Research Topics
| Linda AbetzSummaryAffiliation: Mapi Values Publications
| Collaborators
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Detail Information
Publications
Development of the Pediatric Restless Legs Syndrome Severity Scale (P-RLS-SS): a patient-reported outcome measure of pediatric RLS symptoms and impactRobert Arbuckle
Mapi Values Ltd, Cheshire, United Kingdom
Sleep Med 11:897-906. 2010..To develop a questionnaire to measure Pediatric Restless Legs Syndrome (P-RLS) symptoms and impact for use in clinical research...- Development and validation of the impact of dry eye on everyday life (IDEEL) questionnaire, a patient-reported outcomes (PRO) measure for the assessment of the burden of dry eye on patientsLinda Abetz
Mapi Values, Adelphi Mill, Grimshaw Lane, Bollington, Cheshire, SK10 5JB, UK
Health Qual Life Outcomes 9:111. 2011..To develop and validate a comprehensive patient-reported outcomes instrument focusing on the impact of dry eye on everyday life (IDEEL)... - Pain in castration-resistant prostate cancer with bone metastases: a qualitative studyAdam Gater
Mapi Values, Bollington, Cheshire, UK
Health Qual Life Outcomes 9:88. 2011..abstract:.. - Using qualitative methods to inform the trade-off between content validity and consistency in utility assessment: the example of type 2 diabetes and Alzheimer's diseaseClare McGrath
Health Technology Assessment Policy, Medical Division, Worldwide Pharmaceutical Operations, 3 1 60 Walton Oaks, Tadworth, Surrey KT20 7NS, UK
Health Qual Life Outcomes 8:23. 2010..This study explored the content of utility instruments relevant to type 2 diabetes and Alzheimer's disease (AD) as examples, and the role of qualitative research in informing the trade-off between content coverage and consistency... - The reliability, validity, and preliminary responsiveness of the Eye Allergy Patient Impact Questionnaire (EAPIQ)Michael Alexander
Niagara Clinical Research, 5673 North Street, Niagara Falls, Ont L2G1J4, Canada
Health Qual Life Outcomes 3:67. 2005..The purpose of this study was to present the results of the psychometric validation of the EAPIQ... - Development and validation of the WEll-being and Satisfaction of CAREgivers of Children with Diabetes Questionnaire (WE-CARE)Joseph C Cappelleri
Pfizer Global Research and Development, Groton, CT, USA
Health Qual Life Outcomes 6:3. 2008.... - The impact of iron overload and its treatment on quality of life: results from a literature reviewLinda Abetz
Mapi Values Ltd, Adelphi Mill, Grimshaw Lane, Bollington, Cheshire, SK10 5JB, UK
Health Qual Life Outcomes 4:73. 2006..Also, to obtain patients' experiences of having iron overload and receiving infusion ICT, and experts' clinical opinions about the impact of treatment on patients' lives... - The reliability, validity and responsiveness of the International Restless Legs Syndrome Study Group rating scale and subscales in a clinical-trial settingLinda Abetz
Mapi Values, Adelphi Mill, Grimshaw Lane, Bollington, Cheshire SK10 5JB, UK
Sleep Med 7:340-9. 2006..0), using pooled data from two matching, placebo-controlled studies of ropinirole for treating Restless Legs Syndrome (RLS)... - Development of the cancer therapy satisfaction questionnaire: item generation and content validity testingLinda Abetz
Mapi Values, Bollington, Cheshire, UK
Value Health 8:S41-53. 2005..This study was undertaken to develop a new questionnaire, the Cancer Therapy Satisfaction Questionnaire (CTSQ), to focus on the issues oncology patients consider when evaluating chemotherapy in terms of expectations and satisfaction... - The reliability, validity and responsiveness of the Restless Legs Syndrome Quality of Life questionnaire (RLSQoL) in a trial populationLinda Abetz
Mapi Values, Adelphi Mill, Bollington, Macclesfield, SK10 5JB, UK
Health Qual Life Outcomes 3:79. 2005..The aim of this study was to determine the reliability, validity and responsiveness of the Restless Legs Syndrome Quality of Life questionnaire (RLSQoL) in a clinical trial setting... - Validation of the Restless Legs Syndrome Quality of Life questionnaireLinda Abetz
Mapi Values Ltd, Macclesfield, Cheshire, UK
Value Health 8:157-67. 2005..The Restless Legs Syndrome Quality of Life questionnaire (RLSQoL) assesses the impact of RLS on daily life, emotional well-being, social life, and work life. This study investigates its validity and reliability... - Patient experiences with oily skin: the qualitative development of content for two new patient reported outcome questionnairesRobert Arbuckle
Mapi Values Ltd, Adelphi Mill, Grimshaw Lane, Bollington, Cheshire, UK
Health Qual Life Outcomes 6:80. 2008.... - Satisfaction and adherence in patients with iron overload receiving iron chelation therapy as assessed by a newly developed patient instrumentDiana Rofail
Mapi Values, Bollington, Cheshire, UK
Value Health 12:109-17. 2009..This study assesses satisfaction with iron chelation therapy (ICT) based on a reliable and valid instrument, and explores the relationship between satisfaction and adherence to ICT... - PRO development: rigorous qualitative research as the crucial foundationKathryn Eilene Lasch
Mapi Values, Boston, MA, USA
Qual Life Res 19:1087-96. 2010..The approach described combines an overarching phenomenological theoretical framework with grounded theory data collection and analysis methods to yield PRO items and scales that have content validity... - Alzheimer's disease treatment: assessing caregiver preferences for mode of treatment deliveryLinda Abetz
Mapi Values, Adelphi Mill, Grimshaw Lane, Bollington, Cheshire, SK10 5JB, UK
Adv Ther 26:627-44. 2009..This study describes the development of the Alzheimer's Disease Caregiver Preference Questionnaire (ADCPQ) to assess AD caregivers' satisfaction with and preference for patch or capsule treatments in AD patients... - Evaluating the quality of life of patients with restless legs syndromeLinda Abetz
Mapi Values Ltd, Bollington, Macclesfield, United Kingdom
Clin Ther 26:925-35. 2004..Although the condition is not life-threatening, assessing the disease burden and the impact of RLS on quality of life (QOL) is critical for evaluating treatment benefits... - Patient-reported outcomes of deferasirox (Exjade, ICL670) versus deferoxamine in sickle cell disease patients with transfusional hemosiderosis. Substudy of a randomized open-label phase II trialElliott Vichinsky
Children s Hospital and Research Center, Oakland, CA 94609, USA
Acta Haematol 119:133-41. 2008..However, resultant iron overload can be life threatening if untreated. Chelation therapy with deferoxamine requires parenteral infusions that can negatively impact quality of life and adherence to treatment... - Comparing the discriminative validity of two generic and one disease-specific health-related quality of life measures in a sample of patients with dry eyeKrithika Rajagopalan
AstraZeneca Pharmaceuticals, Wilmington, DE 76134 2099, USA
Value Health 8:168-74. 2005.... - A comprehensive strategy for the interpretation of quality-of-life data based on existing methodsPatrick Marquis
Mapi Values, Boston, MA 02108, USA
Value Health 7:93-104. 2004..Consequently, there is a need for a comprehensive interpretation strategy that gives results that are meaningful to a variety of audiences, including patients, clinicians, and decision-makers... - Identifying 'well-controlled' and 'not well-controlled' asthma using the Asthma Control QuestionnaireElizabeth F Juniper
Department of Clinical Epidemiology and Biostatistics, McMaster University, Hamilton, Canada
Respir Med 100:616-21. 2006.... - Identifying the clinical domains of fibromyalgia: contributions from clinician and patient Delphi exercisesPhillip J Mease
Seattle Rheumatology Associates, Seattle, Washington 98104, USA
Arthritis Rheum 59:952-60. 2008.... - Prospective evaluation of patient-reported outcomes during treatment with deferasirox or deferoxamine for iron overload in patients with beta-thalassemiaMaria Domenica Cappellini
Fondazione Policlinico IRCCS, Universitd di Milano, Milan, Italy
Clin Ther 29:909-17. 2007..Deferasirox is an orally administered iron chelator that has been approved for use in the United States, Switzerland, and other countries... - The relative burden of dry eye in patients' lives: comparisons to a U.S. normative samplePolyxane Mertzanis
Mapi Values, Boston, Massachusetts 02108, USA
Invest Ophthalmol Vis Sci 46:46-50. 2005..To assess the relative burden of dry eye in daily life by comparing Short Form-36 (SF-36) responses from individuals with and without dry eye against U.S. norms... - The relationship between habitual patient-reported symptoms and clinical signs among patients with dry eye of varying severityCarolyn G Begley
School of Optometry, Indiana University, Bloomington, Indiana 47405, USA
Invest Ophthalmol Vis Sci 44:4753-61. 2003..To investigate symptom profiles and clinical signs in subjects with dry eye and normal subjects in a cross-sectional multicenter study...