Fiona A Miller

Summary

Affiliation: McMaster University
Country: Canada

Publications

  1. ncbi Ruling in and ruling out: implications of molecular genetic diagnoses for disease classification
    Fiona Alice Miller
    Centre for Health Economics and Policy Analysis, McMaster University, Canada
    Soc Sci Med 61:2536-45. 2005
  2. ncbi The importance of being marginal: Norma Ford Walker and a Canadian school of medical genetics
    Fiona Miller
    Department of Clinical Epidemiology and Biostatistics, McMaster University, Hamilton, ON, Canada
    Am J Med Genet 115:102-10. 2002
  3. ncbi 'Your true and proper gender': the Barr body as a good enough science of sex
    Fiona Alice Miller
    Department of Clinical Epidemiology and Biostatistics, Centre for Health Economics and Policy Analysis, McMaster University, Health Science Centre 3H1A, 1200 Main Street West, Hamilton, ON L8N 3Z5, Canada
    Stud Hist Philos Biol Biomed Sci 37:459-83. 2006
  4. ncbi Redefining disease? The nosologic implications of molecular genetic knowledge
    Fiona Alice Miller
    Centre for Health Economics and Policy Analysis, McMaster University, Hamilton, ON, Canada
    Perspect Biol Med 49:99-114. 2006
  5. ncbi Incorporating documents into qualitative nursing research
    Fiona A Miller
    Department of Clinical Epidemiology and Biostatistics, Centre for Health Economics and Policy Analysis, McMaster University, Hamilton, Ontario, Canada
    J Nurs Scholarsh 37:348-53. 2005
  6. ncbi Understanding the new human genetics: a review of scientific editorials
    Fiona Alice Miller
    McMaster University, Hamilton, Ontario, Canada
    Soc Sci Med 62:2373-85. 2006
  7. ncbi Dermatoglyphics and the persistence of 'Mongolism'
    Fiona Alice Miller
    Department of Clinical Epidemiology and Biostatistics, Center for Health Economics and Policy Analysis, McMaster University, Hamilton, Ontario, Canada
    Soc Stud Sci 33:75-94. 2003
  8. pmc Health-care providers' views on pursuing reproductive benefit through newborn screening: the case of sickle cell disorders
    Yvonne Bombard
    Department of Health Policy, Management and Evaluation, University of Toronto, Toronto, Ontario, Canada
    Eur J Hum Genet 20:498-504. 2012
  9. doi Informing parents about expanded newborn screening: influences on provider involvement
    Robin Z Hayeems
    Department of Health Policy, Management, and Evaluation, Mount Sinai Hospital, University of Toronto, Ontario, Canada
    Pediatrics 124:950-8. 2009
  10. doi Do canadian researchers and the lay public prioritize biomedical research outcomes equally? A choice experiment
    Fiona A Miller
    Institute of Health Policy, Management and Evaluation, University of Toronto, Toronto, Ontario, Canada
    Acad Med 88:519-26. 2013

Collaborators

Detail Information

Publications20

  1. ncbi Ruling in and ruling out: implications of molecular genetic diagnoses for disease classification
    Fiona Alice Miller
    Centre for Health Economics and Policy Analysis, McMaster University, Canada
    Soc Sci Med 61:2536-45. 2005
    ....
  2. ncbi The importance of being marginal: Norma Ford Walker and a Canadian school of medical genetics
    Fiona Miller
    Department of Clinical Epidemiology and Biostatistics, McMaster University, Hamilton, ON, Canada
    Am J Med Genet 115:102-10. 2002
    ..Yet many members of the research school retained dermatoglyphic technique and used it to contribute to progress in medical cytogenetics. In this article, I explore why the history of this marginal research school is important...
  3. ncbi 'Your true and proper gender': the Barr body as a good enough science of sex
    Fiona Alice Miller
    Department of Clinical Epidemiology and Biostatistics, Centre for Health Economics and Policy Analysis, McMaster University, Health Science Centre 3H1A, 1200 Main Street West, Hamilton, ON L8N 3Z5, Canada
    Stud Hist Philos Biol Biomed Sci 37:459-83. 2006
    ..Though provisional, the scientific status of the sex chromatin within this system of knowledge was good enough to support a flourishing research enterprise in the clinical sciences...
  4. ncbi Redefining disease? The nosologic implications of molecular genetic knowledge
    Fiona Alice Miller
    Centre for Health Economics and Policy Analysis, McMaster University, Hamilton, ON, Canada
    Perspect Biol Med 49:99-114. 2006
    ..Ironically, genetic information is likely to play a central role in producing a new, but still empirical, classification scheme...
  5. ncbi Incorporating documents into qualitative nursing research
    Fiona A Miller
    Department of Clinical Epidemiology and Biostatistics, Centre for Health Economics and Policy Analysis, McMaster University, Hamilton, Ontario, Canada
    J Nurs Scholarsh 37:348-53. 2005
    ..To present an overview of how documents can be incorporated as key sources of data in qualitative nursing research...
  6. ncbi Understanding the new human genetics: a review of scientific editorials
    Fiona Alice Miller
    McMaster University, Hamilton, Ontario, Canada
    Soc Sci Med 62:2373-85. 2006
    ....
  7. ncbi Dermatoglyphics and the persistence of 'Mongolism'
    Fiona Alice Miller
    Department of Clinical Epidemiology and Biostatistics, Center for Health Economics and Policy Analysis, McMaster University, Hamilton, Ontario, Canada
    Soc Stud Sci 33:75-94. 2003
    ..Old networks were not supplanted; they were re-aligned...
  8. pmc Health-care providers' views on pursuing reproductive benefit through newborn screening: the case of sickle cell disorders
    Yvonne Bombard
    Department of Health Policy, Management and Evaluation, University of Toronto, Toronto, Ontario, Canada
    Eur J Hum Genet 20:498-504. 2012
    ..Broader discussion of the balance between benefits to screened individuals and those to families and societies, in the context of public health programs, is needed...
  9. doi Informing parents about expanded newborn screening: influences on provider involvement
    Robin Z Hayeems
    Department of Health Policy, Management, and Evaluation, Mount Sinai Hospital, University of Toronto, Ontario, Canada
    Pediatrics 124:950-8. 2009
    ..Expanded newborn screening (NBS) identifies some disorders for which clinical benefit is uncertain, as well as "incidental" findings (eg, carrier status), thus enhancing the need to inform parents about NBS before sample collection...
  10. doi Do canadian researchers and the lay public prioritize biomedical research outcomes equally? A choice experiment
    Fiona A Miller
    Institute of Health Policy, Management and Evaluation, University of Toronto, Toronto, Ontario, Canada
    Acad Med 88:519-26. 2013
    ..To quantify and compare the preferences of researchers and laypeople in Canada regarding the outcomes of basic biomedical research...
  11. doi The primary care physician role in cancer genetics: a qualitative study of patient experience
    Fiona A Miller
    Department of Health Policy, Management and Evaluation, Mount Sinai Hospital, University of Toronto, Toronto, Ontario, Canada
    Fam Pract 27:563-9. 2010
    ..The perspective of primary care physicians (PCPs) regarding their role in support of genetic testing has been explored, but little is known about the expectations of patients or the PCP role once genetic test results are received...
  12. ncbi Does a duty of disclosure foster special treatment of genetic research participants?
    Robin Z Hayeems
    Institute of Health Policy, Management and Evaluation, University of Toronto, 155 College Street, 4th Floor, Toronto, Ontario, M5T 3M6, Canada
    J Genet Couns 22:654-61. 2013
    ..For researchers, feeling obliged to report research results may be in conflict with the obligation to avoid special treatment of research participants; this may in turn threaten principles of voluntariness, autonomy, and justice...
  13. doi Parents' perspectives on participating in genetic research in autism
    Magan Trottier
    Division of Clinical and Metabolic Genetics, The Hospital for Sick Children, Toronto, ON, Canada
    J Autism Dev Disord 43:556-68. 2013
    ..The results of this study highlight complex factors involved in families' decisions to participate in autism genetic research and provide points to consider for this population of research participants...
  14. doi Ethics in Canadian health technology assessment: a descriptive review
    Deirdre DeJean
    Health Research Methodology Programme, McMaster University, Ontario, Canada
    Int J Technol Assess Health Care 25:463-9. 2009
    ..This study examines both whether and how ethical issues are incorporated into HTA...
  15. ncbi Testing personalized medicine: patient and physician expectations of next-generation genomic sequencing in late-stage cancer care
    Fiona A Miller
    1 Institute of Health Policy, Management and Evaluation, University of Toronto, Toronto, ON, Canada 2 Joint Centre for Bioethics, University of Toronto, Toronto, ON, Canada
    Eur J Hum Genet 22:391-5. 2014
    ..These findings suggest the need for information and decision tools to support physicians in communicating realistic prospects of benefit, and for cautious approaches to the generation of incidental genetic information. ..
  16. pmc Reconsidering reproductive benefit through newborn screening: a systematic review of guidelines on preconception, prenatal and newborn screening
    Yvonne Bombard
    Department of Health Policy, Management and Evaluation, Faculty of Medicine, University of Toronto, Toronto, ON, Canada
    Eur J Hum Genet 18:751-60. 2010
    ..Traditional norms for NBS may require reconsideration where the remit of screening exceeds the primary goal of clinical benefits for infants...
  17. doi Parents' preferences for drug treatments in juvenile idiopathic arthritis: a discrete choice experiment
    Heather F Burnett
    The Hospital for Sick Children, Toronto, Ontario, Canada
    Arthritis Care Res (Hoboken) 64:1382-91. 2012
    ..To examine parents' preferences for drug treatments and health outcomes in juvenile idiopathic arthritis (JIA) and identify demographic and health-related factors that significantly impact choice...
  18. doi What does it mean to trust a health system? A qualitative study of Canadian health care values
    Julia Abelson
    Department of Clinical Epidemiology and Biostatistics, Centre for Health Economics and Policy Analysis, McMaster University, Canada
    Health Policy 91:63-70. 2009
    ..We used a qualitative empirical study of Canadians' values toward their health system to develop more meaningful conceptualizations of trust and health systems that can inform the pursuit of more trustworthy health systems...
  19. pmc Understanding sickle cell carrier status identified through newborn screening: a qualitative study
    Fiona A Miller
    Faculty of Medicine, Department of Health Policy, Management and Evaluation, University of Toronto, Toronto, Ontario, Canada
    Eur J Hum Genet 18:303-8. 2010
    ..Disclosure policy related to incidentally generated infant carrier results needs to account for these complex realities...
  20. doi Contending visions in the evolution of genetic medicine: the case of cancer genetic services in Ontario, Canada
    Fiona Alice Miller
    Health Policy, Management and Evaluation, University of Toronto, 155 College Street, 4th Floor, Toronto, Ontario M5T 3M6, Canada
    Soc Sci Med 67:152-60. 2008
    ..Yet questions about who will control genetic technologies are not simply turf battles between the professions: they are also inescapably questions about what the genetic technologies should and will accomplish clinically...