Research Topics
| Allison TongSummaryAffiliation: University of Sydney Country: Australia Publications
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Detail Information
Publications
Consumer involvement in topic and outcome selection in the development of clinical practice guidelinesAllison Tong
Centre for Kidney Research, The Children s Hospital at Westmead, Westmead, Australia
Health Expect 15:410-23. 2012..Little is known about how to involve consumers more effectively in guideline development...
Test performance of faecal occult blood testing for the detection of bowel cancer in people with chronic kidney disease (DETECT) protocolGermaine Wong
Sydney School of Public Health University of Sydney, Australia
BMC Public Health 11:516. 2011..Among those with CKD, the effectiveness, the efficacy and patients' preferences for cancer screening are unknown...
Patients' priorities for health research: focus group study of patients with chronic kidney diseaseAllison Tong
NHMRC Centre for Clinical Research Excellence in Renal Medicine, Centre for Kidney Research, Children s Hospital at Westmead, Westmead, NSW 2145, Australia
Nephrol Dial Transplant 23:3206-14. 2008..The inclusion of consumer preferences in prioritizing research topics is widely advocated, but prioritization is driven largely by professional agendas...
Parental perspectives on caring for a child with chronic kidney disease: an in-depth interview studyA Tong
Centre for Kidney Research, The Children s Hospital at Westmead, Westmead, NSW, Australia
Child Care Health Dev 36:549-57. 2010..Children diagnosed with chronic kidney disease (CKD) depend on their parents for complex, continuous and intensive support. The study aimed to explore the experiences of parents who have children with CKD...
The perspectives of kidney transplant recipients on medicine taking: a systematic review of qualitative studiesAllison Tong
Centre for Kidney Research, The Children s Hospital at Westmead, Westmead, NSW 2145, Australia
Nephrol Dial Transplant 26:344-54. 2011..This study aimed to describe the beliefs, experiences and perspectives of kidney transplant recipients on medicine taking...
"When I had my transplant, I became normal." Adolescent perspectives on life after kidney transplantationAllison Tong
Centre for Kidney Research, The Children s Hospital at Westmead, Westmead, NSW, Australia
Pediatr Transplant 15:285-93. 2011..Novel approaches are needed to foster self-confidence and sense of normality and to provide comprehensive information on the patient journey following kidney transplantation...
Screening and follow-up of living kidney donors: a systematic review of clinical practice guidelinesAllison Tong
Centre for Kidney Research, The Children s Hospital at Westmead, Sydney, NSW, Australia
Transplantation 92:962-72. 2011..There is an urgent need for international collaboration and coordination to ensure, where possible, that guidelines for living donation are consistent, evidence based, and comprehensive to promote best outcomes for a precious resource...
Quality of life of adolescent kidney transplant recipientsAllison Tong
Centre for Kidney Research, The Children s Hospital at Westmead, Westmead, New South Wales, Australia
J Pediatr 159:670-5.e2. 2011..To elicit utility-based quality of life (QOL) of adolescent kidney transplant recipients...
Nephrologists' perspectives on waitlisting and allocation of deceased donor kidneys for transplantAllison Tong
Centre for Kidney Research, The Children s Hospital at Westmead, Sydney, NSW, Australia
Am J Kidney Dis 58:704-16. 2011..This study aims to elicit nephrologists' perspectives on waitlisting patients for kidney transplant and the allocation of deceased kidneys...
Community preferences for the allocation of solid organs for transplantation: a systematic reviewAllison Tong
Centre for Kidney Research, The Children s Hospital at Westmead, Sydney, NSW 2145, Australia
Transplantation 89:796-805. 2010..This systematic review aimed to ascertain community preferences for organ allocation and the principles underpinning these preferences...
Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groupsAllison Tong
School of Public Health, University of Sydney, NSW, Australia
Int J Qual Health Care 19:349-57. 2007..Although partial checklists are available, no consolidated reporting framework exists for any type of qualitative design...
Adolescent experiences following organ transplantation: a systematic review of qualitative studiesAllison Tong
Centre for Kidney Research, The Children s Hospital at Westmead, Sydney, NSW 2145, Australia
J Pediatr 155:542-9. 2009..To describe the experiences of adolescents who underwent organ transplantation...
Patients' experiences and perspectives of living with CKDAllison Tong
NHMRC Centre for Clinical Research Excellence in Renal Medicine, Centre for Kidney Research, The Children s Hospital at Westmead, Westmead, NSW, Australia
Am J Kidney Dis 53:689-700. 2009..Rather than focusing on clinical targets, greater attention may need to be given to providing information and psychosocial and practical support at a patient-level not organ-specific level, to maximize patient quality of life...
Support interventions for caregivers of people with chronic kidney disease: a systematic reviewAllison Tong
NHMRC Centre for Clinical Research Excellence in Renal Medicine, Centre for Kidney Research, Children s Hospital at Westmead, Westmead, NSW 2145, Australia
Nephrol Dial Transplant 23:3960-5. 2008..Yet, the needs of caregivers are often neglected and under-prioritized. The objective of this review is to evaluate the effectiveness of interventions aimed at providing support to caregivers of people with CKD...
An analysis of media coverage on the prevention and early detection of CKD in AustraliaAllison Tong
NHMRC Centre for Clinical Research Excellence in Renal Medicine, Centre for Kidney Research, Children s Hospital at Westmead, Westmead, NSW, Australia
Am J Kidney Dis 52:159-70. 2008..Extending news media coverage can help exert an influence on health policies and agenda setting and increase public awareness to improve prevention and early detection of CKD...
Experiences of parents who have children with chronic kidney disease: a systematic review of qualitative studiesAllison Tong
NHMRC Centre for Clinical Research Excellence in Renal Medicine, Centre for Kidney Research, Children s Hospital at Westmead, Westmead, NSW 2145, Australia
Pediatrics 121:349-60. 2008..The objective of this study was to describe the experiences of parents who have children with chronic kidney disease...
Factors that influence the decision to be an organ donor: a systematic review of the qualitative literatureMichelle J Irving
School of Public Health, The University of Sydney, Sydney, Australia
Nephrol Dial Transplant 27:2526-33. 2012..We conducted a systematic review of qualitative studies that explored community attitudes towards living and deceased solid organ donation to inform strategies to improve organ donation rates...
Community attitudes to deceased organ donation: a focus group studyMichelle J Irving
School of Public Health, The University of Sydney, Sydney, NSW, Australia
Transplantation 93:1064-9. 2012..Despite broad community support for organ donation, there is a chronic shortage of donor organs for transplantation. This study elicited community attitudes on deceased organ donation and the current Australian organ donation system...
Community Preferences for the Allocation & Donation of Organs--the PAraDOx StudyKirsten Howard
School of Public Health, University of Sydney, NSW, 2006, Australia
BMC Public Health 11:386. 2011..Reasons for the chronic shortage of deceased organ donations are unclear; there appears to be no lack of 'in principle' public support for organ donation...
The experiences of commercial kidney donors: thematic synthesis of qualitative researchAllison Tong
Centre for Kidney Research, The Children s Hospital at Westmead, Westmead, NSW, Australia
Transpl Int 25:1138-49. 2012..Review of this published literature supports the need for effective implementation of the WHO guiding principles and legislated regulation to deter potential recipients and healthcare providers from pursuing commercial transplantation...
Patient preferences for the allocation of deceased donor kidneys for transplantation: a mixed methods studyAllison Tong
Sydney School of Public Health, The University of Sydney, Sydney, NSW 2006, Australia
BMC Nephrol 13:18. 2012..Deceased donor kidneys are a scarce health resource, yet patient preferences for organ allocation are largely unknown. The aim of this study was to determine patient preferences for how kidneys should be allocated for transplantation...
Comparative survival and economic benefits of deceased donor kidney transplantation and dialysis in people with varying ages and co-morbiditiesGermaine Wong
Centre for Kidney Research, Children s Hospital at Westmead, Westmead, Australia
PLoS ONE 7:e29591. 2012..The aim of our study is to estimate the average and incremental survival benefits and health care costs of listing and transplantation compared to dialysis among individuals with varying co-morbidities...
The motivations and experiences of living kidney donors: a thematic synthesisAllison Tong
Centre for Kidney Research, The Children s Hospital at Westmead, NSW, Australia
Am J Kidney Dis 60:15-26. 2012..The aim of this study was to synthesize published qualitative studies of the experiences and perspectives of living kidney donors...
Clinical practice guidelines on wait-listing for kidney transplantation: consistent and equitable?Pikli Batabyal
Centre for Kidney Research, The Children s Hospital at Westmead, Sydney, NSW, Australia
Transplantation 94:703-13. 2012..This study aimed to compare the quality, the scope, and the consistency of international guidelines on wait-listing for kidney transplantation...
Important outcomes for kidney transplant recipients: a nominal group and qualitative studyMartin Howell
Centre for Kidney Research, The Children s Hospital at Westmead, Westmead, Australia
Am J Kidney Dis 60:186-96. 2012..The aim of this study was to elicit patient perspectives and priorities for outcomes after transplant and the reasons underpinning these priorities...
Catheter-related interventions to prevent peritonitis in peritoneal dialysis: a systematic review of randomized, controlled trialsGiovanni F M Strippoli
NHMRC Centre for Clinical Research Excellence in Renal Medicine, Cochrane Renal Group, Locked Bag 4001, University of Sydney, Australia
J Am Soc Nephrol 15:2735-46. 2004....
Children's experiences of living with juvenile idiopathic arthritis: a thematic synthesis of qualitative studiesAllison Tong
University of Sydney, Sydney, New South Wales, Australia
Arthritis Care Res (Hoboken) 64:1392-404. 2012..To describe the experiences and perspectives of children and adolescents living with juvenile idiopathic arthritis (JIA)...
How do people with chronic kidney disease value cancer-related quality of life?Germaine Wong
Centre for Kidney Research, The Children s Hospital at Westmead, School of Public Health, Sydney University, New South Wales, Australia
Nephrology (Carlton) 17:32-41. 2012..To estimate the utility-based quality of life (QOL) of people with chronic kidney disease (CKD) and to estimate the QOL associated with two hypothetical colorectal cancer health states...
Exercise training in solid organ transplant recipients: a systematic review and meta-analysisMadeleine Didsbury
Sydney School of Public Health, The University of Sydney, Sydney, New South Wales, Australia
Transplantation 95:679-87. 2013..This study aims to assess the health benefits and harms of supervised exercise training programs in solid organ recipients...
Rationing scarce organs for transplantation: healthcare provider perspectives on wait-listing and organ allocationAllison Tong
Sydney School of Public Health, The University of Sydney, Sydney, NSW, Australia Centre for Kidney Research, The Children s Hospital at Westmead, Sydney, NSW, Australia
Clin Transplant 27:60-71. 2013..Ongoing engagement with stakeholders is needed to enhance transparency, a reasonable balance between efficiency and equity, and avoid discrimination against specific populations...
"It was just an unconditional gift." Self reflections of non-directed living kidney donorsAllison Tong
Centre for Kidney Research, The Children s Hospital at Westmead, Australia
Clin Transplant 26:589-99. 2012..Reluctance to consider non-directed donation programs solely on concerns of unrealistic or ill-motivations and potential feelings of donor regret appear unwarranted...
Knowledge, beliefs and attitudes of kidney transplant recipients regarding their risk of cancerNarelle C Williams
Centre for Kidney Research, The Children s Hospital at Westmead, Sydney, New South Wales, Australia
Nephrology (Carlton) 17:300-6. 2012..This study aims to explore these beliefs and attitudes, to better understand patient motives and potential barriers to early detection of cancer...
Children's experiences of dialysis: a systematic review of qualitative studiesLidwien Tjaden
Centre for Kidney Research, The Children s Hospital at Westmead, Westmead, Australia
Arch Dis Child 97:395-402. 2012..To describe the experiences and perspectives of children and adolescents on dialysis...
Experiences and perspectives of adolescents and young adults with advanced CKDAllison Tong
Centre for Kidney Research, The Children s Hospital at Westmead, Westmead, Sydney, NSW 2145, Australia
Am J Kidney Dis 61:375-84. 2013..Young people with advanced chronic kidney disease experience delayed growth and poor psychosocial outcomes. This study aims to elicit the experiences and perspectives of young people waiting for a kidney transplant...
Nephrologists' perspectives on the effect of guidelines on clinical practice: a semistructured interview studyMichelle J Irving
Centre for Kidney Research, The Children s Hospital at Westmead, NSW, Australia 2145
Am J Kidney Dis 55:241-9. 2010..This study aims to explore nephrologists' perspectives on guidelines and elicit their perspectives on the effects of guidelines on clinical decisions...
Meta-analysis of biochemical and patient-level effects of calcimimetic therapyGiovanni F M Strippoli
NHMRC Centre for Clinical Research Excellence in Renal Medicine, Cochrane Renal Group, School of Public Health, University of Sydney, Australia
Am J Kidney Dis 47:715-26. 2006..We conducted a meta-analysis to evaluate outcomes of therapy with these novel agents...
Health benefits and costs of screening for colorectal cancer in people on dialysis or who have received a kidney transplantGermaine Wong
Centre of Kidney Research, The Children s Hospital at Westmead, Westmead, NSW, Australia
Nephrol Dial Transplant 28:917-26. 2013..We aimed to determine the costs and health benefits of CRC screening in people on dialysis or who have received a kidney transplant...
Adolescent views on transition in diabetes and nephrologyAllison Tong
Centre for Kidney Research, The Children s Hospital at Westmead, Sydney, NSW, Australia, 2145
Eur J Pediatr 172:293-304. 2013....
Characteristics of dialysis important to patients and family caregivers: a mixed methods approachRachael L Morton
Sydney School of Public Health, The University of Sydney, Sydney, Australia
Nephrol Dial Transplant 26:4038-46. 2011..The aim of this study was to rank the most important characteristics of dialysis on which patients and caregivers make decisions about treatment...
Cancer screening in people who have chronic disease: the example of kidney diseaseGermaine Wong
Centre for Kidney Research, Kids Research Institute, Children s Hospital at Westmead, Westmead, New South Wales, Australia
Semin Dial 24:72-8. 2011....
Enhancing transparency in reporting the synthesis of qualitative research: ENTREQAllison Tong
Sydney School of Public Health, University of Sydney, Sydney, NSW, 2006, Australia
BMC Med Res Methodol 12:181. 2012..abstract:..
Antimicrobial agents to prevent peritonitis in peritoneal dialysis: a systematic review of randomized controlled trialsGiovanni F M Strippoli
Centre for Kidney Research, National Health and Medical Research Council Centre for Clinical Research Excellence in Renal Medicine, Cochrane Renal Group, Children s Hospital at Westmead, University of Sydney, Sydney, Australia
Am J Kidney Dis 44:591-603. 2004..Oral, nasal, and topical antibiotic prophylaxis; exit-site disinfectants; and other antimicrobial interventions are used to prevent it. This study was conducted to assess what evidence supports these approaches...
