Yann Joly

Summary

Affiliation: McGill University
Country: Canada

Publications

  1. pmc Policy recommendations for addressing privacy challenges associated with cell-based research and interventions
    Ubaka Ogbogu
    Faculties of Law and Pharmacy and Pharmaceutical Sciences, University of Alberta, 116 Street and 85 Avenue, Edmonton T6G 2R3, Canada
    BMC Med Ethics 15:7. 2014
  2. pmc Genetic discrimination and life insurance: a systematic review of the evidence
    Yann Joly
    Department of Human Genetics, Faculty of Medicine, McGill University, 740 Dr Penfield Avenue, Suite 5200, Montreal, H3A 1A5 Canada
    BMC Med 11:25. 2013
  3. pmc Open science versus commercialization: a modern research conflict?
    Timothy Caulfield
    Health Law and Science Policy Group, Law Centre, University of Alberta, Edmonton, T6G 2H5, Canada
    Genome Med 4:17. 2012
  4. doi request reprint Diagnostic testing for vaccinomics: is the regulatory approval framework adequate? A comparison of Canada, the United States, and Europe
    Yann Joly
    Centre of Genomics and Policy, McGill University, Faculty of Medicine, Department of Human Genetics, Montreal, Canada
    OMICS 15:597-605. 2011
  5. doi request reprint Genomic databases access agreements: legal validity and possible sanctions
    Yann Joly
    Deptartment of Human Genetics, Faculty of Medicine, Centre of Genomics and Policy, McGill University, 740 Dr Penfield Avenue, Suite 5101, Montreal, QC H3A 1A4, Canada
    Hum Genet 130:441-9. 2011
  6. ncbi request reprint Regulatory approval for new pharmacogenomic tests: a comparative overview
    Yann Joly
    Centre for Genomics and Policy, Faculty of Medicine, McGill University
    Food Drug Law J 66:1-24, i. 2011
  7. pmc Power to the people: a wiki-governance model for biobanks
    Edward S Dove
    Centre of Genomics and Policy, Department of Human Genetics, Faculty of Medicine, McGill University, 740 Dr Penfield Avenue, Suite 5200, Montreal, Quebec, H3A 0G1, Canada
    Genome Biol 13:158. 2012
  8. ncbi request reprint Our social genome?
    Bartha M Knoppers
    Centre de recherche en droit public, Universite de Montreal, C P 6128 Succ Centre Ville, Montreal, Quebec, H3T 1J7, Canada
    Trends Biotechnol 25:284-8. 2007
  9. ncbi request reprint An ethical and legal overview of pharmacogenomics: perspectives and issues
    Guillaume Sillon
    Centre de recherche en droit public, Universite de Montreal, Montreal, Quebec, Canada
    Med Law 27:843-57. 2008
  10. pmc An implementation framework for the feedback of individual research results and incidental findings in research
    Adrian Thorogood
    Centre of Genomics and Policy, McGill University, 740, Avenue Dr Penfield, Suite 5200, Montreal, QC, H3A 0G1, Canada
    BMC Med Ethics 15:88. 2014

Collaborators

Detail Information

Publications20

  1. pmc Policy recommendations for addressing privacy challenges associated with cell-based research and interventions
    Ubaka Ogbogu
    Faculties of Law and Pharmacy and Pharmaceutical Sciences, University of Alberta, 116 Street and 85 Avenue, Edmonton T6G 2R3, Canada
    BMC Med Ethics 15:7. 2014
    ....
  2. pmc Genetic discrimination and life insurance: a systematic review of the evidence
    Yann Joly
    Department of Human Genetics, Faculty of Medicine, McGill University, 740 Dr Penfield Avenue, Suite 5200, Montreal, H3A 1A5 Canada
    BMC Med 11:25. 2013
    ..But does the available evidence really confirm the popular apprehension about genetic discrimination and the subsequent genetic exceptionalism?..
  3. pmc Open science versus commercialization: a modern research conflict?
    Timothy Caulfield
    Health Law and Science Policy Group, Law Centre, University of Alberta, Edmonton, T6G 2H5, Canada
    Genome Med 4:17. 2012
    ....
  4. doi request reprint Diagnostic testing for vaccinomics: is the regulatory approval framework adequate? A comparison of Canada, the United States, and Europe
    Yann Joly
    Centre of Genomics and Policy, McGill University, Faculty of Medicine, Department of Human Genetics, Montreal, Canada
    OMICS 15:597-605. 2011
    ....
  5. doi request reprint Genomic databases access agreements: legal validity and possible sanctions
    Yann Joly
    Deptartment of Human Genetics, Faculty of Medicine, Centre of Genomics and Policy, McGill University, 740 Dr Penfield Avenue, Suite 5101, Montreal, QC H3A 1A4, Canada
    Hum Genet 130:441-9. 2011
    ..This suggests the importance for researchers to undertake additional empirical studies on the clarity and accessibility of existing database access agreements and related policies in the near future...
  6. ncbi request reprint Regulatory approval for new pharmacogenomic tests: a comparative overview
    Yann Joly
    Centre for Genomics and Policy, Faculty of Medicine, McGill University
    Food Drug Law J 66:1-24, i. 2011
    ..Regulatory policies which successfully achieve the dual objectives of ensuring public safety and promoting innovation in health technology are imperative in order to reap the benefits of this emerging field...
  7. pmc Power to the people: a wiki-governance model for biobanks
    Edward S Dove
    Centre of Genomics and Policy, Department of Human Genetics, Faculty of Medicine, McGill University, 740 Dr Penfield Avenue, Suite 5200, Montreal, Quebec, H3A 0G1, Canada
    Genome Biol 13:158. 2012
    ..We propose a wiki-governance model for biobanks that harnesses Web 2.0, and which gives citizens the ability to collaborate in biobank governance and policymaking...
  8. ncbi request reprint Our social genome?
    Bartha M Knoppers
    Centre de recherche en droit public, Universite de Montreal, C P 6128 Succ Centre Ville, Montreal, Quebec, H3T 1J7, Canada
    Trends Biotechnol 25:284-8. 2007
    ..It is only through an attachment to justice and solidarity that the dignity and well-being of persons, both as humans and as citizens, can truly be fostered...
  9. ncbi request reprint An ethical and legal overview of pharmacogenomics: perspectives and issues
    Guillaume Sillon
    Centre de recherche en droit public, Universite de Montreal, Montreal, Quebec, Canada
    Med Law 27:843-57. 2008
    ..The likely new responsibilities for health care professionals and pharmaceutical companies as a result of pharmacogenomic development will also be discussed...
  10. pmc An implementation framework for the feedback of individual research results and incidental findings in research
    Adrian Thorogood
    Centre of Genomics and Policy, McGill University, 740, Avenue Dr Penfield, Suite 5200, Montreal, QC, H3A 0G1, Canada
    BMC Med Ethics 15:88. 2014
    ..A trusted and independent intermediary, the "keyholder", controls access to this linkage database...
  11. pmc Stem cell research funding policies and dynamic innovation: a survey of open access and commercialization requirements
    Maroussia Lévesque
    Centre of Genomics and Policy, McGill University, 740 avenue du Docteur Penfield, Montreal, Quebec, Canada, H3A 1A5
    Stem Cell Rev 10:455-71. 2014
    ..Meanwhile, there still is need for funding agencies to clarify and standardize terms such as "non-profit organizations" and "for-profit research," as more universities are pursuing for-profit or commercial opportunities. ..
  12. doi request reprint The ethical framing of personalized medicine
    Yann Joly
    Centre of Genomics and Policy, McGill University, Montreal, Canada
    Curr Opin Allergy Clin Immunol 14:404-8. 2014
    ..The review explores the ethical, legal, and social issues that have emerged with personalized medicine and must be considered because of the complex nature of providing individualized care within a clinical setting...
  13. doi request reprint [Personalized medicine: equity and access]
    Yann Joly
    Centre de génomique et politique, Universite McGill, 740 avenue du Dr Penfield, Montreal, Quebec H3A 0G1, Canada
    Med Sci (Paris) 30:27-31. 2014
    ..Investigating this critique the current manuscript argues that personalized medicine has the potential to become a positive force for equitable access to better healthcare at a national and international level. ..
  14. pmc Life insurance: genomic stratification and risk classification
    Yann Joly
    Center of Genomics and Policy, McGill University, Montreal, QC, Canada
    Eur J Hum Genet 22:575-9. 2014
    ....
  15. ncbi request reprint The emergence of an ethical duty to disclose genetic research results: international perspectives
    Bartha Maria Knoppers
    1Centre de recherche en droit public, Universite de Montreal, Montreal, Quebec, Canada
    Eur J Hum Genet 14:1170-8. 2006
    ..results begs several other questions: Who should have the responsibility of disclosing such results and when? To whom should the results be disclosed? How? Finally, will this ethical 'imperative' become a legally recognized duty as well?..
  16. ncbi request reprint Genetic information and life insurance: a 'real' risk?
    Yann Joly
    Centre de recherche en droit public, Faculty of Law, University of Montreal, Montreal, Canada
    Eur J Hum Genet 11:561-4. 2003
    ..However, the benefits to be gained by allowing insurers access to relevant genetic data could justify fostering a more active role in the use of genetic information by insurance companies...
  17. pmc The commercialization of genomic research in Canada
    Yann Joly
    Assistant Professor, Department of Human Genetics, Faculty of Medicine, McGill University, Montreal, QC
    Healthc Policy 6:24-32. 2010
    ..The full sets of recommendations are available upon request to the authors...
  18. doi request reprint Incidental findings in data-intensive postgenomics science and legal liability of clinician-researchers: ready for vaccinomics?
    Ma n H Zawati
    Centre of Genomics and Policy, McGill University, Montreal, Quebec, Canada
    OMICS 15:615-24. 2011
    ....
  19. ncbi request reprint Improved understanding of genetic and genomic influences on drug disposition and action : implications for children
    Denise Avard
    Centre de recherche en droit public, Faculty of Law, University of Montreal, Montreal, Quebec, Canada
    Paediatr Drugs 10:275-8. 2008