Research Topics
| S Von MackensenSummaryAffiliation: University of Hamburg Country: Germany Publications
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Detail Information
Publications
Quality of life and sports activities in patients with haemophiliaS Von Mackensen
Institute and Policlinic for Medical Psychology, University of Hamburg, Hamburg, Germany
Haemophilia 13:38-43. 2007..In conclusion, sports activities can improve not only physical well-being, but also the emotional and social well-being of persons with haemophilia and, therefore, should become part of the global approach to haemophilia management...- Prevalence of weather sensitivity in Germany and CanadaSylvia von Mackensen
Institute for Medical Psychology, Ludwig Maximilians University, Goethestrasse 31, 80336 Munich, Germany
Int J Biometeorol 49:156-66. 2005..These results clearly showed the important impact of WS on public health and the economy. These findings prompted us to start studies on the causal factors of weather-related health effects... - Disease-specific quality-of-life measurement tools for haemophilia patientsE Remor
Universidad Autonona de Madrid, 28049 Madrid, Spain
Haemophilia 10:30-4. 2004..These new measures show promise for use in clinical trials. Further research is in progress to complete the psychometric testing and cross-cultural validation... - Development and validation of a new questionnaire for the assessment of subjective physical performance in adult patients with haemophilia--the HEP-Test-QS Von Mackensen
Institute and Policlinics of Medical Psychology, University Medical Center Hamburg Eppendorf, Martinistrasse 52, Hamburg, Germany
Haemophilia 16:170-8. 2010.... - Development of a disease-specific quality of life questionnaire for children & adolescents with idiopathic thrombocytopenic purpura (ITP-QoL)S Von Mackensen
Institute and Policlinics for Medical Psychology, University Medical Centre, Hamburg, Germany, and Department of Clinical Sciences Malmö, Research Unit for Pediatric Hematology, University Hospital Malmo, Sweden
Pediatr Blood Cancer 47:688-91. 2006..Two age-group versions were designed for children (aged 3-7, 8-18 years) and parents in Italian, German, and Swedish languages and were pilot tested... - Content comparison of haemophilia specific patient-rated outcome measures with the international classification of functioning, disability and health (ICF, ICF-CY)Silvia Riva
Institute of Medical Psychology, Centre of Psychosocial Medicine, University Medical Centre Hamburg Eppendorf, Germany
Health Qual Life Outcomes 8:139. 2010..Patient-Reported Outcomes (PROs) are considered important outcomes because they reflect the patient's experience in clinical trials. PROs have been included in the field of haemophilia only recently... - Development and testing of an instrument to assess the Quality of Life of Children with Haemophilia in Europe (Haemo-QoL)S Von Mackensen
Institute and Policlinic for Medical Psychology, University Hospital of Hamburg Eppendorf, Hamburg, Germany
Haemophilia 10:17-25. 2004..The Haemo-QoL full version is now available for children of three age groups and their parents and is ready for use in clinical research... - Quality of life in women with bleeding disordersS Von Mackensen
Institute for Medical Psychology and Policlinics, Centre of Psychosocial Medicine, University Medical Centre of Hamburg Eppendorf, Hamburg, Germany
Haemophilia 17:33-7. 2011..The need of disease-specific instruments for an adequate assessment of HRQOL in women with bleeding disorders could be demonstrated in these studies... - The Haemo-QoL Index: developing a short measure for health-related quality of life assessment in children and adolescents with haemophiliaE Pollak
Institute and Policlinics of Medical Psychology, Centre of Psychosocial Medicine, University Hospital Hamburg-Eppendorf, Hamburg, Germany
Haemophilia 12:384-92. 2006..According to preliminary analyses, the index's psychometric performance concerning reliability and convergent validity is good. Further validation of the instrument's performance on a new and independent sample is needed... - The German version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ)I Foeldvari
Kinderrheumatologie, Hamburg, Germany
Clin Exp Rheumatol 19:S71-5. 2001..In conclusion the German versions of the CHAQ-CHQ are reliable, and valid tools for the functional, physical and psychosocial assessment of children with JIA... - Pilot testing of the 'Haemo-QoL' quality of life questionnaire for haemophiliac children in six European countriesM Bullinger
Department of Medical Psychology, University of Hamburg, Institute for Medical Psychology, University of Munich, Germany
Haemophilia 8:47-54. 2002..Preliminary psychometric testing of the revised 77 item questionnaire in the same sample showed acceptable reliability and validity, which will be examined in a subsequent study with a larger patient sample... - [Quality of life of young patients with haemophilia in Europe]Monika Bullinger
Universitätsklinikum Eppendorf Hamburg, BRD
Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz 51:637-45. 2008..The difference in quality of life across countries is a future major health-political challenge... - [The testing and validation of the German version of the impact on family scale in families with children with disabilities]U Ravens-Sieberer
Abteilung für Medizinische Psychologie, Universitatsklinikum Hamburg Eppendorf, Germany
Psychother Psychosom Med Psychol 51:384-93. 2001..The results suggest the applicability of the instrument to assess family impact of chronic disease and disability in children and adolescents... - [Investigation of the health-related quality of life after a dorso ventral stabilization of the thoracolumbar junction]D Briem
Klinik für Unfall, Hand und Wiederherstellungschirurgie, Universitatsklinikum Hamburg Eppendorf, Germany
Unfallchirurg 106:625-32. 2003..The aim of this investigation was to study the health-related quality of life after dorsoventral stabilization of the thoracolumbar junction using the SF-36 Health Survey... - [SF-36 Health Survey in Rehabilitation Research. Findings from the North German Network for Rehabilitation Research, NVRF, within the rehabilitation research funding program]M Bullinger
Arbeitsgruppe Lebensqualitätsforschung bei Erwachsenen und Kindern, Institut und Poliklinik für Medizinische Psychologie, Zentrum fur Psychosoziale Medizin, Universitatsklinikum Hamburg Eppendorf
Rehabilitation (Stuttg) 42:218-25. 2003..g. SCL-90-R) could be found. Summarizing, the SF-36/SF-12 can be recommended for use in rehabilitation research. Analyses regarding sensitivity should be conducted in future studies... - [Structural validity of the Short Form 36 (SF-36) in patients with rheumatic diseases]C Maurischat
Institut und Poliklinik für Medizinische Psychologie, Universitatsklinikum Hamburg Eppendorf, Martinistr 52, S 35, 20246, Hamburg, Germany
Z Rheumatol 64:255-64. 2005..Generic instruments offer the possibility to compare outcome among different indications; however for this it is necessary to prove the differential factorial validity of the instrument's structure... - Coping with chronic disease from the perspective of children and adolescents--a conceptual framework and its implications for participationS Schmidt
Department of Medical Psychology, University Hospital of Hamburg, Eppendorf, Hamburg, Germany
Child Care Health Dev 29:63-75. 2003..In the medical field, coping has a mediating function for participation and shared medical decision-making in health care processes... - [Testing and validation of the German version of the Stroke Impact Scale]C Petersen
Abteilung für Medizinische Psychologie, Universitatsklinikum Hamburg Eppendorf
Fortschr Neurol Psychiatr 69:284-90. 2001.... - [Subjective health and health behavior of children and adolescents--a survey of Hamburg students within the scope of school medical examination]U Ravens-Sieberer
Abteilung für Medizinische Psychologie, Universitat Hamburg
Gesundheitswesen 62:148-55. 2000.... - [Health-related quality of life in children and adolescents with juvenile idiopathic arthritis: which role do age, sex and medical parameters play?]C Petersen
Institut und Poliklinik für Medizinische Psychologie, Universitatsklinikum, Hamburg Eppendorf, Hamburg
Klin Padiatr 220:259-65. 2008..Within a European study health-related quality of life of children and adolescents with idiopathic arthritis was assessed. The results of the German sample will be presented... - Healthcare needs and healthcare satisfaction from the perspective of parents of children with chronic conditions: the DISABKIDS approach towards instrument developmentS Schmidt
Department of Medical Psychology, University Hospital of Hamburg Eppendorf, Hamburg, Germany
Child Care Health Dev 34:355-66. 2008.... - The psychological cost of aircraft noise for childrenM Bullinger
Department for Medical Psychology, University of Hamburg, Germany
Zentralbl Hyg Umweltmed 202:127-38. 1999..These findings are in accord with reports of impaired psychological health after noise exposure and indicate the relevance of monitoring psychological parameters as a function of environmental stressors among children... - Haemophilia & Exercise Project (HEP): subjective and objective physical performance in adult haemophilia patients--results of a cross-sectional studyD Czepa
Department of Sports Medicine, University of Wuppertal, Wuppertal, Germany
Haemophilia 18:80-5. 2012..As self-assessment did not always correlate highly with objective data, objective examinations of physical performance in PWH should be complemented with subjective perceptions... - Health status and health-related quality of life of children with haemophilia from six West European countriesA Gringeri
Angelo Bianchi Bonomi Haemophilia and Thrombosis Centre, Department of Internal Medicine, IRCCS Maggiore Hospital and University of Milan, Milan, Italy
Haemophilia 10:26-33. 2004..Health care of children in Western Europe is progressively improving with a large diffusion of home treatment and prophylaxis. This provides a high level of health status and HRQoL, being better in haemophilic adolescents on prophylaxis... - [Prevalence of weather sensitivity in Germany]P Hoppe
Institut und Poliklinik für Arbeits und Umweltmedizin der Ludwig Maximilians Universität, Munchen
Dtsch Med Wochenschr 127:15-20. 2002..As epidemiological data on prevalence of weather-related health effects were lacking we conducted a weather sensitivity (WS) survey in Germany...