury, Ontario, Canada
    Arch Phys Med Rehabil 91:143-8. 2010
    ..Young NL, Rochon TG, McCormick A, Law M, Wedge JH, Fehlings D. The health and quality of life outcomes among youth and young adults with cerebral palsy...
  9. ncbi request reprint Using exploratory focus groups to establish a sampling strategy to investigate disability experienced by adults living with HIV
    Kelly K O'Brien
    Centre for Research on Inner City Health, The Keenan Research Centre in the Li Ka Shing Knowledge Institute, St Michael s Hospital, Ontario, Canada
    Curr HIV Res 7:626-33. 2009
    ..Exploratory focus groups may be a useful technique to determine a sampling strategy when exploring a new phenomenon in HIV qualitative research...
  10. pmc How do existing HIV-specific instruments measure up? Evaluating the ability of instruments to describe disability experienced by adults living with HIV
    Kelly K O'Brien
    Department of Health Policy, Management and Evaluation, University of Toronto, Toronto, Ontario, Canada
    Health Qual Life Outcomes 8:88. 2010
    ..In this paper, we describe the extent to which existing HIV-specific health-status instruments capture the experience of disability for adults living with HIV...
  11. ncbi request reprint An examination of quality of life of children and parents during their Tele-Homecare experience
    Nancy L Young
    The Hospital for Sick Children, Toronto, Ontario
    Telemed J E Health 12:663-71. 2006
    ..Moreover, the improvements were sustained beyond the termination of the THC service and were not associated with additional burden on families...
  12. pmc Exploring disability from the perspective of adults living with HIV/AIDS: development of a conceptual framework
    Kelly K O'Brien
    Department of Health Policy, Management and Evaluation, University of Toronto, Toronto, Ontario, Canada
    Health Qual Life Outcomes 6:76. 2008
    ..The purpose of this research was to develop a conceptual framework of disability from the perspective of adults living with HIV...
  13. doi request reprint Updating the Canadian hemophilia outcomes-kids life assessment tool (CHO-KLAT Version2.0)
    Nancy L Young
    School of Rural and Northern Health, Laurentian University, Sudbury, Ontario, Canada
    Value Health 16:837-41. 2013
    ..This study assessed the validity and reliability of version 2.0 of the CHO-KLAT (CHO-KLAT2.0)...
  14. doi request reprint Health outcomes among youths and adults with spina bifida
    Nancy L Young
    School of Rural and Northern Health, Laurentian University, Sudbury, Ontario, Canada
    J Pediatr 162:993-8. 2013
    ..To describe the health and health-related quality of life (HR-QoL) outcomes of youths and young adults with spina bifida...
  15. pmc Cross-cultural adaptation of the CHO-KLAT for boys with hemophilia in rural and urban China
    Runhui Wu
    Department of Haematology, Beijing Children s Hospital and Capital Medical University, Beijing, China
    Health Qual Life Outcomes 10:112. 2012
    ..Quality of life (QoL) is increasingly recognized as an important outcome measure in clinical trials. The Canadian Hemophilia Outcomes-Kids Life Assessment Tool (CHO-KLAT) shows promise for use in China...
  16. ncbi request reprint The Quality of My Life questionnaire: the minimal clinically important difference for pediatric rheumatology patients
    Grace W K Gong
    Division of Rheumatology, Population Health Sciences Program, Research Institute, The Hospital for Sick Children, Toronto, Ontario, Canada
    J Rheumatol 34:581-7. 2007
    ..To establish construct validity of the QoML questionnaire. To determine the minimal clinically important difference (MCID) for the Quality of Life (QOL) and Health-Related Quality of Life (HRQOL) scales...
  17. doi request reprint The Internet is valid and reliable for child-report: an example using the Activities Scale for Kids (ASK) and the Pediatric Quality of Life Inventory (PedsQL)
    Nancy L Young
    School of Rural and Northern Health, Laurentian University, Sudbury, Ontario, Canada
    J Clin Epidemiol 62:314-20. 2009
    ..This study tested the impact of web administration on well-established measures of children's physical function and quality of life...
  18. ncbi request reprint Validity, reliability, and responsiveness of a new measure of health-related quality of life in children with immune thrombocytopenic purpura: the Kids' ITP Tools
    Robert J Klaassen
    Department of Pediatrics, Children s Hospital of Eastern Ontario, Ottawa, Ontario, Canada
    J Pediatr 150:510-5, 515.e1. 2007
    ..To refine the disease-specific health-related quality of life measure in immune (idiopathic) thrombocytopenic purpura (ITP) and to determine its validity, reliability, and responsiveness to change...
  19. pmc Putting episodic disability into context: a qualitative study exploring factors that influence disability experienced by adults living with HIV/AIDS
    Kelly K O'Brien
    Department of Health Policy, Management and Evaluation, Faculty of Medicine, University of Toronto, Ontario, Canada
    J Int AIDS Soc 12:5. 2009
    ..abstract:..
  20. ncbi request reprint Comparison of oral versus normal and high-dose rectal acetaminophen in the treatment of febrile children
    Dennis Scolnik
    Division of Emergency Services, The Hospital for Sick Children, Toronto, Ontario, Canada
    Pediatrics 110:553-6. 2002
    ..To compare the defervescent effect of high-dose rectal suppository acetaminophen with the recommended oral and rectal dosages and to evaluate acceptability of rectal acetaminophen...
  21. ncbi request reprint Comparing two measures of quality of life for children with haemophilia: the CHO-KLAT and the Haemo-QoL
    C S Bradley
    Department of Rehabilitation Services, The Hospital for Sick Children, Toronto, ON, Canada
    Haemophilia 12:643-53. 2006
    ..The present recommendation is that the measures be run independently, but preferably concurrently in studies of children with haemophilia...
  22. ncbi request reprint Health-related quality of life (HRQL) scores reported from parents and their children with chronic illness differed depending on utility elicitation method
    L Sung
    Department of Pediatrics, University of Toronto, Toronto, Ontario, Canada
    J Clin Epidemiol 57:1161-6. 2004
    ..To describe the relationship between health-related quality of life (HRQL) as measured by utility when elicited from parents and their children with chronic illness...
  23. pmc Construct validation of the Health Utilities Index and the Child Health Questionnaire in children undergoing cancer chemotherapy
    L Sung
    Department of Health Policy Management and Evaluation, University of Toronto, Ontario, Canada
    Br J Cancer 88:1185-90. 2003
    ..1, s.d.=3.4 min, P<0.0001). In conclusion, HUI and CHQ demonstrated construct validity in children undergoing cancer chemotherapy. The Health Utilities Index is subject to a ceiling effect whereas CHQ requires more time to complete...
  24. doi request reprint Pilot study of the effect of romiplostim on child health-related quality of life (HRQoL) and parental burden in immune thrombocytopenia (ITP)
    Robert J Klaassen
    Children s Hospital of Eastern Ontario, University of Ottawa, 401 Smyth Road, Ottawa, Ontario, Canada
    Pediatr Blood Cancer 58:395-8. 2012
    ..In this study, the impact of romiplostim treatment on the HRQoL of children with chronic ITP was assessed using the Kid's ITP Tools (KIT)...
  25. ncbi request reprint Men on the margin: a Bourdieusian examination of living into adulthood with muscular dystrophy
    Barbara E Gibson
    Department of Physical Therapy, University of Toronto, Toronto, Ont, Canada
    Soc Sci Med 65:505-17. 2007
    ..While the men created positive personal spaces for recognition and success, their achievements were severely circumscribed by significant social inequities...
  26. ncbi request reprint The relationship between function, self-perception, and spinal deformity: Implications for treatment of scoliosis in children with spina bifida
    Eugene K Wai
    Bloorview MacMillan Centre and The Hospital for Sick Children, Toronto, Ontario, Canada
    J Pediatr Orthop 25:64-9. 2005
    ..In conclusion, surgeons should be clear in their indications for surgery and recognize that in the short term the potential benefit of surgery may be, at best, to improve only sitting balance...
  27. ncbi request reprint Advancing rehabilitation research: an interactionist perspective to guide question and design
    Doreen J Bartlett
    School of Physical Therapy, Faculty of Health Sciences, The University of Western Ontario, London, Ontario, Canada
    Disabil Rehabil 28:1169-76. 2006
    ..Rehabilitation researchers--and those who fund their work--should consider and value the use of diverse research methods to best answer the questions posed from the interactionist perspective...
  28. ncbi request reprint Comparison of three outcomes instruments in children
    J Pencharz
    The Hospital for Sick Children, Toronto, ON, Canada
    J Pediatr Orthop 21:425-32. 2001
    ..The ASK and PODCI instruments were highly correlated and discriminated better than the CHQ-PF-28, with fewer floor and ceiling effects. Each questionnaire, however, seemed to be measuring slightly different things...
  29. ncbi request reprint Validity of a modified standard gamble elicited from parents of a hospital-based cohort of children
    L Sung
    Division of Hematology Oncology, and Population Health Sciences, Hospital for Sick Children, Toronto, Ontario, M5G 1X8
    J Clin Epidemiol 56:848-55. 2003
    ....
  30. ncbi request reprint Assessing the efficacy of a school-based asthma education program for children: a pilot study
    N L Young
    Division of Paediatric Medicine, Hospital for Sick Children, 555 University Avenue, Toronto, ON, M5G 1X8
    Can J Public Health 92:30-4. 2001
    ..Asthma diminishes the health-related quality of life for many school-aged children. This study sought to explore the effect of a School-Based Asthma Education Program (SBAEP) on quality of life...
  31. ncbi request reprint What does "active disease" mean? patient and parent perceptions of disease activity in the systemic arthritis form of juvenile idiopathic arthritis (SO-JIA)
    M Batthish
    Division of Rheumatology, The Hospital for Sick Children, 555 University Avenue, Toronto, Ontario M5G 1X8, Canada
    Rheumatology (Oxford) 44:796-9. 2005
    ..We sought to elicit specific items reflecting their perceptions of active disease that may be considered for inclusion in a disease activity measure for SO-JIA...
  32. ncbi request reprint The Gap Study (GapS) interview--developing a process to determine the meaning and determinants of quality of life in children with arthritis and rheumatic disease
    G W K Gong
    Division of Rheumatology, Research Institute, The Hospital for Sick Children, and Department of Pediatrics, University of Toronto, Ontario, Canada
    Clin Exp Rheumatol 25:486-93. 2007
    ..We performed this study to develop items and methods for measuring and valuing these gaps in order to better determine individual QOL for children with rheumatic diseases...
  33. ncbi request reprint An examination of adolescent bone tumor patient responses on the Activities Scale for Kids (ASK)
    P Janine Piscione
    1Department of Rehabilitation Services, Hospital for Sick Children, Toronto, ON, Canada
    Phys Occup Ther Pediatr 34:213-28. 2014
    ..These data suggest that caution should be taken when interpreting item-level data in this population and further studies guiding the scoring and interpretation of NA responses are recommended...
  34. ncbi request reprint The transition to adulthood for children with cerebral palsy: what do we know about their health care needs?
    Nancy L Young
    Laurentian University, Sudbury, Ontario, Canada
    J Pediatr Orthop 27:476-9. 2007
  35. ncbi request reprint Impairment and activity limitation associated with epiphyseal dysplasia in children
    Rita Damignani
    Department of Rehabilitation Services, Hospital for Sick Children, Toronto, ON, Canada
    Arch Phys Med Rehabil 85:1647-52. 2004
    ..To develop a profile of impairment and activity limitation among children with epiphyseal dysplasia (ED) and to identify the relationship between these 2 domains...
  36. ncbi request reprint Evaluating physical function in an adolescent bone tumor population
    P Janine Pakulis
    Department of Rehabilitation, Hospital for Sick Children, Toronto, Ontario, Canada
    Pediatr Blood Cancer 45:635-43. 2005
    ....
  37. ncbi request reprint Measurement properties of the activities scale for kids
    N L Young
    Division of Pediatric Medicine, The Hospital for Sick Children, Toronto, Ontario, Canada
    J Clin Epidemiol 53:125-37. 2000
    ..The quality of this measure will enable clinical studies to measure outcome not only in a way that is relevant to patients, but also in a way that is sensitive to small amounts of change and is practical and inexpensive...
  38. ncbi request reprint Rasch analysis of the Western Ontario McMaster (WOMAC) Osteoarthritis Index: results from community and arthroplasty samples
    A M Davis
    Department of Physical Therapy, Graduate Department of Rehabilitation Science and Health Policy, Management and Evaluation, Toronto Rehabilitation Institute and the University of Toronto, Toronto, ON, Canada
    J Clin Epidemiol 56:1076-83. 2003
    ..This study is based on secondary analysis of Western Ontario McMaster Osteoarthritis Index (WOMAC) data from a community sample over 55 years and total hip or knee arthroplasty samples presurgery and 1-year postoperative...
  39. ncbi request reprint Developing a disease activity tool for systemic-onset juvenile idiopathic arthritis by international consensus using the Delphi approach
    A V Ramanan
    Department of Pediatrics, Division of Rheumatology, The Hospital for Sick Children, Toronto, ON, Canada
    Rheumatology (Oxford) 44:1574-8. 2005
    ..Our aim was to elicit and pool items useful for developing a consensus disease activity measure for systemic arthritis in children, using an international pool of respondents...
  40. ncbi request reprint Activities scale for kids: an analysis of normals
    Amy C Plint
    Children s Hospital of Eastern Ontario, University of Ottawa, Canada
    J Pediatr Orthop 23:788-90. 2003
    ..12 (SD 6.45). This score differs significantly from the mean summary score for children with mild disabilities as determined in previous studies of disability (P = 0.005)...
  41. ncbi request reprint HIV type 1 incidence estimates by detection of recent infection from a cross-sectional sampling of injection drug users in Bangkok: use of the IgG capture BED enzyme immunoassay
    Dale J Hu
    Division of HIV AIDS Prevention and Division of AIDS, STD, TB Laboratory Research, Centers for Disease Control and Prevention, Atlanta, Georgia 30333, USA
    AIDS Res Hum Retroviruses 19:727-30. 2003
    ....
  42. ncbi request reprint A conceptual model of the factors affecting the recreation and leisure participation of children with disabilities
    Gillian King
    Thames Valley Children s Centre, 779 Base Line Road East, London, Ontario, Canada N6C 5Y6
    Phys Occup Ther Pediatr 23:63-90. 2003
    ..The proposed model is expected to be a useful tool for guiding future research studies and for developing policies and programs for children with disabilities and their families...
  43. ncbi request reprint Prevalence of and risk factors for methamphetamine use in northern Thai youth: results of an audio-computer-assisted self-interviewing survey with urine testing
    Martin V Sattah
    Division of HIV AIDS Prevention, National Center for HIV, Atlanta, GA, USA
    Addiction 97:801-8. 2002
    ..However, limited quantitative data are available about the prevalence of its use or correlates of use. The purpose of our study was therefore to estimate the prevalence of methamphetamine use and to identify possible risk factors...
  44. ncbi request reprint Youth and young adults with cerebral palsy: their use of physician and hospital services
    Nancy L Young
    School of Human Kinetics, Laurentian University, Sudbury, ON, Canada
    Arch Phys Med Rehabil 88:696-702. 2007
    ..To examine patterns of health care utilization among youth and young adults who have cerebral palsy (CP) and to provide information to guide the development of health services for adults who have CP...
  45. ncbi request reprint What do we really know about the transition to adult-centered health care? A focus on cerebral palsy and spina bifida
    Jessie A Binks
    Laurentian University, Sudbury, ON, Canada
    Arch Phys Med Rehabil 88:1064-73. 2007
    ....