Research Topics
| P BorrySummaryAffiliation: Katholieke Universiteit Leuven Country: Belgium Publications
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Detail Information
Publications
Empirical research in bioethical journals. A quantitative analysisP Borry
Center for Biomedical Ethics and Law, K U Leuven, Kapucijnenvoer 35 3, 3000 Leuven, Belgium
J Med Ethics 32:240-5. 2006..The objective of this research is to analyse the evolution and nature of published empirical research in the fields of medical ethics and bioethics...- Coming of age of personalized medicine: challenges aheadPascal Borry
Centre for Biomedical Ethics and Law, Katholieke Universiteit Leuven, Kapucijnenvoer 35, 3000 Leuven, Belgium
Genome Med 1:109. 2009..ABSTRACT: A report on the 5th International DNA Sampling Conference 'The age of personal genomics', Banff, Canada, 16-18 September 2009... - Legislation on direct-to-consumer genetic testing in seven European countriesPascal Borry
Centre for Biomedical Ethics and Law, Katholieke Universiteit Leuven, Leuven, Belgium
Eur J Hum Genet 20:715-21. 2012..Belgium and the United Kingdom allow the provision of DTC genetic tests... 
Attitudes regarding predictive genetic testing in minors: a survey of European clinical geneticistsPascal Borry
the Centre for Biomedical Ethics and Law, KU Leuven, Belgium
Am J Med Genet C Semin Med Genet 148:78-83. 2008..This variability demonstrates the need for clinical geneticists to discuss their contradicting views and to develop harmonized practices throughout Europe...- Predictive genetic testing in minors for adult-onset genetic diseasesPascal Borry
Centre for Biomedical Ethics and Law, Katholieke Universiteit Leuven, Leuven, Belgium
Mt Sinai J Med 75:287-96. 2008..Finally, we critically analyze 4 arguments: the potential provision of good news if a test is performed, the unbearability of knowing, identity and adjustment, and parental anxiety and uncertainty... 
DTC genetic services: a look across the pondPascal Borry
Fund for Scientific Research-Flanders, Center for Biomedical Ethics, KU Leuven, Kapucijnenvoer 35, Box 7001, 3000 Leuven, Belgium
Am J Bioeth 8:14-6. 2008- Attitudes regarding carrier testing in incompetent children: a survey of European clinical geneticistsPascal Borry
Centre for Biomedical Ethics and Law, Katholieke Universiteit Leuven, Leuven, Belgium
Eur J Hum Genet 15:1211-7. 2007..However, for every condition studied, a group of clinical geneticists was willing or very willing to provide a carrier test to a 6-year-old child on parental request... - Genetic testing in asymptomatic minors: background considerations towards ESHG RecommendationsPascal Borry
Research Fund Flanders, Centre for Biomedical Ethics and Law, Faculty of Medicine, Katholieke Universiteit Leuven, Leuven, Belgium
Eur J Hum Genet 17:711-9. 2009..Second, it discusses, respectively, the presymptomatic and predictive genetic testing for adult-onset disorders, childhood-onset disorders and carrier testing... - Attitudes towards predictive genetic testing in minors for familial breast cancer: a systematic reviewPascal Borry
Centre for Biomedical Ethics and Law, Katholieke Universiteit Leuven, Belgium
Crit Rev Oncol Hematol 64:173-81. 2007..The objective of this article is to review the attitudes of different stakeholders (minors, parents, healthcare professionals, and relatives of affected individuals) towards predictive genetic testing of minors for familial breast cancer... - Author, contributor or just a signer? A quantitative analysis of authorship trends in the field of bioethicsPascal Borry
Centre for Biomedical Ethics and Law, Kapucijnenvoer 35 3, 3000 Leuven, Belgium
Bioethics 20:213-20. 2006..This growing trend is a challenge for the editors of journals in the field of bioethics to enhance awareness about the value and definition of authorship... - Presymptomatic and predictive genetic testing in minors: a systematic review of guidelines and position papersP Borry
Centre for Biomedical Ethics and Law, Universiteit Leuven, Leuven, Belgium
Clin Genet 70:374-81. 2006.... - Preconceptional genetic carrier testing and the commercial offer directly-to-consumersPascal Borry
Centre for Biomedical Ethics and Law, Katholieke Universiteit Leuven, Leuven, Belgium
Hum Reprod 26:972-7. 2011..The article concludes with some reflections about the potential sustainability of the offer of preconceptional carrier tests directly-to-consumers... - Carrier testing in minors: a systematic review of guidelines and position papersPascal Borry
Centre for Biomedical Ethics and Law, Catholic University of Leuven, Leuven, Belgium
Eur J Hum Genet 14:133-8. 2006..In the absence of compelling reasons, carrier testing of a child can reasonably be deferred until the child has the intellectual capacity needed to discern if and when to be tested... - How international is bioethics? A quantitative retrospective studyPascal Borry
Center for Biomedical Ethics and Law, K, U, Leuven, Kapucijnenvoer 35 3, 3000 Leuven, Belgium
BMC Med Ethics 7:E1. 2006..This article aims to examine the international distribution of publications in the field of bioethics... - Minors and informed consent in carrier testing: a survey of European clinical geneticistsP Borry
Centre for Biomedical Ethics and Law, Katholieke Universiteit Leuven, Leuven, Belgium
J Med Ethics 34:370-4. 2008..A study was made of attitudes of clinical geneticists regarding the age at which minors should be allowed to undergo a carrier test and the reasons they provide to explain their answer... - Health-related direct-to-consumer genetic testing: a review of companies' policies with regard to genetic testing in minorsPascal Borry
Centre for Biomedical Ethics and Law, Katholieke Universiteit Leuven, Kapucijnenvoer 35, Box 7001, 3000, Leuven, Belgium
Fam Cancer 9:51-9. 2010.... - Attitudes towards carrier testing in minors: a systematic reviewP Borry
Center for Biomedical Ethics and Law, Catholic University of Leuven, Belgium
Genet Couns 16:341-52. 2005..Guidelines of healthcare professionals advise to defer carrier testing on the grounds that children should be able to decide for themselves later in life to request a carrier test or not... - Patient rights in EU Member States after the ratification of the Convention on Human Rights and BiomedicineHerman Nys
Centre for Biomedical Ethics and Law, Catholic University of Leuven, Kapucijnenvoer 35, B 3000 Leuven, Belgium
Health Policy 83:223-35. 2007.... - Examining the role of informal interpretation in medical interviewsL Bezuidenhout
KU Leuven Box 7001, UZ St Rafael, Leuven, Belgium
J Med Ethics 35:159-62. 2009.... - Why eight EU Member States signed, but not yet ratified the Convention for Human Rights and BiomedicineTom Goffin
Centre for Biomedical Ethics and Law, Catholic University of Leuven, Kapucijnenvoer 35, 7001, BE 3000 Leuven, Belgium
Health Policy 86:222-33. 2008..Because of the concrete list of patient rights provided for in the Convention, we focus on the question whether the reasons for not ratifying are related to these patient rights provisions... - What is the role of empirical research in bioethical reflection and decision-making? An ethical analysisPascal Borry
Center for Biomedical Ethics and Law, K U Leuven, Kapucijnenvoer 35 3, 3000 Leuven, Belgium
Med Health Care Philos 7:41-53. 2004..It can also be useful, however, as a sociology of bioethics in which the discipline of bioethics itself becomes an object of research... - The birth of the empirical turn in bioethicsPascal Borry
Center for Biomedical Ethics and Law, Faculty of Medicine, K U Leuven, Kapucijnenvoer 35 3, 3000 Leuven, Belgium
Bioethics 19:49-71. 2005..However, a problematic relationship cannot simply and easily evolve into a perfect interaction. A new and positive climate for empirical approaches has arisen, but the original difficulties have not disappeared... - Evidence-based medicine and its role in ethical decision-makingPascal Borry
Center for Biomedical Ethics and Law, K U Leuven, Kapucijnenvoer, Leuven, Belgium
J Eval Clin Pract 12:306-11. 2006..Ethical decision making must be informed and legitimated by the best available medical research. Nevertheless, ethical decision making is still primarily a choice based on values and norms... - Donation after uncontrolled cardiac death (uDCD): a review of the debate from a European perspectivePascal Borry
Centre for Biomedical Ethics and Law, K U Leuven, Belgium
J Law Med Ethics 36:752-9, 610. 2008.... - Europe to ban direct-to-consumer genetic tests?Pascal Borry
Nat Biotechnol 26:736-7. 2008 - A proposal for a model of informed consent for the collection, storage and use of biological materials for research purposesCorinna Porteri
IRCCS Centro S Giovanni di Dio Fatebenefratelli, via Pilastroni 4, 25125 Brescia, Italy
Patient Educ Couns 71:136-42. 2008..To suggest a model of informed consent for the collection, storage and use of biological materials in local biobanks for health research purposes... - Developing countries and bioethical researchPascal Borry
N Engl J Med 353:852-3. 2005 - Minors and informed consent: a comparative approachLoes Stultiëns
Centre for Biomedical Ethics and Law, Catholic University Leuven
Eur J Health Law 14:21-46. 2007..This in view of the system they have opted for as well as the age and circumstances under which minors are allowed to take health care decisions autonomously... - Carrier testing in minors: conflicting viewsPascal Borry
Nat Rev Genet 8:828. 2007 - Look before you leap. Carrier screening for type 1 Gaucher disease: difficult questionsPascal Borry
Eur J Hum Genet 16:139-40. 2008