Carol Camfield

..Most with secondary generalized seizures only had remission and better academic and psychiatric/social outcomes...

..An epilepsy transition clinic that can effectively liaise with adult emergency services is optimal. Attention to these realities may improve the quality of life for the child and family...

..The author argues that with some significant modifications, the backbone structure of the 1989 Classification scheme could retain its usefulness for further research and clinical care...

..To document the effect of unprovoked status epilepticus (SE) on the prognosis for otherwise normal children with focal epilepsy...

..To determine whether healthcare professionals perceive the pain of infants differently due to their understanding of that infant's level of risk for neurological impairment...

..The objective of this study was to establish consensus about which behavioural, physiologic and contextual indicators best characterize pain in infants at high, moderate and low levels of risk for NI...

..These results indicate that fear of violence at the hands of people with epilepsy is prevalent and may contribute to stigma...

..Management of these problems may extend well beyond remission of the epilepsy. The child neurologist needs to prepare children with persistent epilepsy for transfer to adult epilepsy services...

..The influence of epilepsy on social outcome is greater than found in other childhood chronic disease control groups. More attention and research is needed to correct these unfortunate outcomes...

..To document the adult social outcome for childhood onset symptomatic generalized epilepsies (SGE)...

..To document the long-term evolution of juvenile myoclonic epilepsy (JME) in a population-based cohort...

..We make a series of suggestions about how to improve the transition/transfer process with the hope of better medical and social adult outcome for children with neurological disorders...

..Misdiagnosis is common. Children and adults with LGS have an enormous impact on their families, and efforts to improve the quality of life for these patients are complex...

..Children who have had 1-2 years seizure-free deserve a chance to discontinue their AED treatment, whereas in adults this decision probably should wait until there have been at least 4 years of seizure-freedom...

..Could there be brain damage with a recurrence? If medication treatment is delayed will there be any long-term change in the chance of a permanent remission? Now that my child has had a seizure, how should his/her activities be restricted?..

..West syndrome consists of infantile spasms with hypsarrhythmia and is perceived as a disorder of infants...

..Long-term social outcome for JME has not been adequately described. CONCLUSIONS: Further research is needed to justify the direction of many of the necessary management decisions in the diagnosis and treatment of IGE syndromes...

..The causes of poor social outcome are unclear. Intractability needs a clear definition and randomized trials comparing treatment regimes are sadly lacking...

..Persistent, frequent, nonepileptic paroxysmal eyelid movements were observed in 19 children and adults with well-controlled generalized epilepsy...

..Approximately 70% are successful. The authors examined how often intractable epilepsy follows discontinuation of AED treatment in a population-based cohort of children with epilepsy...

..We provide suggestions for developing a transition program, including identifying a willing adult service, adapting a multidisciplinary approach, addressing legal and psychosocial issues, and celebrating rites of passage...

..To compare phenylketonuria (PKU) management by a centralized, expert team in the Province of Nova Scotia (NS) with the decentralized approach in New Brunswick (NB)...

..It is concluded that the ICND is an accurate, quick measurement tool reflecting the impact of behavior, cognitive learning ability, physical/neurologic disability, and epilepsy on children and their families...

..These solutions and issues may be helpful to many families with a child with Dravet syndrome and possibly other severe childhood-onset epilepsies...

..To describe the long-term outcome of childhood-onset secondarily generalized epilepsies (SGEs)...

..In the absence of successful medical treatment for Dravet syndrome, further attention needs to be paid to helping families cope with the disorder...

..We sought to determine if the long-term clinical course and rate of remission were changed by treatment starting after the first seizure...

..Simple screening procedures for neurotoxicity have not been developed. Some personal suggestions are offered...

..Many of the epilepsies that begin in childhood are benign. Others interfere seriously with cognitive and social development...

..IGE-GTC is a recognizable, relatively benign epilepsy syndrome with complete remission in 75%. Learning problems and unsatisfactory social outcome are unfortunately common...

..Investigations never influenced management for those with Tourette syndrome, ADHD, or cerebral palsy. Therefore for the majority of children the critical component of the pediatric neurology consultation is a detailed clinical history...

..To determine whether healthcare professionals believe the pain of infants at risk for neurologic impairment differs from that of typical infants...

..In conclusion, the IPES is useful for measurement of a child's epilepsy-specific HRQOL during treatment and is responsive to changes in epilepsy severity over time...

..Families of children with newly diagnosed epilepsy worry about death during a seizure. We aimed to assess the frequency and causes of death of children with epilepsy...

..The objective of this study was to determine the causes of childhood epilepsy associated with mental retardation and determine whether these causes are preventable...

..Common sense approaches include identifying patients with cardiac arrhythmias as the cause of misdiagnosed epilepsy and vigorous attempts to control resistant seizure disorders...

..However these gains have not demonstrated persistence over time. Myths, misconceptions and misunderstandings about epilepsy continue and programs aimed at increasing knowledge and reducing negative public attitudes should be enhanced...

..No significant difference in any measurement was evident between children with Dravet syndrome and unaffected siblings (P > 0.05, two-tailed t test). This study did not demonstrate a specific facial phenotype in Dravet syndrome...

..During treatment, both had minimal startle response to various stimuli and have now been successfully weaned from clobazam. Low-dose clobazam is effective in the treatment of hyperekplexia and is well tolerated in infants...

..Further studies are recommended to establish the etiology of psychiatric complications, as well as the incidence and the response to pharmacotherapy and psychotherapy...