Research Topics
| Fiona A MillerSummaryAffiliation: McMaster University Country: Canada Publications
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Detail Information
Publications
Ruling in and ruling out: implications of molecular genetic diagnoses for disease classificationFiona Alice Miller
Centre for Health Economics and Policy Analysis, McMaster University, Canada
Soc Sci Med 61:2536-45. 2005....
The importance of being marginal: Norma Ford Walker and a Canadian school of medical geneticsFiona Miller
Department of Clinical Epidemiology and Biostatistics, McMaster University, Hamilton, ON, Canada
Am J Med Genet 115:102-10. 2002..Yet many members of the research school retained dermatoglyphic technique and used it to contribute to progress in medical cytogenetics. In this article, I explore why the history of this marginal research school is important...
'Your true and proper gender': the Barr body as a good enough science of sexFiona Alice Miller
Department of Clinical Epidemiology and Biostatistics, Centre for Health Economics and Policy Analysis, McMaster University, Health Science Centre 3H1A, 1200 Main Street West, Hamilton, ON L8N 3Z5, Canada
Stud Hist Philos Biol Biomed Sci 37:459-83. 2006..Though provisional, the scientific status of the sex chromatin within this system of knowledge was good enough to support a flourishing research enterprise in the clinical sciences...
Redefining disease? The nosologic implications of molecular genetic knowledgeFiona Alice Miller
Centre for Health Economics and Policy Analysis, McMaster University, Hamilton, ON, Canada
Perspect Biol Med 49:99-114. 2006..Ironically, genetic information is likely to play a central role in producing a new, but still empirical, classification scheme...
Incorporating documents into qualitative nursing researchFiona A Miller
Department of Clinical Epidemiology and Biostatistics, Centre for Health Economics and Policy Analysis, McMaster University, Hamilton, Ontario, Canada
J Nurs Scholarsh 37:348-53. 2005..To present an overview of how documents can be incorporated as key sources of data in qualitative nursing research...
Understanding the new human genetics: a review of scientific editorialsFiona Alice Miller
McMaster University, Hamilton, Ontario, Canada
Soc Sci Med 62:2373-85. 2006....
Dermatoglyphics and the persistence of 'Mongolism'Fiona Alice Miller
Department of Clinical Epidemiology and Biostatistics, Center for Health Economics and Policy Analysis, McMaster University, Hamilton, Ontario, Canada
Soc Stud Sci 33:75-94. 2003..Old networks were not supplanted; they were re-aligned...
Health-care providers' views on pursuing reproductive benefit through newborn screening: the case of sickle cell disordersYvonne Bombard
Department of Health Policy, Management and Evaluation, University of Toronto, Toronto, Ontario, Canada
Eur J Hum Genet 20:498-504. 2012..Broader discussion of the balance between benefits to screened individuals and those to families and societies, in the context of public health programs, is needed...
Informing parents about expanded newborn screening: influences on provider involvementRobin Z Hayeems
Department of Health Policy, Management, and Evaluation, Mount Sinai Hospital, University of Toronto, Ontario, Canada
Pediatrics 124:950-8. 2009....
The primary care physician role in cancer genetics: a qualitative study of patient experienceFiona A Miller
Department of Health Policy, Management and Evaluation, Mount Sinai Hospital, University of Toronto, Toronto, Ontario, Canada
Fam Pract 27:563-9. 2010..The perspective of primary care physicians (PCPs) regarding their role in support of genetic testing has been explored, but little is known about the expectations of patients or the PCP role once genetic test results are received...
Ethics in Canadian health technology assessment: a descriptive reviewDeirdre DeJean
Health Research Methodology Programme, McMaster University, Ontario, Canada
Int J Technol Assess Health Care 25:463-9. 2009..This study examines both whether and how ethical issues are incorporated into HTA...
Reconsidering reproductive benefit through newborn screening: a systematic review of guidelines on preconception, prenatal and newborn screeningYvonne Bombard
Department of Health Policy, Management and Evaluation, Faculty of Medicine, University of Toronto, Toronto, ON, Canada
Eur J Hum Genet 18:751-60. 2010..Traditional norms for NBS may require reconsideration where the remit of screening exceeds the primary goal of clinical benefits for infants...
Parents' preferences for drug treatments in juvenile idiopathic arthritis: a discrete choice experimentHeather F Burnett
The Hospital for Sick Children, Toronto, Ontario, Canada
Arthritis Care Res (Hoboken) 64:1382-91. 2012..To examine parents' preferences for drug treatments and health outcomes in juvenile idiopathic arthritis (JIA) and identify demographic and health-related factors that significantly impact choice...
Understanding sickle cell carrier status identified through newborn screening: a qualitative studyFiona A Miller
Faculty of Medicine, Department of Health Policy, Management and Evaluation, University of Toronto, Toronto, Ontario, Canada
Eur J Hum Genet 18:303-8. 2010..Disclosure policy related to incidentally generated infant carrier results needs to account for these complex realities...
What does it mean to trust a health system? A qualitative study of Canadian health care valuesJulia Abelson
Department of Clinical Epidemiology and Biostatistics, Centre for Health Economics and Policy Analysis, McMaster University, Canada
Health Policy 91:63-70. 2009..We used a qualitative empirical study of Canadians' values toward their health system to develop more meaningful conceptualizations of trust and health systems that can inform the pursuit of more trustworthy health systems...
Contending visions in the evolution of genetic medicine: the case of cancer genetic services in Ontario, CanadaFiona Alice Miller
Health Policy, Management and Evaluation, University of Toronto, 155 College Street, 4th Floor, Toronto, Ontario M5T 3M6, Canada
Soc Sci Med 67:152-60. 2008..Yet questions about who will control genetic technologies are not simply turf battles between the professions: they are also inescapably questions about what the genetic technologies should and will accomplish clinically...
