Research Topics
| Nancy L YoungSummaryAffiliation: Laurentian University Country: Canada Publications
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Detail Information
Publications
How well does the Canadian Haemophilia Outcomes-Kids' Life Assessment Tool (CHO-KLAT) measure the quality of life of boys with haemophilia?Nancy L Young
The Hospital for Sick Children, Toronto, Ontario, Canada
Pediatr Blood Cancer 47:305-11. 2006..This paper describes the final phase of development of a disease-specific measure of QoL for boys with haemophilia: the Canadian Haemophilia Outcomes-Kids Life Assessment Tool (CHO-KLAT)...- The transition study: a look at youth and adults with cerebral palsy, spina bifida and acquired brain injuryNancy Young
Laurentian University, The Hospital for Sick Children, Canada
Phys Occup Ther Pediatr 26:25-45. 2006..The lowest health scores were reported by adults with SB. These findings provide a starting point for examining health issues specific to youth and young adults with CP, SB, and ABIc... - A Process for Creating the Aboriginal Children's Health and Well-Being Measure (ACHWM)Nancy L Young
Laurentian University
Can J Public Health 104:e136-41. 2013..The purpose of this study was to identify concepts of health and well-being important to Aboriginal children and youth. These concepts were necessary for the development of a culturally appropriate measure of health... 
Health Outcomes among Youths and Adults with Spina BifidaNancy L Young
School of Rural and Northern Health, Laurentian University, Sudbury, Ontario, Canada Electronic address
J Pediatr 162:993-8. 2013..To describe the health and health-related quality of life (HR-QoL) outcomes of youths and young adults with spina bifida...
Cross-cultural adaptation of the CHO-KLAT for boys with hemophilia in rural and urban ChinaRunhui Wu
Department of Haematology, Beijing Children s Hospital and Capital Medical University, Beijing, China
Health Qual Life Outcomes 10:112. 2012..Quality of life (QoL) is increasingly recognized as an important outcome measure in clinical trials. The Canadian Hemophilia Outcomes-Kids Life Assessment Tool (CHO-KLAT) shows promise for use in China...- Cross-cultural validation of the CHO-KLAT and HAEMO-QoL-A in Canadian FrenchN L Young
School of Rural and Northern Health, Laurentian University, Sudbury, ON, Canada
Haemophilia 18:353-7. 2012..The French-Canadian version of the CHO-KLAT and HAEMO-QoL-A are valid. These measures are available for use in multi-site haemophilia trials and clinical practices to capture QoL data from French Canadians... - Measuring disease-specific quality of life in rare populations: a practical approach to cross-cultural translationVictoria E Price
Division of Pediatric Hematology Oncology, IWK Health Centre, Dalhousie University, Halifax, NS, Canada
Health Qual Life Outcomes 7:92. 2009..e. children with a rare disorder... - The transition to adulthood for children with cerebral palsy: what do we know about their health care needs?Nancy L Young
Laurentian University, Sudbury, Ontario, Canada
J Pediatr Orthop 27:476-9. 2007 - Youth and young adults with cerebral palsy: their use of physician and hospital servicesNancy L Young
School of Human Kinetics, Laurentian University, Sudbury, ON, Canada
Arch Phys Med Rehabil 88:696-702. 2007..To examine patterns of health care utilization among youth and young adults who have cerebral palsy (CP) and to provide information to guide the development of health services for adults who have CP... - The Internet is valid and reliable for child-report: an example using the Activities Scale for Kids (ASK) and the Pediatric Quality of Life Inventory (PedsQL)Nancy L Young
School of Rural and Northern Health, Laurentian University, Sudbury, Ontario, Canada
J Clin Epidemiol 62:314-20. 2009..This study tested the impact of web administration on well-established measures of children's physical function and quality of life... - Transition to adult-oriented health care: perspectives of youth and adults with complex physical disabilitiesNancy L Young
School of Rural and Northern Health, Laurentian University, Sudbury, Ontario, Canada
Phys Occup Ther Pediatr 29:345-61. 2009..The transition to adulthood is extremely difficult for individuals with disabilities. We sought to explore the specific issue of transition to adult-oriented health care in a Canadian context... - The health and quality of life outcomes among youth and young adults with cerebral palsyNancy L Young
School of Rural and Northern Health, Laurentian University, Sudbury, Ontario, Canada
Arch Phys Med Rehabil 91:143-8. 2010..Young NL, Rochon TG, McCormick A, Law M, Wedge JH, Fehlings D. The health and quality of life outcomes among youth and young adults with cerebral palsy... - Reasons for hospital admissions among youth and young adults with cerebral palsyNancy L Young
Laurentian University, Sudbury, ON, Canada
Arch Phys Med Rehabil 92:46-50. 2011..To identify the most common reasons for acute care hospital admissions among youth (age range, 13-17.9y) and young adults (age range, 23-32.9y) with cerebral palsy (CP)... - An examination of quality of life of children and parents during their Tele-Homecare experienceNancy L Young
The Hospital for Sick Children, Toronto, Ontario
Telemed J E Health 12:663-71. 2006..Moreover, the improvements were sustained beyond the termination of the THC service and were not associated with additional burden on families... - Taking the call-bell home: a qualitative evaluation of Tele-HomeCare for childrenNancy L Young
Community Health Systems Resource Group, The Hospital for Sick Children, 555 University Avenue, Toronto, Ontario, Canada M5G 1X8
Health Soc Care Community 14:231-41. 2006..However, our findings are consistent with previous reports of the benefits of THC. Thus, THC is a successful method of healthcare service delivery that enables a safe return home with professional support provided remotely... - Using exploratory focus groups to establish a sampling strategy to investigate disability experienced by adults living with HIVKelly K O'Brien
Centre for Research on Inner City Health, The Keenan Research Centre in the Li Ka Shing Knowledge Institute, St Michael s Hospital, Ontario, Canada
Curr HIV Res 7:626-33. 2009..Exploratory focus groups may be a useful technique to determine a sampling strategy when exploring a new phenomenon in HIV qualitative research... - How do existing HIV-specific instruments measure up? Evaluating the ability of instruments to describe disability experienced by adults living with HIVKelly K O'Brien
Department of Health Policy, Management and Evaluation, University of Toronto, Toronto, Ontario, Canada
Health Qual Life Outcomes 8:88. 2010..In this paper, we describe the extent to which existing HIV-specific health-status instruments capture the experience of disability for adults living with HIV... - Use of health care among adults with chronic and complex physical disabilities of childhoodNancy L Young
The Hospital for Sick Children, Toronto, Canada
Disabil Rehabil 27:1455-60. 2005..Their admission rate is 9.0 times that of the general population, and few have a primary care physician. A new model of service may be necessary for this high-needs group... - Exploring disability from the perspective of adults living with HIV/AIDS: development of a conceptual frameworkKelly K O'Brien
Department of Health Policy, Management and Evaluation, University of Toronto, Toronto, Ontario, Canada
Health Qual Life Outcomes 6:76. 2008..The purpose of this research was to develop a conceptual framework of disability from the perspective of adults living with HIV... - The Quality of My Life questionnaire: the minimal clinically important difference for pediatric rheumatology patientsGrace W K Gong
Division of Rheumatology, Population Health Sciences Program, Research Institute, The Hospital for Sick Children, Toronto, Ontario, Canada
J Rheumatol 34:581-7. 2007..To establish construct validity of the QoML questionnaire. To determine the minimal clinically important difference (MCID) for the Quality of Life (QOL) and Health-Related Quality of Life (HRQOL) scales... - Preference for pediatric telehome care support following hospitalization: a report on preference and satisfactionPaul T Dick
Paediatric Outcomes Research Team, Division of Paediatric Medicine, The Hospital for Sick Children, Toronto, Ontario, Canada
Telemed J E Health 10:S-45-53. 2004..Additional evidence on costs and benefits may be important for promoting further development of this type of service... - Telehomecare: a comparison of three Canadian modelsNancy L Young
The Hospital for Sick Children, Toronto, Ontario, Canada
Telemed J E Health 10:45-52. 2004..THC provides opportunities to address limitations in the current system and to improve upon equity of access to quality care for children making the transition from hospital to home... - Putting episodic disability into context: a qualitative study exploring factors that influence disability experienced by adults living with HIV/AIDSKelly K O'Brien
Department of Health Policy, Management and Evaluation, Faculty of Medicine, University of Toronto, Ontario, Canada
J Int AIDS Soc 12:5. 2009..abstract:.. - What do we really know about the transition to adult-centered health care? A focus on cerebral palsy and spina bifidaJessie A Binks
Laurentian University, Sudbury, ON, Canada
Arch Phys Med Rehabil 88:1064-73. 2007.... - Validity, reliability, and responsiveness of a new measure of health-related quality of life in children with immune thrombocytopenic purpura: the Kids' ITP ToolsRobert J Klaassen
Department of Pediatrics, Children s Hospital of Eastern Ontario, Ottawa, Ontario, Canada
J Pediatr 150:510-5, 515.e1. 2007..To refine the disease-specific health-related quality of life measure in immune (idiopathic) thrombocytopenic purpura (ITP) and to determine its validity, reliability, and responsiveness to change... - Pilot study of the effect of romiplostim on child health-related quality of life (HRQoL) and parental burden in immune thrombocytopenia (ITP)Robert J Klaassen
Children s Hospital of Eastern Ontario, University of Ottawa, 401 Smyth Road, Ottawa, Ontario, Canada
Pediatr Blood Cancer 58:395-8. 2012..In this study, the impact of romiplostim treatment on the HRQoL of children with chronic ITP was assessed using the Kid's ITP Tools (KIT)... - Men on the margin: a Bourdieusian examination of living into adulthood with muscular dystrophyBarbara E Gibson
Department of Physical Therapy, University of Toronto, Toronto, Ont, Canada
Soc Sci Med 65:505-17. 2007..While the men created positive personal spaces for recognition and success, their achievements were severely circumscribed by significant social inequities... - The relationship between function, self-perception, and spinal deformity: Implications for treatment of scoliosis in children with spina bifidaEugene K Wai
Bloorview MacMillan Centre and The Hospital for Sick Children, Toronto, Ontario, Canada
J Pediatr Orthop 25:64-9. 2005..In conclusion, surgeons should be clear in their indications for surgery and recognize that in the short term the potential benefit of surgery may be, at best, to improve only sitting balance... - Advancing rehabilitation research: an interactionist perspective to guide question and designDoreen J Bartlett
School of Physical Therapy, Faculty of Health Sciences, The University of Western Ontario, London, Ontario, Canada
Disabil Rehabil 28:1169-76. 2006..Rehabilitation researchers--and those who fund their work--should consider and value the use of diverse research methods to best answer the questions posed from the interactionist perspective... - Impairment and activity limitation associated with epiphyseal dysplasia in childrenRita Damignani
Department of Rehabilitation Services, Hospital for Sick Children, Toronto, ON, Canada
Arch Phys Med Rehabil 85:1647-52. 2004..To develop a profile of impairment and activity limitation among children with epiphyseal dysplasia (ED) and to identify the relationship between these 2 domains... - Evaluating physical function in an adolescent bone tumor populationP Janine Pakulis
Department of Rehabilitation, Hospital for Sick Children, Toronto, Ontario, Canada
Pediatr Blood Cancer 45:635-43. 2005.... - Revised versions of the Childhood Health Assessment Questionnaire (CHAQ) are more sensitive and suffer less from a ceiling effectCatherine Lam
Hospital for Sick Children, University of Toronto, Toronto, Ontario, Canada
Arthritis Rheum 51:881-9. 2004..By being more sensitive at differentiating patients, the revised versions of the CHAQ will allow fewer subjects to be studied and will be more able to detect differences between patients in the clinic... - Patterns of participation in recreational and leisure activities among children with complex physical disabilitiesMary Law
CanChild Centre for Childhood Disability Research, Hamilton, Ontario, Canada
Dev Med Child Neurol 48:337-42. 2006.... - Activities scale for kids: an analysis of normalsAmy C Plint
Children s Hospital of Eastern Ontario, University of Ottawa, Canada
J Pediatr Orthop 23:788-90. 2003..12 (SD 6.45). This score differs significantly from the mean summary score for children with mild disabilities as determined in previous studies of disability (P = 0.005)... - A conceptual model of the factors affecting the recreation and leisure participation of children with disabilitiesGillian King
Thames Valley Children s Centre, 779 Base Line Road East, London, Ontario, Canada N6C 5Y6
Phys Occup Ther Pediatr 23:63-90. 2003..The proposed model is expected to be a useful tool for guiding future research studies and for developing policies and programs for children with disabilities and their families...