Anne Marie TasséSummaryCountry: Canada Publications
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Publications
Retrospective access to data: the ENGAGE consent experienceAnne Marie Tassé
Universite de Montreal, Faculte de droit, Montreal, Canada
Eur J Hum Genet 18:741-5. 2010..Our study of 52 ENGAGE consent forms and information documents shows that a broad range of mechanisms were developed to enable secondary use of the data that are part of the ENGAGE Consortium...
Population studies: return of research results and incidental findings Policy StatementBartha Maria Knoppers
Public Population Project in Genomics and Society P G, Montreal, Quebec, Canada
Eur J Hum Genet 21:245-7. 2013....
Towards a data sharing Code of Conduct for international genomic researchBartha Maria Knoppers
Department of Human Genetics, McGill University, 740 Dr Penfield Avenue, Montreal, Quebec H3A 1A4, Canada
Genome Med 3:46. 2011..We propose seven different principles and a preliminary international data sharing Code of Conduct for ongoing discussion...
Biobanking and deceased personsAnne Marie Tassé
McGill University, 740, Dr Penfield Ave suite 5202, Montreal, QC H3A 1A4, Canada
Hum Genet 130:415-23. 2011..In our second part, we will review the current literature and discuss the above mentioned issues using the bioethics "principlism" theory before concluding...
