Phyllis Butow

Summary

Affiliation: University of Sydney
Country: Australia

Publications

  1. doi request reprint Shared decision making coding systems: how do they compare in the oncology context?
    Phyllis Butow
    Centre for Medical Psychology and Evidence Based Decision Making CeMPED, School of Psychology, University of Sydney, Camperdown, NSW 2006, Australia
    Patient Educ Couns 78:261-8. 2010
  2. doi request reprint The gains and pains of being a cancer support group leader: a qualitative survey of rewards and challenges
    Phyllis Butow
    Centre for Medical Psychology and Evidence Based Decision Making, School of Psychology, University of Sydney, Camperdown, NSW, Australia
    Soc Work Health Care 48:750-67. 2009
  3. doi request reprint From inside the bubble: migrants' perceptions of communication with the cancer team
    Phyllis N Butow
    Psycho oncology Co operative Research Group, University of Sydney, Sydney, NSW, Australia
    Support Care Cancer 19:281-90. 2010
  4. ncbi request reprint Who helps the leaders? Difficulties experienced by cancer support group leaders
    Laura Kirsten
    Medical Psychology Research Unit, School of Psychology, Brennan MacCallum Building A18, University of Sydney, New South Wales, 2006, Australia
    Support Care Cancer 14:770-8. 2006
  5. ncbi request reprint Review of adherence-related issues in adolescents and young adults with cancer
    Phyllis Butow
    Centre for Medical Psychology and Evidence Based Decision Making, Research Group, University of Sydney, Sydney, New South Wales, Australia
    J Clin Oncol 28:4800-9. 2010
  6. ncbi request reprint Sustaining leaders of cancer support groups: the role, needs, and difficulties of leaders
    Phyllis Butow
    Medical Psychology Research Unit, School of Psychology, University of Sydney, Brennan MacCallum Bldg, A18, Sydney, NS, 2006, Australia
    Soc Work Health Care 42:39-55. 2005
  7. doi request reprint A bridge between cultures: interpreters' perspectives of consultations with migrant oncology patients
    Phyllis N Butow
    School of Psychology, University of Sydney, Sydney, Australia
    Support Care Cancer 20:235-44. 2012
  8. ncbi request reprint What is the ideal support group? Views of Australian people with cancer and their carers
    Phyllis N Butow
    Medical Psychology Research Unit, School of Psychology, University of Sydney, NSW, Australia
    Psychooncology 16:1039-45. 2007
  9. ncbi request reprint Increasing oncologists' skills in eliciting and responding to emotional cues: evaluation of a communication skills training program
    Phyllis Butow
    Medical Psychology Research Unit, School of Psychology, Brenan McCallum Building, A18, University of Sydney, Camperdown, NSW 2006, Australia
    Psychooncology 17:209-18. 2008
  10. doi request reprint Sharing vs. caring--the relative impact of sharing decisions versus managing emotions on patient outcomes
    ALLAN SMITH
    CeMPED, School of Psychology, University of Sydney, NSW, Australia
    Patient Educ Couns 82:233-9. 2011

Detail Information

Publications78

  1. doi request reprint Shared decision making coding systems: how do they compare in the oncology context?
    Phyllis Butow
    Centre for Medical Psychology and Evidence Based Decision Making CeMPED, School of Psychology, University of Sydney, Camperdown, NSW 2006, Australia
    Patient Educ Couns 78:261-8. 2010
    ....
  2. doi request reprint The gains and pains of being a cancer support group leader: a qualitative survey of rewards and challenges
    Phyllis Butow
    Centre for Medical Psychology and Evidence Based Decision Making, School of Psychology, University of Sydney, Camperdown, NSW, Australia
    Soc Work Health Care 48:750-67. 2009
    ..These were integrated into a model depicting key positive and negative aspects of the CSGL's role, to provide direction for future training and ongoing support of CSGLs...
  3. doi request reprint From inside the bubble: migrants' perceptions of communication with the cancer team
    Phyllis N Butow
    Psycho oncology Co operative Research Group, University of Sydney, Sydney, NSW, Australia
    Support Care Cancer 19:281-90. 2010
    ..In this paper, the findings related to communication issues are presented...
  4. ncbi request reprint Who helps the leaders? Difficulties experienced by cancer support group leaders
    Laura Kirsten
    Medical Psychology Research Unit, School of Psychology, Brennan MacCallum Building A18, University of Sydney, New South Wales, 2006, Australia
    Support Care Cancer 14:770-8. 2006
    ..The aim of this study was to discover the difficulties experienced and training desired by cancer support group leaders...
  5. ncbi request reprint Review of adherence-related issues in adolescents and young adults with cancer
    Phyllis Butow
    Centre for Medical Psychology and Evidence Based Decision Making, Research Group, University of Sydney, Sydney, New South Wales, Australia
    J Clin Oncol 28:4800-9. 2010
    ..Nonadherence can reduce treatment efficacy, which places the patient at higher risk of relapse, adverse effects, and poor outcomes...
  6. ncbi request reprint Sustaining leaders of cancer support groups: the role, needs, and difficulties of leaders
    Phyllis Butow
    Medical Psychology Research Unit, School of Psychology, University of Sydney, Brennan MacCallum Bldg, A18, Sydney, NS, 2006, Australia
    Soc Work Health Care 42:39-55. 2005
    ..There is clearly a need to develop and evaluate effective interventions to maintain leaders in these roles, if the proven benefits for cancer patients are to be protected...
  7. doi request reprint A bridge between cultures: interpreters' perspectives of consultations with migrant oncology patients
    Phyllis N Butow
    School of Psychology, University of Sydney, Sydney, Australia
    Support Care Cancer 20:235-44. 2012
    ..Little is known about interpreters' perceptions of their role and the challenges they face. This study aimed to obtain their perspective...
  8. ncbi request reprint What is the ideal support group? Views of Australian people with cancer and their carers
    Phyllis N Butow
    Medical Psychology Research Unit, School of Psychology, University of Sydney, NSW, Australia
    Psychooncology 16:1039-45. 2007
    ..To explore views on the ideal structure and process of support groups for cancer patients...
  9. ncbi request reprint Increasing oncologists' skills in eliciting and responding to emotional cues: evaluation of a communication skills training program
    Phyllis Butow
    Medical Psychology Research Unit, School of Psychology, Brenan McCallum Building, A18, University of Sydney, Camperdown, NSW 2006, Australia
    Psychooncology 17:209-18. 2008
    ..Psychological morbidity in cancer patients is common, but often undetected and untreated. We developed a communication skills training (CST) program targeting this issue, and evaluated its impact on doctor behaviour...
  10. doi request reprint Sharing vs. caring--the relative impact of sharing decisions versus managing emotions on patient outcomes
    ALLAN SMITH
    CeMPED, School of Psychology, University of Sydney, NSW, Australia
    Patient Educ Couns 82:233-9. 2011
    ..To assess the relative impact of cognitive and emotional aspects of shared decision making (SDM) on patient outcomes...
  11. doi request reprint Grappling with cultural differences; communication between oncologists and immigrant cancer patients with and without interpreters
    Phyllis Butow
    University of Sydney, NSW, Australia
    Patient Educ Couns 84:398-405. 2011
    ..Immigrants report challenges communicating with their health team. This study compared oncology consultations of immigrants with and without interpreters vs Anglo-Australian patients...
  12. doi request reprint The prevalence and correlates of supportive care needs in testicular cancer survivors: a cross-sectional study
    Allan ben Smith
    Psycho oncology Co operative Research Group PoCoG, University of Sydney, Sydney, Australia
    Psychooncology 22:2557-64. 2013
    ..This cross-sectional study aimed to identify the prevalence and correlates of supportive care needs in testicular cancer (TC) survivors...
  13. ncbi request reprint Australian breast cancer specialists' involvement in multidisciplinary treatment planning meetings
    James D Harrison
    Surgical Outcomes Research Centre, Sydney South West Area Health Service, University of Sydney, Sydney, NSW, Australia
    Breast 17:335-40. 2008
    ..Suggested improvements included that all key personnel attend, meetings are structured and that the views of all be heard. Work is needed to ensure MDT's function and co-operate as intended in treatment planning meetings...
  14. ncbi request reprint Reducing disparity in outcomes for immigrants with cancer: a qualitative assessment of the feasibility and acceptability of a culturally targeted telephone-based supportive care intervention
    Joanne Shaw
    Surgical Outcomes Research Centre, Sydney Local Health District and School of Public Health, Royal Prince Alfred Hospital, University of Sydney, PO Box M157, Missenden Road, Sydney, New South Wales, 2050, Australia
    Support Care Cancer 21:2297-301. 2013
    ....
  15. ncbi request reprint Health literacy in relation to cancer: addressing the silence about and absence of cancer discussion among Aboriginal people, communities and health services
    Carla Treloar
    National Centre in HIV Social Research, The University of New South Wales, Sydney, NSW, Australia
    Health Soc Care Community 21:655-64. 2013
    ....
  16. doi request reprint Sexual adjustment following early stage cervical and endometrial cancer: prospective controlled multi-centre study
    Ilona Juraskova
    Centre for Medical Psychology and Evidence Based Decision Making, School of Psychology, University of Sydney, NSW, Australia
    Psychooncology 22:153-9. 2013
    ..Objective' aspects of sexual function were operationalised as the frequency of sexual activity and 'subjective' aspects as the perceived quality of sexual interactions...
  17. ncbi request reprint What do cancer support groups provide which other supportive relationships do not? The experience of peer support groups for people with cancer
    Jane Ussher
    Gender, Culture and Health Research Unit, PsyHealth, School of Psychology, University of Western Sydney, Locked Bag 1797, Penrith South DC, NSW 1797, Australia
    Soc Sci Med 62:2565-76. 2006
    ....
  18. doi request reprint Coping with newly diagnosed upper gastrointestinal cancer: a longitudinal qualitative study of family caregivers' role perception and supportive care needs
    Joanne Shaw
    Surgical Outcomes Research Centre, Sydney Local Health District and School of Public Health, Royal Prince Alfred Hospital, University of Sydney, Sydney, NSW, Australia
    Support Care Cancer 21:749-56. 2013
    ....
  19. ncbi request reprint A qualitative analysis of reasons for leaving, or not attending, a cancer support group
    Jane M Ussher
    Gender, Culture and Health Research Unit PsyHealth, School of Psychology, University of Western Sydney, NSW, Australia
    Soc Work Health Care 47:14-29. 2008
    ..These disparate factors underlying support group non-attendance need to be taken into consideration when planning support services, when developing programs of education, or when referrals to cancer support groups are made...
  20. ncbi request reprint Differences in individual approaches: communication in the familial breast cancer consultation and the effect on patient outcomes
    Elizabeth A Lobb
    Medical Psychology Research Unit, Department of Psychology, The University of Sydney, Sydney, New South Wales, Australia
    J Genet Couns 14:43-53. 2005
    ..Communication skills may be a useful area to explore further in this field...
  21. ncbi request reprint Cancer consultation preparation package: changing patients but not physicians is not enough
    Phyllis Butow
    Medical Psychology Research Unit, University of Sydney, Sydney, NSW 2006, Australia
    J Clin Oncol 22:4401-9. 2004
    ..This study evaluated a cancer consultation preparation package (CCPP) designed to facilitate patient involvement in the oncology consultation...
  22. ncbi request reprint The Cancode interaction analysis system in the oncological setting: reliability and validity of video and audio tape coding
    Elizabeth Dent
    Medical Psychology Research Unit, University of Sydney, Blackburn Building D06, Sydney 2006, Australia
    Patient Educ Couns 56:35-44. 2005
    ..65). Cancode is reliable, valid and sensitive to doctors behavioral changes. For a more passive patient, the doctor may switch from a 'cure' to 'care' oriented consult, responding to psycho-social instead of informational needs...
  23. ncbi request reprint "I can't do this, it's too much": building social inclusion in cancer diagnosis and treatment experiences of Aboriginal people, their carers and health workers
    Carla Treloar
    National Centre in HIV Social Research, University of New South Wales, Sydney, NSW, 2052, Australia
    Int J Public Health 59:373-9. 2014
    ..The aim of this paper was to explore the cancer care experiences of Aboriginal people in NSW using a social inclusion lens...
  24. ncbi request reprint The gendered construction and experience of difficulties and rewards in cancer care
    Jane M Ussher
    University of Western Sydney, Sydney, New South Wales, Australia
    Qual Health Res 23:900-15. 2013
    ..We interpret these findings in relation to a social constructionist analysis of gender roles...
  25. doi request reprint Development and feasibility assessment of telephone-delivered supportive care to improve outcomes for patients with colorectal cancer: pilot study of the CONNECT intervention
    Jane Young
    Surgical Outcomes Research Centre, University of Sydney and Sydney South West Area Health Service, PO Box M157, Missenden Rd, Sydney, NSW 2050, Australia
    Support Care Cancer 18:461-70. 2010
    ..This study aims to describe a pilot study of the feasibility, acceptability and likely impact of a nurse-delivered, telephone intervention to reduce unmet need and improve quality of life for surgical patients with colorectal cancer...
  26. doi request reprint Discussing complementary therapy use with early-stage breast cancer patients: exploring the communication gap
    Ilona Juraskova
    Centre for Medical Psychology and Evidence Based Decision Making, University of Sydney, NSW 2006, Australia
    Integr Cancer Ther 9:168-76. 2010
    ....
  27. doi request reprint Effects of life event stress and social support on the odds of a >or= 2 cm breast cancer
    Anne Kricker
    School of Public Health, University of Sydney, Edward Ford Building A27, Sydney, NSW 2006, Australia
    Cancer Causes Control 20:437-47. 2009
    ..To examine the contribution of life event and social support factors to diagnosis with a >or= 2 cm breast cancer...
  28. ncbi request reprint Communicating risk information: the influence of graphical display format on quantitative information perception-Accuracy, comprehension and preferences
    Melanie Price
    Medical Psychology Research Unit, University of Sydney, Australia
    Patient Educ Couns 69:121-8. 2007
    ..The aim of this study is to determine the features of 1000 person frequency diagrams (pictographs) which result in the greatest speed and accuracy of graphical perception...
  29. doi request reprint Patient and physician preferences for surgical and adjuvant treatment options for rectal cancer
    James D Harrison
    BSc Hons, Surgical Outcomes Research Centre, Royal Prince Alfred Hospital, PO Box M157, Missenden Road, Sydney, New South Wales, Australia 2050
    Arch Surg 143:389-94. 2008
    ..Patients and their clinicians hold varying preferences for surgical and adjuvant treatment therapies for rectal cancer...
  30. doi request reprint Measuring the impact of nurse cue-response behaviour on cancer patients' emotional cues
    Mayumi Oguchi
    School of Psychology, University of Sydney, NSW, Australia
    Patient Educ Couns 82:163-8. 2011
    ..This study aimed to explore the impact of nurse responses to patients' and family members' emotional cues and concerns during the chemotherapy education consultation...
  31. ncbi request reprint Breast cancer survivors' supportive care needs 2-10 years after diagnosis
    Katharine Hodgkinson
    Department of Gynecological Cancer, Westmead Hospital, Westmead, NSW, Australia
    Support Care Cancer 15:515-23. 2007
    ..The aim of this study was to identify longer-term outcomes and supportive care needs in disease-free breast cancer survivors...
  32. pmc Online group-based cognitive-behavioural therapy for adolescents and young adults after cancer treatment: a multicenter randomised controlled trial of Recapture Life-AYA
    Ursula M Sansom-Daly
    Centre for Children s Cancer and Blood Disorders, Sydney Children s Hospital, Randwick, NSW, Australia
    BMC Cancer 12:339. 2012
    ..The distress young people experience after cancer treatment seriously jeopardises their ability to move into well-functioning adulthood...
  33. ncbi request reprint A critical review of the effects of medical Qigong on quality of life, immune function, and survival in cancer patients
    Byeongsang Oh
    Sydney Medical School, University of Sydney, Sydney, New South Wales, Australia
    Integr Cancer Ther 11:101-10. 2012
    ..However, evidence for the safety and efficacy of such treatments is lacking. The purpose of the current review was to investigate evidence for the role of one CAM, medical Qigong (MQ), in supportive care...
  34. doi request reprint Assessing health-related quality of life in gynecologic oncology: a systematic review of questionnaires and their ability to detect clinically important differences and change
    Tim Luckett
    Psycho oncology Co operative Research Group, School of Psychology, University of Sydney, Sydney, New South Wales, Australia
    Int J Gynecol Cancer 20:664-84. 2010
    ....
  35. doi request reprint The use and perceived benefits resulting from the use of complementary and alternative medicine by cancer patients in Australia
    Byeongsang Oh
    Department of Medicine, University of Sydney, Concord Repatriation General Hospital, Concord, New South Wales, Australia
    Asia Pac J Clin Oncol 6:342-9. 2010
    ..The aim of this study was to evaluate CAM use by cancer patients and to explore their perceptions of the benefit, safety and efficacy of CAM in general...
  36. ncbi request reprint Health professional and consumer views on involving breast cancer patients in the multidisciplinary discussion of their disease and treatment plan
    Phyllis Butow
    School of Psychology, University of Sydney, Sydney, New South Wales, Australia
    Cancer 110:1937-44. 2007
    ..The aim was to obtain the views of health professionals and patients about the concept of involving breast cancer patients in the multidisciplinary (MD) treatment planning meeting...
  37. doi request reprint One size fits all? The discursive framing of cultural difference in health professional accounts of providing cancer care to Aboriginal people
    Christy E Newman
    National Centre in HIV Social Research, The University of New South Wales, Sydney, Australia
    Ethn Health 18:433-47. 2013
    ..The Aboriginal Patterns of Cancer Care Study explored barriers to and facilitators of cancer diagnosis and treatment among Aboriginal and Torres Strait Islander people in New South Wales...
  38. doi request reprint Quantity vs. quality: an exploration of the predictors of posttreatment sexual adjustment for women affected by early stage cervical and endometrial cancer
    Ilona Juraskova
    Centre for Medical Psychology and Evidence Based Decision Making CeMPED, School of Psychology, The University of Sydney, Sydney, NSW, Australia
    J Sex Med 9:2952-60. 2012
    ....
  39. doi request reprint When the risks are high: psychological adjustment among melanoma survivors at high risk of developing new primary disease
    Jordana McLoone
    School of Women s and Children s Health, University of New South Wales, Kensington, New South Wales, Australia
    Qual Health Res 22:1102-13. 2012
    ..The expertise of the High Risk Clinic physicians was perceived as instrumental in creating a sense of reassurance...
  40. ncbi request reprint Support and training needs of cancer support group leaders: a review
    Melanie Price
    Medical Psychology Research Unit, School of Psychology, University of Sydney, Australia
    Psychooncology 15:651-63. 2006
    ..Further research is needed to provide an evidence base for group leader training and to evaluate the impact of such training on both leader and patient outcomes...
  41. doi request reprint A comparison of male attendees and nonattendees at a familial cancer clinic
    Elizabeth A Lobb
    Calvary Health Care Sydney, Kogarah, New South Wales, Australia
    Genet Med 11:806-11. 2009
    ..This retrospective descriptive Australian study aimed to determine predictors of nonattendance at a familial cancer clinic by men from high-risk breast/ovarian cancer families...
  42. ncbi request reprint A systematic review on communicating with patients about evidence
    Lyndal J Trevena
    Screening and Test Evaluation Program, School of Public Health, University of Sydney, Sydney, NSW, Australia
    J Eval Clin Pract 12:13-23. 2006
    ..A case scenario is used to illustrate some of the difficulties of putting these results into practice...
  43. doi request reprint Implementing patient decision support tools: moving beyond academia?
    James D Harrison
    Surgical Outcomes Research Centre, Sydney South West Area Health Service and School of Public Health, University of Sydney, Sydney, NSW, Australia
    Patient Educ Couns 76:120-5. 2009
    ..To ascertain the feasibility of implementing three decision support tools (DSTs) for people with rectal cancer within the surgical consultation...
  44. ncbi request reprint 'What does it mean?' Uncertainty, trust and communication following treatment for pre-cancerous cervical abnormalities
    Ilona Juraskova
    Medical Psychology Research Unit, School of Psychology, University of Sydney, NSW 2006, Australia
    Psychooncology 16:525-33. 2007
    ..The majority of women acknowledged the importance of the doctor's empathic communication style. These findings have important implications for future studies and clinical practice...
  45. doi request reprint Identifying research priorities and research needs among health and research professionals in psycho-oncology
    Monika Dzidowska
    Psycho oncology Co operative Research Group PoCoG, School of Psychology, The University of Sydney, Sydney, New South Wales, Australia
    Asia Pac J Clin Oncol 6:165-72. 2010
    ..To identify and prioritize the key research questions in psycho-oncology in order to guide the development of large multicenter clinically relevant studies...
  46. ncbi request reprint Measuring patient preference and surgeon choice
    Jane M Young
    Surgical Outcomes Research Centre, University of Sydney and Royal Prince Albert Hospital, Sydney, Australia
    Surgery 143:582-8. 2008
    ..We also present a simple method to measure individual and community equipoise among expert clinicians to assess the feasibility of future randomized trials in surgery...
  47. ncbi request reprint After cancer: the unmet supportive care needs of survivors and their partners
    Katharine Hodgkinson
    Westmead Centre for Gynecological Cancer, Westmead Hospital, NSW, Australia
    J Psychosoc Oncol 25:89-104. 2007
    ..The identification of unique needs of survivors and partners supports the development of supportive care measures to specifically assess ongoing care need in these populations...
  48. ncbi request reprint Are visiting oncologists enough? A qualitative study of the needs of Australian rural and regional cancer patients, carers and health professionals
    Peter Grimison
    Sydney Cancer Centre, Camperdown, NSW, Australia
    Asia Pac J Clin Oncol 9:226-38. 2013
    ..We conducted a qualitative study of rural patients, carers and health professionals. It aimed to identify concerns about, and strategies to optimize cancer care from those with direct experience...
  49. doi request reprint A comparison of data quality and practicality of online versus postal questionnaires in a sample of testicular cancer survivors
    Allan ben Smith
    University of Sydney, Psycho oncology Co operative Research Group PoCoG, Sydney, NSW, Australia
    Psychooncology 22:233-7. 2013
    ..We aimed to compare data quality from online and postal questionnaires and to evaluate the practicality of these different questionnaire modes in a cancer sample...
  50. doi request reprint A model of professional development for practicing genetic counselors: adaptation of communication skills training in oncology
    Kate L Dunlop
    Centre for Genetics Education NSW Health, Royal North Shore Hospital, St Leonards, Sydney, Australia
    J Genet Couns 20:217-30. 2011
    ..The high level of satisfaction is a strong endorsement for ongoing communication skills training in this format as part of professional development...
  51. doi request reprint Does routine psychological screening of newly diagnosed rural cancer patients lead to better patient outcomes? Results of a pilot study
    Belinda Thewes
    Centre for Medical Psychology and Evidence Based Decision Making, School of Psychology, Brennan McCallum A18, University of Sydney, New South Wales, 2006, Australia
    Aust J Rural Health 17:298-304. 2009
    ..Few studies have reported on the impact of screening on patient outcomes or clinical practice and research describing the implementation of psychosocial screening in rural services is scarce...
  52. doi request reprint Survivorship care after breast cancer: follow-up practices of Australian health professionals and attitudes to a survivorship care plan
    Meagan E Brennan
    Patricia Ritchie Centre for Cancer Care and Research, Mater Hospital, Sydney, New South Wales, Australia
    Asia Pac J Clin Oncol 6:116-25. 2010
    ..This study explored the follow-up practices of health professionals and their attitudes to alternative models such as shared care and the use of a survivorship care plan...
  53. doi request reprint A randomized controlled trial of a standardized educational intervention for patients with cancer pain
    Melanie R Lovell
    Greenwich Hospital, Greenwich, New South Wales, Australia
    J Pain Symptom Manage 40:49-59. 2010
    ..Published literature has not defined the effectiveness of standardized educational tools that can be self-administered in the general oncology population with pain...
  54. ncbi request reprint What do patients want? Patient preferences and surrogate decision making in the treatment of colorectal cancer
    Michael J Solomon
    Surgicak Outcomes Research Center SOuRCe, University of Sydney, Sydney, Australia
    Dis Colon Rectum 46:1351-7. 2003
    ..This study investigated whether patients are able to trade survival for quality of life as a means to express their preference for treatment options and to compare their preferences with those expressed by clinicians...
  55. ncbi request reprint Development of the measure of ovarian symptoms and treatment concerns: aiming for optimal measurement of patient-reported symptom benefit with chemotherapy for symptomatic ovarian cancer
    Madeleine T King
    School of Psychology and Psycho Oncology Cooperative Research Group PoCoG, University of Sydney, Sydney, NSW, Australia and ANZGOG, Sydney, NSW, Australia and NHMRC Clinical Trials Centre, University of Sydney, University of Sydney, Sydney, NSW, Australia Princess Margaret Hospital, Toronto, Ontario, Canada and School of Nursing, University of Pittsburgh, Pittsburgh, PA
    Int J Gynecol Cancer 24:865-73. 2014
    ..The aim of this study was to determine the optimal patient-reported outcome measure (PROM) for assessing symptom benefit in trials of palliative chemotherapy for women with symptomatic ovarian cancer...
  56. doi request reprint The Quality of Life Questionnaire Core 30 (QLQ-C30) and Functional Assessment of Cancer-General (FACT-G) differ in responsiveness, relative efficiency, and therefore required sample size
    Madeleine T King
    Psycho oncology Co operative Research Group PoCoG, School of Psychology, University of Sydney, New South Wales, Australia 2006 Electronic address
    J Clin Epidemiol 67:100-7. 2014
    ..We aimed to compare their responsiveness with clinically important effects and statistical efficiency to detect such effects...
  57. doi request reprint Family information needs at childhood cancer treatment completion
    Claire E Wakefield
    Centre for Children s Cancer and Blood Disorders, Sydney Children s Hospital SCH, Randwick, New South Wales, Australia
    Pediatr Blood Cancer 58:621-6. 2012
    ..This mixed-methods, multiperspective, study explored the information needs of families of childhood cancer survivors in the first year post-treatment...
  58. ncbi request reprint Long-term survival from gynecologic cancer: psychosocial outcomes, supportive care needs and positive outcomes
    Katharine Hodgkinson
    Department of Gynecologic Cancer, Westmead Hospital, Westmead, and Department of Psychological Medicine, University of Sydney, NSW 2006, Australia
    Gynecol Oncol 104:381-9. 2007
    ..To assess the long-term psychosocial outcomes and supportive care needs of gynecologic cancer survivors...
  59. ncbi request reprint The relationship between available support, unmet needs and caregiver burden in patients with advanced cancer and their carers
    Louise Sharpe
    Clinical Psychology Unit F12, School of Psychology, The University of Sydney, NSW Australia
    Psychooncology 14:102-14. 2005
    ..Health care professionals should encourage opportunities for carers to discuss their views of the ongoing needs of patients with advanced cancer...
  60. ncbi request reprint Changes in quality of life in patients with advanced cancer: evidence of response shift and response restriction
    Louise Sharpe
    Clinical Psychology Unit F12, School of Psychology, The University of Sydney, NSW Australia
    J Psychosom Res 58:497-504. 2005
    ..Response shift is a process argued to facilitate adjustment to illness. This study investigated the relationship between response shift and adjustment...
  61. ncbi request reprint Symptom control in patients with recurrent ovarian cancer: measuring the benefit of palliative chemotherapy in women with platinum refractory/resistant ovarian cancer
    Michael Friedlander
    Prince of Wales Hospital, Sydney, New South Wales, Australia
    Int J Gynecol Cancer 19:S44-8. 2009
    ..In addition, this study will give us an insight into how all patients are managed rather than a select minority who are treated in clinical trials...
  62. ncbi request reprint Short- and long-term impact of receiving genetic mutation results in women at increased risk for hereditary breast cancer
    Jacqueline Lim
    Psychological Medicine, Royal North Shore Hospital, Sydney, Australia
    J Genet Couns 13:115-33. 2004
    ..Most carriers reported no change in lifestyle although some reported discovering their mutation status as a positive life-changing experience. Implications for genetic counseling and further research are discussed...
  63. ncbi request reprint Psychological morbidity in women at increased risk of developing breast cancer: a controlled study
    Phyllis Butow
    Medical Psychology Research Unit, University of Sydney, Australia
    Psychooncology 14:196-203. 2005
    ..These results refute the hypothesis that women with a family history of breast cancer are at greater psychological risk...
  64. ncbi request reprint Medical Qigong for cancer patients: pilot study of impact on quality of life, side effects of treatment and inflammation
    Byeongsang Oh
    School of Public Health, Faculty of Medicine, The University of Sydney, Camperdown, NSW 2006, Australia
    Am J Chin Med 36:459-72. 2008
    ..Data from the pilot study suggest that MQ with usual medical treatment can enhance the QOL of cancer patients and reduce inflammation. This study needs a further investigation with a larger sample size...
  65. ncbi request reprint The motherhood choice: a decision aid for women with multiple sclerosis
    Martine C Prunty
    School of Psychology, Brennan MacCallum Building A18, Medical Psychology Research Unit, University of Sydney, NSW 2006, Australia
    Patient Educ Couns 71:108-15. 2008
    ..This randomized controlled trial aimed to evaluate a decision aid for women with multiple sclerosis deciding whether to start or enlarge their families...
  66. doi request reprint Patient and oncologist estimates of survival in advanced cancer patients
    Steven C H Kao
    Department of Medical Oncology, Sydney Cancer Centre, Concord Hospital, Concord, New South Wales, Australia
    Psychooncology 20:213-8. 2011
    ..There is little information about the accuracy of patient perceptions of their life expectancy. Here, we compare patient perceptions of their outlook and their oncologist's estimates of life expectancy to actual survival...
  67. pmc Advancing the evidence base in cancer: psychosocial multicenter trials
    Robert Sanson-Fisher
    The University of Newcastle, University Drive, Callaghan, NSW, 2308, Australia
    Trials 13:171. 2012
    ..To strengthen the evidence base, more intervention studies employing methodologically rigorous research designs are necessary...
  68. doi request reprint Evaluating the utility of a patient decision aid for potential participants of a prostate cancer trial (RAVES-TROG 08.03)
    Puma Sundaresan
    Department of Radiation Oncology, Royal Prince Alfred Hospital, Camperdown, Australia
    Radiother Oncol 101:521-4. 2011
    ..The current DA was of use for 95% of participants. Further evaluation of the DA in a RCT is currently underway...
  69. ncbi request reprint Information about tests for breast cancer: what are we telling people?
    Emily Croft
    Screening Test Evaluation Program, School of Public Health, University of Sydney, NSW 2006, Australia
    J Fam Pract 51:858-60. 2002
    ..Eighteen percent of publications provided some (generally qualitative) information about test accuracy, and none provided quantitative information about the probability of disease given normal and abnormal test results...
  70. doi request reprint Parental adjustment to the completion of their child's cancer treatment
    Claire E Wakefield
    Centre for Children s Cancer and Blood Disorders, Sydney Children s Hospital, Randwick, NSW, Australia
    Pediatr Blood Cancer 56:524-31. 2011
    ..Continued psychosocial support specifically targeting parents' risk perceptions, physical and emotional fatigue, social isolation, and parenting concerns post-treatment is warranted...
  71. pmc Interventions before consultations to help patients address their information needs by encouraging question asking: systematic review
    Paul Kinnersley
    Neuadd Meirionydd, School of Medicine, Cardiff University, Cardiff CF14 4XN
    BMJ 337:a485. 2008
    ..To assess the effects on patients, clinicians, and the healthcare system of interventions before consultations to help patients or their representatives gather information in consultations by question asking...
  72. ncbi request reprint Patient entry into randomized controlled trials of colorectal cancer treatment: factors influencing participation
    Michael J Solomon
    Surgical Outcomes Research Centre SOURCE, Central Sydney Area Health Service and University of Sydney, Australia
    Surgery 133:608-13. 2003
    ..The objective of this study was to investigate willingness to participate in hypothetical surgical randomized controlled trials (RCTs) among patients and clinicians, who answered as if they themselves were patients...
  73. ncbi request reprint Is it worth the risk? A systematic review of instruments that measure risk propensity for use in the health setting
    James D Harrison
    Surgical Outcomes Research Centre SOURCE, Central Sydney Area Health Service and the University of Sydney, P O Box M157, Missenden Rd, NSW 2050, Australia
    Soc Sci Med 60:1385-96. 2005
    ..The further adaptation and validation of these instruments among older adults are important avenues for future research...
  74. ncbi request reprint Pushing up daisies: implicit and explicit language in oncologist-patient communication about death
    Keri L Rodriguez
    Center for Health Equity Research and Promotion, VA Pittsburgh Healthcare System 151C U, Rm 1A115, Bldg 28, Pittsburgh, PA 15240 1000, USA
    Support Care Cancer 15:153-61. 2007
    ..This study was designed to qualitatively analyze the language that oncologists and cancer patients use when talking about death...
  75. ncbi request reprint Beyond scientific rigour: funding cancer research of public value
    Carla Saunders
    School of Medicine and Public Health, The University of Newcastle, Wallsend, NSW 2287, Australia
    Health Policy 84:234-42. 2007
    ....
  76. pmc Developing a quality criteria framework for patient decision aids: online international Delphi consensus process
    Glyn Elwyn
    Department of General Practice, Centre for Health Sciences Research, Cardiff University, Cardiff CF14 4YS
    BMJ 333:417. 2006
    ..To develop a set of quality criteria for patient decision support technologies (decision aids)...
  77. ncbi request reprint Comparison of group and individual cognitive-behavioral therapy for patients with bulimia nervosa
    Eunice Chen
    Yale Center of Eating and Weight Disorders, Department of Psychology, Yale University, PO Box 208205, New Haven, CT 06520 8205, USA
    Int J Eat Disord 33:241-54; discussion 255-6. 2003
    ..The clinical effectiveness of group and individual cognitive-behavioral therapy (CBT) for bulimia nervosa (BN) was compared...
  78. ncbi request reprint Improving informed consent in clinical trials: successful piloting of a decision aid
    Ilona Juraskova
    J Clin Oncol 25:1443-4; author reply 1444. 2007