Nancy L Young

Summary

Affiliation: Laurentian University
Country: Canada

Publications

  1. ncbi request reprint How well does the Canadian Haemophilia Outcomes-Kids' Life Assessment Tool (CHO-KLAT) measure the quality of life of boys with haemophilia?
    Nancy L Young
    The Hospital for Sick Children, Toronto, Ontario, Canada
    Pediatr Blood Cancer 47:305-11. 2006
  2. ncbi request reprint The transition study: a look at youth and adults with cerebral palsy, spina bifida and acquired brain injury
    Nancy Young
    Laurentian University, The Hospital for Sick Children, Canada
    Phys Occup Ther Pediatr 26:25-45. 2006
  3. doi request reprint Youth and young adults with spina bifida: their utilization of physician and hospital services
    Nancy L Young
    Evaluating Children s Health Outcomes ECHO Research Centre, Laurentian University, Sudbury, ON, Canada Institute for Clinical Evaluative Sciences, Toronto, ON, Canada Electronic address
    Arch Phys Med Rehabil 95:466-71. 2014
  4. doi request reprint Updating the Canadian hemophilia outcomes-kids life assessment tool (CHO-KLAT Version2.0)
    Nancy L Young
    School of Rural and Northern Health, Laurentian University, Sudbury, Ontario, Canada
    Value Health 16:837-41. 2013
  5. doi request reprint Health outcomes among youths and adults with spina bifida
    Nancy L Young
    School of Rural and Northern Health, Laurentian University, Sudbury, Ontario, Canada
    J Pediatr 162:993-8. 2013
  6. ncbi request reprint A process for creating the Aboriginal children's health and well-being measure (ACHWM)
    Nancy L Young
    School of Rural and Northern Health, Laurentian University, Sudbury, ON
    Can J Public Health 104:e136-41. 2013
  7. pmc Cross-cultural adaptation of the CHO-KLAT for boys with hemophilia in rural and urban China
    Runhui Wu
    Department of Haematology, Beijing Children s Hospital and Capital Medical University, Beijing, China
    Health Qual Life Outcomes 10:112. 2012
  8. doi request reprint Cross-cultural validation of the CHO-KLAT and HAEMO-QoL-A in Canadian French
    N L Young
    School of Rural and Northern Health, Laurentian University, Sudbury, ON, Canada
    Haemophilia 18:353-7. 2012
  9. pmc Measuring disease-specific quality of life in rare populations: a practical approach to cross-cultural translation
    Victoria E Price
    Division of Pediatric Hematology Oncology, IWK Health Centre, Dalhousie University, Halifax, NS, Canada
    Health Qual Life Outcomes 7:92. 2009
  10. ncbi request reprint The transition to adulthood for children with cerebral palsy: what do we know about their health care needs?
    Nancy L Young
    Laurentian University, Sudbury, Ontario, Canada
    J Pediatr Orthop 27:476-9. 2007

Collaborators

Detail Information

Publications40

  1. ncbi request reprint How well does the Canadian Haemophilia Outcomes-Kids' Life Assessment Tool (CHO-KLAT) measure the quality of life of boys with haemophilia?
    Nancy L Young
    The Hospital for Sick Children, Toronto, Ontario, Canada
    Pediatr Blood Cancer 47:305-11. 2006
    ..This paper describes the final phase of development of a disease-specific measure of QoL for boys with haemophilia: the Canadian Haemophilia Outcomes-Kids Life Assessment Tool (CHO-KLAT)...
  2. ncbi request reprint The transition study: a look at youth and adults with cerebral palsy, spina bifida and acquired brain injury
    Nancy Young
    Laurentian University, The Hospital for Sick Children, Canada
    Phys Occup Ther Pediatr 26:25-45. 2006
    ..The lowest health scores were reported by adults with SB. These findings provide a starting point for examining health issues specific to youth and young adults with CP, SB, and ABIc...
  3. doi request reprint Youth and young adults with spina bifida: their utilization of physician and hospital services
    Nancy L Young
    Evaluating Children s Health Outcomes ECHO Research Centre, Laurentian University, Sudbury, ON, Canada Institute for Clinical Evaluative Sciences, Toronto, ON, Canada Electronic address
    Arch Phys Med Rehabil 95:466-71. 2014
    ..To describe current patterns of health care utilization of youth and young adults who have spina bifida (SB) and provide evidence to guide the development of health care for this growing population...
  4. doi request reprint Updating the Canadian hemophilia outcomes-kids life assessment tool (CHO-KLAT Version2.0)
    Nancy L Young
    School of Rural and Northern Health, Laurentian University, Sudbury, Ontario, Canada
    Value Health 16:837-41. 2013
    ..This study assessed the validity and reliability of version 2.0 of the CHO-KLAT (CHO-KLAT2.0)...
  5. doi request reprint Health outcomes among youths and adults with spina bifida
    Nancy L Young
    School of Rural and Northern Health, Laurentian University, Sudbury, Ontario, Canada
    J Pediatr 162:993-8. 2013
    ..To describe the health and health-related quality of life (HR-QoL) outcomes of youths and young adults with spina bifida...
  6. ncbi request reprint A process for creating the Aboriginal children's health and well-being measure (ACHWM)
    Nancy L Young
    School of Rural and Northern Health, Laurentian University, Sudbury, ON
    Can J Public Health 104:e136-41. 2013
    ..The purpose of this study was to identify concepts of health and well-being important to Aboriginal children and youth. These concepts were necessary for the development of a culturally appropriate measure of health...
  7. pmc Cross-cultural adaptation of the CHO-KLAT for boys with hemophilia in rural and urban China
    Runhui Wu
    Department of Haematology, Beijing Children s Hospital and Capital Medical University, Beijing, China
    Health Qual Life Outcomes 10:112. 2012
    ..Quality of life (QoL) is increasingly recognized as an important outcome measure in clinical trials. The Canadian Hemophilia Outcomes-Kids Life Assessment Tool (CHO-KLAT) shows promise for use in China...
  8. doi request reprint Cross-cultural validation of the CHO-KLAT and HAEMO-QoL-A in Canadian French
    N L Young
    School of Rural and Northern Health, Laurentian University, Sudbury, ON, Canada
    Haemophilia 18:353-7. 2012
    ..The French-Canadian version of the CHO-KLAT and HAEMO-QoL-A are valid. These measures are available for use in multi-site haemophilia trials and clinical practices to capture QoL data from French Canadians...
  9. pmc Measuring disease-specific quality of life in rare populations: a practical approach to cross-cultural translation
    Victoria E Price
    Division of Pediatric Hematology Oncology, IWK Health Centre, Dalhousie University, Halifax, NS, Canada
    Health Qual Life Outcomes 7:92. 2009
    ..e. children with a rare disorder...
  10. ncbi request reprint The transition to adulthood for children with cerebral palsy: what do we know about their health care needs?
    Nancy L Young
    Laurentian University, Sudbury, Ontario, Canada
    J Pediatr Orthop 27:476-9. 2007
  11. doi request reprint Reasons for hospital admissions among youth and young adults with cerebral palsy
    Nancy L Young
    Laurentian University, Sudbury, ON, Canada
    Arch Phys Med Rehabil 92:46-50. 2011
    ..To identify the most common reasons for acute care hospital admissions among youth (age range, 13-17.9y) and young adults (age range, 23-32.9y) with cerebral palsy (CP)...
  12. doi request reprint Transition to adult-oriented health care: perspectives of youth and adults with complex physical disabilities
    Nancy L Young
    School of Rural and Northern Health, Laurentian University, Sudbury, Ontario, Canada
    Phys Occup Ther Pediatr 29:345-61. 2009
    ..The transition to adulthood is extremely difficult for individuals with disabilities. We sought to explore the specific issue of transition to adult-oriented health care in a Canadian context...
  13. ncbi request reprint Youth and young adults with cerebral palsy: their use of physician and hospital services
    Nancy L Young
    School of Human Kinetics, Laurentian University, Sudbury, ON, Canada
    Arch Phys Med Rehabil 88:696-702. 2007
    ..To examine patterns of health care utilization among youth and young adults who have cerebral palsy (CP) and to provide information to guide the development of health services for adults who have CP...
  14. doi request reprint The health and quality of life outcomes among youth and young adults with cerebral palsy
    Nancy L Young
    School of Rural and Northern Health, Laurentian University, Sudbury, Ontario, Canada
    Arch Phys Med Rehabil 91:143-8. 2010
    ..Young NL, Rochon TG, McCormick A, Law M, Wedge JH, Fehlings D. The health and quality of life outcomes among youth and young adults with cerebral palsy...
  15. doi request reprint The Internet is valid and reliable for child-report: an example using the Activities Scale for Kids (ASK) and the Pediatric Quality of Life Inventory (PedsQL)
    Nancy L Young
    School of Rural and Northern Health, Laurentian University, Sudbury, Ontario, Canada
    J Clin Epidemiol 62:314-20. 2009
    ..This study tested the impact of web administration on well-established measures of children's physical function and quality of life...
  16. ncbi request reprint An examination of quality of life of children and parents during their Tele-Homecare experience
    Nancy L Young
    The Hospital for Sick Children, Toronto, Ontario
    Telemed J E Health 12:663-71. 2006
    ..Moreover, the improvements were sustained beyond the termination of the THC service and were not associated with additional burden on families...
  17. ncbi request reprint Preference for pediatric telehome care support following hospitalization: a report on preference and satisfaction
    Paul T Dick
    Paediatric Outcomes Research Team, Division of Paediatric Medicine, The Hospital for Sick Children, Toronto, Ontario, Canada
    Telemed J E Health 10:S-45-53. 2004
    ..Additional evidence on costs and benefits may be important for promoting further development of this type of service...
  18. ncbi request reprint Taking the call-bell home: a qualitative evaluation of Tele-HomeCare for children
    Nancy L Young
    Community Health Systems Resource Group, The Hospital for Sick Children, 555 University Avenue, Toronto, Ontario, Canada M5G 1X8
    Health Soc Care Community 14:231-41. 2006
    ..However, our findings are consistent with previous reports of the benefits of THC. Thus, THC is a successful method of healthcare service delivery that enables a safe return home with professional support provided remotely...
  19. ncbi request reprint Using exploratory focus groups to establish a sampling strategy to investigate disability experienced by adults living with HIV
    Kelly K O'Brien
    Centre for Research on Inner City Health, The Keenan Research Centre in the Li Ka Shing Knowledge Institute, St Michael s Hospital, Ontario, Canada
    Curr HIV Res 7:626-33. 2009
    ..Exploratory focus groups may be a useful technique to determine a sampling strategy when exploring a new phenomenon in HIV qualitative research...
  20. pmc How do existing HIV-specific instruments measure up? Evaluating the ability of instruments to describe disability experienced by adults living with HIV
    Kelly K O'Brien
    Department of Health Policy, Management and Evaluation, University of Toronto, Toronto, Ontario, Canada
    Health Qual Life Outcomes 8:88. 2010
    ..In this paper, we describe the extent to which existing HIV-specific health-status instruments capture the experience of disability for adults living with HIV...
  21. ncbi request reprint Use of health care among adults with chronic and complex physical disabilities of childhood
    Nancy L Young
    The Hospital for Sick Children, Toronto, Canada
    Disabil Rehabil 27:1455-60. 2005
    ..Their admission rate is 9.0 times that of the general population, and few have a primary care physician. A new model of service may be necessary for this high-needs group...
  22. pmc Exploring disability from the perspective of adults living with HIV/AIDS: development of a conceptual framework
    Kelly K O'Brien
    Department of Health Policy, Management and Evaluation, University of Toronto, Toronto, Ontario, Canada
    Health Qual Life Outcomes 6:76. 2008
    ..The purpose of this research was to develop a conceptual framework of disability from the perspective of adults living with HIV...
  23. ncbi request reprint Telehomecare: a comparison of three Canadian models
    Nancy L Young
    The Hospital for Sick Children, Toronto, Ontario, Canada
    Telemed J E Health 10:45-52. 2004
    ..THC provides opportunities to address limitations in the current system and to improve upon equity of access to quality care for children making the transition from hospital to home...
  24. ncbi request reprint The Quality of My Life questionnaire: the minimal clinically important difference for pediatric rheumatology patients
    Grace W K Gong
    Division of Rheumatology, Population Health Sciences Program, Research Institute, The Hospital for Sick Children, Toronto, Ontario, Canada
    J Rheumatol 34:581-7. 2007
    ..To establish construct validity of the QoML questionnaire. To determine the minimal clinically important difference (MCID) for the Quality of Life (QOL) and Health-Related Quality of Life (HRQOL) scales...
  25. ncbi request reprint The relationship between function, self-perception, and spinal deformity: Implications for treatment of scoliosis in children with spina bifida
    Eugene K Wai
    Bloorview MacMillan Centre and The Hospital for Sick Children, Toronto, Ontario, Canada
    J Pediatr Orthop 25:64-9. 2005
    ..In conclusion, surgeons should be clear in their indications for surgery and recognize that in the short term the potential benefit of surgery may be, at best, to improve only sitting balance...
  26. doi request reprint Pilot study of the effect of romiplostim on child health-related quality of life (HRQoL) and parental burden in immune thrombocytopenia (ITP)
    Robert J Klaassen
    Children s Hospital of Eastern Ontario, University of Ottawa, 401 Smyth Road, Ottawa, Ontario, Canada
    Pediatr Blood Cancer 58:395-8. 2012
    ..In this study, the impact of romiplostim treatment on the HRQoL of children with chronic ITP was assessed using the Kid's ITP Tools (KIT)...
  27. pmc Putting episodic disability into context: a qualitative study exploring factors that influence disability experienced by adults living with HIV/AIDS
    Kelly K O'Brien
    Department of Health Policy, Management and Evaluation, Faculty of Medicine, University of Toronto, Ontario, Canada
    J Int AIDS Soc 12:5. 2009
    ..abstract:..
  28. ncbi request reprint What do we really know about the transition to adult-centered health care? A focus on cerebral palsy and spina bifida
    Jessie A Binks
    Laurentian University, Sudbury, ON, Canada
    Arch Phys Med Rehabil 88:1064-73. 2007
    ....
  29. ncbi request reprint Validity, reliability, and responsiveness of a new measure of health-related quality of life in children with immune thrombocytopenic purpura: the Kids' ITP Tools
    Robert J Klaassen
    Department of Pediatrics, Children s Hospital of Eastern Ontario, Ottawa, Ontario, Canada
    J Pediatr 150:510-5, 515.e1. 2007
    ..To refine the disease-specific health-related quality of life measure in immune (idiopathic) thrombocytopenic purpura (ITP) and to determine its validity, reliability, and responsiveness to change...
  30. ncbi request reprint Men on the margin: a Bourdieusian examination of living into adulthood with muscular dystrophy
    Barbara E Gibson
    Department of Physical Therapy, University of Toronto, Toronto, Ont, Canada
    Soc Sci Med 65:505-17. 2007
    ..While the men created positive personal spaces for recognition and success, their achievements were severely circumscribed by significant social inequities...
  31. ncbi request reprint Promoting resilience and wellbeing through an outdoor intervention designed for Aboriginal adolescents
    Stephen D Ritchie
    935 Ramsey Lake Road, Sudbury, Ontario, Canada
    Rural Remote Health 14:2523. 2014
    ..The secondary purposes were to explore whether this impact was sustainable, and whether there were any intervening factors that may have influenced the impact...
  32. ncbi request reprint Impairment and activity limitation associated with epiphyseal dysplasia in children
    Rita Damignani
    Department of Rehabilitation Services, Hospital for Sick Children, Toronto, ON, Canada
    Arch Phys Med Rehabil 85:1647-52. 2004
    ..To develop a profile of impairment and activity limitation among children with epiphyseal dysplasia (ED) and to identify the relationship between these 2 domains...
  33. ncbi request reprint Advancing rehabilitation research: an interactionist perspective to guide question and design
    Doreen J Bartlett
    School of Physical Therapy, Faculty of Health Sciences, The University of Western Ontario, London, Ontario, Canada
    Disabil Rehabil 28:1169-76. 2006
    ..Rehabilitation researchers--and those who fund their work--should consider and value the use of diverse research methods to best answer the questions posed from the interactionist perspective...
  34. doi request reprint Validation and reliability of a disease-specific quality of life measure (the TranQol) in adults and children with thalassaemia major
    Robert J Klaassen
    Department of Pediatrics, Children s Hospital of Eastern Ontario, Ottawa, ON, Canada
    Br J Haematol 164:431-7. 2014
    ..The TranQol was valid, with acceptable correlation for all administered measures and was reliable and responsive to change. The TranQol can be incorporated into future studies of thalassaemia major. ..
  35. doi request reprint Community-based participatory research with Indigenous communities: the proximity paradox
    Stephen D Ritchie
    School of Rural and Northern Health, Laurentian University Ramsey Lake Road Sudbury, Ontario, Canada P3E 2C6 ECHO Evaluating Children s Health Outcomes Research Centre and Laurentian University Ramsey Lake Road Sudbury, Ontario, Canada P3E 2C6 Electronic address
    Health Place 24:183-9. 2013
    ..CBPR principles are much easier to apply in proximal partnerships because they afford an environment where collaborative relationships can be developed and sustained. ..
  36. ncbi request reprint Evaluating physical function in an adolescent bone tumor population
    P Janine Pakulis
    Department of Rehabilitation, Hospital for Sick Children, Toronto, Ontario, Canada
    Pediatr Blood Cancer 45:635-43. 2005
    ....
  37. ncbi request reprint Revised versions of the Childhood Health Assessment Questionnaire (CHAQ) are more sensitive and suffer less from a ceiling effect
    Catherine Lam
    Hospital for Sick Children, University of Toronto, Toronto, Ontario, Canada
    Arthritis Rheum 51:881-9. 2004
    ..To determine the relative discriminant validity of 3 new versions of the Childhood Health Assessment Questionnaire (CHAQ) and to determine the relative concordance between children and their parents...
  38. ncbi request reprint Patterns of participation in recreational and leisure activities among children with complex physical disabilities
    Mary Law
    CanChild Centre for Childhood Disability Research, Hamilton, Ontario, Canada
    Dev Med Child Neurol 48:337-42. 2006
    ....
  39. ncbi request reprint Activities scale for kids: an analysis of normals
    Amy C Plint
    Children s Hospital of Eastern Ontario, University of Ottawa, Canada
    J Pediatr Orthop 23:788-90. 2003
    ..12 (SD 6.45). This score differs significantly from the mean summary score for children with mild disabilities as determined in previous studies of disability (P = 0.005)...
  40. ncbi request reprint A conceptual model of the factors affecting the recreation and leisure participation of children with disabilities
    Gillian King
    Thames Valley Children s Centre, 779 Base Line Road East, London, Ontario, Canada N6C 5Y6
    Phys Occup Ther Pediatr 23:63-90. 2003
    ..The proposed model is expected to be a useful tool for guiding future research studies and for developing policies and programs for children with disabilities and their families...