Research Topics
| Phyllis ButowSummaryAffiliation: University of Sydney Country: Australia Publications
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Detail Information
Publications
Psychosocial predictors of survival: metastatic breast cancerP N Butow
Medical Psychology Unit, University of Sydney and Royal North Shore Hospital, NSW, Australia
Ann Oncol 11:469-74. 2000..Recently we reported associations between psychological factors and survival in patients with metastatic melanoma. We now report a replication of this study in a sample of women with metastatic breast cancer...
Epidemiological evidence for a relationship between life events, coping style, and personality factors in the development of breast cancerP N Butow
Department of Psychological Medicine, Royal North Shore Hospital, and University of Sydney, NWS 2065, Australia
J Psychosom Res 49:169-81. 2000..Review empirical evidence for a relationship between psychosocial factors and breast cancer development...
Oncologists' reactions to cancer patients' verbal cuesP N Butow
Medical Psychology Unit, University of Sydney, NSW, Australia
Psychooncology 11:47-58. 2002..Cues can be addressed without lengthening the consultation or increasing patient anxiety...
Communicating prognosis to patients with metastatic disease: what do they really want to know?P N Butow
Medical Psychology Unit Blackburn Building D06, University of Sydney, Camperdown NSW 2006, Australia
Support Care Cancer 10:161-8. 2002..A quantitative study obtaining feedback from a large and representative sample of patients with metastatic cancer is now in progress, to confirm patient preferences for the communication styles identified in this qualitative study...
Cancer consultation preparation package: changing patients but not physicians is not enoughPhyllis Butow
Medical Psychology Research Unit, University of Sydney, Sydney, NSW 2006, Australia
J Clin Oncol 22:4401-9. 2004..This study evaluated a cancer consultation preparation package (CCPP) designed to facilitate patient involvement in the oncology consultation...
Psychological outcomes and risk perception after genetic testing and counselling in breast cancer: a systematic reviewPhyllis N Butow
Medical Psychology Research Unit, Blackburn Building D06, University of Sydney, NSW 2006, Australia
Med J Aust 178:77-81. 2003..To conduct a systematic review of the effects of genetic counselling and testing for familial breast cancer on women's perception of risk and psychological morbidity...
Psychological morbidity in women at increased risk of developing breast cancer: a controlled studyPhyllis Butow
Medical Psychology Research Unit, University of Sydney, Australia
Psychooncology 14:196-203. 2005..These results refute the hypothesis that women with a family history of breast cancer are at greater psychological risk...
Sharing vs. caring--the relative impact of sharing decisions versus managing emotions on patient outcomesALLAN SMITH
CeMPED, School of Psychology, University of Sydney, NSW, Australia
Patient Educ Couns 82:233-9. 2011..To assess the relative impact of cognitive and emotional aspects of shared decision making (SDM) on patient outcomes...
Sustaining leaders of cancer support groups: the role, needs, and difficulties of leadersPhyllis Butow
Medical Psychology Research Unit, School of Psychology, University of Sydney, Brennan MacCallum Bldg, A18, Sydney, NS, 2006, Australia
Soc Work Health Care 42:39-55. 2005..There is clearly a need to develop and evaluate effective interventions to maintain leaders in these roles, if the proven benefits for cancer patients are to be protected...
Shared decision making coding systems: how do they compare in the oncology context?Phyllis Butow
Centre for Medical Psychology and Evidence Based Decision Making CeMPED, School of Psychology, University of Sydney, Camperdown, NSW 2006, Australia
Patient Educ Couns 78:261-8. 2010....
Australian breast cancer specialists' involvement in multidisciplinary treatment planning meetingsJames D Harrison
Surgical Outcomes Research Centre, Sydney South West Area Health Service, University of Sydney, Sydney, NSW, Australia
Breast 17:335-40. 2008..Suggested improvements included that all key personnel attend, meetings are structured and that the views of all be heard. Work is needed to ensure MDT's function and co-operate as intended in treatment planning meetings...
Differences in individual approaches: communication in the familial breast cancer consultation and the effect on patient outcomesElizabeth A Lobb
Medical Psychology Research Unit, Department of Psychology, The University of Sydney, Sydney, New South Wales, Australia
J Genet Couns 14:43-53. 2005..Communication skills may be a useful area to explore further in this field...
Effects of life event stress and social support on the odds of a >or= 2 cm breast cancerAnne Kricker
School of Public Health, University of Sydney, Edward Ford Building A27, Sydney, NSW 2006, Australia
Cancer Causes Control 20:437-47. 2009..To examine the contribution of life event and social support factors to diagnosis with a >or= 2 cm breast cancer...
The Cancode interaction analysis system in the oncological setting: reliability and validity of video and audio tape codingElizabeth Dent
Medical Psychology Research Unit, University of Sydney, Blackburn Building (D06, Sydney 2006, Australia
Patient Educ Couns 56:35-44. 2005..65). Cancode is reliable, valid and sensitive to doctors behavioral changes. For a more passive patient, the doctor may switch from a 'cure' to 'care' oriented consult, responding to psycho-social instead of informational needs...
Measuring the impact of nurse cue-response behaviour on cancer patients' emotional cuesMayumi Oguchi
School of Psychology, University of Sydney, NSW, Australia
Patient Educ Couns 82:163-8. 2011..This study aimed to explore the impact of nurse responses to patients' and family members' emotional cues and concerns during the chemotherapy education consultation...
Development and feasibility assessment of telephone-delivered supportive care to improve outcomes for patients with colorectal cancer: pilot study of the CONNECT interventionJane Young
Surgical Outcomes Research Centre, University of Sydney and Sydney South West Area Health Service, PO Box M157, Missenden Rd, Sydney, NSW 2050, Australia
Support Care Cancer 18:461-70. 2010..This study aims to describe a pilot study of the feasibility, acceptability and likely impact of a nurse-delivered, telephone intervention to reduce unmet need and improve quality of life for surgical patients with colorectal cancer...
Breast cancer survivors' supportive care needs 2-10 years after diagnosisKatharine Hodgkinson
Department of Gynecological Cancer, Westmead Hospital, Westmead, NSW, Australia
Support Care Cancer 15:515-23. 2007..The aim of this study was to identify longer-term outcomes and supportive care needs in disease-free breast cancer survivors...
The gains and pains of being a cancer support group leader: a qualitative survey of rewards and challengesPhyllis Butow
Centre for Medical Psychology and Evidence Based Decision Making, School of Psychology, University of Sydney, Camperdown, NSW, Australia
Soc Work Health Care 48:750-67. 2009..These were integrated into a model depicting key positive and negative aspects of the CSGL's role, to provide direction for future training and ongoing support of CSGLs...
Grappling with cultural differences; communication between oncologists and immigrant cancer patients with and without interpretersPhyllis Butow
University of Sydney, NSW, Australia
Patient Educ Couns 84:398-405. 2011..Immigrants report challenges communicating with their health team. This study compared oncology consultations of immigrants with and without interpreters vs Anglo-Australian patients...
Discussing complementary therapy use with early-stage breast cancer patients: exploring the communication gapIlona Juraskova
Centre for Medical Psychology and Evidence Based Decision Making, University of Sydney, NSW 2006, Australia
Integr Cancer Ther 9:168-76. 2010....
The use and perceived benefits resulting from the use of complementary and alternative medicine by cancer patients in AustraliaByeongsang Oh
Department of Medicine, University of Sydney, Concord Repatriation General Hospital, Concord, New South Wales, Australia
Asia Pac J Clin Oncol 6:342-9. 2010..The aim of this study was to evaluate CAM use by cancer patients and to explore their perceptions of the benefit, safety and efficacy of CAM in general...
Communicating risk information: the influence of graphical display format on quantitative information perception-Accuracy, comprehension and preferencesMelanie Price
Medical Psychology Research Unit, University of Sydney, Australia
Patient Educ Couns 69:121-8. 2007..The aim of this study is to determine the features of 1000 person frequency diagrams (pictographs) which result in the greatest speed and accuracy of graphical perception...
A systematic review on communicating with patients about evidenceLyndal J Trevena
Screening and Test Evaluation Program, School of Public Health, University of Sydney, Sydney, NSW, Australia
J Eval Clin Pract 12:13-23. 2006..A case scenario is used to illustrate some of the difficulties of putting these results into practice...
Assessing health-related quality of life in gynecologic oncology: a systematic review of questionnaires and their ability to detect clinically important differences and changeTim Luckett
Psycho oncology Co operative Research Group, School of Psychology, University of Sydney, Sydney, New South Wales, Australia
Int J Gynecol Cancer 20:664-84. 2010....
After cancer: the unmet supportive care needs of survivors and their partnersKatharine Hodgkinson
Westmead Centre for Gynecological Cancer, Westmead Hospital, NSW, Australia
J Psychosoc Oncol 25:89-104. 2007..The identification of unique needs of survivors and partners supports the development of supportive care measures to specifically assess ongoing care need in these populations...
Health professional and consumer views on involving breast cancer patients in the multidisciplinary discussion of their disease and treatment planPhyllis Butow
School of Psychology, University of Sydney, Sydney, New South Wales, Australia
Cancer 110:1937-44. 2007..The aim was to obtain the views of health professionals and patients about the concept of involving breast cancer patients in the multidisciplinary (MD) treatment planning meeting...
What do patients want? Patient preferences and surrogate decision making in the treatment of colorectal cancerMichael J Solomon
Surgicak Outcomes Research Center SOuRCe, University of Sydney, Sydney, Australia
Dis Colon Rectum 46:1351-7. 2003..This study investigated whether patients are able to trade survival for quality of life as a means to express their preference for treatment options and to compare their preferences with those expressed by clinicians...
Identifying research priorities and research needs among health and research professionals in psycho-oncologyMonika Dzidowska
Psycho oncology Co operative Research Group PoCoG, School of Psychology, The University of Sydney, Sydney, New South Wales, Australia
Asia Pac J Clin Oncol 6:165-72. 2010..To identify and prioritize the key research questions in psycho-oncology in order to guide the development of large multicenter clinically relevant studies...
Support and training needs of cancer support group leaders: a reviewMelanie Price
Medical Psychology Research Unit, School of Psychology, University of Sydney, Australia
Psychooncology 15:651-63. 2006..Further research is needed to provide an evidence base for group leader training and to evaluate the impact of such training on both leader and patient outcomes...
Increasing oncologists' skills in eliciting and responding to emotional cues: evaluation of a communication skills training programPhyllis Butow
Medical Psychology Research Unit, School of Psychology, Brenan McCallum Building, A18, University of Sydney, Camperdown, NSW 2006, Australia
Psychooncology 17:209-18. 2008..Psychological morbidity in cancer patients is common, but often undetected and untreated. We developed a communication skills training (CST) program targeting this issue, and evaluated its impact on doctor behaviour...
'What does it mean?' Uncertainty, trust and communication following treatment for pre-cancerous cervical abnormalitiesIlona Juraskova
Medical Psychology Research Unit, School of Psychology, University of Sydney, NSW 2006, Australia
Psychooncology 16:525-33. 2007..The majority of women acknowledged the importance of the doctor's empathic communication style. These findings have important implications for future studies and clinical practice...
A qualitative analysis of reasons for leaving, or not attending, a cancer support groupJane M Ussher
Gender, Culture and Health Research Unit PsyHealth, School of Psychology, University of Western Sydney, NSW, Australia
Soc Work Health Care 47:14-29. 2008..These disparate factors underlying support group non-attendance need to be taken into consideration when planning support services, when developing programs of education, or when referrals to cancer support groups are made...
Short- and long-term impact of receiving genetic mutation results in women at increased risk for hereditary breast cancerJacqueline Lim
Psychological Medicine, Royal North Shore Hospital, Sydney, Australia
J Genet Couns 13:115-33. 2004..Most carriers reported no change in lifestyle although some reported discovering their mutation status as a positive life-changing experience. Implications for genetic counseling and further research are discussed...
Measuring patient preference and surgeon choiceJane M Young
Surgical Outcomes Research Centre, University of Sydney and Royal Prince Albert Hospital, Sydney, Australia
Surgery 143:582-8. 2008..We also present a simple method to measure individual and community equipoise among expert clinicians to assess the feasibility of future randomized trials in surgery...
Does routine psychological screening of newly diagnosed rural cancer patients lead to better patient outcomes? Results of a pilot studyBelinda Thewes
Centre for Medical Psychology and Evidence Based Decision Making, School of Psychology, Brennan McCallum A18, University of Sydney, New South Wales, 2006, Australia
Aust J Rural Health 17:298-304. 2009..Few studies have reported on the impact of screening on patient outcomes or clinical practice and research describing the implementation of psychosocial screening in rural services is scarce...
Survivorship care after breast cancer: follow-up practices of Australian health professionals and attitudes to a survivorship care planMeagan E Brennan
Patricia Ritchie Centre for Cancer Care and Research, Mater Hospital, Sydney, New South Wales, Australia
Asia Pac J Clin Oncol 6:116-25. 2010..This study explored the follow-up practices of health professionals and their attitudes to alternative models such as shared care and the use of a survivorship care plan...
Implementing patient decision support tools: moving beyond academia?James D Harrison
Surgical Outcomes Research Centre, Sydney South West Area Health Service and School of Public Health, University of Sydney, Sydney, NSW, Australia
Patient Educ Couns 76:120-5. 2009..To ascertain the feasibility of implementing three decision support tools (DSTs) for people with rectal cancer within the surgical consultation...
Family information needs at childhood cancer treatment completionClaire E Wakefield
Centre for Children s Cancer and Blood Disorders, Sydney Children s Hospital SCH, Randwick, New South Wales, Australia
Pediatr Blood Cancer 58:621-6. 2012..This mixed-methods, multiperspective, study explored the information needs of families of childhood cancer survivors in the first year post-treatment...
Information about tests for breast cancer: what are we telling people?Emily Croft
Screening Test Evaluation Program, School of Public Health, University of Sydney, NSW 2006, Australia
J Fam Pract 51:858-60. 2002..Eighteen percent of publications provided some (generally qualitative) information about test accuracy, and none provided quantitative information about the probability of disease given normal and abnormal test results...
A model of professional development for practicing genetic counselors: adaptation of communication skills training in oncologyKate L Dunlop
Centre for Genetics Education NSW Health, Royal North Shore Hospital, St Leonards, Sydney, Australia
J Genet Couns 20:217-30. 2011..The high level of satisfaction is a strong endorsement for ongoing communication skills training in this format as part of professional development...
Who helps the leaders? Difficulties experienced by cancer support group leadersLaura Kirsten
Medical Psychology Research Unit, School of Psychology, Brennan MacCallum Building A18, University of Sydney, New South Wales, 2006, Australia
Support Care Cancer 14:770-8. 2006..The aim of this study was to discover the difficulties experienced and training desired by cancer support group leaders...
Changes in quality of life in patients with advanced cancer: evidence of response shift and response restrictionLouise Sharpe
Clinical Psychology Unit F12, School of Psychology, The University of Sydney, NSW Australia
J Psychosom Res 58:497-504. 2005..Response shift is a process argued to facilitate adjustment to illness. This study investigated the relationship between response shift and adjustment...
The relationship between available support, unmet needs and caregiver burden in patients with advanced cancer and their carersLouise Sharpe
Clinical Psychology Unit F12, School of Psychology, The University of Sydney, NSW Australia
Psychooncology 14:102-14. 2005..Health care professionals should encourage opportunities for carers to discuss their views of the ongoing needs of patients with advanced cancer...
A critical review of the effects of medical Qigong on quality of life, immune function, and survival in cancer patientsByeongsang Oh
Sydney Medical School, University of Sydney, Sydney, New South Wales, Australia
Integr Cancer Ther 11:101-10. 2012..However, evidence for the safety and efficacy of such treatments is lacking. The purpose of the current review was to investigate evidence for the role of one CAM, medical Qigong (MQ), in supportive care...
Long-term survival from gynecologic cancer: psychosocial outcomes, supportive care needs and positive outcomesKatharine Hodgkinson
Department of Gynecologic Cancer, Westmead Hospital, Westmead, and Department of Psychological Medicine, University of Sydney, NSW 2006, Australia
Gynecol Oncol 104:381-9. 2007..To assess the long-term psychosocial outcomes and supportive care needs of gynecologic cancer survivors...
The motherhood choice: a decision aid for women with multiple sclerosisMartine C Prunty
School of Psychology, Brennan MacCallum Building A18, Medical Psychology Research Unit, University of Sydney, NSW 2006, Australia
Patient Educ Couns 71:108-15. 2008..This randomized controlled trial aimed to evaluate a decision aid for women with multiple sclerosis deciding whether to start or enlarge their families...
Quantity vs. Quality: An Exploration of the Predictors of Posttreatment Sexual Adjustment for Women Affected by Early Stage Cervical and Endometrial CancerIlona Juraskova
Centre for Medical Psychology and Evidence Based Decision Making CeMPED, School of Psychology, The University of Sydney, Sydney, NSW, Australia Psycho Oncology Co operative Research Group PoCoG, The University of Sydney, Sydney, NSW, Australia School of Psychology, The University of Sydney, Sydney, NSW, Australia Gynaecological Cancer Centre, Royal Hospital for Women, Randwick, NSW, Australia
J Sex Med 9:2952-60. 2012..Quantity vs. quality: An exploration of the predictors of posttreatment sexual adjustment for women affected by early stage cervical and endometrial cancer. J Sex Med 2012;9:2952-2960...
Symptom control in patients with recurrent ovarian cancer: measuring the benefit of palliative chemotherapy in women with platinum refractory/resistant ovarian cancerMichael Friedlander
Prince of Wales Hospital, Sydney, New South Wales, Australia
Int J Gynecol Cancer 19:S44-8. 2009..In addition, this study will give us an insight into how all patients are managed rather than a select minority who are treated in clinical trials...
Medical Qigong for cancer patients: pilot study of impact on quality of life, side effects of treatment and inflammationByeongsang Oh
School of Public Health, Faculty of Medicine, The University of Sydney, Camperdown, NSW 2006, Australia
Am J Chin Med 36:459-72. 2008..Data from the pilot study suggest that MQ with usual medical treatment can enhance the QOL of cancer patients and reduce inflammation. This study needs a further investigation with a larger sample size...
Review of adherence-related issues in adolescents and young adults with cancerPhyllis Butow
Centre for Medical Psychology and Evidence Based Decision Making, Research Group, University of Sydney, Sydney, New South Wales, Australia
J Clin Oncol 28:4800-9. 2010..Nonadherence can reduce treatment efficacy, which places the patient at higher risk of relapse, adverse effects, and poor outcomes...
Parental adjustment to the completion of their child's cancer treatmentClaire E Wakefield
Centre for Children s Cancer and Blood Disorders, Sydney Children s Hospital, Randwick, NSW, Australia
Pediatr Blood Cancer 56:524-31. 2011..Continued psychosocial support specifically targeting parents' risk perceptions, physical and emotional fatigue, social isolation, and parenting concerns post-treatment is warranted...
Is it worth the risk? A systematic review of instruments that measure risk propensity for use in the health settingJames D Harrison
Surgical Outcomes Research Centre SOURCE, Central Sydney Area Health Service and the University of Sydney, P O Box M157, Missenden Rd, NSW 2050, Australia
Soc Sci Med 60:1385-96. 2005..The further adaptation and validation of these instruments among older adults are important avenues for future research...
What do cancer support groups provide which other supportive relationships do not? The experience of peer support groups for people with cancerJane Ussher
Gender, Culture and Health Research Unit, PsyHealth, School of Psychology, University of Western Sydney, Locked Bag 1797, Penrith South DC, NSW 1797, Australia
Soc Sci Med 62:2565-76. 2006....
Beyond scientific rigour: funding cancer research of public valueCarla Saunders
School of Medicine and Public Health, The University of Newcastle, Wallsend, NSW 2287, Australia
Health Policy 84:234-42. 2007....
Patient entry into randomized controlled trials of colorectal cancer treatment: factors influencing participationMichael J Solomon
Surgical Outcomes Research Centre (SOuRCe, Central Sydney Area Health Service and University of Sydney, Australia
Surgery 133:608-13. 2003..Aversion to randomization and perceptions of differential impact of treatment on cancer recurrence and quality of life are likely to be major barriers to patient accrual in trials of colorectal cancer treatment...
Patient and physician preferences for surgical and adjuvant treatment options for rectal cancerJames D Harrison
BSc Hons, Surgical Outcomes Research Centre, Royal Prince Alfred Hospital, PO Box M157, Missenden Road, Sydney, New South Wales, Australia 2050
Arch Surg 143:389-94. 2008..Patients and their clinicians hold varying preferences for surgical and adjuvant treatment therapies for rectal cancer...
Pushing up daisies: implicit and explicit language in oncologist-patient communication about deathKeri L Rodriguez
Center for Health Equity Research and Promotion, VA Pittsburgh Healthcare System 151C U, Rm 1A115, Bldg 28, Pittsburgh, PA 15240 1000, USA
Support Care Cancer 15:153-61. 2007..This study was designed to qualitatively analyze the language that oncologists and cancer patients use when talking about death...
Interventions before consultations to help patients address their information needs by encouraging question asking: systematic reviewPaul Kinnersley
Neuadd Meirionydd, School of Medicine, Cardiff University, Cardiff CF14 4XN
BMJ 337:a485. 2008..To assess the effects on patients, clinicians, and the healthcare system of interventions before consultations to help patients or their representatives gather information in consultations by question asking...
Improving informed consent in clinical trials: successful piloting of a decision aidIlona Juraskova
J Clin Oncol 25:1443-4; author reply 1444. 2007
Developing a quality criteria framework for patient decision aids: online international Delphi consensus processGlyn Elwyn
Department of General Practice, Centre for Health Sciences Research, Cardiff University, Cardiff CF14 4YS
BMJ 333:417. 2006..To develop a set of quality criteria for patient decision support technologies (decision aids)...
Comparison of group and individual cognitive-behavioral therapy for patients with bulimia nervosaEunice Chen
Yale Center of Eating and Weight Disorders, Department of Psychology, Yale University, PO Box 208205, New Haven, CT 06520 8205, USA
Int J Eat Disord 33:241-54; discussion 255-6. 2003..The clinical effectiveness of group and individual cognitive-behavioral therapy (CBT) for bulimia nervosa (BN) was compared...
